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1 – 10 of over 2000This chapter is a comprehensive discussion of autism spectrum disorder (ASD) across the globe (e.g., United States, China, Brazil, Japan and Turkey). Topics that are discussed…
Abstract
This chapter is a comprehensive discussion of autism spectrum disorder (ASD) across the globe (e.g., United States, China, Brazil, Japan and Turkey). Topics that are discussed include the following: diagnostic criteria and approaches; international perspectives of ASD; western and eastern assessment practices; cultural considerations of assessment of ASD; educational and medical interventions; behavioral and emotional interventions; complementary and alternative medical interventions; variations in educational services among countries; early intervention practices; adult services; national and international resources; and current needs and future directions.
According to current estimates, the prevalence of autism spectrum disorders (ASDs) ranges from 1 in 500 children to 1 in 150 children (Centers for Disease Control and…
Abstract
According to current estimates, the prevalence of autism spectrum disorders (ASDs) ranges from 1 in 500 children to 1 in 150 children (Centers for Disease Control and Prevention/CDC, 2007; Desmon, 2007). In the past such disorders usually were not identified until a child was school-aged, but these disorders are now more likely to be diagnosed in affected individuals during the preschool years (McConachie, Le Couteur, & Honey, 2005; Rutter, 2006). For example, Mandell, Novak, and Zubritsky (2005) surveyed over 900 caregivers of children with ASDs and learned that on an average, children with autistic disorder were diagnosed at 3.1 years of age. These researchers also reported that children who exhibited such characteristics as severe language impairment, toe walking, hand flapping, and sustained unusual play behaviors were diagnosed earlier than children without these features.
Estimates of the prevalence of AS in children throughout the entire population of the United States are highly limited and greatly variable. Ozonoff, Dawson, and McPartland (2002)…
Abstract
Estimates of the prevalence of AS in children throughout the entire population of the United States are highly limited and greatly variable. Ozonoff, Dawson, and McPartland (2002) stated that estimates of AS range from 0.2 to 0.5% (or 2–5 individuals in 1,000), while Volkmar and Klin (2000) cited studies reporting rates of 36 in 1,000 to approximately 1 in 10,000. The Diagnostic and Statistical Manual of the American Psychiatric Association (2000), fourth edition (DSM-IV-TR), states that “definitive data about the prevalence of Asperger Syndrome does not exist.”
Mary Henderson and Richard Majors
This chapter explores the importance of early autism spectrum disorder (ASD) assessment and diagnosis to facilitate early treatment. This chapter will have a particular focus on…
Abstract
This chapter explores the importance of early autism spectrum disorder (ASD) assessment and diagnosis to facilitate early treatment. This chapter will have a particular focus on ASD assessment and diagnosis within a Black and Minority Ethnic (BME) context. We propose using a Cultural Competence framework to process, analyze, assessment, and diagnosis results/findings. BME assessments/diagnoses can be delayed by up to 18 months longer when compared to Whites.
ASD Assessment aims to assess certain developmental traits in individuals to identify ASD which is a developmental disability. Autism is a spectrum condition which can manifest differently in each diagnosed individual. There are core features necessary for an ASD diagnosis to be made. These include among other traits: poor eye contact, abnormality in body language: for example, gestures, difficulties with social communication and social interaction, often they exhibit repetitive patterns of behavior, have obsessional interests, rigid thinking patterns, and have an aversion to certain sounds and textures and an unusual interest in sensory satisfaction.
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This study illuminates the experiences of adults diagnosed with autism spectrum disorders (ASDs) and intellectual disabilities (IDs) and their challenges and successes in…
Abstract
Purpose
This study illuminates the experiences of adults diagnosed with autism spectrum disorders (ASDs) and intellectual disabilities (IDs) and their challenges and successes in receiving quality healthcare services. Individuals with developmental disabilities often experience health issues associated with aging at earlier ages and at higher rates than the general population. This population has a higher incidence of chronic health conditions that require regular medical attention.
The intent of this project was to learn directly from adults and their caregivers how well healthcare providers understand autism, explore their experience with how well their care is coordinated between primary healthcare and other specialty services, and identify factors which could impact access to care and to discover what other barriers which may potentially influence health outcomes for ASD adult.
Method
A qualitative study conducted with semi-structured interviews with 12 adults diagnosed with ASD and/or their guardians/caregivers.
Findings
Some of the adults interviewed experienced negative health outcomes and suboptimal relationships with healthcare providers; others seemed to have positive relationships. Clinical and communications accommodations were necessary to make healthcare provision more comfortable. Barriers to accessing healthcare services existed in many forms.
Implications/Limitations
The healthcare needs of the growing population adults diagnosed with ASD/ID are anticipated to be significant. This challenge is further exacerbated given there are few trained healthcare providers who are prepared or dedicated to serve this population. Continuing to build awareness of the health needs of the ASD/ID adult population is critical.
Originality
This project is highly innovative as it is the first attempt to understand how the adult autism population accesses care and perceives their healthcare interactions. This study serves as a starting point to suggest new opportunities for further research for this growing population.
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Niels Westergaard-Nielsen, Esben Agerbo, Tor Eriksson and Preben Bo Mortensen
In a number of recent studies, it has been demonstrated that mental illness imposes real and large costs over and above the direct expenses of care and treatment. Each year in the…
Abstract
In a number of recent studies, it has been demonstrated that mental illness imposes real and large costs over and above the direct expenses of care and treatment. Each year in the U.S., 5–6 million workers between 16 and 54 years of age lose, fail to seek or cannot find employment as a consequence of mental illness. Among those who do work, it is estimated that mental illness decreases annual income by an amount between USD 3500 and USD 6000 (Marcotte & Wilcox-Gök, 2001). Similar results have been shown in a number of studies (Ettner et al., 1997).
Matthew Bennett and Emma Goodall
Currently, most research about the autism spectrum has examined Caucasian autistics. Consequently, African American autistics have not received much attention from scholars. This…
Abstract
Currently, most research about the autism spectrum has examined Caucasian autistics. Consequently, African American autistics have not received much attention from scholars. This chapter begins with an overview of statistics from the Centres for Disease Control and Prevention (CDC) about the population of Black and Latino autistics in the United States from 2000 to 2016. Plausible reasons for why there is a lack of research about African American autistics are then presented along with a section about the underrepresentation of ethnic minorities in autism spectrum research. Four strategies that can improve the production of research about African American autistics are then presented. The purpose of presenting these strategies is to help stimulate the production of research about African American autistics.
The original contribution that this chapter makes to the field of autism spectrum research is to inform the reader about the lack of research about African American autistics in comparison to other ethnicities.
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The purpose of this study was to explore how mothers with an ADHD child living in the household experience, perceive, and manage family communication.
Abstract
Purpose
The purpose of this study was to explore how mothers with an ADHD child living in the household experience, perceive, and manage family communication.
Design
A qualitative research design study was employed where in-depth interviews were conducted amongst nine married mothers who have an ADHD child.
Findings
Three themes emerged from the interview data: managing internal relations, managing stigma, and difficulties in managing the communication process. Mothers communicate with their ADHD child differently than their non-ADHD children, as conversations with the ADHD child are often unpredictable, negative, and erratic. They specifically experience these conversation patterns when giving directions, during times of discipline, and when the child acts impulsively or cannot focus.
Value
Mothers are not always open about their child’s ADHD with nonfamily members as they are afraid of the stigma that is attached to the condition. Mothers recognize the difficulties in the communication process as they spend a considerable amount of time on their child’s ADHD issues, and their time given to others in the family may be compromised. They also recognize that because of the amount of stress and emotional burnout they feel from having an ADHD child, they need emotional and pragmatic support from family, friends, and professionals. The mothers who receive the least amount of emotional support from their spouses also feel the highest amounts of stress.
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Jeffrey P. Bakken and Stephanie Gaddy
Learning disabilities (LD) and attention deficit hyperactivity disorders (ADHD) include one of the largest special education populations in the United States. These disabilities…
Abstract
Learning disabilities (LD) and attention deficit hyperactivity disorders (ADHD) include one of the largest special education populations in the United States. These disabilities can range in severity from mild to severe and although these concepts were formulated in the United States, they are also being diagnosed across the globe in other countries. This chapter begins with an historical explanation of the origins of the term LD followed by the U.S. Federal Laws enacted to protect students with LD. Next, the identification of LD, the characteristics, diagnoses, and supportive services are described. Following this description is information about students with ADHD, their diagnoses, and supports in educational environments. Specific characteristics and difficulties students with LD and ADHD possess are then defined within academic activities including reading, math, writing, and social skills as well as overall difficulties students may experience are not defined within these academic subject areas. Some possible strategies are then offered to help ameliorate the effects of LD and ADHD and finally the prevalence of LD/ADHD and the supportive environments for these students throughout the world are described.
Mitch Blair and Denise Alexander
Equity is an issue that pervades all aspects of primary care provision for children and as such is a recurring theme in the Models of Child Health Appraised project. All European…
Abstract
Equity is an issue that pervades all aspects of primary care provision for children and as such is a recurring theme in the Models of Child Health Appraised project. All European Union member states agree to address inequalities in health outcomes and include policies to address the gradient of health across society and target particularly vulnerable population groups. The project sought to understand the contribution of primary care services to reducing inequity in health outcomes for children. We focused on some key features of inequity as they affect children, such as the importance of good health services in early childhood, and the effects of inequity on children, such as the higher health needs of underprivileged groups, but their generally lower access to health services. This indicates that health services have an important role in buffering the effects of social determinants of health by providing effective treatment that can improve the health and quality of life for children with chronic disorders. We identified common risk factors for inequity, such as gender, family situation, socio-economic status (SES), migrant or minority status and regional differences in healthcare provision, and attempted to measure inequity of service provision. We did this by analysing routine data of universal primary care procedures, such as vaccination, age at diagnosis of autism or emergency hospital admission for conditions that can be generally treated in primary care, against variables of inequity, such as indicators of SES, migrant/ethnicity or urban/rural residency. In addition, we focused on the experiences of child population groups particularly at risk of inequity of primary care provision: migrant children and children in the state care system.
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