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Book part
Publication date: 18 September 2018

Karen Powroznik, Irena Stepanikova and Karen S. Cook

This research explores how gender influences the experience of cancer care and proposes a new explanation for gender differences in posttraumatic growth among individuals who…

Abstract

Purpose

This research explores how gender influences the experience of cancer care and proposes a new explanation for gender differences in posttraumatic growth among individuals who received blood or marrow transplantation as treatment for lymphoma.

Methodology/approach

We use mixed methods, combining quantitative examination of surveys with 180 survivors with qualitative findings from semi-structured face-to-face interviews with 50 survivors. Participants were 2–25 years after transplantation. Quantitative data were analyzed using statistical modeling; qualitative data were analyzed using thematic coding.

Findings

A quantitative examination indicates that compared to men, women report greater posttraumatic growth and more positive impacts of cancer despite having lower physical health. These gender differences are robust even after controlling for physical and emotional well-being, life satisfaction, and social support. Qualitative findings from in-depth interviews show that gender norms and expectations about masculinity and femininity shape how individuals experience illness and perform the role of patient and survivor. Expectations about being a good patient and survivor are more aligned with expectations about femininity and tend to conflict with expectations about masculinity. Gender norms discourage men from reporting personal growth from cancer and encourage women to overemphasize the positive aspects of having had cancer.

Research limitations/implications

This study was conducted two or more years after treatment had ended; therefore, potential for recall bias existed. Nevertheless, the findings suggest that viewing cancer as transformative is part of a gender performance that limits opportunities for individuals to experience and express a diverse range of reactions which, at times, increases the emotional burden on individuals.

Originality/value

By combining survey data with in-depth interviews, the study offers new insights into the causes of gender differences in the reporting of patient outcomes after illness.

Details

Gender, Women’s Health Care Concerns and Other Social Factors in Health and Health Care
Type: Book
ISBN: 978-1-78756-175-5

Keywords

Book part
Publication date: 1 August 2017

Candice R. Hollenbeck and Vanessa M. Patrick

The health industry is rapidly adopting digital services and face-to-face offerings are being replaced by e-services. One example is peer-to-peer survivor networks for cancer

Abstract

Purpose

The health industry is rapidly adopting digital services and face-to-face offerings are being replaced by e-services. One example is peer-to-peer survivor networks for cancer patients. This study investigates the virtual exchanges in survivor networks and whether these exchanges are valued for economic, symbolic, or expressive worth. The research seeks to address whether the alleviation of loneliness is possible.

Methodology/approach

The qualitative work in this study utilizes netnographic explorations and in-depth interviews with cancer survivors, average age 62, to investigate the social exchange continuum in peer-to-peer online patient survivor networks.

Findings

This study shows that technological innovations can aid survivorship when the exchanges are meaningful. Meaningful interactions within gift systems are valued for expressive worth and are established upon the notion of selfless gifts where the giver expects nothing in return. For networks to operate via expressiveness, informants must be open and vulnerable to others. Findings show that biographical narratives are useful tools for creating an expressive environment and givers become more giving after engaging in selfless acts. The intangibility and immaterial nature of virtual gifts creates a collective identity and fosters an aggregate extended self.

Social implications

Implications emphasize the need among survivors of trauma to connect with others. Digital technologies allow connections on a global scale, so survivors can find others with similar needs. Peer-to-peer networks provide a way for survivors to meet, interact with, and extend their aggregate selves through other survivors, while experiencing a transcendent sense that they are part of something bigger than self alone.

Details

Qualitative Consumer Research
Type: Book
ISBN: 978-1-78714-491-0

Keywords

Article
Publication date: 20 February 2023

Dianhan Zheng, Alexander R. Marbut, Jing Zhang, Avery Britt and David Nwadike

Cancer-related stigma is a troubling challenge faced by working cancer survivors and organizations aiming to promote inclusive work environments. Research suggests that a harmful…

Abstract

Purpose

Cancer-related stigma is a troubling challenge faced by working cancer survivors and organizations aiming to promote inclusive work environments. Research suggests that a harmful stereotype faced by cancer survivors is that the cancer survivors are low in competence. Leveraging the concept of the looking glass self and social cognitive theory, the authors develop a theoretical model about psychological processes through which cancer survivors' competence metaperceptions are related to work outcomes.

Design/methodology/approach

The authors recruited 200 working cancer survivors from online research panels and empirically test a theoretical model on how cancer survivors' metaperceptions of competence are related to the survivors' turnover intention and vigor at work. The authors additionally conducted an experimental vignette study among a sample of 133 students to examine confounds concerning causal order.

Findings

The authors found that favorable competence metaperceptions were related to decreased turnover intentions and increased vigor through cancer survivors' enhanced self-efficacy, especially for survivors high in need for emotional support.

Practical implications

This study suggests that inclusive organizations should pay attention to employees with cancer histories as a hidden disadvantaged group. To protect and motivate working cancer survivors, managers need to create a positive socio-cognitive working environment where cancer survivors are respected and valued.

Originality/value

By examining cancer survivors' metaperceptions and showing that survivors may internalize others' stereotype about individuals with a history of cancer, the authors advance the understanding about cancer survivors' return-to-work challenges.

Details

Journal of Managerial Psychology, vol. 38 no. 2
Type: Research Article
ISSN: 0268-3946

Keywords

Article
Publication date: 1 January 2009

Sherri Sheinfeld Gorin and Patrick McAuliffe

The aims of this paper are to: briefly review the long‐term or late effects of cancer diagnosis and treatment on children and youth; examine the implications of these effects on…

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Abstract

Purpose

The aims of this paper are to: briefly review the long‐term or late effects of cancer diagnosis and treatment on children and youth; examine the implications of these effects on the educational needs of the child or youth; explore the implications of childhood cancer survivorship on the school, particularly for female students. Over the last 25 years, treatments for childhood cancers have increased survival rates by 45 per cent, to nearly 77 per cent. It is estimated that one in 900 people aged 15‐44 years in the USA is a childhood cancer survivor; 80 per cent of children diagnosed with cancer in 1990 will survive into adulthood.

Design/methodology/approach

A comprehensive literature review of studies relevant to female childhood cancer survivorship and education over the past ten years was conducted, having been collected through searches of MEDLINE, CINAHL, PSYCINFO, and EMBASE.

Findings

Long‐term and late effects of cancer have been observed in neurocognition, cardiopulmonary symptoms, second cancers, reproductive organs, and hearing loss. Other health effects, such as impaired growth, osteopenia, hepatitis C infection, oral and dental malformations, and behavioral risk factors such as fatigue, obesity, and smoking have also been reported among childhood cancer survivors. These longer‐term treatment sequelae, particularly on neurological systems, have implications for changed student educational needs, including the provision of specialized instruction, classroom adaptations, as well as ancillary health services.

Research limitations/implications

Based on the ecologic model, a research agenda is proposed for better integrating the increasing numbers of childhood cancer survivors into the educational environment.

Practical implications

Practical interventions for survivors who are experiencing difficulties in school are listed.

Originality/value

To the best of one's knowledge, this is the first comprehensive review on the implications of childhood cancer survivors in schools.

Details

Health Education, vol. 109 no. 1
Type: Research Article
ISSN: 0965-4283

Keywords

Article
Publication date: 12 August 2020

Siti Raba’ah Hamzah, Siti Nur Syuhada Musa, Zulaiha Muda and Maimunah Ismail

This study aims at investigating the relationship between the quality of working life and career engagement of cancer survivors and the mediating role of the effect of disease and…

Abstract

Purpose

This study aims at investigating the relationship between the quality of working life and career engagement of cancer survivors and the mediating role of the effect of disease and treatment.

Design/methodology/approach

A cross-sectional study was conducted on 400 cancer survivors in Malaysia. The participants, aged between 18 and 40, were Malaysian citizens undergoing follow-up sessions at the Kuala Lumpur General Hospital and the National Cancer Institute of Malaysia. Data were analysed using descriptive statistics, Pearson’s correlation coefficient and regression analysis that implemented Baron and Kenny’s method for mediation were used for analyses.

Findings

The effect of treatment and disease was found to significantly mediate the relationship between quality of work-life and career engagement of cancer survivors.

Research limitations/implications

The instrument for this study was a self-reported questionnaire, with participants responding to specific items on a five-point Likert scale under the supervision of the researchers. As results from the survey were subjective in nature, the bias in the participants could not be eliminated completely. This study was also limited to the two main parameters, namely, quality of working life and career engagement and a mediator, namely, effects of the disease and treatment. Moreover, as the survey was conducted in only two hospitals in the Klang Valley area, the results cannot be generalized to other cancer survivors in other regions of Malaysia.

Practical implications

The results of this study indicated that the mediating role of the effects of disease and treatment on the relationship of the quality of working life subscales with career engagement. Practical implications, cancer survivor consciousness of the effects of disease and treatment is very important and should be addressed and could be notable to improve the quality of working life.

Originality/value

This study gives valuable insight to managers and practitioners by investigating the relationship between the quality of working life and career engagement and mediates by the effects of disease and treatment. The findings highlight the challenges cancer survivors face on their return to working life. The findings also highlight the need for management to take steps to help cancer survivors cope with career engagement for better work performance.

Details

European Journal of Training and Development, vol. 45 no. 2/3
Type: Research Article
ISSN: 2046-9012

Keywords

Book part
Publication date: 18 September 2018

Katherine S. Virgo, Chun Chieh Lin, Amy Davidoff, Gery P. Guy, Janet S. de Moor, Donatus U. Ekwueme, Erin E. Kent, Neetu Chawla and K. Robin Yabroff

To examine associations by gender between cancer history and major health insurance transitions (gains and losses), and relationships between insurance transitions and access to…

Abstract

Purpose

To examine associations by gender between cancer history and major health insurance transitions (gains and losses), and relationships between insurance transitions and access to care.

Methodology

Longitudinal 2008–2013 Medical Expenditure Panel Survey data were pooled yielding 2,223 cancer survivors and 50,692 individuals with no cancer history ages 18–63 years upon survey entry, with gender-specific sub-analyses. Access-to-care implications of insurance loss or gain were compared by cancer history and gender.

Findings

Initially uninsured cancer survivors were significantly more likely to gain insurance coverage than individuals with no cancer history (RR: 1.25; 95% CI: 1.08–1.44). Females in particular were significantly more likely to gain insurance (unmarried RR: 1.16; 95% CI: 1.06–1.28; married RR: 1.09; 95% CI: 1.02–1.16). Significantly higher rates of difficulty accessing needed medical care and prescription medications were reported by those remaining uninsured, those who lost insurance, and women in general. Remaining uninsured, losing insurance, and male gender were associated with lack of a usual source of care.

Research implications

Additional outreach to disadvantaged populations is needed to improve access to affordable insurance and medical care. Future longitudinal studies should assess whether major Affordable Care Act (ACA) provisions enacted after the 2008–2013 study period (or those of ACA’s replacement) are addressing these important issues.

Originality

Loss of health insurance coverage can reduce health care access resulting in poor health outcomes. Cancer survivors may be particularly at risk of insurance coverage gaps due to the long-term chronic disease trajectory. This study is novel in exploring associations between cancer history by gender and health insurance transitions, both gains and losses, in a national non-elderly adult sample.

Details

Gender, Women’s Health Care Concerns and Other Social Factors in Health and Health Care
Type: Book
ISBN: 978-1-78756-175-5

Keywords

Book part
Publication date: 1 January 2008

Itay Greenspan and Femida Handy

Purpose – The goal of this chapter is to understand the role of nonprofit voluntary health organizations (VHOs) in the lives of Canadian women coping with breast cancer

Abstract

Purpose – The goal of this chapter is to understand the role of nonprofit voluntary health organizations (VHOs) in the lives of Canadian women coping with breast cancer.

Methodology – Through qualitative interviews with breast cancer survivors and records of VHOs active in this field, we assess the level and nature of their interactions and impact on women's quality of life.

Findings – Our findings suggest that at the micro-level, VHOs are venues for women to receive auxiliary services such as information, counseling, and support that complement the mainstream health care provision. While VHO services empower women as health care consumers, we show that they also serve as venues for women to reciprocate by volunteering. This process of reciprocity helps women cope with their own healing and allows them to be not only consumers but also producers of health services.

Research limitations – The non-random nature and the small sample size make our findings not easily generalizable to the larger population of breast cancer survivors; rather they are indicative of the experiences of Canadian women in one large urban metropolitan area.

Value of the chapter – We demonstrate the role of VHOs as venues of health consumerism as well as places for consumers to become involved in the production of services by volunteering.

Details

Patients, Consumers and Civil Society
Type: Book
ISBN: 978-1-84855-215-9

Article
Publication date: 10 August 2015

Faustine Williams

– The purpose of this paper was to understand the lived experiences of women who have been diagnosed, treated and are cancer free as survivors.

Abstract

Purpose

The purpose of this paper was to understand the lived experiences of women who have been diagnosed, treated and are cancer free as survivors.

Design/methodology/approach

Using purposive sampling approach, participants were recruited from two Missouri cancer centers. A total of 15 breast cancer free women (ten white and five black) were interviewed. The participants ranged in age from 34 to 62 years, and all had at least a bachelor degree.

Findings

Eight unique themes were identified from the interviews. The women noted that maintaining positive attitude, and support from family and friends were the greatest resources that helped them through their cancer journey. They were generally positive about their experiences but uncertain what “survivor” meant individually and personally.

Research limitations/implications

All the women in this study had at least a college degree, stable family economic resources and health insurance.

Originality/value

The women interviewed in this study did not want to be called breast cancersurvivors” which is a common name for anyone who has been diagnosed, treated and cancer free. For those who are breast cancer educators, nurses, medical practitioners and counselors it is important to consider how they use the word “survivor.” Referring to women who have successfully completed a treatment program for breast cancer as “survivors” attaches an identity that may not be accepted by all.

Details

Qualitative Research Journal, vol. 15 no. 3
Type: Research Article
ISSN: 1443-9883

Keywords

Article
Publication date: 22 November 2019

Lauren Gurrieri and Jenna Drenten

The purpose of this study is to explore how vulnerable healthcare consumers foster social support through visual storytelling in social media in navigating healthcare consumption…

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Abstract

Purpose

The purpose of this study is to explore how vulnerable healthcare consumers foster social support through visual storytelling in social media in navigating healthcare consumption experiences.

Design/methodology/approach

This study employs a dual qualitative approach of visual and textual analysis of 180 Instagram posts from female breast cancer patients and survivors who use the platform to narrate their healthcare consumption experiences.

Findings

This study demonstrates how visual storytelling on social media normalises hidden aspects of healthcare consumption experiences through healthcare disclosures (procedural, corporeal, recovery), normalising practices (providing learning resources, cohering the illness experience, problematising mainstream recovery narratives) and enabling digital affordances, which in turn facilitates social support among vulnerable healthcare consumers.

Practical implications

This study highlights the potential for visual storytelling on social media to address shortcomings in the healthcare service system and contribute to societal well-being through co-creative efforts that offer real-time and customised support for vulnerable healthcare consumers.

Social implications

This research highlights that visual storytelling on image-based social media offers transformative possibilities for vulnerable healthcare consumers seeking social support in negotiating the challenges of their healthcare consumption experiences.

Originality/value

This study presents a framework of visual storytelling for vulnerable healthcare consumers on image-based social media. Our paper offers three key contributions: that visual storytelling fosters informational and companionship social support for vulnerable healthcare consumers; recognising this occurs through normalising hidden healthcare consumption experiences; and identifying healthcare disclosures, normalising practices and enabling digital affordances as fundamental to this process.

Details

Journal of Services Marketing, vol. 33 no. 6
Type: Research Article
ISSN: 0887-6045

Keywords

Article
Publication date: 1 May 2002

King Kam and Brian H. Kleiner

Worldwide, there are over six million new cancer cases and more than four million cancer deaths each year. Today, millions of people in the workforce have a history of cancer

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Abstract

Worldwide, there are over six million new cancer cases and more than four million cancer deaths each year. Today, millions of people in the workforce have a history of cancer. Therefore, employers are seeing incidents of cancer among their employees. Many cancer survivors experience discrimination because of their cancer history. How to protect employees with cancer and what are their legal rights become very important to both employees and employers.

Details

Equal Opportunities International, vol. 21 no. 3
Type: Research Article
ISSN: 0261-0159

Keywords

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