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Article
Publication date: 10 July 2024

Ru Ying Cai, Abigail Love, Kaaren Haas, Emma Gallagher and Vicki Gibbs

Navigating the banking world may be overwhelming and intimidating for autistic people due to the generally poor accessibility of banks. Banks around the world are starting to…

Abstract

Purpose

Navigating the banking world may be overwhelming and intimidating for autistic people due to the generally poor accessibility of banks. Banks around the world are starting to improve the accessibility of their services and products to meet the needs of autistic customers better. However, no empirical research has explored autistic adults’ banking experiences and needs. This study aims to determine what banks can do to make banking more inclusive and accessible for autistic people through understanding the banking experiences of autistic adults living in Australia and identifying the factors that shape these experiences.

Design/methodology/approach

In total, 57 autistic adults aged 18–67 years (Mage = 33.00, SDage = 11.03) and 29 caregivers of autistic adults aged 32–70 years (Mage = 52.24, SDage = 7.88) completed an online survey about the banking experiences of the autistic adults. In addition, 14 of the 57 autistic adults were interviewed.

Findings

Almost all autistic participants had a bank account, and online banking was the preferred way of banking for most autistic adults. The factor most often raised by participants that influenced the banking experiences of autistic adults was supportive and helpful bank staff. Other identified factors included autistic adults’ lack of financial and banking knowledge and banks’ poor understanding of autism. The majority of autistic adults felt that banks could become more autism-friendly and provided suggestions.

Practical implications

Given that most autistic adults are likely to access financial products and services, banks must become more autism-friendly to cater to the diverse needs of autistic customers. Recommendations for how financial institutions can become more inclusive were provided.

Originality/value

To the best of the authors’ knowledge, this is the first detailed examination of the banking experiences of autistic adults. Practical implications of the research were also provided.

Details

Advances in Autism, vol. ahead-of-print no. ahead-of-print
Type: Research Article
ISSN: 2056-3868

Keywords

Article
Publication date: 1 January 2014

C. Ellie Wilson, Ged Roberts, Nicola Gillan, Chris Ohlsen, Dene Robertson and Janneke Zinkstok

This paper aims to provide an overview of the recent National Institute for Health and Clinical Excellence (NICE) clinical guidance for diagnosis and treatment of adults with…

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Abstract

Purpose

This paper aims to provide an overview of the recent National Institute for Health and Clinical Excellence (NICE) clinical guidance for diagnosis and treatment of adults with Autism Spectrum Disorder (ASD) and to discuss clinical and practical implications.

Design/methodology/approach

This is a summary and discussion of the NICE guidance for adults with autism. This includes discussion of relevant related guidance, the need for transition services for young people with ASD, education of professionals, applicability of the guidance to people with intellectual disabilities and challenges related to implementation of the guidance in a changing National Health Service.

Findings

The guidance provides an excellent overview of current and state-of-the-art strategies for diagnosis and treatment of ASD-related behaviours, and their level of evidence. In terms of diagnosis, the main recommendation for clinicians is to carry out a comprehensive assessment for adults with suspected autism, taking into account co-morbid mental health problems and potential unmet needs. In addition, NICE makes recommendations regarding pharmacological and psychological interventions and these are discussed. The guidance also makes specific recommendations regarding service design, for example the formation of Autism Strategy Groups. This will hopefully support the development of specialist adult autism services.

Originality/value

This paper provides new insights into the implications of the recently published NICE clinical guidance for autism in adults, relevant for health care professionals, service managers and service users.

Details

Advances in Mental Health and Intellectual Disabilities, vol. 8 no. 1
Type: Research Article
ISSN: 2044-1282

Keywords

Article
Publication date: 15 March 2010

Jan Blacher, Bonnie Kraemer and Erica Howell

The differential impact of young adult diagnosis on families during the period of transition from school to adult life was examined. Participants were parents of 246 young adults

Abstract

The differential impact of young adult diagnosis on families during the period of transition from school to adult life was examined. Participants were parents of 246 young adults with severe learning disability aged 18‐26. Young adults were classified into four diagnostic groups: autism (N = 30), Down's syndrome (N = 68), cerebral palsy (N = 95) and an undifferentiated learning disability group (N = 53). Research questions pertained to parent expectations about their young adults' transition to living and working environments post high school. Parental satisfaction and worries were also assessed. The results indicated more community expectations of work for young adults with Down's syndrome, and more restrictive expectations for young adults with autism, including more expectations that young adults with autism would move out of the family home into a residential environment. Parents of young adults with autism also worried significantly more about various aspects of transition than other parent groups.

Details

Advances in Mental Health and Learning Disabilities, vol. 4 no. 1
Type: Research Article
ISSN: 1753-0180

Keywords

Book part
Publication date: 18 January 2022

Nadia Bhuiyan, Margaret Young and Daniel J. Svyantek

Over one million individuals diagnosed with autism spectrum disorder (ASD) will be entering adulthood and attempting to cultivate fulfilling, meaningful life experiences. These…

Abstract

Over one million individuals diagnosed with autism spectrum disorder (ASD) will be entering adulthood and attempting to cultivate fulfilling, meaningful life experiences. These young adults with ASD represent Generation A. The workplace will be a major element in cultivating fulfilling lives for Generation A. Social interaction is an integral component for functioning within most postsecondary and occupational settings. It is necessary to understand the interaction between autistic adults and organizations to understand potential social and behavioral deficits. The workplace is inherently a social place. Understanding both formal and informal social information in the workplace may be critical to successful job performance. Fit, particularly person–organization fit, is used to address this social nature of the workplace. Understanding this interaction helps provide a means for crafting both individual and organizational interventions which support autistic adults in the workplace. This chapter provides an analysis of interventions that support those with ASD in the workplace. It is proposed that these interventions will help create a more supportive work environment for those with ASD. As important, it is proposed that the accommodations for those with ASD are reasonable for any organization seeking to improve both satisfaction and performance for all its employees. By addressing these issues, organizations have the potential to create a more satisfying workplace for all workers, not just those in Generation A.

Book part
Publication date: 9 November 2020

Helen Rottier and Morton Ann Gernsbacher

Purpose: Due to the developmental nature of autism, which is often diagnosed in preschool or elementary school-aged children, non-autistic parents of autistic children typically…

Abstract

Purpose: Due to the developmental nature of autism, which is often diagnosed in preschool or elementary school-aged children, non-autistic parents of autistic children typically play a prominent role in autism advocacy. However, as autistic children become adults and adult diagnoses of autism continue to rise, autistic adults have played a more prominent role in advocacy. The purpose of this chapter is to explore the histories of adult and non-autistic parent advocacy in the United States and to examine the points of divergence and convergence.

Approach: Because of their different perspectives and experiences, advocacy by autistic adults and non-autistic parents can have distinctive goals and conflicting priorities. Therefore, the approach we take in the current chapter is a collaboration between an autistic adult and a non-autistic parent, both of whom are research scholars.

Findings: The authors explore the divergence of goals and discourse between autistic self-advocates and non-autistic parent advocates and offer three principles for building future alliances to bridge the divide between autistic adults and non-autistic parents.

Implications: The chapter ends with optimism that US national priorities can bridge previous gulfs, creating space for autistic adult and non-autistic parent advocates to work together in establishing policies and practices that improve life for autistic people and their families and communities.

Details

Disability Alliances and Allies
Type: Book
ISBN: 978-1-83909-322-7

Keywords

Article
Publication date: 3 August 2022

Ru Ying Cai, Emma Gallagher, Kaaren Haas, Abigail Love and Vicki Gibbs

Many autistic adults experience unemployment, which may impact their financial circumstances. However, no research has examined their personal financial circumstances. Therefore…

Abstract

Purpose

Many autistic adults experience unemployment, which may impact their financial circumstances. However, no research has examined their personal financial circumstances. Therefore, this study aims to examine the self-reported income, savings and debt of autistic adults living in Australia, as well as the demographic associates and predictors of income and savings.

Design/methodology/approach

Sixty-four autistic adults aged 18–67 years (Mage = 32.78, SDage = 11.36) completed an online survey containing questions relating to their financial circumstances and the autism spectrum quotient-short.

Findings

Overall, the authors found that many autistic adults are financially disadvantaged. The mode of income levels was below AU$25,000, which is substantially lower than the mean annual Australian full-time income of AU$89,123. Higher savings was associated with not having any debt or having a greater ability to repay debt. Autism traits were positively associated with income levels. As predicted, being employed was associated with and predicted higher income. People who were employed were four times more likely to have a higher income than unemployed individuals. The authors did not find a relationship between having a co-occurring mental condition with income or savings. The authors also did not find a significant association between employment status and savings.

Practical implications

These research findings have implications on how we can improve the financial circumstances of autistic adults and provide additional evidence for the importance of increasing employment opportunities for autistic individuals.

Originality/value

To the best of the authors’ knowledge, this is the first study to examine the personal financial circumstances of autistic adults.

Details

Advances in Autism, vol. 9 no. 1
Type: Research Article
ISSN: 2056-3868

Keywords

Article
Publication date: 11 May 2012

Nick Walsh and Ian Hall

The aim of this article is to critically review the Autism Strategy and to discuss its implications.

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Abstract

Purpose

The aim of this article is to critically review the Autism Strategy and to discuss its implications.

Design/methodology/approach

This is a summary and critical review of the Autism Strategy and its implementation. This includes discussion of the political context, reactions to the strategy by stakeholders, economic considerations, equity, integration across health and social care and the role of diagnostic services and specialist interventions.

Findings

The Autism Strategy Fulfilling and Rewarding Lives was published in 2010. It aimed to increase awareness of autism, establish clear pathways for diagnosis and needs assessment, promote independent living and access to work, and help the development of local services. It focuses on intended outcomes, is not prescriptive about how those aims are achieved, and relies on existing legislation such as the Disability Discrimination Act. The emphasis on accessing mainstream services may limit the development of appropriate specialist services, especially in the current economic climate. Specialist interventions that may follow diagnosis are not prioritised, even though the economic case for them has been well made by the Audit Commission. Although the Department of Health has produced “outcomes and ambitions” to measure implementation of the Strategy, local authorities are not required to measure themselves against these targets or publish their results. However, organisations such as the National Autistic Society have already developed training materials to help with implementation, and the NICE guidelines for adults with autism due in 2012 may help the development of better services.

Originality/value

This article provides new insights into the implications of the strategy for service users, service managers and healthcare professionals. Although the strategy applies to England only, the principles are of interest to stakeholders in other countries.

Details

Advances in Mental Health and Intellectual Disabilities, vol. 6 no. 3
Type: Research Article
ISSN: 2044-1282

Keywords

Book part
Publication date: 7 July 2022

Matthew Bennett and Emma Goodall

The tendency to study autistic children has resulted in the lack of research about autistic seniors. This chapter begins by showing the results of two studies that have measured…

Abstract

The tendency to study autistic children has resulted in the lack of research about autistic seniors. This chapter begins by showing the results of two studies that have measured the volume of research about autistics based on age brackets. Two factors that have hampered research about autistic seniors are then presented. This chapter then concludes by highlighting seven topics where more research can be conducted about autistic seniors. These topics are research about their physical health, cognitive abilities, mental health, employment, transport, healthcare and specific issues relating to autistics residing in a nursing home/aged care facility.

The original contribution that this chapter makes to autism spectrum research is to examine the imbalance in research between autistic children and autistic seniors and to provide several suggestions where more research can be conducted about autistic seniors.

Details

Addressing Underserved Populations in Autism Spectrum Research
Type: Book
ISBN: 978-1-80382-463-5

Keywords

Article
Publication date: 29 October 2015

Conor James Davidson, Alwyn Kam, Frances Needham and Alison Jane Stansfield

Autism is a spectrum condition, yet many autism services limit access based on IQ score. The Department of Health 2009 enabled enthusiastic clinicians in Leeds with a strong…

Abstract

Purpose

Autism is a spectrum condition, yet many autism services limit access based on IQ score. The Department of Health 2009 enabled enthusiastic clinicians in Leeds with a strong interest in autism to apply for funding to develop an all IQ adult autism diagnostic service and here we present the experience. The paper aims to discuss this issue.

Design/methodology/approach

The process of establishing and then expanding the service is described. Details of the diagnostic pathway and tools used are provided.

Findings

The number of referrals was higher than expected – a baseline of 20 per year rose to 150 per year as soon as the service opened. Other unexpected findings include relatively low diagnosis rates (32 per cent), high rates of past trauma and patient dissatisfaction when a diagnosis of autism is not given.

Originality/value

To date, the service has assessed 517 patients, and plans are underway to collaborate with the local adult ADHD team to form a unified adult neurodevelopmental disorders service.

Details

Advances in Autism, vol. 1 no. 2
Type: Research Article
ISSN: 2056-3868

Keywords

Article
Publication date: 2 October 2017

Sarah Talari, Kanmani Balaji and Alison Jane Stansfield

The diagnosis of autism in adults often involves the use of tools recommended by NICE guidance but which are validated in children. The purpose of the paper is to establish the…

Abstract

Purpose

The diagnosis of autism in adults often involves the use of tools recommended by NICE guidance but which are validated in children. The purpose of the paper is to establish the strength of the association between the Autism Diagnostic Interview-Revised (ADI-R) scores and the final clinical outcome in an all intellectual quotients adult autism diagnostic service and to establish if this in any way relates with gender and intellectual ability.

Design/methodology/approach

The sample includes referrals to Leeds Autism Diagnostic Service in 2015 that received a clinical outcome. Sensitivity, specificity and positive and negative predictive values were calculated to evaluate ADI-R and final clinical outcomes. Logistic regression model was used to predict the effect of the scores in all the domains of ADI-R and the two-way interactions with gender and intellectual ability.

Findings

ADI-R has a high sensitivity and low specificity and is useful to rule out the presence of autism, but if used alone, it can over diagnose. Restricted stereotyped behaviours are the strongest predictor for autism and suggests that the threshold should be increased to enhance its specificity.

Research limitations/implications

This is a single site study with small effect size, so results may not be replicable. It supports the combined use of ADI-R and Autism Diagnostic Observation Schedule and suggests increasing ADI-R cut-offs to increase the specificity.

Practical implications

The clinical team may consider piloting a modified ADI-R as suggested by the results.

Originality/value

To the authors’ knowledge this is the only study of ADI-R in an adult population of all intellectual abilities.

Details

Advances in Autism, vol. 3 no. 4
Type: Research Article
ISSN: 2056-3868

Keywords

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