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1 – 5 of 5Christine Oldman and Bryony Beresford
This article is based on two pieces of work. The first, Homes Unfit for Children (Oldman & Beresford, 1998), was based on a postal survey and 40 in‐depth interviews with families…
Abstract
This article is based on two pieces of work. The first, Homes Unfit for Children (Oldman & Beresford, 1998), was based on a postal survey and 40 in‐depth interviews with families with disabled children. The second, due to be published by the Policy Press in the spring this year, reports the results of a programme of consultation roadshows with a range of professionals from housing, social services and health, in a series of regional consultation meetings.
This article outlines the housing situation facing families with disabled children, and particularly draws attention to the additional disadvantage experienced by families with…
Abstract
This article outlines the housing situation facing families with disabled children, and particularly draws attention to the additional disadvantage experienced by families with disabled children from black and minority ethnic groups. It is a summary of a workshop presented by the author to the Race Equality Foundation conference in November 2007 on the theme of extending choice and participation for black and minority ethnic communities.
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Teresa Atkinson and Rebecca Oatley
The purpose of this paper is to present the views of people living with dementia in extra care housing (ECH). This is a model of housing with care and support aiming to support…
Abstract
Purpose
The purpose of this paper is to present the views of people living with dementia in extra care housing (ECH). This is a model of housing with care and support aiming to support older people, including those with dementia, to live independently. Previous research identifies benefits but is predominantly derived from third-party accounts, with the voices of those living with dementia in ECH significantly absent.
Design/methodology/approach
This study adopted a qualitative approach conducting 100 interviews across 8 ECH schemes in England. Over half of the interviews were conducted with people living with dementia and their families with the remainder involving staff and commissioners.
Findings
Findings suggest there are a range of benefits including owning your own home, having a safe, age friendly location with flexible support, social interaction and continuing to live as a couple. Challenges included availability of staff, flexible resourcing, loneliness and the advancing symptoms of dementia.
Research limitations/implications
Despite efforts to create an inclusive, diverse sample, the participants were all White British. Participants involved were identified by gatekeepers, which may present some bias in the selection.
Practical implications
Whilst ECH offers benefits to people living with dementia, addressing the challenges is essential for effective dementia care. Improving staff training, promoting person-centred care and fostering an inclusive community are critical for enhancing residents’ well-being and quality of life.
Originality/value
This paper explored the lived experiences of residents and family members, providing new insight into the advantages and disadvantages of ECH for people living with dementia.
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Ingunn Aase, Eline Ree, Terese Johannessen, Elisabeth Holen-Rabbersvik, Line Hurup Thomsen, Torunn Strømme, Berit Ullebust, Lene Schibevaag, Hilda Bø Lyng, Jane O'Hara and Siri Wiig
The purpose is to share strategies, rationales and lessons learnt from user involvement in a quality and safety improvement research project from the practice field in nursing…
Abstract
Purpose
The purpose is to share strategies, rationales and lessons learnt from user involvement in a quality and safety improvement research project from the practice field in nursing homes and homecare services.
Design/methodology/approach
This is a viewpoint paper summarizing how researchers and co-researchers from the practice field of nursing homes and homecare services (nurse counsellors from different municipalities, patient ombudsman and next-of-kin representatives/and elderly care organization representant) experienced user involvement through all phases of the research project. The project included implementation of a leadership intervention.
Findings
Multiple strategies of user involvement were applied during the project including partnership in the consortium, employment of user representatives (co-researchers) and user-led research activities. The rationale was to ensure sound context adaptation of the intervention and development of tailor-made activities and tools based on equality and mutual trust in the collaboration. Both university-based researchers and Co-researchers experienced it as useful and necessary to involve or being involved in all phases of the research project, including the designing, planning, intervention implementation, evaluation and dissemination of results.
Originality/value
User involvement in research is a growing field. There is limited focus on this aspect in quality and safety interventions in nursing homes and homecare settings and in projects focussing on the leadership' role in improving quality and safety.
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