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Article
Publication date: 29 March 2023

Gertrude Mwalabu, Catrin Evans, Sarah Redsell, Pammla Petruka and Patrick Mapulanga

This qualitative case study aims to investigate how current services meet the emotional needs of young women growing up with perinatally acquired human immunodeficiency virus…

Abstract

Purpose

This qualitative case study aims to investigate how current services meet the emotional needs of young women growing up with perinatally acquired human immunodeficiency virus (HIV). Young women (15–19 years old), caregivers and service providers were recruited through three multidisciplinary HIV management centres in Malawi.

Design/methodology/approach

In-depth interviews were used to collect data for 14 “cases” (each “case” involved a young woman, a caregiver and a service provider, for a total of 42 participants). The interviews with adolescents were conducted using an innovative visual method known as the “my story” book.

Findings

Thematic analysis revealed that young women experienced traumatic experiences and emotional neglect after being diagnosed as HIV positive. Lack of adult support networks and social isolation were identified as intersecting factors contributing to their mental distress. According to the findings of this study, HIV care should more explicitly include comprehensive mental health-care services. This provision should include ongoing individualised counselling sessions, supplemented by communication skills training to help break the prevalent cultural silence on HIV issues. Young people living with HIV, in general, and young women, are more likely to experience mental health issues than their non-infected peers. Integrating comprehensive mental health evaluation and treatment into HIV care for young people can be beneficial.

Practical implications

Mental health issues are critical and underserved challenges among young people living with perinatally acquired HIV. Women experience a higher prevalence of mental challenges than men. Integrating comprehensive mental health evaluation and treatment into HIV care for young people can be beneficial. Therefore, interventions to assist young people with mental health issues are needed within the context of HIV management in Malawi.

Originality/value

Many studies on mental health and HIV/AIDS have been conducted. However, there is very little information as regards the emotional needs of young women growing up with perinatally acquired HIV. This study fills the void.

Details

International Journal of Human Rights in Healthcare, vol. 17 no. 4
Type: Research Article
ISSN: 2056-4902

Keywords

Article
Publication date: 29 January 2024

Hasbi Alikunju and Anila Sulochana

The internet has evolved into an indispensable platform for seeking health information, particularly among transgender individuals. With an abundance of online resources…

Abstract

Purpose

The internet has evolved into an indispensable platform for seeking health information, particularly among transgender individuals. With an abundance of online resources available, extensive research into the credibility and reliability of this information is essential, as concerns about the quality of online resources persist. Transgender individuals are drawn to online health information due to the anonymity it offers, providing them with a sense of freedom from social isolation and the discomfort of experimenting with their transgender identity. However, it is crucial to assess the accuracy and reliability of the transgender health information available on the internet. This article aims to evaluate the quality of online transgender health resources by utilizing ten credibility indicators, along with six indicators to assess the veracity of the content.

Design/methodology/approach

A total of 179 online resources were meticulously reviewed after excluding any unnecessary and irrelevant ones, to ensure a comprehensive assessment.

Findings

The findings suggest that among the chosen resources, none of them meet all the criteria for maintaining high standards of accuracy and reliability in health information. In other words, none of these sources completely adhere to the established measures for ensuring that the information they provide is trustworthy and of high quality in the context of health.

Originality/value

The study provides valuable insights into the online realm of transgender health information, revealing both the strengths and weaknesses of the existing resources. By pinpointing areas that need enhancement and showcasing commendable practices, this research strives to promote a more knowledgeable and supportive online environment for individuals in search of transgender health information.

Details

Online Information Review, vol. 48 no. 5
Type: Research Article
ISSN: 1468-4527

Keywords

Article
Publication date: 6 August 2024

Zhenyi Tang, Pengyi Zhang, Yujia Li and Preben Hansen

To gain a deeper understanding of users’ health information adoption and to promote the effectiveness of health information spread in the context of online limited information…

Abstract

Purpose

To gain a deeper understanding of users’ health information adoption and to promote the effectiveness of health information spread in the context of online limited information, this paper aims to examine how the information-motivation-behavioural (IMB) skills model can be used to organize online health information by experimenting how different IMB elements (information, motivation and behavioural skills) affect users’ intention to adopt health information.

Design/methodology/approach

The authors conducted an experiment with 48 participants who received health articles with various combinations and sequences of IMB elements, analysing the impact on information adoption intention to share and practice. The authors also examined the mediation effect of information usefulness and the moderating effect of perceived health status.

Findings

The authors found that: users’ adoption intention of information was influenced by the order of used IMB elements, not the number of elements used; users were more likely to adopt information that started with behavioural skills rather than the model-prescribed IMB sequence; and perceived usefulness mediated the relationship between IMB elements and users’ adoption intention, which means users with different levels of health status all pay more attention to information usefulness and practicability.

Originality/value

The study contributes to research on health communication by showing how the IMB model can be applied online to enhance the effectiveness of health information dissemination. It can also help online health communities arrange more effective and engaging health messages to promote users’ willingness to adopt.

Details

The Electronic Library , vol. 42 no. 5
Type: Research Article
ISSN: 0264-0473

Keywords

Article
Publication date: 2 July 2024

Jinglin Qi, Zhengbiao Han and Preben Hansen

This study constructed an information search process model based on costs and benefits to reflect different information search processes under different decisions from a…

Abstract

Purpose

This study constructed an information search process model based on costs and benefits to reflect different information search processes under different decisions from a behavioural economics perspective.

Design/methodology/approach

This study used a deductive approach to conceptualise the costs, benefits, and uncertainties of the information search process. Subsequently, we constructed an information search process model based on the costs and benefits using graphical reasoning, loss aversion theory, bounded rationality theory, the satisficing theory of behavioural economics, and the uncertainty changes of information search process.

Findings

The model revealed four types of user behaviours in the information search process: (1) avoiding search at the initiation of the search process; (2) exiting in the middle of a search; (3) stopping at the point of satisficing; and (4) continuing the search until experiencing physical discomfort.

Originality/value

The model constructed in this study treats the information search as a process based on costs and benefits with uncertainty. This model integrates information search avoidance and stopping into an information search process model. The model identifies users’ bounded rationality by evaluating ideal and real situations. Moreover, the model explains relative and absolute information overloads and the area beyond the user’s bounded rationality. These findings could help improve users’ information literacy and optimise information systems.

Details

Journal of Documentation, vol. ahead-of-print no. ahead-of-print
Type: Research Article
ISSN: 0022-0418

Keywords

Article
Publication date: 5 January 2024

Zizhong Zhang

Hair loss is often overlooked but psychologically challenging. However, the emergence of online health communities provides opportunities for hair loss patients to seek social…

Abstract

Purpose

Hair loss is often overlooked but psychologically challenging. However, the emergence of online health communities provides opportunities for hair loss patients to seek social support through self-disclosure. Nevertheless, not all disclosures receive the desired support. This research explores what patients disclose within the community and how their health narrative (content, form and linguistic style) regarding self-disclosure influences the social support they receive.

Design/methodology/approach

This study investigated a 13-year-old online support group for Chinese hair loss patients with nearly 240,000 members. Using structural topic modeling, Linguistic Inquiry and Word Count, and a negative binomial model, the research analyzed the content of self-disclosure and the interrelationships between social support and three narrative dimensions of self-disclosure.

Findings

Self-disclosures are classified into 14 topics, grouped under analytical, informative and emotional categories. Emotion-related self-disclosures, whether in content or effective word use, receive deeper social support. Longer and image-rich posts attract more support in quantity, but not necessarily in quality, while cognitive words have a limited impact.

Originality/value

This study addresses the previously overlooked population of hair loss patients within online health communities. It employs a more comprehensive health narrative framework to explore the relationship between self-disclosure and social support, utilizing unsupervised structural topic modeling methods to mine text. The research offers practical implications for how patients seek support and for healthcare professionals in developing doctor-patient communication strategies.

Details

Online Information Review, vol. 48 no. 5
Type: Research Article
ISSN: 1468-4527

Keywords

Article
Publication date: 30 August 2024

Huan Zhong and Zhengbiao Han

To explore the project-specific information-seeking pathways of Chinese parents of children with autism spectrum disorder (ASD) and understand the information seeking in their…

Abstract

Purpose

To explore the project-specific information-seeking pathways of Chinese parents of children with autism spectrum disorder (ASD) and understand the information seeking in their daily lives.

Design/methodology/approach

This study utilized the interview, critical incident technique and information horizon mapping to gather data from 27 Chinese parents of children with ASD during project-specific information seeking. These data were then examined using content analysis and descriptive statistics methods.

Findings

First, the information-seeking pathways of parents of children with ASD show the significant importance of both interpersonal and online sources, characterized by the combined use of multiple types of information sources. Second, information-seeking pathways considerably vary across project contexts. For diagnosis and school selection, parents had fewer pathways and primarily relied on interpersonal sources. Meanwhile, they utilized interpersonal and online sources combined for selecting rehabilitation institutions and methods, with the most information-seeking pathways for rehabilitation methods.

Originality/value

This study presents novel insights into the information-seeking pathways of Chinese parents of children with ASD in seeking project-specific information. It provides valuable references for relevant governments and rehabilitation institutions in building information service platforms, strengthening information quality regulation and providing information resources for parents of children with ASD.

Details

Aslib Journal of Information Management, vol. ahead-of-print no. ahead-of-print
Type: Research Article
ISSN: 2050-3806

Keywords

Open Access
Article
Publication date: 9 April 2024

Yunwei Gai, Alia Crocker, Candida Brush and Wiljeana Jackson Glover

Research has examined how new ventures strengthen local economic outcomes; however, limited research examines health-oriented ventures and their impact on social outcomes…

Abstract

Purpose

Research has examined how new ventures strengthen local economic outcomes; however, limited research examines health-oriented ventures and their impact on social outcomes, including health outcomes. Increased VC investment in healthcare service start-ups signals more activity toward this end, and the need for further academic inquiry. We examine the relationship between these start-ups and county-level health outcomes, health factors, and hospital utilization.

Design/methodology/approach

Data on start-ups funded via institutional venture capital from PitchBook were merged with US county-level outcomes from the County Health Rankings and Area Health Resources Files for 2010 to 2019. We investigated how the number of VC-funded healthcare service start-ups, as well as a subset defined as innovative, were associated with county-level health measures. We used panel models with two-way fixed effects and Propensity Score Matched (PSM), controlling for demographics and socioeconomic factors.

Findings

Each additional VC-funded healthcare service start-up was related to a significant 0.01 percentage point decrease in diabetes prevalence (p < 0.01), a decrease of 1.54 HIV cases per 100,000 population (p < 0.1), a 0.02 percentage point decrease in obesity rates (p < 0.01), and a 0.03 percentage point decrease in binge drinking (p < 0.01). VC-funded healthcare service start-ups were not related to hospital utilization.

Originality/value

This work expands our understanding of how industry-specific start-ups, in this case healthcare start-ups, relate to positive social outcomes. The results underscore the importance of evidence-based evaluation, the need for expanded outcome measures for VC investment, and the possibilities for integration of healthcare services and entrepreneurship ecosystems.

Details

International Journal of Entrepreneurial Behavior & Research, vol. 30 no. 8
Type: Research Article
ISSN: 1355-2554

Keywords

Article
Publication date: 29 December 2022

Yi Ping Zhu, Yi Zhu and Li Zhen Fan

This study aimed to examine the research hotspots and evolution paths in the field of health information behavior (HIB) in China and abroad, and conduct comparative analysis to…

Abstract

Purpose

This study aimed to examine the research hotspots and evolution paths in the field of health information behavior (HIB) in China and abroad, and conduct comparative analysis to better understand its development trajectory globally.

Design/methodology/approach

A keyword search of the relevant literature included in the China National Knowledge Infrastructure (CNKI) database and Web of Science (WoS) core collection database was conducted, using the visualized analysis tool CiteSpace V for bibliometric analyses.

Findings

The common research hotspots in China and abroad can be divided into related research on HIB, research on its influencing factors and health information research. Among these, health information-seeking behavior has been the focus of domestic and foreign scholars. From the subdivision perspective, the focus of Chinese and foreign research hotspots differs. In terms of evolutionary path, the initial stage of HIB research in China and abroad revolves around health information and health information-seeking behavior, followed by the influencing factors of HIB; however, the research breakthrough point is the reverse. Then, domestic and foreign research was conducted on different types of HIBs. Regarding the selection of research objects, Chinese and foreign research objects were increasingly diversified.

Research limitations/implications

This study also has several limitations. First, the literature sample only selected the literature in the WoS and CNKI databases, and there may be many HIB-related works published in other databases. Therefore, future research should include other databases. Second, in terms of language, this study selected only Chinese and English literature, but in many countries, important research results on certain topics are usually published in native language, and future research should expand the language selection. Third, this study only conducted national and institutional collaboration network analysis, keyword co-occurrence analysis, cluster analysis and timeline chart analysis.

Practical implications

The implication of practice can be divided into the following three points. (1) Analyzing the domestic and foreign literature on HIB and identifying highly cooperative institutions and countries in the field of HIB can reveal the research situation of HIB and help researchers establish new research networks in the future. (2) Analyzing the research hotspots and evolutionary paths of HIB at home and abroad is helpful for quickly understanding the development context of this field and grasping the emerging research directions such as HIB of people in close contact with patients, health information exchange behavior, health information avoidance behavior and health information discontinuation behavior, which can help researchers to explore the future research direction in this field, so as to determine the topic and fill the research gap. (3) Combining the analysis of HIB-related research at home and abroad is helpful for professionals to understand the characteristics and rules of HIB of users, consumers and other groups to further optimize and improve health information services.

Originality/value

Comparing and summarizing the research status of HIB in China and globally, and presenting the findings visually, will help researchers better grasp the research overview and hotspot changes in this field, as well as provide a follow-up reference.

Details

Library Hi Tech, vol. 42 no. 4
Type: Research Article
ISSN: 0737-8831

Keywords

Article
Publication date: 28 June 2024

Adela Chen and Kristina Lemmer

This paper aims to examine the strength characteristics of a stressful event (i.e. novelty, disruption, and criticality) as factors that drive people’s social media use for…

Abstract

Purpose

This paper aims to examine the strength characteristics of a stressful event (i.e. novelty, disruption, and criticality) as factors that drive people’s social media use for seeking different types of supportive resources (i.e. emotional, appraisal, informational, and instrumental support) to facilitate emotion-focused and problem-focused coping. We further assess the impact of different types of social support obtained via social media use on people’s coping effectiveness.

Design/methodology/approach

Our study uses an online survey collecting data at two points in time from 291 social media users during the COVID-19 pandemic. Structural equation modeling was used for data analysis.

Findings

Empirical results reveal the usefulness and limitations of social media use as a coping mechanism. All three event strength characteristics influence people’s social media use for both emotion-focused and problem-focused coping. Event novelty motivates people’s pursuit of informational support on social media, event disruption drives social media use for seeking all four types of support, and event criticality motivates social media use for seeking emotional and informational support. However, only emotion-focused resources – emotional support and appraisal support – are found to significantly affect people’s coping effectiveness.

Originality/value

Our study contributes to a better understanding of the role played by social media when people cope with a stressful event. Applying the three characteristics of event strength allows us to identify people’s need for different supportive resources depending on how they perceive the event. Our analysis of the main and mediating effects of the four types of social support shows that not all types of social support can significantly enhance users’ coping effectiveness.

Open Access
Article
Publication date: 29 July 2022

Ntibaneng Hunadi Maleka and Walter Matli

The purpose of this study is to provide current state of knowledge on how the COVID-19 emergency situation necessitated the behaviour influencing use and acceptance of telehealth…

3406

Abstract

Purpose

The purpose of this study is to provide current state of knowledge on how the COVID-19 emergency situation necessitated the behaviour influencing use and acceptance of telehealth. This study interlinks the health belief model (HBM) and the unified theory of acceptance and use of technology (UTAUT) to highlight the challenges and opportunities as a result of the COVID-19 pandemic in the public health sector.

Design/methodology/approach

This study used three online databases (Emerald publishing, Science Direct and Taylor and Francis) that enabled the authors to access electronic journal articles. Search strategy was used to extract articles based on the relevance of this study.

Findings

The key findings from this study suggested that the COVID-19 emergency forced health-care workers and their patients to rapidly use and rely on telehealth to reduce the rate of COVID-19 transmissions. The key benefits of telehealth use highlighted an expansive cost effective and convenient access to health-care services irrespective of geographical local and levels of physical impairment. Moreover, telehealth inhibited in person human interaction, which was perceived as impersonal and not ideal for new patient consultations. The barriers outweighed the benefits; as a result, it is unlikely that there will be a wide use of telehealth beyond the COVID-19 emergency situation.

Practical implications

The research findings are limited to discussions drawn from available secondary data. The criteria within telehealth for policymakers to note the technology acceptance and use for both health-care and outpatient stakeholders and their health seeking behaviour. Health-care sectors (private and public) and government need to understand enablers of effective telehealth in policymaking to ease the barriers during an emergency situation like a pandemic.

Originality/value

This study contributes to the emerging literature on how COVID-19 pandemic has disrupted and accelerated telehealth by extending both the UTAUT and HBM theories. This study is expected to contribute and expand literature on telehealth during emergency situations, given the novice nature of COVID-19 and limited literature surrounding it.

Details

Journal of Science and Technology Policy Management, vol. 15 no. 4
Type: Research Article
ISSN: 2053-4620

Keywords

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