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Open Access
Book part
Publication date: 6 May 2019

Maria Brenner, Miriam O’Shea, Anne Clancy, Stine Lundstroem Kamionka, Philip Larkin, Sapfo Lignou, Daniela Luzi, Elena Montañana Olaso, Manna Alma, Fabrizio Pecoraro, Rose Satherley, Oscar Tamburis, Keishia Taylor, Austin Warters, Ingrid Wolfe, Jay Berry, Colman Noctor and Carol Hilliard

Improvements in neonatal and paediatric care mean that many children with complex care needs (CCNs) now survive into adulthood. This cohort of children places great challenges on…

Abstract

Improvements in neonatal and paediatric care mean that many children with complex care needs (CCNs) now survive into adulthood. This cohort of children places great challenges on health and social care delivery in the community: they require dynamic and responsive health and social care over a long period of time; they require organisational and delivery coordination functions; and health issues such as minor illnesses, normally presented to primary care, must be addressed in the context of the complex health issues. Their clinical presentation may challenge local care management. The project explored the interface between primary care and specialised health services and found that it is not easily navigated by children with CCNs and their families across the European Union and the European Economic Area countries. We described the referral-discharge interface, the management of a child with CCNs at the acute–community interface, social care, nursing preparedness for practice and the experiences of the child and family in all Models of Child Health Appraised countries. We investigated data integration and the presence of validated standards of care, including governance and co-creation of care. A separate enquiry was conducted into how care is accessed for children with enduring mental health disorders. This included the level of parental involvement and the presence of multidisciplinary teams in their care. For all children with CCNs, we found wide variation in access to, and governance of, care. Effective communication between the child, family and health services remains challenging, often with fragmentation of care delivery across the health and social care sector and limited service availability.

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Issues and Opportunities in Primary Health Care for Children in Europe
Type: Book
ISBN: 978-1-78973-354-9

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Book part
Publication date: 30 July 2018

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Marketing Management in Turkey
Type: Book
ISBN: 978-1-78714-558-0

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Book part
Publication date: 4 October 2023

Alisoun Milne and Mary Larkin

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Family Carers and Caring
Type: Book
ISBN: 978-1-80043-346-5

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Book part
Publication date: 12 December 2022

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Responding to the Grand Challenges in Health Care via Organizational Innovation
Type: Book
ISBN: 978-1-80382-320-1

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Book part
Publication date: 1 December 2023

Gail Anne Mountain

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Occupational Therapy With Older People into the Twenty-First Century
Type: Book
ISBN: 978-1-83753-043-4

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Book part
Publication date: 25 February 2021

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Aging and the Family: Understanding Changes in Structural and Relationship Dynamics
Type: Book
ISBN: 978-1-80071-491-5

Open Access
Book part
Publication date: 12 December 2022

Elizabeth H. Bradley and Carlos Alamo-Pastrana

The chapter summarizes key literature, including emerging ideas, that is pertinent to the question of how organizations and their leadership deal with and are resilient through…

Abstract

The chapter summarizes key literature, including emerging ideas, that is pertinent to the question of how organizations and their leadership deal with and are resilient through crises – highlighting what works in surviving unexpected crises. The chapter presents an illustration of organizational response; it concludes with an analysis of what is missing from the literature and recommends a path forward to expanding actionable knowledge in this area. Multiple, interdependent factors that foster resilience are identified including (1) being sensitive to possible threats – even seemingly small failures, (2) not relying on simple interpretations of events but rather seeking diversity to create a complete view of the environment, (3) leadership that embraces communication, transparency, and continuous learning, (4) valuing expertise and allowing expert staff to make decisions during a crisis, and (5) a cultural commitment to a resiliency mindset that accepts failures as opportunities to learn and improve. Emerging concepts that may foster resilience but require more research include managing paradox, emotional ambivalence and diversity. Additional areas for fruitful research include: the impact of short-term versus long-term, or successive, crises; external versus internal shocks and the framing of the source of shocks; how crisis affect the pace of innovation and change; the role of diversity in organizational responses to crises; and a set of methodological opportunities to leverage natural experiments or simulations in ways that allow for longitudinal data illuminating the full cycle of crises across organizations from anticipation, to response, to longer-term adaptation to the new normal.

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Responding to the Grand Challenges in Health Care via Organizational Innovation
Type: Book
ISBN: 978-1-80382-320-1

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Book part
Publication date: 24 August 2022

Elizabeth Brooke

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Creative Ageing and the Arts of Care: Reframing Active Ageing
Type: Book
ISBN: 978-1-83867-435-9

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Book part
Publication date: 10 September 2018

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Refugee Education: Integration and Acceptance of Refugees in Mainstream Society
Type: Book
ISBN: 978-1-78714-796-6

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Book part
Publication date: 2 October 2023

Sydney Chapados

In 2009, the Liberal government of Ontario released their first “streamlined” poverty reduction strategy to end child poverty in the province. The strategy was renewed in 2014…

Abstract

In 2009, the Liberal government of Ontario released their first “streamlined” poverty reduction strategy to end child poverty in the province. The strategy was renewed in 2014, and an updated strategy was released in 2021 by the Conservative government of Ontario. Based on ongoing research, this chapter explores how these Poverty reduction strategies mobilize a historical conception of low-income urban environments as threats to child development. I show that, rather than end poverty, these conceptions are used to justify community revitalization efforts that displace low-income populations while prioritizing and benefiting private market investment. Central to these strategies is the figure of the child, who is constructed as innocent and vulnerable, requiring protection and saving from the perils of poverty by middle- and upper-class interventions. The chapter concludes by examining the neoliberal logic that continues to inform the 2021 strategy.

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Sociological Research and Urban Children and Youth
Type: Book
ISBN: 978-1-80117-444-2

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