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Book part
Publication date: 10 June 2024

Judith Tröndle, Lisa Pfahl and Boris Traue

The role of caregivers and issues of parenting are controversial in research on disability. While appreciating the historical and political reasons to critique power relations in…

Abstract

The role of caregivers and issues of parenting are controversial in research on disability. While appreciating the historical and political reasons to critique power relations in care systems and care relations, we argue that it is important to consider parents' and other caregivers' positions. A reconsideration provides insights into pervasive effects of ableism defining not only the individual child but parents and other relatives as well. We draw from extensive research on couples parenting a child with disability in Germany (Tröndle, 2022a). This study seeks to understand how parents of a child with disability cannot avoid understanding themselves as “special parents.” Through analyzing shared life stories of couples and individual biographies, the study reconstructs how identities evolve differently depending on their work-sharing arrangements. Based on our findings, the couples experience difficulties in maintaining dual employment arrangements. They become “unable” to step outside of the logic of welfare and health provision and structures of the labor market. Couples begin to explain their situation and the discrimination they experience by reflecting themselves as “special parents.” Heteronormative and ableist expectations hinder them in articulating resistance and gaining agency as allies of their children, facilitating positions of complicity. We argue that the approach suggested by this study – namely including the ambiguous situation of caregivers in Disability Studies – can encourage other researchers to consider othering and ableism of and by caregivers.

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Disability and the Changing Contexts of Family and Personal Relationships
Type: Book
ISBN: 978-1-83753-221-6

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Book part
Publication date: 7 June 2024

Ivana Lessner Lištiaková and David Preece

Research regarding life in rural coastal communities in England has been limited, while the experience of families further marginalised by disability has been unresearched. To…

Abstract

Research regarding life in rural coastal communities in England has been limited, while the experience of families further marginalised by disability has been unresearched. To address this topic, a qualitative study was undertaken to explore the lives of families living with autism in rural coastal England. Twenty-two families from Cornwall and West Norfolk were interviewed in early 2019, including young people on the autism spectrum, their siblings, parents (some of whom were themselves also on the spectrum) and grandparents.

Perceived benefits of living in a rural coastal space were identified. These included the location, the sense of community and the sense of ‘going back in time’ as a positive experience. However, families also spoke of barriers and challenges associated with negative aspects of the location, the experience of stigma and intersectionality in relation to autism and rural coastal spaces. Difficulties concerning education, health and social care support were worsened by poor local infrastructure and the impact of a decade of austerity.

The qualitative methodology involving collaboration with families with autism in developing the research tools, participant recruitment and stakeholder validation is considered.

This research explored the intersecting impacts of rurality, coastality and disability to provide a novel and more nuanced understanding of such families' experiences. As such, it contributes to our understanding of those living ‘on the edge’ – regarding physical location, societal and educational marginalisation.

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Including Voices
Type: Book
ISBN: 978-1-83797-720-8

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Book part
Publication date: 10 June 2024

Zachary P. Hart

Parents of children with intellectual and developmental disabilities are frequently given news that is difficult to hear and can be very traumatic. Whether receiving an initial…

Abstract

Parents of children with intellectual and developmental disabilities are frequently given news that is difficult to hear and can be very traumatic. Whether receiving an initial diagnosis for their baby or learning about guardianship options for their adult child, emotional reactions almost always occur, especially because of the interdependent relationship they have with their child. These emotions likely impact the meaning parents give to information and decisions they make for their children throughout their lives. Medical, education, and other support providers sometimes assume parents can objectively receive information that frequently is communicated in a technical and clinical way. They may not give parents the time to emotionally process what they have learned, limiting their ability to care for their child. This chapter presents the results from a series of focus groups with 21 parents of children with intellectual and developmental disabilities of varying ages. The participants discussed their emotional reactions to information communicated to them about medical, educational and social concerns related to their children. In addition, they discussed how emotions impacted their information processing and sensemaking as they gave meaning to what they learned. Analysis of the results identified eight emotion-based information processing and sensemaking themes that are described in detail. The discussion section provides an enhanced explanation for emotion's role in parental information processing and sensemaking. In addition, recommendations for providers communicating emotional information to parents are provided.

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Disability and the Changing Contexts of Family and Personal Relationships
Type: Book
ISBN: 978-1-83753-221-6

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Book part
Publication date: 10 June 2024

Ioanna Georgiou and Stavros K. Parlalis

The purpose of this study is to highlight the need to develop and expand specialized support for people with ASD, examining the effect of these services on their families' quality…

Abstract

The purpose of this study is to highlight the need to develop and expand specialized support for people with ASD, examining the effect of these services on their families' quality of life. Despite efforts to promote diversity and equal opportunities for people with disabilities, Cyprus faces challenges in various levels such as in society, education, and employment. Unlike other countries, there is limited literature and data on adults with ASD in Cyprus, which prevents from forming an accurate assessment of their needs and the impact on their quality of life. Further, as a European Union Member State, Cyprus has restrictions on specialized programs and benefits, which makes it difficult to fully implement the UN Convention on the Rights of Persons with Disabilities (CRPD). This led to a lack of effective support services for adults with ASD and their families. Consequently, parents express concerns about the support that will be available for their adult children in the future. This study uses qualitative data obtained through the constant comparative method and is part of a larger project that includes both quantitative and qualitative research methods. The study presents important issues such as the positive impact of services on these adults and their families, families' concerns about specialized support and programs for people with ASD, and their relationships with their parents. The results are expected to raise awareness, promote social policy development, and improve the quality of life of people with ASD and their families in Cyprus.

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Disability and the Changing Contexts of Family and Personal Relationships
Type: Book
ISBN: 978-1-83753-221-6

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Book part
Publication date: 10 June 2024

Justin T. Maietta

This paper draws on 26 in-depth interviews with people living with type 1 diabetes (T1D) to explore how experiences and interpretations of disability redirect and transform…

Abstract

This paper draws on 26 in-depth interviews with people living with type 1 diabetes (T1D) to explore how experiences and interpretations of disability redirect and transform reproductive trajectories. I apply Almeling's conceptualization of reproduction as the “biological and social process of having or not having children” as a framework for understanding what occurs at multiple analytical layers (structural and cultural, interactional, self, and body) across the life course and influences how and whether people with disabilities feel having children is something they want or need or is within their reach. Findings reveal the lasting impact of viewing the film Steel Magnolias, pivotal interactions with healthcare providers, and interpretations of embodied T1D experiences as major sources of tension for participants as they reflect on their reproductive trajectories and outlooks. Considering especially the structural and cultural layer, this paper enriches our understanding of disability by demonstrating that both women and men with less noticeable or visible disability are subject to similar social imperatives of risk management and moral reproduction as those with more noticeable physical or sensory disabilities, although gender also matters for how participants experience these imperatives. Findings lend support for viewing reproduction as a lifelong process beyond the sequence from conception to birth, as some significant disability experiences that transform or redirect reproductive trajectories fall outside this timeframe.

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Disability and the Changing Contexts of Family and Personal Relationships
Type: Book
ISBN: 978-1-83753-221-6

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Book part
Publication date: 22 May 2024

Chris O'Donnell and Anthony Cusack

Housing is a fundamental need for all humans. A roof over our heads can provide safety, warmth and stability. Once we have this stability, our physical and mental health is more…

Abstract

Housing is a fundamental need for all humans. A roof over our heads can provide safety, warmth and stability. Once we have this stability, our physical and mental health is more likely to be managed effectively. However, housing, or indeed a roof, is not something everyone has the privilege of experiencing. Housing policy across the globe is dominated by capitalistic thinking: the profit becomes the priority. Those marginalised, traumatised and stigmatised suffer the most, many having to access inadequate homeless shelters, still more sleeping on our cold streets. Current service provision favours the middle class. In these circumstances ill-health manifests, responses are often inadequate, yet some innovations develop. Housing First seeks to reach into the homeless population and provide housing to those most entrenched, while Safetynet seeks to provide health-related services to those homeless and experiencing other related problems. Both interventions understand the role peers can play in providing these services.

Book part
Publication date: 13 May 2024

Eelco van Eijck

Many in the private and public sectors see headhunting as a “necessary evil.” A tour of investors, business schools, executive and supervisory board directors throws up…

Abstract

Many in the private and public sectors see headhunting as a “necessary evil.” A tour of investors, business schools, executive and supervisory board directors throws up unflattering descriptions. Accusations of “opacity” are probably linked to the industry’s duty of discretion. Other observers signal a need for improvement: “pumping the same names around,” “emphasis on reputation, not merit,” “lack of quality” and “low innovation.” The battle to professionalize is underway. We look at the avenues ahead for executive hiring, the demise of the “old boys’ network” and the need for diversity and sustainability in modern organizations. We present the difficulties of running a headhunting firm, and distinguishing factors of the best players. We argue that selecting a headhunter demands the same rigor as choosing a lawyer, and six areas of improvement for executive search firms. Unpacking the Spartan marathon to the boardroom, we reveal the surprising estimates of the number of new high potentials entering the market annually. We conclude by looking at possible blind spots on both sides of the hiring equation that can undermine company interests, and continue to examine the march to professionalize the executive search industry.

An earlier form of this chapter by the author was published in Dutch in “Bestemming Boardroom: over zoeken en gevonden worden” (Boom, Amsterdam, 2018) and in English (online) by the Amrop Partnership (2021) as “Destination Boardroom 3: Mapping the Executive Search World.”

Book part
Publication date: 23 April 2024

Edwin Ramirez-Asis, Hober Huaranga-Toledo, Yeni Bullón-Miguel, Huber Rodriguez-Nomura and Hugo Marino Rodríguez-Orellana

This study analyzes the digital competencies and the attitude toward the use of information and communication technologies (ICT) in secondary school teachers of the Javier Heraud…

Abstract

This study analyzes the digital competencies and the attitude toward the use of information and communication technologies (ICT) in secondary school teachers of the Javier Heraud Public Educational Institution, Lima, Peru, according to the technology, pedagogy, and content knowledge (TPACK) model, which focuses on knowledge about technology knowledge (TK), pedagogical content (PK) and content knowledge (CK). This implies that it is important to take these components into account in the development of teaching work, in order to contribute to the quality of student learning, within the framework of the restrictions established due to the global health emergency. The study is based on the quantitative approach, type of correlational research and cross-sectional design, the sample consisted of 106 secondary education teachers, questionnaire was applied which were validated by five experts and its reliability was analyzed by the values obtained for Cronbach's alpha, for the digital competencies variable α = 0.861 and for the variable attitude toward the use of ICT α = 0.854. It has been shown that there is a relationship between digital competencies and the attitude toward the use of information and communication technologies in teachers of a Peruvian Public Educational Institution.

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Technological Innovations for Business, Education and Sustainability
Type: Book
ISBN: 978-1-83753-106-6

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Book part
Publication date: 13 May 2024

Eelco van Eijck

The search for top executives is fraught with pitfalls. Understanding them will set the process off on a strong footing and maximize the chances of a sustainable hire. This…

Abstract

The search for top executives is fraught with pitfalls. Understanding them will set the process off on a strong footing and maximize the chances of a sustainable hire. This chapter examines three aspects of the search dynamic: “stakeout,” “trust-building” and the search consultant’s “ambassador role.” We reveal nine important insights. Has digitization made headhunting any easier? We correct common misconceptions and reveal the difficulty of approaching top executives with role propositions, the building of trusted relationships with clients, and the ambassador role of the executive search consultant. We examine the need for empathy and deep discernment in reading candidates. We next go more deeply into the full search process: the selection of the search firm, the search itself, the presentation of the chosen candidate and onboarding. We reveal points of attention for clients and candidates that underpin best practice.

An earlier form of this chapter by the author was published in Dutch in “Bestemming Boardroom: over zoeken en gevonden worden” (Boom, Amsterdam, 2018).

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Destination Boardroom: Secrets of a Discrete Profession – Executive Search Unveiled
Type: Book
ISBN: 978-1-83797-963-9

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Book part
Publication date: 4 June 2024

Sally Moyle and Richard Waller

The ever-changing landscape of healthcare policy has impacted significantly on the development of nursing roles (Lloyd–Rees, 2016), and consequently seen the growth and…

Abstract

The ever-changing landscape of healthcare policy has impacted significantly on the development of nursing roles (Lloyd–Rees, 2016), and consequently seen the growth and transformation of existing professions and introduction of new healthcare roles. While the Emergency Nurse Practitioner (ENP) role is now well established within urgent care settings, it has evolved in an adhoc manner, responding to service demand. This has resulted in varying levels of job satisfaction and inconsistency in titles, uniform and scope of practice.

Using photographs or images to describe their perceptions of the role, experience and perceived professional identity, participants reported moving away from their traditional nursing practice into something different that bought new challenges and often conflict. Applying Bhabha's (1994) concept of the ‘third space’ to our findings suggests that ENPs have adopted a hybrid role that is operating within a ‘third (or hybrid) space’, where new identity is formed. Our participants' uncertainty around this (and that of others) could negatively impact the development of professional identity during transition into this new role.

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Critical Perspectives on Educational Policies and Professional Identities
Type: Book
ISBN: 978-1-83753-332-9

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