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Advantages and challenges of extra care housing in the UK for people living with dementia: a scoping review

Teresa June Atkinson (Association for Dementia Studies, University of Worcester, Worcester, UK)
Rebecca Oatley (Association for Dementia Studies, University of Worcester, Worcester, UK)
Simon Evans (Association for Dementia Studies, University of Worcester, Worcester, UK)

Housing, Care and Support

ISSN: 1460-8790

Article publication date: 17 October 2023

Issue publication date: 30 November 2023

64

Abstract

Purpose

The purpose of this paper is to report on a scoping review of the advantages and challenges of extra care housing (ECH) provision in the UK for people living with dementia. Access to suitable housing is a fundamental right for people living with dementia and can enable people to live as well as possible (Twyford and Porteus, 2021). Understanding the advantages and disadvantages of different models of housing with care has been identified as a research priority by people living with dementia (Barrett et al., 2016) but “there is no current consensus on the best model of specialist housing for people with dementia” (Twyford and Porteus, 2021, p. 29).

Design/methodology/approach

This scoping review identifies the advantages and disadvantages of living in ECH for people with dementia. It is the preliminary stage of a study that seeks to develop knowledge about different models of ECH for people living with dementia (Atkinson et al., 2021).

Findings

Advantages include the promotion of independence, flexible staffing, safety and security, social inclusion, physical design and integrated service provision. Disadvantages include barriers to entry, tensions between independence and support, managing advanced dementia, resourcing flexible care, managing social exclusion, loneliness and stigma and a disabling environment.

Research limitations/implications

The scoping review reinforces the need for further research into different models of ECH provision in the UK for people living with dementia. The review provides insight that is of benefit to all stakeholders involved in ECH and contributes to the development of evidence-based provision called for in the recent All Party Parliamentary Group inquiry (Twyford and Porteus, 2021).

Originality/value

This scoping review summarises the current position for people living with dementia in ECH.

Keywords

Acknowledgements

Since acceptance of this article, the following author has updated their affiliation: Rebecca Oatley is now at the School of Social Sciences, Cardiff University, Cardiff, UK.

Funding: This study was supported by National Institute for Health and Social Care Research 102645/ER/UWTA-P180.

Citation

Atkinson, T.J., Oatley, R. and Evans, S. (2023), "Advantages and challenges of extra care housing in the UK for people living with dementia: a scoping review", Housing, Care and Support, Vol. 26 No. 3/4, pp. 84-102. https://doi.org/10.1108/HCS-09-2022-0023

Publisher

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Emerald Publishing Limited

Copyright © 2023, Emerald Publishing Limited

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