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This study illuminates the experiences of adults diagnosed with autism spectrum disorders (ASDs) and intellectual disabilities (IDs) and their challenges and successes in…
Abstract
Purpose
This study illuminates the experiences of adults diagnosed with autism spectrum disorders (ASDs) and intellectual disabilities (IDs) and their challenges and successes in receiving quality healthcare services. Individuals with developmental disabilities often experience health issues associated with aging at earlier ages and at higher rates than the general population. This population has a higher incidence of chronic health conditions that require regular medical attention.
The intent of this project was to learn directly from adults and their caregivers how well healthcare providers understand autism, explore their experience with how well their care is coordinated between primary healthcare and other specialty services, and identify factors which could impact access to care and to discover what other barriers which may potentially influence health outcomes for ASD adult.
Method
A qualitative study conducted with semi-structured interviews with 12 adults diagnosed with ASD and/or their guardians/caregivers.
Findings
Some of the adults interviewed experienced negative health outcomes and suboptimal relationships with healthcare providers; others seemed to have positive relationships. Clinical and communications accommodations were necessary to make healthcare provision more comfortable. Barriers to accessing healthcare services existed in many forms.
Implications/Limitations
The healthcare needs of the growing population adults diagnosed with ASD/ID are anticipated to be significant. This challenge is further exacerbated given there are few trained healthcare providers who are prepared or dedicated to serve this population. Continuing to build awareness of the health needs of the ASD/ID adult population is critical.
Originality
This project is highly innovative as it is the first attempt to understand how the adult autism population accesses care and perceives their healthcare interactions. This study serves as a starting point to suggest new opportunities for further research for this growing population.
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Bożena Frączek, Katarzyna Plutecka, Anna Gagat-Matuła and Anna Czyż
The purpose of this study is to identify consumer buying behavior, sense of security on the market and basic economic knowledge among young people with autism spectrum disorder …
Abstract
Purpose
The purpose of this study is to identify consumer buying behavior, sense of security on the market and basic economic knowledge among young people with autism spectrum disorder (ASD) – Asperger Syndrome, while the empirical goal is the development of conclusions and implications, which may be used in consumer strategies.
Design/methodology/approach
The research consisted of a pilot study and used the diagnostic survey method. A survey questionnaire of the own devising was used. The study used a purposive (arbitrary) sample. This was a non-probability respondent sample, consisting of subjective selection by researchers among a selected closed representative sample, the aim of which was to test the research tool (survey questionnaire) during the pilot study. The survey questionnaire was constructed on the basis of theoretical assumptions explaining consumer buying behavior and on a literature review regarding research conducted in this area. The study was conducted on adolescents aged between 16 and 19 years of age, 40 of whom suffered from ASD – Asperger syndrome and 50 of whom were without ASD – Asperger syndrome (control group).
Findings
The results indicate a limited range of consumer behaviors, a relatively poor sense of security in consumer (retail) spending and a limited understanding of fundamental consumer issues among young consumers with ASD – Asperger syndrome in comparison to people from the control group.
Practical implications
This study suggests that marketers should prepare diverse means of communication with consumers and a variety of sales strategies targeted at consumers with communication disorders. The research may be extended to include the large number of factors that influence consumer behavior among people with ASD – Asperger syndrome, together with the determination of the predictors. The factors contribute to a varying extent to constant changes in consumer behavior, which makes it necessary for longitudinal or even cyclical studies to be carried out. In further research, the research tool should be improved in terms of more precise questions relevant to a given issue and random sampling should be implemented.
Social implications
The research concept can be transferred to other vulnerable groups with communication disorders (e.g. with hearing disorders).
Originality/value
To the best of the author’s knowledge, this study is the first to investigate selected aspects of consumer (and financial consumer) behavior among young people with ASD – Asperger syndrome.
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Francois A.M. Jean, Ali Jouni, Manuel P. Bouvard, Guillaume Camelot, Anita Beggiato, Isabelle Scheid, Alexandru Gaman, Celine Bouquet, Myryam Ly-Le Moal, Josselin Houenou, Richard Delorme, Marion Leboyer and Anouck Amestoy
This study aims to explore the overlap between symptoms of depression, anxiety, irritability and aggressiveness in autism spectrum disorder (ASD), to measure specific and…
Abstract
Purpose
This study aims to explore the overlap between symptoms of depression, anxiety, irritability and aggressiveness in autism spectrum disorder (ASD), to measure specific and idiosyncratic emotional responses.
Design/methodology/approach
A total of 42 high functioning adolescents and adults, between 12 and 39 years old, meeting the diagnostic and statistical manual of mental disorders – 5 criteria for ASD were selected from the InFoR Autism cohort. Data were analyzed in an exploratory way using Hill and Smith and K-medoids cluster analysis.
Findings
The authors found an aggregation of anxiety, depression, aggressive behaviors and irritability. Cluster analysis was maximized for two groups with 17 and 25 participants, respectively. The first group was characterized by high levels of symptoms of irritability, aggressiveness, hyperactivity and intermediate levels of anxiety and depression. In the first group, participants had significantly higher levels of autistic symptoms considering the social responsiveness scale and repetitive behavior scale-revised scales (relatives’ reports) suggesting that a particular group of subjects with a high level of ASD specific symptoms may express anxiety and depression in a specific way based on externalizing behaviors in addition to the common mood and anxiety symptoms.
Research limitations/implications
Improved understanding of the aggregation of externalized symptoms with symptoms of anxiety and mood disorders in ASD should lead to a better understanding of the underlying mechanisms related to emotion dysregulation in ASD.
Practical implications
Improved knowledge of the symptoms could lead to enhanced detection of psychiatric comorbidities in ASD.
Originality/value
The study was based on a transdiagnostic approach of psychiatric symptoms in individuals with ASD. Aggregation and clustering analysis was used to explore naive patterns of these psychiatric symptoms.
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Hieu Thi Ngo, Le Duc Niem, Phong Cong Tran, Truc Thanh Nguyen, Dung Thi Doan and Huyen Thi Ngo
This paper aims at identifying perceived factors and measuring opinions about the factors' impact on academic staff development (ASD) at Tay Nguyen University (TNU), Dak Lak…
Abstract
Purpose
This paper aims at identifying perceived factors and measuring opinions about the factors' impact on academic staff development (ASD) at Tay Nguyen University (TNU), Dak Lak, Vietnam.
Design/methodology/approach
The research used the exploratory factor analysis (EFA) method, the multiple regression model (ordinary least squares (OLS)) and a five-point Likert scale questionnaire. A sample of 70 managerial staff, 374 lecturers and 512 students of TNU was surveyed to obtain data.
Findings
The EFA showed that opinions concerning university autonomy (UA) and university social responsibility (USR) were positively correlated. With the above two factors united as responsible autonomy (RA), the OLS indicated perceptions that RA and internal driving factor (IF) had significant and positive impacts on the ASD, while external driving factor (EF) was found to have a perceived negative influence on ASD.
Research limitations/implications
The results indicated that there appears to be a close relationship between UA and USR, and these can be considered as a factor that has apparent impacts on the ASD of the university.
Practical implications
The degree of UA and USR of TNU should be enhanced through awareness of the university's academic staff, the application of a suitable evaluation system and the efficiency of university's regulations. In addition, efforts should be made to improve internal factors such as the dissemination of educational philosophy, the suitability of strategic plans, the development of key performance indicators KPIs and the building of organizational culture – all of which will help to heighten the university’s ASD. At the same time, TNU should endeavor to quickly transform aspects of administration and management to meet the shifting requirements of the autonomous environment and competitive features of the market economy. In particular, there is a need for the academic staff themselves to have increased capacity to adapt to these changes.
Social implications
The authors' results have a broader application to not only the case of TNU but to other situations in developing countries where universities are in transitional stages as governments assign increasing autonomy and responsibility to them.
Originality/value
This paper suggests that the academic staff of TNU should be provided with both professional autonomy and adaptive capacity to foster research and educational innovation in the market-based higher education system of Vietnam. More generally, if true, the paper suggests that an increase in the degree of UA and USR should be combined with the efforts to improve the internal environments such as disseminating educational philosophy, mission, vision and strategies and building organizational culture.
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Ensiyeh Jenabi, Niloofar Rabiei, Mahdieh Seyedi, Mohammad Rezaei, Ali Reza Soltanian, Saeid Bashirian and Amir Mohammad Salehi
This study aims to investigate the psychometric properties of the social communication questionnaire (SCQ) in Iran by identifying children with autism spectrum disorder (ASD) who…
Abstract
Purpose
This study aims to investigate the psychometric properties of the social communication questionnaire (SCQ) in Iran by identifying children with autism spectrum disorder (ASD) who had Persian-speaking parents.
Design/methodology/approach
A case–control study was performed from June to August 2021 in Hamadan, Iran. The case group consisted of children who were examined by clinicians who used a coding scheme based on the DSM-V criteria for ASD by a psychiatrist. The control group consisted of non-ASD children who were asked to participate in the study. This study conducted the reliability, content and face validity to evaluate the psychometric properties of the tool. In the first step, Kaiser–Meyer–Olkin and Bartlett’s test were used to determine sampling adequacy and appropriateness of correlation matrix. In the second step, the exploratory factor analysis approach was used. The method of extracting the factors is done by using the varimax rotation method and selecting the number of factors using an eigenvalue and scree plot. Statistical analysis was performed using Software Package for Social Sciences 21 with the statistical significance set at level less than 0.05.
Findings
The quantitative content validity analysis revealed that the mean of content validity ratio and content validity index were 0.92 and 0.91, respectively. Mean score ± standard deviation in the two groups of ASD and control were 14.23 ± 3.84 and 7.83 ± 4.80, respectively. With cut-off point >12.5, sensitivity, specificity and misclassification error values were 73.33%, 80.0% and 23%, respectively.
Research limitations/implications
The results showed that the internal consistency of the SCQ is desirable. Also, the internal consistency of its five subscales was obtained between 0.700 and 0.87. The findings showed that SCQ questionnaire is highly reliable in reciprocal social interaction (Factor 1) and the total score, while other factors were relatively reliable.
Originality/value
To the best of the authors’ knowledge, this is the first paper on psychometric properties of SCQ in ASD children in Iran.
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Autism spectrum disorder (ASD) is a developmental disorder affecting around 1:59 children. Among other characteristics, children with ASD can be unduly sensitive to elements in…
Abstract
Purpose
Autism spectrum disorder (ASD) is a developmental disorder affecting around 1:59 children. Among other characteristics, children with ASD can be unduly sensitive to elements in the built environment, such as noise or light. Despite this knowledge, to date there has been little evidence-based experimental research investigating how the environment affects them. The purpose of this paper is to conduct an experiment in a school environment with children with ASD and document the process as a model that other researchers could apply to similar studies.
Design/methodology/approach
The study focused on whether the application of wayfinding aids (colored doors, colored shapes on the floor and signage) in a school corridor could help children with ASD navigate to a given destination, but the process could be applied to other variables at other study sites. The study documents the approval and consent process, describes setting up the experiment, assigning controlled and uncontrolled variables, selecting and recruiting participants, and running the experiment.
Findings
The study concludes by reviewing the key lessons learned from the process of conducting the experiment. Study logistics were challenging to gain approval and set up and run the experiment; collaboration with school district personnel was essential to meet the aims of the study; and recruiting sufficient numbers of participants with ASD who were not familiar with the study site was challenging.
Originality/value
By describing key steps in the process of conducting a research experiment with children with ASD, the study provides a model that other researchers could follow.
Details
Keywords
Ashley Molloy, Ashley O'Donoghue and Na Fu
Generation A, the number of people with autism spectrum disorder (ASD) entering the workforce in the next decade is expected to increase. However, the employment rate of people…
Abstract
Generation A, the number of people with autism spectrum disorder (ASD) entering the workforce in the next decade is expected to increase. However, the employment rate of people with ASD is still very low, and the access to services and support for them is inadequate globally. The research is very limited on understanding neurodiversity-based employment and its success factors. This study aims to fill this important gap via exploring the current inclusive human resource practices being adopted by neurodiversity champion companies. Interviews were conducted with six Irish organizations to identify their neurodiversity and autism practices.
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Therese McNamee and Sandra Patton
This study aims to investigate teacher perspectives on teaching handwriting to children with autistic spectrum disorder (ASD) and collaboration with occupational therapists.
Abstract
Purpose
This study aims to investigate teacher perspectives on teaching handwriting to children with autistic spectrum disorder (ASD) and collaboration with occupational therapists.
Design/methodology/approach
A descriptive design was applied. Purpose-designed surveys were distributed to teachers of children with ASD (aged 4-12 years) in the Republic of Ireland. A response rate of 35 per cent (N = 75) was obtained, with 25 responses analysed using descriptive statistics of closed questions and content analysis of open-ended questions.
Findings
Of 139 children with ASD, 80 (58 per cent) were reported to have difficulties with handwriting. Teachers reported specific difficulties with pencil grasp, letter formation and task concept among the children with ASD. Fourteen (56 per cent, N = 25) respondents did not give handwriting as homework. Teachers valued occupational therapy advice, individualised programmes and ongoing consultation during implementation. Interest in occupational therapy education regarding handwriting was reported.
Practical implications
Occupational therapy collaboration to address handwriting difficulties for children with ASD should include involvement in teacher education, coordination of teacher–parent collaboration and the need for involvement in early intervention provision within an emergent literacy framework.
Originality/value
Handwriting development is challenging for children with ASD. There is limited information on teaching or teacher–occupational therapy collaborative practices to address handwriting difficulties of children with ASD.
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Anu Helkkula, Alexander John Buoye, Hyeyoon Choi, Min Kyung Lee, Stephanie Q. Liu and Timothy Lee Keiningham
The purpose of this investigation is to gain insight into parents' perceptions of benefits vs burdens (value) of educational and healthcare service received for their child with…
Abstract
Purpose
The purpose of this investigation is to gain insight into parents' perceptions of benefits vs burdens (value) of educational and healthcare service received for their child with ASD. Parents are the main integrators of long-term educational and healthcare service for their child with ASD.
Design/methodology/approach
Design/methodology/approach included (1) a sentiment analysis of discussion forum posts from an autism message board using a rule-based sentiment analysis tool that is specifically attuned to sentiments expressed in social media and (2) a qualitative content analysis of one-on-one interviews with parents of children diagnosed with ASD, complemented with interviews with experienced educators and clinicians.
Findings
Findings reveal the link between customized service integration and long-term benefits. Both parents and service providers emphasize the need to integrate healthcare and educational service to create holistic long-term care for a child with ASD. Parents highlight the benefits of varied services, but availability or cost are burdens if the service is not publicly provided, or covered by insurance. Service providers' lack of experience with ASD and people's ignorance of the challenges of ASD are burdens.
Practical implications
Ensuring health outcomes for a child with ASD requires an integrated service system and long-term, customer-centric service process because the scope of service covers the child's entire childhood. Customized educational and healthcare service must be allocated and budgeted early in order to reach the goal of a satisfactory service output for each child.
Originality/value
This is the first service research to focus on parents' challenges with obtaining services for their child with ASD. This paper provides service researchers and managers insight into parents' perceptions of educational and healthcare service value (i.e. benefits vs. burdens) received for their child with ASD. These insights into customer-centric perceptions of value may be useful to research and may help service providers to innovate and provide integrated service directly to parents, or indirectly to service providers, who serve children with ASD.
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The “Helping Autism Diagnosed Navigate and Develop Socially” (HANDS) project developed a suite of mobile apps for smartphones, which support children with Autism spectrum…
Abstract
Purpose
The “Helping Autism Diagnosed Navigate and Develop Socially” (HANDS) project developed a suite of mobile apps for smartphones, which support children with Autism spectrum disorders (ASD) with social and life skills functioning – areas of ability which tend to be impaired in this population. The apps were field tested in four special schools. The purpose of this paper is to report on an exploratory investigation of the potential use of this and similar technology to support the inclusion of children with ASD in mainstream secondary schools.
Design/methodology/approach
A series of technology familiarization sessions and follow up focus groups were held with children with ASD, teachers, teaching assistants and parents at three mainstream secondary schools. A thematic analysis of the focus group transcripts was undertaken.
Findings
The analysis indicated common themes across schools relating to challenges and opportunities in the use of smartphones to develop social and life skills. Wider debates in the available literature and the general media about national and local school policy on the use of smartphones in the classroom were reflected in the themes identified. Conclusions are drawn about the potential use of smartphones to promote inclusion of children with ASD, and recommendations are made in regards of national and local policy on the use of mobile technology in schools.
Originality/value
There is little literature on the use of smartphones with children with ASD to support inclusion in mainstream. As such, this initial exploratory report will be of interest to policy makers, school managers and researchers.
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