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The purpose of this paper is to present a language-agnostic approach to facilitate the discovery of “parallel passages” stored in historic and cultural heritage digital archives.

The authors explore a novel, and relatively simple approach, using a character-based statistical language model combined with a tailored version of the Basic Local Alignment Tool to extract exact and approximate string patterns shared between groups of documents.

The approach is applicable to a wide range of languages, and compensates for variability in the text of the documents as a result of differences in dialect, authorship, language change over time and errors due to inaccurate transcriptions and optical character recognition errors as a result of the digitisation process.

A number of case studies demonstrate that the approach is practical and generalisable to a wide range of archives with documents in different languages, domains and of varying quality.

The approach described can be applied to any digital archive of modern and contemporary texts. This makes the approach applicable to digital archives recording historic texts, but also those composed of more recent news articles, for example.

The analysis of “parallel passages” enables researchers to quantify the presence and extent of text-reuse in a collection of documents, which can provide useful data on author style, text genres and cultural contexts.

The approach is novel and addresses a need by humanities researchers for tools that can identify similar documents and local similarities represented by shared text sequences in a potentially vast large archive of documents. As far as the authors are aware, there are no tools currently exist that provide the same level of tolerance to the language of the documents.

The purpose of this paper is to describe the impact of having a child with tuberous sclerosis complex (TSC).

The author explains the process her family has been through on their TSC journey.

Several themes emerge from the author’s story: a lack of awareness about relatively common conditions such as epilepsy; a dearth of accessible information provided to families; delays in identification/assessment and a lack of follow up on parents’ concerns; the wide range in the quality of advice provided from one professional/service to another; the extent to which parents have to advocate for their children and the importance of social support.

Few journal articles explore the impact of complex health conditions on families from their perspective and in their own words. This thought provoking viewpoint piece provides a powerful insight into the reality of having a child with TSC.

In beginning its work at the end of the 1950s, the Aslib Research and Development Department inevitably faced the task of identifying the most significant problems for investigation, at the same time having the need to establish appropriate experimental techniques. Most of the projects undertaken since that time have dealt with current problems, and to an extent the advent of new technologies and techniques to the information world (mechanization in the 'sixties, management studies in the early 'seventies, on‐line working and publication problems in more recent years) is reflected in the work reported below. What follows is a complete bibliography of publications by members of the Department from its formation up to the end of 1977.

This study aims to investigate consumer perceptions of inauthenticity due to adulteration of a narrative brand ending by using the research context of the final season and ending of the television series, Game of Thrones.

Two data sets totalling 2,032 online comments detailing consumer reactions to the final season of Game of Thrones were analysed using thematic analysis and human interpretive analysis. The coding was an iterative and continuous process, and posts were returned to and re-examined to refine codes and groupings as the analysis progressed.

The results indicate consumers perceived the ending of the eighth and final season of the television series, Game of Thrones, did not meet their expectations and was not authentic due to rushed writing and illogical character and plot developments. Consumers judged this adulteration was so great that it was a moral violation and transgression. Consumers also sought to assign blame for the inauthenticity, which they attributed to the writers and showrunners, who became the subject of revenge behaviours.

This study indicates consumers of narrative brands, due to their strong emotional attachments to their characters and storyworlds, may perceive unexpected and extensive changes to them as moral violations and transgressions and thus inauthentic. Consumers establish the authenticity of a narrative brand by regularly scrutinising narrative and character development against their expectations as shaped by prior narrative content. Due to their emotional attachment, consumers may attempt to attribute blame for the inauthenticity. The findings have not been established in prior research, and inauthenticity in a narrative brand context is also explored for the first time.

This paper seeks to organize the extensive field and to compile the complete list of information limits.

A thorough analysis of literature from the field beginning with the 1960s up to the present has been performed.

A universal typology of information limits has been proposed. A list of barriers mentioned in the literature of the subject has been compiled.

The term “information limits” is not commonly used.

The complete list of information limits with bibliographical hints (helpful for future research) is presented.

Tuberous Sclerosis Australia (TSA) is a small rare disease organisation with a large scope. TSA was established in 1981 as a peer support organisation. Since then, its role has evolved to meet the needs of its members: individuals living with tuberous sclerosis complex (TSC), their families and health professionals. The paper aims to discuss these issues.

This case study describes the diverse activities of TSA which include, but are not limited to: the provision of information and support services; sponsorship of research and fostering a network of TSC health professionals. The benefits of collaborations forged under the umbrella organisation TSC International are highlighted.

The case study demonstrates some of the key challenges TSA faces, challenges shared by many similar health charities. These include: funding of health education and promotion activities; working with a large range of health professionals and the challenge of research fatigue.

There is little research published describing the work of small disease specific organisations similar to TSA. This case study provides insight for those collaborating with similar organisations including health professionals and researchers.

Tuberous sclerosis complex (TSC) is a genetic disorder with a high prevalence of autism spectrum disorder (ASD), yet no single genetic, neurological or neurophysiological risk marker is necessary or sufficient to increase risk for ASD. This paper aims to discuss the utility of adopting a developmental perspective.

The increasing number of TSC infants presenting with abnormalities prenatally provides a unique opportunity to study risk pathways to ASD from birth. Here, the authors review findings to date that support the investigation of infants with TSC to further our understanding of typical and atypical development.

Evidence has accumulated from studies of infants at familial risk for ASD (“baby siblings”) to suggest that early markers of ASD are present in the first year of life. The early waves of prospective studies of infants with TSC indicate dynamic changes in developmental trajectories to ASD and are likely to provide insight into cascading effects of brain “insult” early in development. Emerging evidence of phenotypic and biological homology between syndromic and idiopathic cases of ASD supports the notion of a convergence of risk factors on a final common pathway in ASD.

The delineation of brain-based biomarkers of risk, prediction and treatment response in TSC will be critical in aiding the development of targeted intervention and prevention strategies for those infants at high risk of poorer developmental outcomes.

This study aims to respond to calls for more research to understand how sustainability control systems (SCSs) feature (or do not feature) in short-term operational and long-term strategic decision-making.

An in-depth case study of a large multinational organisation undertaking several rounds of sustainability reporting is presented. Data collection was extensive including 26 semi-structured interviews with a range of employees from senior management to facility employees, access to confidential reports and internal documents and attendance of company meetings, including an external stakeholder engagement meeting and the attendance of the company’s annual environmental meeting. A descriptive, analytical and explanatory analysis is performed on the case context (Pfister et al., 2022).

Simon’s (1995) levers of control framework structures our discussion. The case company has sophisticated and formalised diagnostic controls and strong belief and boundary systems. Conventional management controls and SCSs are used in short-term operational decision-making, although differences between financial imperatives and other aspects such as environmental concerns are difficult to reconcile. SCSs also provided information to justify company actions in short-term decisions that impacted stakeholders. However, SCSs played a very limited role in the long-term strategic decision. Tensions between social, environmental and economic factors are more reconcilable in the long-term strategic decision, where holistic risks and opportunities need to be fully identified. External reporting is seen in a “constraining” light (Tessier and Otley, 2012), and intentionally de-coupled from SCSs.

This paper responds to recent calls for rich, holistic and contextually-grounded perspectives of sustainability processes at an extractives company. The study provides novel insight into how SCSs are used (or not used) in short-term or long-term decision-making and external reporting. The paper illustrates how a large company is responding to sustainability pressures within the unique contextual setting of New Zealand. The study outlines the imitations of existing practice and provides implications for how sustainability-based internal controls can be better embedded into organisations.

Health planners in Wales are developing the notion of “health gain” as the key to shaping health care provision in Wales over the coming decade. One of the twin components of “health gain”, the idea of “adding life to years”, is both crucial and controversial. The assumptions behind, and the planning implications arising from, the notion of “adding life to years” are examined and it is argued that health gain is essentially plural, diverse and contested. It is concluded that planning for health gain offers both moral dangers and moral gains.

The decision to offer joint replacement surgery should be viewed as entering into a long‐term relationship rather than a brief encounter. The rise of consumerism allied to the expansion of general practitioner fund‐holding and implementation of the ‘Patients' Charter’ has resulted in increased pressures on outpatient clinics, and the interface between primary and secondary care is central to the development of the NHS. The NHS reforms have produced guidelines on waiting times for outpatient attendances and operations, with the emphasis on a consultant‐based service. There are, however, no such guidelines for postoperative follow‐up.