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This chapter explores the role of an ethics committee led by disabled academics, in supporting co-produced disability research beyond academia, in the context of a five-year research programme in the UK (2015–2020). This chapter includes reflections by the Ethics Committee members, alongside documentary research which analysed the communications between the Ethics Committee and the research projects it supported. This review of the role of the Ethics Committee showed that there were dilemmas in considering the boundaries between ethical review and providing pedagogic advice on research design, and in balancing its role in supporting and regulating research. Ethics review processes are sometimes seen as overly bureaucratic and as an obstacle course for researchers, and this was also sometimes the case for projects supported by the DRILL (Disability Research on Independent Living and Learning) Ethics Committee. Lessons to be learned from the process included that communication between ethics committees and researchers is key, and that ethics review can be a two-way process, recognising the expertise of both the researchers and the reviewers, thus mirroring the principles of co-production. We suggest that an alternative model for ethics review process could build on this generally positive experience of the DRILL Ethics Committee.

The notion of sexual health has become a buzzword across various spheres, including the scientific, political, and social arenas. In a similar manner, discussions about the subject of disability and sexuality are commonly articulated through the lens of sexual health and “healthy sexualities.” Greater focus has been placed on issues of protection, abuse, sexually transmitted diseases, and unplanned pregnancy. Opportunities to talk about sex, desire, and pleasure is missing in this discourse. Drawing on my experience conducting studies about disability and sexuality, I interrogate the (over)reliance and unproblematized use in terms of the language of sexual health and healthy sexuality when it comes to people labeled/with intellectual disabilities.

This chapter explores how the intersection of disability and family has evolved in the US medical field over the 19th, 20th, and 21st centuries. Through an analysis of the Proceedings of the American Medical Association, this work demonstrates how physicians describe and view the connections between disability and family in bureaucratic activities. The exploration of the Proceedings documents elucidates the changing process around how physicians define the relationship of disability and family in the US through bureaucratic and policy discussions. A qualitative approach of content analysis is employed to evaluate the American Medical Association Proceedings of the House of Delegates from 1846 to 2022. Data collection applies deductive coding focusing on various terms related to the conceptualization of families with analysis exploring themes around disability within the searched terms. Results demonstrate how US physicians describe the relationship between disability and family over time in the US context. The findings highlight cases in which the medical establishment recognizes itself as a potential source of burden, families choosing burdens of supporting or not supporting family members with disabilities, and the medicalization of social phenomena related to disability. Additional findings include discussions of support systems that families with disabled family members can leverage for assistance. This first-of-its-kind longitudinal content analysis study provides insights on the meaning-making processes of physicians in relation to how conceptualizations of disability and family are described in medical proceeding documents. The value of this work lies in both the findings of how physicians describe the intersection of disability and family as well as the viability of medical proceeding documents for analyzing cultural-social phenomena. Additional value is added with the notion that physicians view disability in a familial context as being caught between problems and support.

The building sector contributes one-third of the energy-related carbon dioxide globally. Therefore, framing appropriate energy-related policies for the next decades becomes essential in this scenario to realize the global net-zero goals. The purpose of the proposed study is to evaluate the impact of the widespread adoption of such guidelines in a building community in the context of mixed-mode buildings.

This study decentralizes the theme of improving the energy efficiency of the national building stock in parcels by proposing a community-based hybrid bottom-up modelling approach using urban building energy modelling (UBEM) techniques to analyze the effectiveness of the community-wide implementation of energy conservation guidelines.

In this study, the UBEM is developed and validated for the 14-building residential community in Mumbai, India, adopting the framework. Employing Energy Conservation Building Code (ECBC) compliance on the UBEM shows an energy use reduction potential of up to 15%. The results also reveal that ECBC compliance is more advantageous considering the effects of climate change.

In developing countries where the availability of existing building stock information is minimal, the proposed study formulates a holistic framework for developing a detailed UBEM for the residential building stock from scratch. A unique method of assessing the actual cooling load of the developed UBEM is presented. A thorough sensitivity analysis approach to investigate the effect of cooling space fraction on the energy consumption of the building stock is presented, which would assist in choosing the appropriate retrofit strategies. The proposed study's outcomes can significantly transform the formulation and validation of appropriate energy policies.