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This chapter reviews qualitative research on parenting children with disabilities published over the last 50 years to explore whether shifts in academic discourse and changes in professional training have affected research on parenting and/or the experiences of parents who are the subject of such research.

An extensive literature search was conducted, and 78 peer-reviewed, qualitative studies on the experience of parenting a child with a disability were included in the sample. Themes were extracted from the reviewed literature and compared across decades.

The findings of the present review suggest that some aspects of the parenting experience have changed very little. In particular, parents continue to experience negative reactions such as stress and anomie, especially early in their children’s lives, and socially imposed barriers such as unhelpful professionals, and a lack of needed services continue to create problems and inspire an entrepreneurial response. In addition, stigmatizing encounters with others continue to be a common occurrence. In contrast to earlier decades, studies conducted in more recent years have begun to use the social model of disability as an analytic frame and also increasingly report that parents are questioning and challenging the concept of “normal” itself.

Additional improvements are needed in professional education and services to reduce the negative reactions experienced by parents of children with disabilities.

The findings of this meta-analysis can serve as a guide to future research on parenting children with disabilities.

Rooted in adult fear, adult authority aims to protect and control youth (Gannon, 2008; Valentine, 1997). Continuously negotiating for freedom, youth search for adult-free public spaces and are therefore extremely attracted to social networking sites (boyd, 2007, 2014). However, a significant portion of youth now includes adult authorities within their Facebook networks (Madden et al., 2013). Thus, this study explores how youth navigate familial- and educational-adult authorities across social networking sites in relation to their local peer culture.

Through semi-structured interviews, including youth-centered and participant-driven social media tours, 82 youth from the Northeast region of the United States of America (9–17 years of age; 43 females and 39 males) shared their lived experiences and perspectives about social media during the summer of 2013.

In their everyday lives, youth are subjected to the normative expectations emerging from peer culture, school, and family life. Within these different and at times conflicting normative schemas, youth’s social media use is subject to adult authority. In response, youth develop intricate ways to navigate adult authority across social networking sites.

Adult fear is powerful, but fragile to youth’s interpretation; networked publics are now regulated and youth’s ability to navigate then is based on their social location; and youth’s social media use must be contextualized to be holistically understood.

This study aims to examine the relationship between entrepreneurship education and students’ intentions and tests for moderating effects of students’ perceived experience and family entrepreneurial orientation, which may strengthen or weaken the effect of entrepreneurship education on intention.

Data were collected through a questionnaire from 584 students in the vocational program at an Indonesian public university. Entrepreneurship education was measured using instruments by Walter and Block (2016) that evaluated the entrepreneurship education provided by faculty. Entrepreneurial intention used a measurement by Vamvaka (2020), which measured students’ choice of intention, entrepreneurial career commitment and nascent entrepreneurship.

Entrepreneurship education has a positive association with students’ entrepreneurial intentions. The results also evidence higher entrepreneurial intention levels in students from families oriented toward and experienced in entrepreneurship. The results also reveal that student experience and having friends who become entrepreneurs reduce entrepreneurial intention, but the difference is not statistically significant.

The main limitation of this survey is that it was drawn from a single university in Indonesia with only domestic students, whilst the study was also designed cross-sectional. Therefore, the generalisability of the results is still limited. This study uses a single item for measuring friends and own influences, which only measure personal experiences. A more multidimensional measure of family, friends and own influence can be further developed to gain more robust results supporting these findings.

The study contributes to understanding the role of family-related variables, particularly family entrepreneurial orientation and experiences, on the development of entrepreneurship education and intention in emerging global market forces. Through family engagement in entrepreneurship education, a family can boost students’ entrepreneurial intention by delivering various capitals (e.g. business value, financial and social capital) and providing practical learning. The results imply the necessity to conduct new subjects, courses or university programmes that can include family-related business in entrepreneurship education.

Despite the expansion of research related to entrepreneurship education and intention, the relationships between perceived experience, family entrepreneurial orientation and students’ entrepreneurial intentions have not been adequately studied, particularly in Indonesia. This work contributes to the existing knowledge of entrepreneurship education by providing two moderator variables that may boost entrepreneurial intention: perceived experience and family entrepreneurial orientation. This work demonstrated how perceived experience and family orientation interact with entrepreneurship education and intention.

Prior to Covid, family involvement was on a forward movement of becoming a more involved, collaborative relationship between teachers and families of students. Just as family involvement was beginning to gain momentum with student-led conferences, in and out of school volunteer opportunities and families being seen as a valued perspective regarding student learning, Covid happened. This one event changed how families were seen within the school system. Through reflection with clinical candidates experiencing the effects of Covid and engagement experiences with families in the classroom, two different themes emerged regarding how schools have moved forward since Covid. Some schools found families to be a valued partner in student learning where other districts chose to use Covid as a reason for shutting the doors to family involvement. This article aims to address the family engagement timeline beginning prior to Covid, the perceptions of clinical candidates based on their experiences in classrooms, and innovative strategies for supporting future engagement with families.

The work provides a summary of family involvement pre-existent to Covid, during the pandemic and post-Covid through a review of the literature and emerging from teacher candidate experiences in the school setting.

After a careful review of literature and reflection of current teacher candidate experiences in the school system, two clear movements have emerged as Covid restrictions have been lowered. Where some districts are relieved by a lowering of visitor restrictions with the increased involvement of families in the building, other schools have tightened restrictions on families, causing increased tension on parent-teacher relationships. These schools are left caught in the pandemic, unaware or unsure of how to proceed in a post-pandemic world. This article provides key aspects to include in creating a plan for engaging with families and creating strong reciprocal relationships.

Valuing families in the school setting is crucial for developing strong relationships among teachers, students, student supports and the families who are raising these children. With increased social emotional needs in students, post-Covid, allowing families to contribute to discussion and planning regarding their children is mutually beneficial. Including families in school learning, planning and opportunities leads to positive family engagement and overall increased success in students, extending to the value educators place on involving these families. In addition, modeling how to postively engage families in school learning supports clinical partnerships with area universities. Where schools and classrooms are developing intergrated plans to include families in school learning experiences, future educators are able to better see and value the role of the family in education. When clinical candidates are not able to observe positive interactions between schools and families, there is a disconnect between school learning and home life that may never be explored.

Adverse childhood experiences that are consistently experienced over a sustained period of time throughout childhood result in an accumulation of childhood adversity, which is often referred to in the literature as cumulative harm. This paper aims to closely examine statutory child protection practice, which favours an episodic and incident-focused approach to assessing risk and harm, failing to account for the evaluation of the accumulation of adversity and harm, commonly experienced by children exposed to maltreatment. The paper defines an existing gap in practice frameworks to adequately identify and respond to the accumulation of adversity.

Drawing on practice experiences in Queensland Australia, the paper examines service delivery responses to cumulative harm in the context of the Intensive Family Support model of service delivery.

Within current frameworks for child protection service delivery, there is no method of assessing the diverse and cumulative effects of ongoing chronic child maltreatment and adversity, despite research confirming that cumulative harm very often co-occurs with other child protection concerns. To effectively and collaboratively intervene in matters of chronic and cumulative abuse and neglect, practitioners and stakeholders must be guided by frameworks and assessments that accurately recognise and acknowledge the impact of ongoing exposure to adverse experiences and maltreatment.

The need for a valid and reliable assessment method that draws together all elements contributing to the chronic maltreatment experience for a child and family: multiplicity, diversity and severity.

Practice solutions tailored to each child’s specific cumulative experiences of adversity and maltreatment will promote better social, emotional and health outcomes across the lifespan.

This paper highlights a significant gap in assessment and practice frameworks and advances the impetus for cumulative harm to be proactively integrated into social care and service delivery.

The purpose of this study is to provide a nuanced understanding of Chinese family tourists’ value co-creation by examining three important aspects of family vacation: What do families do during vacation? How do they make meaning of what they do? Do travelers’ role identities within their families play a role in the value creation process?

Upon reviewing related theoretical work, the authors undertook a mixed-method study consisting of both survey data and in-depth interviews.

The analysis revealed three clusters of family interactional content, including We open and share our worlds, We build knowledge and skills and We co-create and co-evaluate, and five clusters of family travelers, including Outdoor enthusiasts, Socializers, Nature lovers, Culture admirers and Relaxation seekers. Family roles, life situations and destination environments also interfaced with family activity participation and family conversations. A family vacation value co-creation process framework with four propositions was, thus, proposed.

Further exploration and validation of the proposed framework and propositions which emerged from the findings of this study are needed. Impacts of various family types and relational dynamics also warrant future investigation.

The results of family interactional and relational well-being facilitated by family vacation are pertinent to academia, industry and public policy-making.

Family vacation can be a positive intervention for the creation of family value and a means of meaning-making. Programs that integrate multiple family roles and address family-level value propositions would be collectively enriching.

The current study initiated a pioneering investigation by providing a depiction of how family travelers experience and make sense of a shared tourism experience, along with their value perceptions in such a co-created consumptive scenario.

As an Interpretative Phenomenological Analysis (IPA), the purpose of this paper is to provide an in-depth understanding of adolescent experiences of maternal cancer to identify the individual and contextual factors that shape adolescent experiences and evaluates the potential applicability of the Family Ecology Model to the illness context.

This analysis is focussed on three female adolescents who completed semi-structured interviews, which were subjected to IPA. Maternal illness is a challenge for adolescents, which can be improved or undermined by their contexts. The analysis yielded three sub-themes: family structure, social supports, experiencing maternal cancer at a time of transition and the lasting impact of cancer.

This study found that adolescent experiences of maternal cancer depend on their contexts from an ecological perspective the type and quality of adolescent interactions determine coping and adjustment. Maternal cancer can be difficult as adolescents are already facing specific developmental challenges. Future research can benefit from adopting an ecological perspective to further understand adolescent experiences to support adolescent that may be more vulnerable and benefit from additional supports. This is not a generalisable piece of research but it provides a very deep and detailed understanding of the impact of maternal cancer on adolescents’ developmental course and determines how the complexity of their contexts can serve as a risk or a protective factor at this challenging time.

This paper contributes to the body of research by providing a comprehensive understanding of adolescents facing maternal cancer. The Ecological Model supports the findings of this research and proves to be a good model to understand the complex interplay between adolescents and their environments when facing a difficult challenge like maternal cancer is.

The transition to motherhood has been studied extensively, but primarily among participants in homogenous race/ethnicity relationships. The aim of the current study was to explore the lived experiences of a diverse group of women in biracial and monoracial relationships experiencing the transition to motherhood (e.g., biracial or monoracial motherhood). Informed by the symbolic interaction framework, in-depth semi-structured interviews were conducted to investigate the expectations and experiences of first-time motherhood on a sample of 12 U.S. women. Their diverse stories contained multiple themes including an overarching theme of racial/ethnic differences in appropriate infant care, which surfaces during engagement in family and social support interactions. This analysis emphasizes the need for more diverse portrayals of motherhood. We discuss our findings in light of the literature and implications for future research and practice.

In this chapter we examine how micro- and macro-level issues including access to child-only or family public health insurance shape low-income immigrant families’ health care experiences in two policy contexts in the Washington, DC metropolitan area.

This qualitative study includes 40 in-depth interviews with first-generation, low-income immigrant Latin American and African mothers in DC and Northern Virginia.

The majority of families living in Virginia had child-only health insurance, whereas most of the families living in Washington, DC, had family health insurance. Regardless of these insurance differences, all mothers had access to free health care for prenatal care. Pregnancy, for most, was their entry into the U.S. health care system. Families’ ongoing health care experiences differed in relation to insurance access, and culture, including parents’ previous experiences with health care in their countries of origin.

Future research should consider the experiences of other immigrant groups, mental health experiences of immigrants, and fathers’ experiences with health care.

Future initiatives to address health care should focus on providing family health care to low-income immigrant families across the country, improving access to mental health services for immigrant families, and creating more culturally and linguistically appropriate health care services.

This study points to the importance of family health care for immigrant families, as well as care that is culturally and linguistically competent.

This study illustrates the need for public family health insurance for low-income immigrant families, and the importance of culturally competent health care for immigrants.

Family tourism remains an important market segment. Its dynamics evolve when family members take a trip together. Understanding how families from emerging markets create quality touristic experiences is essential in a globalized environment of tourism flows. Using textual data from online blogs, this study explores how multigenerational family tourists from China experience and interpret the United States as a destination. Results show that traditional Chinese values assist family members to construct quality experiences. Different generations fulfill their respective functions with pleasure and responsibility. The findings suggest that quality experiences for the family tourists from China are constructed upon their consumption of the physical and tangible environment in the United States.