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1 – 10 of over 16000Steven Barnes, Jerome Carson and Kevin Gournay
Evidence suggests supported living can improve functioning and reduce need. However, its lack of a clear definition has presented significant challenges to establishing a…
Abstract
Purpose
Evidence suggests supported living can improve functioning and reduce need. However, its lack of a clear definition has presented significant challenges to establishing a definitive evaluation of its efficacy. This study aims to evaluate the efficacy of a defined model of supported living using in terms of reductions made to aspects of clinical and social recovery.
Design/methodology/approach
A naturalistic, non-controlled assessment was conducting using using the Camberwell Assessment of Need Clinical Scale with a sample of adults with severe and enduring mental illness residing with a UK-based mental health company at 1 of 12 UK locations.
Findings
Analysis regarding preliminary outcomes relating to health and social need is presented with comparison between admission and six-months post-admission (N = 90). Additional analysis relating to outcomes at 12 months is also provided (N = 39). Significant outcomes are noted at both timepoints in terms of reducing unmet need and levels of formal and informal help given/required during tenancy.
Practical implications
The findings support that, even in the absence of clinical recovery, opportunities exist to make meaningful and valuable improvements to unmet need and functional independence, with implications for clinical practice in the context of supported living.
Originality/value
The findings provide encouraging early indications of the benefits of the model in making meaningful reductions to functional and psychological needs in individuals with severe and enduring mental illness.
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Teresa Atkinson and Rebecca Oatley
The purpose of this paper is to present the views of people living with dementia in extra care housing (ECH). This is a model of housing with care and support aiming to support…
Abstract
Purpose
The purpose of this paper is to present the views of people living with dementia in extra care housing (ECH). This is a model of housing with care and support aiming to support older people, including those with dementia, to live independently. Previous research identifies benefits but is predominantly derived from third-party accounts, with the voices of those living with dementia in ECH significantly absent.
Design/methodology/approach
This study adopted a qualitative approach conducting 100 interviews across 8 ECH schemes in England. Over half of the interviews were conducted with people living with dementia and their families with the remainder involving staff and commissioners.
Findings
Findings suggest there are a range of benefits including owning your own home, having a safe, age friendly location with flexible support, social interaction and continuing to live as a couple. Challenges included availability of staff, flexible resourcing, loneliness and the advancing symptoms of dementia.
Research limitations/implications
Despite efforts to create an inclusive, diverse sample, the participants were all White British. Participants involved were identified by gatekeepers, which may present some bias in the selection.
Practical implications
Whilst ECH offers benefits to people living with dementia, addressing the challenges is essential for effective dementia care. Improving staff training, promoting person-centred care and fostering an inclusive community are critical for enhancing residents’ well-being and quality of life.
Originality/value
This paper explored the lived experiences of residents and family members, providing new insight into the advantages and disadvantages of ECH for people living with dementia.
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Washiraporn Wannachot, Pimporn Phukrongpet, Kanokporn Rattanasuteerakul and Hanvedes Daovisan
This study aims to explore how social support has reshaped the care of older adults living alone in northeast Thailand during the COVID-19 pandemic.
Abstract
Purpose
This study aims to explore how social support has reshaped the care of older adults living alone in northeast Thailand during the COVID-19 pandemic.
Design/methodology/approach
This study used a qualitative method using a narrative gerontological perspective with a descriptive design. Purposive sampling was conducted from 20 in-depth narrative interviews between November 2021 and February 2022 in Maha Sarakham province, northeast Thailand. Data transcriptions were performed using a narrative analytical process.
Findings
The in-depth narrative interviews indicated that older adults living alone during the coronavirus pandemic valued a comfortable life, a sense of place, favourable living arrangements, self-reliance, life goals and meaningful life. The gerontological analysis showed that social support for older adults living alone included a social safety net, networking, supporting needs, physical care and mental health responses to the COVID-19 pandemic.
Originality/value
To the best of the authors’ knowledge, this is the first qualitative narrative gerontological study to explore how social support reshaped the care of older adults living alone during the COVID-19 pandemic in northeast Thailand.
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Teresa June Atkinson, Rebecca Oatley and Simon Evans
The purpose of this paper is to report on a scoping review of the advantages and challenges of extra care housing (ECH) provision in the UK for people living with dementia. Access…
Abstract
Purpose
The purpose of this paper is to report on a scoping review of the advantages and challenges of extra care housing (ECH) provision in the UK for people living with dementia. Access to suitable housing is a fundamental right for people living with dementia and can enable people to live as well as possible (Twyford and Porteus, 2021). Understanding the advantages and disadvantages of different models of housing with care has been identified as a research priority by people living with dementia (Barrett et al., 2016) but “there is no current consensus on the best model of specialist housing for people with dementia” (Twyford and Porteus, 2021, p. 29).
Design/methodology/approach
This scoping review identifies the advantages and disadvantages of living in ECH for people with dementia. It is the preliminary stage of a study that seeks to develop knowledge about different models of ECH for people living with dementia (Atkinson et al., 2021).
Findings
Advantages include the promotion of independence, flexible staffing, safety and security, social inclusion, physical design and integrated service provision. Disadvantages include barriers to entry, tensions between independence and support, managing advanced dementia, resourcing flexible care, managing social exclusion, loneliness and stigma and a disabling environment.
Research limitations/implications
The scoping review reinforces the need for further research into different models of ECH provision in the UK for people living with dementia. The review provides insight that is of benefit to all stakeholders involved in ECH and contributes to the development of evidence-based provision called for in the recent All Party Parliamentary Group inquiry (Twyford and Porteus, 2021).
Originality/value
This scoping review summarises the current position for people living with dementia in ECH.
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Michelle O’Kane, Connie M. Bird, Sheila Marshall, Ashley Quinn and Grant Charles
Children and youth who enter the care system have lower educational outcomes and university participation rates than their peers. This study aims to understand trend exceptions by…
Abstract
Purpose
Children and youth who enter the care system have lower educational outcomes and university participation rates than their peers. This study aims to understand trend exceptions by examining the background of care-experienced undergraduates attending a research-intensive university in Canada.
Design/methodology/approach
Informed by social affordance theory, this study examined the presence of four indicators of stability (home, household occupants, school and legal status) during participants’ final three years of secondary education. Care-experienced undergraduates (N = 30) completed an online questionnaire. Associations between stability indicators, child welfare involvement in the final year of high school, educational outcomes and routes into higher education were analysed.
Findings
Stability across three to four indicators was experienced by 40% of participants, while 47% reported changes across three to four indicators. Only 20% had a change of school as compared to 47%–60% for other indicators. During their final year of high school, 73% of participants were supported by the child welfare system, with 50% being supported via a support program specifically for 16- to 18-year-olds. Stability scores were significantly lower for this latter subgroup compared to those who spent time in foster or group care and those who did not receive child welfare support during the final year of high school. Ninety percent of participants graduated from high school, 67% with the grades required to attend university. Three trajectories into undergraduate study were identified but could not be predicted using regression models.
Originality/value
This paper focuses on what has supported progression into a research-intensive university for care-experienced young adults and highlights the role of support programs for 16- to 18-year-olds.
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Georgina Rickard and Roy Deveau
This study aims to investigate the experiences of frontline managers supervising and developing staff to support autistic adults living in two types of residential housing in the…
Abstract
Purpose
This study aims to investigate the experiences of frontline managers supervising and developing staff to support autistic adults living in two types of residential housing in the community.
Design/methodology/approach
A qualitative approach used semi-structured interviews with 14 frontline managers. Audio-taped material was transcribed and analysed using thematic analysis.
Findings
Two main themes emerged. Theme 1 “autism in practice” illustrates commonalities observed to affect autistic adults with learning disabilities receiving staff support; whilst one sub-theme illustrated the diversity in how these commonalities may be experienced and expressed, another focused on participants’ experiences of staff concerns regarding behaviours described as challenging. Theme two, “what’s important in autism-informed support” reflected participants’ perceptions of the features of successful person-centred staff support for autistic service users.
Research limitations/implications
The “rich” experiences of these managers may not be readily generalised.
Practical implications
Features of good staff support for autistic adults who may show behaviours of concern included attending to individuals’ specific communication and sensory needs and for predictability within their environments. Developing staff skills and confidence to implement skilled approaches in the context of often high risk behaviour of concern took time and frontline managers “on site” to observe, coach, mentor and demonstrate good practice. More intellectually (verbally) able service-users were perceived as more “difficult” to support.
Social implications
Staff supporting autistic adults in ordinary housing need frontline managers to act as practice leaders rather than administrators.
Originality/value
This study is the first to report, to the best of the authors’ knowledge, on management for staff supporting autistic adults living in community housing.
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Louise Margaret Prendergast, Gill Toms, Diane Seddon, Carys Jones, Bethany Fern Anthony and Rhiannon Tudor Edwards
The purpose of this paper is to share the learning concerning how services and the paid carers working in them can support people living with dementia (PLWD) and their unpaid…
Abstract
Purpose
The purpose of this paper is to share the learning concerning how services and the paid carers working in them can support people living with dementia (PLWD) and their unpaid carers to overcome social isolation. This learning comes from the key findings from a Social Return on Investment (SROI) evaluation of a Shared Lives (SL) Day support service, known as TRIO.
Design/methodology/approach
SROI is a form of cost-benefit analysis that captures and monetises stakeholder outcomes. The SROI evaluation included a rapid evidence review, an interview study and a questionnaire study. The learning shared is drawn from the interview and questionnaire data that explored the reported outcomes relating to social connection, which included data related to participating in meaningful activities, confidence and independence.
Findings
PLWD who accessed the SL Day support service experienced better social connection, a sense of control over their activities (including their social activities) and community presence. A key foundation of these outcomes was the meaningful relationship that developed between the PLWD, their unpaid carer and the paid carer.
Research limitations/implications
This evaluation was a pilot study with a small, albeit representative sample size.
Practical implications
The learning suggests feasible and effective ways for paid carers to support the social connection of PLWD and their unpaid carers with their wider community.
Originality/value
There has been little exploration of how community-based short breaks (like SL Day support) can enhance social connection. The authors drew on a social relational model lens to illustrate how this service type had supported successful outcomes of community and social inclusion for PLWD.
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Takayuki Tomobuchi, Osamu Tsukihashi and Kazuki Isomura
The purpose of this study is to present the possibilities of co-creation-type reconstruction methods by focusing on examples of reconstruction in communities affected by the 2011…
Abstract
Purpose
The purpose of this study is to present the possibilities of co-creation-type reconstruction methods by focusing on examples of reconstruction in communities affected by the 2011 disaster in Japan. This is because the reconstruction of a community is not a matter of supplementing what has been physically lost, but must include social and cultural aspects. We will also conduct research based on the idea that by placing the residents, who are the bearers of the community, in the lead role, we can achieve a recovery that promotes maturity, rather than a recovery that overwrites the community.
Design/methodology/approach
This research was initially conducted for the purpose of reconstruction assistance, but in the process, the author conducted research using information obtained through material surveys on local history and self-governing activities, interview surveys on pre-disaster life, and participatory observation of reconstruction activities. In order to extract knowledge on co-creative reconstruction methods, the author focused on the actual state of cooperation between residents, experts involved in reconstruction support, and the government, based on past research conducted by the author, and extracted what could be considered co-creation from this.
Findings
Co-creative reconstruction is defined as a state in which a shared vision for reconstruction is created by each organization involved in the reconstruction process, with the residents at the core, and collaboration is generated beyond the organizational framework in order to achieve the objectives. This case study can be divided into the following three stages: the stage where the local residents start the recovery process, the stage where a vision for recovery is drawn up based on the recovery project organized by the government, and the stage where collaboration beyond the organizational framework is created to achieve the recovery vision.
Research limitations/implications
Compared to normal urban development, reconstruction projects in disaster-stricken areas are carried out simultaneously in a short period of time. Therefore, in order to capture the details of reconstruction, it is necessary to limit the target area and continue participant observation. However, the limited number of areas to be studied makes it difficult to conduct comparative verification. In addition, the unclear concept of “co-creation” requires the formation of common values through the verification of various case studies. Therefore, it is essential to form an environment in which various case studies can be collected and discussed.
Practical implications
Many of the research reports on earthquake recovery are extracts on specific themes. As a result, it is difficult to obtain an overall picture of how specific areas are recovering. As such, there are few examples that can serve as a reference when confronting reconstruction and an exploratory approach to the unclear future is required. Therefore, this study has practical findings in that it presents concrete sample information by clearly indicating issues and reconstruction systems on a long-term time horizon.
Social implications
It is nonsense to impose a uniform recovery plan in the midst of a mature society with increasingly diverse values. It is necessary to explore the possibility of bottom-up reconstruction in which residents play a leading role as a way to realize individualized and diverse reconstruction. This study presents the possibility of promoting reconstruction while maintaining equal relationships among residents, experts, and the government.
Originality/value
First, the study captures the actual situation of the village before the earthquake and the actual situation of the village during the reconstruction process, using the village as the basic unit. Second, it captures the reconstruction process of the village over a 10-year time frame. According to a specific timeline, the activities, discussions, and institutional changes to promote reconstruction are positioned. Third, in the limited phase of earthquake reconstruction, the project is providing information and analysis from a comprehensive and multifaceted perspective by narrowing down the target areas and continuing high-resolution surveys.
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This paper aims to introduce the concept of using the well-established Shared Lives approach to support survivors of domestic abuse with complex needs including those with…
Abstract
Purpose
This paper aims to introduce the concept of using the well-established Shared Lives approach to support survivors of domestic abuse with complex needs including those with learning and physical disabilities, older people and carers.
Design/methodology/approach
Survivors with complex needs are often excluded from traditional domestic abuse support services thus increasing their risk and making recovery impossible. Using the Shared Lives approach in suitable cases could address gaps in provision and improve the outcomes for survivors with disabilities, older survivors and carers.
Findings
The paper draws on evidence from reports and research about the experiences of these cohorts of survivors to explain how the Shared Lives approach could increase support options for specific categories of survivors.
Practical implications
Using the Shared Lives approach to support cohorts of victims/survivors who experience barriers to accessing support could improve outcomes for these people, reduce risk of serious harm and improve quality of life.
Originality/value
With the recent recommendation from Association of Directors of Adult Social Services around increasing use of Shared Lives, this paper provides one potential way to meet this recommendation.
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