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Article
Publication date: 10 December 2009

Joy Wales and Steven Pryjmachuk

In the UK, there are around 1.5 million carers of people with mental health problems providing substantial amounts of free care. Despite having a legal right to a ‘carer's…

Abstract

In the UK, there are around 1.5 million carers of people with mental health problems providing substantial amounts of free care. Despite having a legal right to a ‘carer's assessment’, only a minority of mental health carers have had such an assessment. To try and understand why the uptake is so low, we undertook a small (n = 8) qualitative study exploring what mental health staff acting as ‘care co‐ordinators’ thought the barriers to, and facilitators of, carers' assessments might be, and how subsequent practice might be improved.We found that there was some confusion over the definition of ‘carer’ and over who should take responsibility for carer assessments. The main barriers to carers' assessments were the documentation used, the attitudes of staff (especially managers) and the fact that the needs of mental health carers often differed from those caring for people with a physical disability. Practice could be improved through: clarifying the definition of ‘carer’; education and training; redesigning the documentation; dovetailing service user and carer needs assessments; and through offering a wider choice of evidence‐based services as assessment outcomes. Improvements are unlikely to be successful, however, without the active support, expertise and engagement of carers.

Details

Mental Health Review Journal, vol. 14 no. 4
Type: Research Article
ISSN: 1361-9322

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Abstract

Details

Working with Older People, vol. 6 no. 2
Type: Research Article
ISSN: 1366-3666

Article
Publication date: 3 March 2010

Jean Tottie

Although Jean Tottie had worked in health and social care for 35 years, mostly in older people's services, nothing prepared her for her caring role. She found it a huge struggle…

Abstract

Although Jean Tottie had worked in health and social care for 35 years, mostly in older people's services, nothing prepared her for her caring role. She found it a huge struggle trying to get the right care at the right time for her father so that he could stay living independently at home; so much so that she did not recognise her own needs. Here is Jean's story.

Details

Working with Older People, vol. 14 no. 1
Type: Research Article
ISSN: 1366-3666

Article
Publication date: 16 September 2011

Marjorie Lloyd, Liz Lefroy, Stephen Yorke and Richard Mottershead

It is generally agreed that carers in mental health care play a vital role in helping people to maintain their place in the community and reducing the time clients spend in…

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Abstract

Purpose

It is generally agreed that carers in mental health care play a vital role in helping people to maintain their place in the community and reducing the time clients spend in hospital or residential settings. The purpose of this paper is to develop a conceptual approach to involving carers in higher education by acknowledging their contribution to improving practice and identify the impact upon student learning in mental health and social care professions.

Design/methodology/approach

A brief review of the policy and literature on involving carers in mental health services and education explored the historical and current influences upon practice. This was then applied to the experience of the authors when teaching nursing and social work students in a higher educational setting and evaluated as developing outcomes in carer involvement practice.

Findings

Relationships between carers and students in health and social care may be created in higher education settings that can develop supportive, informative and recovery‐focused care in practice. Creating such relationships in the higher educational setting helps students to prepare for developing relationships with carers in practice.

Originality/value

Involving carers in education may improve outcomes in recovery for the client and carer experience and the development of professional and self awareness skills in students. Developing involvement practices in higher education begins the process early in the experience of health and social care students, providing a safe environment in which to master such skills.

Details

The Journal of Mental Health Training, Education and Practice, vol. 6 no. 3
Type: Research Article
ISSN: 1755-6228

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Article
Publication date: 7 March 2016

Neil James

Currently there is no research that explores professionals’ perspectives in supporting carers of a person with an intellectual disability during their relatives admission to a…

Abstract

Purpose

Currently there is no research that explores professionals’ perspectives in supporting carers of a person with an intellectual disability during their relatives admission to a specialist in-patient setting. The purpose of this paper is to report the findings from the second stage of a study that explored the experiences of family carers whose relative was admitted to a specialist National Health Service assessment and treatment unit (ATU) in Wales, UK (James, 2016).

Design/methodology/approach

Aim: to obtain the views of professionals in relation to what they consider are the barriers and facilitators to addressing some of the experiences discussed by carers. Methods: nine professionals working in intellectual disability-specific services participated in four semi-structured interviews and one focus group (n=5) and the data were analysed using a descriptive thematic analysis process.

Findings

Three major themes were developed to represent what professionals identified as a number of individual, organisational and practical facilitators and barriers to the provision of support to carers at this time. Professionals recognised the important role they have in developing relationships with carers during the admission. Key to this relationship is effective communication, collaboration, involvement and the need to be consistently open and honest.

Research limitations/implications

The small sample size could be said to be a weakness and unrepresentative and practice of other professionals. However, what professionals reported had similarities to the findings from other related research. Importantly, the findings have a practical significance in that they can be used to raise awareness and be used to inform the development of future research and practice. The sample could also be criticised for not having representation from a wider range of professionals from across the multi-disciplinary team. However, a strength of the sample is that it did have representation from three different professional disciplines with different roles and responsibilities.

Practical implications

Currently there is very limited research exploring the experiences of professionals in respect of supporting carers during the admission of a relative to a specialist in-patient setting. Professionals demonstrated an understanding of the impact that the additional needs and admission of their relative to an ATU could have on carers. Accordingly, they were able to recognise the important role that they, and other professionals, play in developing relationships as part of providing support to them during this time. Key to these relationships was effective communication and in particular the need to be consistently open and honest.

Social implications

The findings from this study illustrate a gap between the rhetoric of policy, legislation and carer strategies, and practice of valuing and respecting the role that carers. Of particular concern is that some of the relationships that carers have had with professionals have threatened rather than positively endorsed and augmented their role and identity. These engagements with professionals therefore have had a profound effect on the way in which they have understood their value as a carer and their own sense of self. Significantly, the actions and behaviours of professionals play a key role in shaping carers views of themselves and their identity.

Originality/value

Currently there is no research that has explored the views of professionals in respect of support and relationships with carers at this time. The synthesis of findings from stage one of this study with professionals’ perspectives of resulted in the identification of similarities and differences in experiences as well as facilitators and barriers to support provision. In so doing, it has given clear application of the studies findings to practice. This study therefore provides an original contribution to the understanding of this area of carer experience, from the perspectives of professionals and adds to the wider literature exploring the family carer experience.

Details

Advances in Mental Health and Intellectual Disabilities, vol. 10 no. 2
Type: Research Article
ISSN: 2044-1282

Keywords

Article
Publication date: 26 April 2011

Liisa Häikiö and Anneli Anttonen

Local welfare governance is approached from the vantage point of informal carers caring for older people. A bottom‐up perspective is used to construct a critical view on welfare…

785

Abstract

Purpose

Local welfare governance is approached from the vantage point of informal carers caring for older people. A bottom‐up perspective is used to construct a critical view on welfare provision and governance practices at the local level. The paper aims to discuss the issues.

Design/methodology/approach

The data consist of 23 in‐depth interviews with informal carers. Universal access to services and equal treatment of citizens is discussed.

Findings

The analysis illustrates how informal carers share care responsibilities with the municipality and gain access to services both as service providers and service users. Informal care comprises a complex mixture of public and private responsibilities that poses a challenge to universalism. There are new inequalities emerging among informal carers, while access to public resources is easier for resource‐rich carers positioned as service providers. Resource‐poor carers identify themselves often as service users in relation to municipality.

Originality/value

The use of original data provides important knowledge on informal carers' dual position in the local welfare governance and contributes to both theoretical and empirical understanding on shifts within Nordic welfare governance. Informal carers' dual position reflects the essence of mixed governance and represents future social policies.

Details

International Journal of Sociology and Social Policy, vol. 31 no. 3/4
Type: Research Article
ISSN: 0144-333X

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Article
Publication date: 1 December 2008

Dave Dagnan

This paper will consider the process of psychological assessment for people with learning disabilities and mental ill‐health. The paper will describe a formulation‐driven approach…

668

Abstract

This paper will consider the process of psychological assessment for people with learning disabilities and mental ill‐health. The paper will describe a formulation‐driven approach with reference to a social‐cognitive model of mental ill‐health in people with learning disabilities. I will illustrate this process with a brief case study of an assessment within this model.

Details

Advances in Mental Health and Learning Disabilities, vol. 2 no. 4
Type: Research Article
ISSN: 1753-0180

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Article
Publication date: 22 February 2021

Rachel Forrester-Jones

Because people with learning disabilities (LD) are living longer, their family carers are likely to continue their caring role for longer. This study aims to explore the…

Abstract

Purpose

Because people with learning disabilities (LD) are living longer, their family carers are likely to continue their caring role for longer. This study aims to explore the experiences of older carers of people with LD.

Design/methodology/approach

In total, 16 interviews with older carers were carried out and analysed qualitatively.

Findings

Three main themes emerged from the data: “transition to retirement is a misnomer”; “impact of caring role”; and “fears for the future”.

Originality/value

Previous studies have not focussed on the specific experiences of “older” carers and their situation risks going unnoticed. Their experiences should be acknowledged by services and society and meaningful support provided.

Details

Tizard Learning Disability Review, vol. 26 no. 1
Type: Research Article
ISSN: 1359-5474

Keywords

Article
Publication date: 21 September 2012

Alan Quirk, Sarah Smith, Sarah Hamilton, Donna Lamping, Paul Lelliott, Daniel Stahl, Vanessa Pinfold and Manoharan Andiappan

A psychometrically validated measure is needed to evaluate outcomes in carers of people with mental health problems, including dementia. This study aims to develop and validate…

794

Abstract

Purpose

A psychometrically validated measure is needed to evaluate outcomes in carers of people with mental health problems, including dementia. This study aims to develop and validate the Carer well‐being and support questionnaire (CWS).

Design/methodology/approach

Development and evaluation of the measure was conducted in three phases. The authors deconstructed an existing questionnaire (CUES‐C) to produce a long version measure. This was trialed with carers to reduce the number of items and a preliminary evaluation of the psychometric properties of the remaining items was undertaken. A second field test was conducted with the item‐reduced questionnaire measure to evaluate acceptability, reliability and validity.

Findings

The CWS well‐being scale shows moderate acceptability and good reliability and validity. The CWS support scale shows moderate acceptability and good reliability; validity testing for the support scale is limited by the lack of appropriate validating measures.

Practical implications

The CWS is a reliable, valid measure of carer well‐being and support, reflecting important aspects of carers' lives.

Originality/value

This paper provides researchers and practitioners with a tool that can be used to measure and address areas of support for carers. This is important in assessing the effectiveness of new interventions and approaches.

Details

Mental Health Review Journal, vol. 17 no. 3
Type: Research Article
ISSN: 1361-9322

Keywords

Article
Publication date: 1 July 2005

Katrina Scior and Silvia Longo

There has been much debate about the most appropriate site for in‐patient psychiatric care for people with learning disabilities. The evidence base for service delivery for this…

Abstract

There has been much debate about the most appropriate site for in‐patient psychiatric care for people with learning disabilities. The evidence base for service delivery for this group is very scant. Even less is known about the experiences of service users and their carers, as their voices have been largely absent from this debate among service providers and policy makers. This article summarises results from a study into the experiences of adults with learning disabilities who were admitted for in‐patient psychiatric care. Their carers' views were also investigated. Differences between generic and specialist provision are considered, and implications for service delivery are discussed. Generic services in particular would appear in need of considerable improvements if they are to meet the needs of people with learning disabilities in line with current policy guidelines. Recommendations for improvement include greater sensitivity of staff to the needs of this group, increased provision of accessible information about treatment options and medication, and more careful consideration of the need to involve regular carers during the admission.

Details

Tizard Learning Disability Review, vol. 10 no. 3
Type: Research Article
ISSN: 1359-5474

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