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1 – 10 of 238
Article
Publication date: 27 February 2024

Rebecca Day, Luke Simmons, Elizabeth Shade, Jo Jennison, Clare S. Allely and Raja A.S. Mukherjee

Recent research has proposed a specific female phenotype within autism spectrum disorder (ASD). It suggests females exhibit differences in social communication styles with higher…

Abstract

Purpose

Recent research has proposed a specific female phenotype within autism spectrum disorder (ASD). It suggests females exhibit differences in social communication styles with higher levels of camouflaging and compensatory strategies, as well as variance in restrictive repetitive behaviours (RRBs); however, many existing studies have been based on either small, disproportionate or child and adolescent samples, leaving questions about the specific phenotype. This study aims to explore the sex difference and phenotype in a clinic sample of individuals diagnosed with autism.

Design/methodology/approach

A service evaluation of sex/ gender differences on 150 historical ASD assessment reports (75 males, 75 females) using a 103-item questionnaire developed from a quantitative review of existing literature was undertaken.

Findings

Females camouflaged more significantly than males in five different areas (thinking how to act next, preparing conversation in advance, making lists of prompts/social responses, wearing a mask/acting, less monotone voice); however, these were not maintained in post-analysis correction.

Originality/value

This study points the evidence towards a different phenotype of Autism that is more common in women than men rather than a unique female phenotype.

Details

Advances in Autism, vol. 10 no. 2
Type: Research Article
ISSN: 2056-3868

Keywords

Article
Publication date: 15 December 2023

Hugh Morgan

The purpose of this paper is to place on record the impact made on government policy and research by Autism Cymru, a small charity that existed in Wales between 2001 and 2014. The…

Abstract

Purpose

The purpose of this paper is to place on record the impact made on government policy and research by Autism Cymru, a small charity that existed in Wales between 2001 and 2014. The success of Autism Cymru resulted directly from philanthropic funding, applied with strategic vision and genuine ambition.

Design/methodology/approach

A retrospective, chronological viewpoint highlighting the creative process, drawing upon records held by the charity.

Findings

Autism Cymru initiated the concept and played a crucial role in steering the development of government policy for autism in Wales between 2001 and 2011. The charity also drove forward the initiative, which led to the establishment of the Wales Autism Research Centre at Cardiff University in 2010. This paper demonstrates that with astute philanthropic support, small learning disability/autism charities can elicit structural and sustainable change at the national level, leading to wide-ranging benefits for the communities they represent.

Originality/value

The strategic approach taken over 20 years ago in Wales by Autism Cymru, which led to the Welsh Government’s ASD Strategic Action Plan for Wales (Welsh Government, 2011), set in place a national policy model, which was then followed by The Scottish Strategy for Autism and the Northern Ireland Autism Strategy (Department of Health, 2013>; Scottish Government, 2011). The insightful and tenacious method used by Autism Cymru remains relevant today, demonstrating that any small charity supported by shrewd philanthropic funding can punch well above its weight by taking a planned, ambitious and strategic approach to policy, research and practice.

Details

Tizard Learning Disability Review, vol. ahead-of-print no. ahead-of-print
Type: Research Article
ISSN: 1359-5474

Keywords

Article
Publication date: 31 May 2023

Zhiyue Zhao, Da Shi, Xiaoxiao Qi, Yawen Shan and Xiyi Liu

People with autism and their families struggle with travel because of its complexity. This study aims to promote travel participation by exploring the travel needs and patterns of…

Abstract

Purpose

People with autism and their families struggle with travel because of its complexity. This study aims to promote travel participation by exploring the travel needs and patterns of people with autism and their families.

Design/methodology/approach

A total of 28 participants were interviewed. Data were analyzed via constructivist grounded theory.

Findings

People with autism and their families displayed five travel patterns: mutual support, relatives’ visitation, independent travel, expanded socialization and package tours. These patterns were adopted in a stepwise fashion as the autistic individuals’ abilities improved. The travel challenges and support needs of Chinese autistic people and their families were identified.

Practical implications

The findings can inform accessibility tourism, promote an understanding of autistic people’s tourism activities among the public and industry marketers and offer strategic guidance about family travel for this population.

Originality/value

This effort responds to a call to investigate disability-related issues. The study evaluated the travel behavior of people with autism and their families, from a developmental perspective, presenting a new angle in research on accessibility tourism.

Details

International Journal of Contemporary Hospitality Management, vol. 35 no. 11
Type: Research Article
ISSN: 0959-6119

Keywords

Article
Publication date: 28 March 2024

Monica Cerdan Chiscano and Simon Darcy

The present paper answers two significant questions: (1) What are the relative consumer and firm-level effects of marketing through metaverse compared to conventional marketing…

Abstract

Purpose

The present paper answers two significant questions: (1) What are the relative consumer and firm-level effects of marketing through metaverse compared to conventional marketing endeavors? (2) What are the current trends in utilizing the metaverse as reported in the recent literature?

Design/methodology/approach

This study employs a systematic literature review methodology, utilizing a Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) flowchart to synthesize existing research. Thirty-five articles written in English were selected and analyzed from two databases, Web of Science and EBSCO Host.

Findings

The findings indicate that consumer-level effects of the metaverse include consumer loyalty and brand attachment. The firm-level benefits are decentralization and cost reductions. The paper proposes a framework indicating variables that could attenuate or enhance the association between immersive components of the metaverse and their resultant effects.

Originality/value

This study contributes to understanding the role of metaverse in marketing practices related to the marketing mix components. The study conceptualizes a novel framework for the metaverse and its resultant effects.

Details

Journal of Enabling Technologies, vol. ahead-of-print no. ahead-of-print
Type: Research Article
ISSN: 2398-6263

Keywords

Content available
Article
Publication date: 17 January 2024

Daisy Grace Burden

Parents whose children have undergone an autism assessment often describe the process as extremely stressful. This affects how parents engage with services post-diagnosis, meaning…

Abstract

Purpose

Parents whose children have undergone an autism assessment often describe the process as extremely stressful. This affects how parents engage with services post-diagnosis, meaning less likelihood of using subsequent service support despite struggling to cope. Since parents already report many barriers to accessing services, e.g. long waiting lists, lack of co-ordination and limited resources (Sapiets et al. 2023), negative experiences during assessment should not pose another potential barrier to engagement. This study aimed to address how families’ needs can be better met during the assessment process.

Design/methodology/approach

In this qualitative study, the author conducted semi-structured interviews with 11 parents whose child had undergone an autism assessment in the last five years. Thematic analysis determined key themes.

Findings

The six themes were: clarity and communication, access to support and resources, aftercare, recognition of parent concerns, personalisation of the assessment process and concerns around the use of personal protective equipment/online assessments. These themes led to criteria to assess the quality of autism assessment services in line with parent perspectives.

Practical implications

These parent-informed criteria could facilitate the consideration of parents’ views into service evaluations of autism assessment services across the UK.

Originality/value

Previous research indicates that the autism assessment experience is often extremely stressful and overwhelming for families (Crane et al., 2016). Despite this, guidance to improve autism services rarely prioritises the opinions and experiences of service-users and their families. The criteria presented here were derived from themes identified by interviewing parents on their experiences of the autism assessment process, thus shifting the focus onto service-users.

Details

Advances in Autism, vol. 10 no. 1
Type: Research Article
ISSN: 2056-3868

Keywords

Article
Publication date: 14 September 2023

İbrahim Efe Efeoğlu and Ömür Kılınçarslan

In studies considering the employment of individuals with autism, the organisational context – which consists of the behaviours and attitudes of employees – has frequently been…

Abstract

Purpose

In studies considering the employment of individuals with autism, the organisational context – which consists of the behaviours and attitudes of employees – has frequently been neglected. This study investigates the employment of workers with autism, who have an intellectual disability (AID) in Türkiye. The study aims to understand the perspectives of managers and co-workers with regard to the employment of individuals with AID.

Design/methodology/approach

The authors conducted interviews with 23 people who were the co-workers, managers and parents of workers with AID. They also reviewed performance documents concerning employees with AID and analysed the data using qualitative content analysis.

Findings

The employment of individuals with AID has caused concern amongst employees within organisations. However, training activities have raised awareness of autism amongst those employees. This new awareness has overcome initial negative judgements about the employment of individuals with AID, turning these instead into positive ones. Thus, social interaction between workers with AID and their co-workers has increased.

Practical implications

This research provides evidence of the positive impact of employees with AID on companies and shows that employing individuals with AID in inclusive contexts improves their quality of life. It also provides guidance for the design of training programmes for employees and the adaptation processes of people with disabilities in the workplace.

Originality/value

This study emphasises the role of the organisational context in the successful employment of people with AID in supported employment settings. It could contribute to changing attitudes and negative expectations and guide interventions in these contexts.

Details

Equality, Diversity and Inclusion: An International Journal, vol. 43 no. 2
Type: Research Article
ISSN: 2040-7149

Keywords

Article
Publication date: 15 December 2023

Catherine Storey

This paper is a commentary that aims to address themes arising from the article by Morgan titled “Wales and Autism: The Impact of Philanthropy Matched with Ambition”.

Abstract

Purpose

This paper is a commentary that aims to address themes arising from the article by Morgan titled “Wales and Autism: The Impact of Philanthropy Matched with Ambition”.

Design/methodology/approach

This opinion piece considers the broader impact of stakeholder engagement in the field of autism, including how the dissemination of evidence-based support could be made more accessible for autistic people, their families and carers and philanthropists.

Findings

This paper highlights the link between stakeholder engagement and meaningful change in policy and practice in the field of autism. It highlights the need for philanthropists to invest in evidence-based support but highlights the difficulty in identifying and accessing such support. This piece supports the use of evidence and gap maps (EGMs) to increase the accessibility of autism research and evidence.

Originality/value

While stakeholder engagement is encouragingly rising in this field, most of the evidence is held in academic journals, which are behind paywalls and, therefore, inaccessible to many autistic people, their families, carers and associated professionals. Displaying evidence using EGMs provides an accessible way for autistic people and those who support them to identify possible avenues of support quickly and allows philanthropists to direct research funding to areas of high priority.

Details

Tizard Learning Disability Review, vol. ahead-of-print no. ahead-of-print
Type: Research Article
ISSN: 1359-5474

Keywords

Open Access
Article
Publication date: 5 October 2022

Kate Precious

Across Europe, national governments have moved to implement policies which deal exclusively with autistic people, indicating a reframing of autistic people as needing something…

Abstract

Across Europe, national governments have moved to implement policies which deal exclusively with autistic people, indicating a reframing of autistic people as needing something additional to or different from existing disability policy. In England, a clear and positive reframing of autistic people as having the potential to solve the problems they face when given the right support is evident in national autism policy. This can be linked to the actions of a group of self-advocates who sit on policy decision-making bodies.

Details

Emerald Open Research, vol. 1 no. 13
Type: Research Article
ISSN: 2631-3952

Keywords

Content available
Article
Publication date: 30 April 2024

Simon Riches, Neil Hammond, Marilla Bianco, Carolina Fialho, Sarah Lisle Nicholson and James Acland

Although increased social time is associated with healthier lifestyles, autistic people often present in therapy with social time difficulties. Given the growing interest in…

Abstract

Purpose

Although increased social time is associated with healthier lifestyles, autistic people often present in therapy with social time difficulties. Given the growing interest in digital interventions and their applicability for autistic individuals, a social time app could be beneficial to support autistic people to manage social time, but there is limited research in this field, especially that which involves people with lived experience. The purpose of this study was to use co-production to conduct consultations with expert clinicians about the relationship between autism and social time, and the future development of a smartphone app to monitor and support social time in autistic people.

Design/methodology/approach

A qualitative methodology investigated clinicians’ views on the relationship between autism and social time and potential development of a social time app. Clinicians (N = 8) participated in semi-structured interviews facilitated by a researcher with lived experience of autism.

Findings

Participants were psychologists and psychotherapists from a specialist autism service. Thematic analysis identified factors associated with social time, such as differences with neurotypical populations, need for balance with non-social time and gender differences. According to participants, advantages of social time were connecting with people and forming relationships, whereas challenges were limited social skills, anxiety and anger and frustration. Suggested features of an app were a user-friendly design, psychoeducational components and prompts and reminders. Potential advantages of the app were support outside of therapy, support in therapy and monitoring emotional responses, whereas challenges were task completion and personalising content.

Originality/value

Findings reinforce the importance of a balance between social and non-social time for autistic people, which could be monitored and supported using a social time app. Clinicians could incorporate use of this app within psychological therapies to support emotional regulation and general functioning.

Details

Mental Health and Digital Technologies, vol. ahead-of-print no. ahead-of-print
Type: Research Article
ISSN: 2976-8756

Keywords

Article
Publication date: 25 January 2024

Sarah Waller, Simon Chester Evans, Jennifer Bray and Teresa Atkinson

There is increasing interest in the UK in developing environments that support people who are neurodiverse. This paper aims to report on a project to develop a cognitively…

Abstract

Purpose

There is increasing interest in the UK in developing environments that support people who are neurodiverse. This paper aims to report on a project to develop a cognitively supportive environmental assessment tool to improve the design of health centres, where the majority of National Health Service consultations take place, for all users, including people living with dementia and those who are neurodiverse.

Design/methodology/approach

A three-stage process was used: a literature review; the development of a matrix of key design features for people living with dementia, autism and other neurodiverse conditions; and the development of an environmental assessment tool and guide for users, which included easy-to-read versions to maximise service user involvement.

Findings

The overarching concepts of dementia-friendly design can be adapted to create designs for everyone, including those who are neurodiverse.

Research limitations/implications

There is a paucity of research in environmental design for primary care from the patient’s perspective, and, more generally, further research on design for adults with learning disabilities and autism is needed.

Practical implications

The tools are free to download. With adaptation, they have potential applicability across health and care settings.

Originality/value

This project has confirmed that the principles of dementia-friendly design are applicable, with modifications, to a wider group of neurodiverse people. Critically, each person’s response to sensory stimuli is individual rather than determined by their condition.

Details

Working with Older People, vol. ahead-of-print no. ahead-of-print
Type: Research Article
ISSN: 1366-3666

Keywords

1 – 10 of 238