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1 – 10 of over 2000
Book part
Publication date: 31 July 2023

Louise C. Palmer

Multiple sclerosis (MS) is a chronic condition with variable physical, cognitive, and quality of life impacts. Little research has investigated how MS outcomes vary by social…

Abstract

Multiple sclerosis (MS) is a chronic condition with variable physical, cognitive, and quality of life impacts. Little research has investigated how MS outcomes vary by social identity (race, gender, disability, age, sexual orientation, and nationality) and social location (place within systems of power and privilege). However, emerging evidence points to racial and ethnic group disparities in MS outcomes. This chapter integrates core concepts from the life course perspective and an intersectional feminist disability framework to interrogate the role of diagnosis pathways in determining differential MS outcomes. MS diagnosis pathways (the time from symptom onset to the point of diagnosis) are a logical place to begin this work given the varying nature of symptom onset and the importance of a quick diagnosis for optimal MS outcomes. Whereas the life course perspective provides a framework for understanding disability transitions and pathways across the life span, an intersectional feminist disability framework centers disability within an axis of overlapping social identities and locations. The combination of both frameworks provides an approach capable of examining how MS disparities and inequities emerge in different contexts over time. The chapter begins with an overview of MS and current knowledge on disparities (mainly racial) in MS prevalence, diagnosis, and outcomes. The chapter proceeds to describe the utility of key concepts of both the life course perspective and intersectional frameworks when researching health disparities. Finally, the chapter ends with a theoretical application of an intersectional feminist disability life course perspective to investigate disparities in MS diagnosis pathways.

Book part
Publication date: 25 July 2019

Charles Flodin and Nicole Vidovich

Through exploration of the Addressing Higher Education Access Disadvantage (AHEAD) Program, this chapter will outline how outreach programs contribute to national equity targets…

Abstract

Through exploration of the Addressing Higher Education Access Disadvantage (AHEAD) Program, this chapter will outline how outreach programs contribute to national equity targets, university social responsibility practices, and university recruitment targets. The chapter explores innovations in tertiary outreach and its relationship to the student recruitment chain. Presenting insights and considerations to higher education (HE) leaders regarding approaches to equity outreach at an institutional level and the benefits of authentic university-based outreach initiatives. The chapter will draw on the experience of the AHEAD program since inception in 2014, and the data relating to student impact and university first preference scores from the Tertiary Institute Service Centre database, to demonstrate the Program’s effectiveness in developing student aspirations for HE. Additionally, the available data suggest that the creation of place-specific aspiration and learning experiences within the program has resulted in a recruitment advantage for the host institution, despite the program presenting information and pathways for all universities in Western Australia. The chapter presents the position that institution-specific affinity and natural transition pathways are cultivated through programs that seek to engage with low socioeconomic communities with a focus on co-solving-specific demographic challenges.

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Strategies for Facilitating Inclusive Campuses in Higher Education: International Perspectives on Equity and Inclusion
Type: Book
ISBN: 978-1-78756-065-9

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Book part
Publication date: 30 June 2017

Allison Loconto and Marc Barbier

Social and environmental standards-development organizations (SDOs) have been collaborating together to construct “meta-standards.” These exercises in standards-setting are part…

Abstract

Social and environmental standards-development organizations (SDOs) have been collaborating together to construct “meta-standards.” These exercises in standards-setting are part of a longer term process of transitioning innovative approaches to sustainable agriculture from diverse niches such as organic, fair trade, and environmental conservation into a regime of certified sustainability. Using participant observation during the development of an Assurance Code, we examine how actors construct the tools that enable them to influence the broader transition to sustainability. We do this by focusing on intermediation activities by “experts” during the development of a “meta-standard” for assurance. The purpose of this chapter is twofold. First, we propose that in order to understand transitions in progress, we should be attentive to how these processes are accompanied by intermediation activities. Second, we argue that intermediate objects (or boundary objects) are important in these processes as they help actors to create actionable knowledge. These intermediation activities and the production of actionable knowledge contribute to the ability of actors to govern markets in the transition toward sustainable agriculture.

Details

Transforming the Rural
Type: Book
ISBN: 978-1-78714-823-9

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Book part
Publication date: 8 August 2016

Amanda Watkins and Serge Ebersold

There is widespread awareness that evidenced-based policy-making is critical for the long-term development of inclusive education systems. Policy-makers, data collection experts…

Abstract

There is widespread awareness that evidenced-based policy-making is critical for the long-term development of inclusive education systems. Policy-makers, data collection experts and researchers are aware of the need for data collection at national level that not only meets the requirements of international policy guidelines, but also works within a shared approach so as to promote a synergy of efforts at national and international levels.

Monitoring inclusive education at the system level is increasingly seen as a priority for country and EU level decision-makers. However, what form this monitoring should take and what issues it should focus upon are less clear.

This chapter looks across a number of recent European Agency studies in order to highlight and consider key issues and questions in relation to monitoring the implementation of inclusive education in terms of a system’s efficiency, effectiveness and ability to be equitable for all learners.

By drawing upon the findings of European Agency work considering a range of policy priority areas, it is possible to highlight a number of common factors that apply to monitoring the dimensions of efficiency, effectiveness and equity in different educational contexts or systems.

Details

Implementing Inclusive Education: Issues in Bridging the Policy-Practice Gap
Type: Book
ISBN: 978-1-78635-388-7

Keywords

Book part
Publication date: 25 November 2019

J. Dalton Stevens

To understand how young men with disabilities react against overarching narratives of independence during the transition to adulthood in independent living and interdependent…

Abstract

Purpose

To understand how young men with disabilities react against overarching narratives of independence during the transition to adulthood in independent living and interdependent living arrangements with parents in order to address the gap between transition policy and real lived experience.

Methods/Approach

I use life history interviews and ethnographic “go-alongs” with nine men with mobility impairments to understand how they experience and make sense of independent living and interdependence during the transition to adulthood. Transcripts and field notes were analyzed using grounded theory methodology.

Findings

Data reveal diverging pathways participants took to interdependent living situation, rooting before transition, and returning during transition. These pathways are shaped by logics of residential decision-making: accessibility expectations and individual adaptability. Those who rooted before transition developed accessibility expectations that motivated them to remain living their parents’ homes while those who returned during transition relied on individual adaptability to overcome physical inaccessibility. Individual adaptability did not overcome inaccessibility – all returned to their parents’ homes. Pathways shape how each group of participants experienced and made sense of interdependent living arrangements and independent living. Those who rooted before transition found interdependence to be a route to increased independence, and did not consider independent living a marker of adulthood. Those who returned during transition found that the interdependence they experienced increased feelings of dependence.

Implications/Value

Experiences and meanings emerging adults with disabilities have during the transition to adulthood reveal the complexity of interdependence and independent living. The pathways and the social forces shaping those pathways to interdependent living arrangements have implications for life course theory and disability policy.

Details

New Narratives of Disability
Type: Book
ISBN: 978-1-83909-144-5

Keywords

Book part
Publication date: 17 January 2022

Joanne Banks, Des Aston and Michael Shevlin

Over the last decade, there has been a significant increase of students with intellectual disabilities attending mainstream primary and secondary-level education in the Republic…

Abstract

Over the last decade, there has been a significant increase of students with intellectual disabilities attending mainstream primary and secondary-level education in the Republic of Ireland (McConkey et al., 2017). Despite this increase, it appears that comparatively few of these students successfully transition to further/higher education and/or employment opportunities. This chapter examines typical transition support/guidance provided to students with intellectual disabilities as they prepare to complete their post-primary education in a mainstream setting. Using data from a study of school principals and school personnel responsible for career guidance and transition planning, the findings show guidance is limited for students with intellectual disabilities. Instead of being the responsibility of career guidance counsellors, guidance and transitions planning for students with intellectual disabilities are viewed as being the role of other personnel such as the school SENCO. By assigning this responsibility to special education roles in the school, students with intellectual disabilities may run the risk of having narrow and limited career options presented to them. This study raises serious questions about the effectiveness of mainstream schools in facilitating this critical transition stage for students who have intellectual disabilities.

Details

Transition Programs for Children and Youth with Diverse Needs
Type: Book
ISBN: 978-1-80117-102-1

Keywords

Book part
Publication date: 19 November 2021

Yael Armangau and Julien Figeac

This chapter aims to analyze the sociabilities, information-sharing behaviors, and types of social support among users of French non-mixed trans Facebook groups. First, our…

Abstract

This chapter aims to analyze the sociabilities, information-sharing behaviors, and types of social support among users of French non-mixed trans Facebook groups. First, our national survey (N = 405) reveals that the different uses of these groups (information retrieval, emotional support, etc.) vary according to the age and education levels of their trans users, or according to their progress on the transition pathways. Second, we perform a lexical analysis of the messages (N = 70,488) posted, since 2013, in a sample of 24 groups, in order to identify the main topics of discussion. This analysis leads us to emphasize the diversity of social support provided by trans people to one another, via posts and comments. These findings deemphasize the benefits of institutional support because they suggest, alternatively, that trans people are organizing themselves to avoid challenges associated with medical institutions and the French “therapeutic shield.. Such individuals use Facebook to this end, sharing information or support in order to create a safe space managed with a transfeminist ethic, and allowing themselves to make gender-related choices more autonomously, far away from normative judgements (in particular those expressed by the medical profession).

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Advances in Trans Studies: Moving Toward Gender Expansion and Trans Hope
Type: Book
ISBN: 978-1-80262-030-6

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Book part
Publication date: 14 December 2023

Liangrong Zu

This chapter explores a pathway towards achieving a sustainable and inclusive future through the implementation of systems innovation, systems leadership and systems change. The…

Abstract

This chapter explores a pathway towards achieving a sustainable and inclusive future through the implementation of systems innovation, systems leadership and systems change. The author highlights the importance of understanding complex systems and identifies several models that can be employed to drive systems change, including the iceberg model and multi-level perspective. The author stresses the significance of systems leadership and innovation in creating a sustainable and inclusive future. This means that leaders and managers need to shift their mindset from reductionism to systems thinking. Reductionism views complex systems as a collection of separate parts that can be studied independently. In contrast, systems thinking acknowledges the interconnectedness of all parts and how they influence each other. When they embrace systems thinking, leaders and managers can make systems innovation and drive systems change to achieve sustainable and inclusive growth. Achieving a sustainable and inclusive future requires a collective effort from individuals, organizations and governments. It demands a comprehensive understanding of the interdependencies and interactions within complex systems, as well as a willingness to adopt new ways of thinking and leading. This chapter presents a compelling case for adopting systems innovation, systems leadership and systems change as critical components in building a sustainable and inclusive future.

Details

Responsible Management and Taoism, Volume 2
Type: Book
ISBN: 978-1-83797-640-9

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