Prelims

New Narratives of Disability

ISBN: 978-1-83909-144-5, eISBN: 978-1-83909-143-8

ISSN: 1479-3547

Publication date: 25 November 2019

Citation

(2019), "Prelims", New Narratives of Disability (Research in Social Science and Disability, Vol. 11), Emerald Publishing Limited, Bingley, pp. i-xiv. https://doi.org/10.1108/S1479-354720190000011001

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Emerald Publishing Limited

Copyright © 2020 Emerald Publishing Limited


Half Title Page

NEW NARRATIVES OF DISABILITY

Series Page

RESEARCH IN SOCIAL SCIENCE AND DISABILITY

Series Editors: Sharon N. Barnartt and Barbara M. Altman

Recent Volumes:

Volume 1: Expanding the Scope of Social Science Research on Disability – Edited by Sharon N. Barnartt and Barbara M. Altman, 2000
Volume 2: Exploring Theories and Expanding Methodologies: Where We Are and Where We Need to Go – Edited by Sharon N. Barnartt and Barbara M. Altman, 2001
Volume 3: Using Survey Data to Study Disability: Results from the National Health Interview Survey on Disability – Edited by Barbara M. Altman, Sharon N. Barnartt, Gerry E. Hendershot and Sheryl A. Larson, 2003
Volume 4: International Views on Disability Measures: Moving Toward Comparative Measurement – Edited by Barbara M. Altman, Sharon N. Barnartt, Gerry E. Hendershot and Sheryl Larson, 2006
Volume 5: Disability as a Fluid State – Edited by Sharon N. Barnartt, 2010
Volume 6: Disability and Community – Edited by Allison C. Carey and Richard K. Scotch
Volume 7: Disability and Intersecting Statuses – Edited by Sharon N. Barnartt and Barbara M. Altman
Volume 8: Environmental Contexts and Disability – Edited by Sharon N. Barnartt and Barbara M. Altman
Volume 9: What Did We Know and When Did We Know It – Edited by Sara Green and Sharon N. Barnartt
Volume 10: Factors in Studying Employment for Persons with Disability: How the Picture Can Change – Edited by Barbara M. Altman and Sharon N. Barnartt

Title Page

RESEARCH IN SOCIAL SCIENCE AND DISABILITY VOLUME 11

NEW NARRATIVES OF DISABILITY: CONSTRUCTIONS, CLASHES, AND CONTROVERSIES

EDITED BY

SARA E. GREEN

University of South Florida, USA

DONILEEN R. LOSEKE

University of South Florida, USA

United Kingdom – North America – Japan – India – Malaysia – China

Copyright Page

Emerald Publishing Limited

Howard House, Wagon Lane, Bingley BD16 1WA, UK

First edition 2020

Copyright © 2020 Emerald Publishing Limited

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British Library Cataloguing in Publication Data

A catalogue record for this book is available from the British Library

ISBN: 978-1-83909-144-5 (Print)

ISBN: 978-1-83909-143-8 (Online)

ISBN: 978-1-83909-145-2 (EPub)

ISSN: 1479-3547 (Series)

List of Tables

Chapter 3
Table 1. Sample Characteristics. 48
Chapter 7
Table 1. Descriptive Codes and Sub-codes. 113

About the Contributors

Linda M. Blum, PhD, is a Professor of Sociology at Northeastern University, USA. She is a Past Chair of the American Sociological Association Sections on Sex and Gender and Body and Embodiment and received a book award from the Section on Disability and Society. She has served on the editorial boards of Gender & Society and Signs.

Lisa Boskovich is a Doctoral Candidate with an emphasis in Disability Studies in the Donna Ford Attallah College of Educational Studies and a Research Assistant at the Thompson Policy Institute on Disability and Autism at Chapman University, USA. Her dissertation research focuses on fathers of children on the Autism Spectrum.

Carmen Rebecca Britton is a Doctoral Candidate at the Department of Human Development and Family Sciences at the University of Connecticut, USA. Her areas of research include disability, and community-based rehabilitation programming, practice, and development in relation to socially marginalized groups, particularly in the Global South.

Lisa Buchter is an Assistant Professor at Emlyon Business School, Lyon, France, and a Doctoral Candidate in a joint program at Northwestern University and the Center for the Sociology of Organizations, Po Paris. Her areas of research include disability, the fight against discrimination, and social movements’ strategies to improve inclusive laws and policies.

Mercedes Adell Cannon, PhD, is an Associate Director of Adaptive Educational Services, an Administrator in the Division of Diversity, Equity, and Inclusion, and an Adjunct Faculty Member in the School of Education at Indiana University Purdue – University Indianapolis (IUPUI), USA. Cannon’s research examines race, gender, and disability in the context of postsecondary education.

Richard A. Chapman is a Licensed Mental Health Counselor, a Certified Rehabilitation Counselor, and a Doctoral Candidate in the Department of Counseling Education at the University of South Florida, USA. His research focuses on mental health, developmental disabilities, the promotion of alternatives to guardianship, and the measurement of self-advocacy and self-determination for individuals with disabilities.

M. Nickie Coomer is a Doctoral Candidate in Urban Education Studies at Indiana University – Purdue University Indianapolis (IUPUI), USA. Her areas of research include special education, disability studies in education, teacher identity and agency, critical pedagogies, and praxis. Her dissertation examines the informal processes of eligibility determination in special education.

Justine E. Egner, PhD, is an Assistant Professor of Sociology at the University of Wisconsin – La Crosse, USA, a Program Chair for American Sociological Association Section on Disability & Society and a Co-Chair of the Society for the Study of Social Problems, Disability Division. Egner’s research focuses on disability/illness, autism/neurodiversity, sexuality, LGBTQ +  identities, and virtual communities.

Sara E. Green, PhD, is a Director of the Interdisciplinary Social Sciences Program and a Professor of Sociology at the University of South Florida, USA, a Past Chair and career award recipient of the American Sociological Association (ASA) Section on Disability & Society, and a Past Co-Chair of the ASA Committee on the Status of Persons with Disabilities.

Brian R. Grossman, PhD, is an Assistant Professor in the Department of Disability and Human Development at the University of Illinois at Chicago, USA, a Faculty Affiliate with the Illinois Leadership Education in Neurodevelopmental and other related Disabilities (LEND), and a Past Co-Chair of the Disability Division of the Society for the Study of Social Problems.

David Isaac Hernández-Saca, PhD, is an Assistant Professor in the Department of Special Education at the University of Northern Iowa, USA. Hernández-Saca’s research focuses on historical equity issues in general education and special education, and current movements for inclusive education from a Disability Studies in Education paradigm.

Laurie Gutmann Kahn, PhD, is an Assistant Professor of Education at Moravian College, USA. Kahn’s dissertation won the American Educational Research Association Disability Studies in Education Special Interest Group (DSE SIG) Outstanding Dissertation Award. Kahn’s research and practice can be located at the intersection of identity, culture, and disability within educational contexts.

Kenzie Latham-Mintus, PhD, is an Associate Professor of Sociology at Indiana University – Purdue University Indianapolis (IUPUI), USA. Latham-Mintus’ research interests include health and aging with an emphasis on disability, chronic illness, and health disparities across the life course. She is a Fellow of The Gerontological Society of America and serves on several journal editorial boards.

Stephanie J. Lau is a Doctoral Candidate in the L. Douglas Wilder School of Government and Public Affairs and Transition Training Associate at Center for Transition Innovations at Rehabilitation Research and Training Center at Virginia Commonwealth University (VCU), USA. Lau’s research focuses on disability, postsecondary education and employment, health access, and institutional organization.

Donileen R. Loseke, PhD, is a Professor of Sociology at the University of South Florida, USA and a Past President of both the Society for the Study of Symbolic Interaction and the Society for the Study of Social Problems. Loseke received the Mead, Cooley, and Mentor Awards from the Society for the Study of Symbolic Interaction.

Melinda Leigh Maconi is a Doctoral Candidate in the Sociology Department at the University of South Florida, USA. Maconi’s areas of research include disability, health and illness, education, the arts, and identity. She received Honourable Mention in the Society for the Study of Social Problems Disability Division Graduate Paper Award Competition.

Laura Mauldin, PhD, is an Assistant Professor in Human Development and Family Sciences and Women’s, Gender and Sexuality Studies and an Affiliate in Sociology at the University of Connecticut, USA; a Past Co-Chair of the Disability Division, Society for the Study of Social Problems, and a recipient of American Sociological Association Disability & Society Section book award.

Cheryl Najarian Souza, PhD, is an Associate Professor of Sociology at the University of Massachusetts, Lowell, USA. Souza’s research and teaching interests include examining disability and ability from intersectional, interdisciplinary, and feminist perspectives. She has written extensively about the deaf community and the challenges deaf women face.

Emily A. Nusbaum, PhD, is an Assistant Professor at University of San Francisco, USA. Nussbaum’s research focuses on critical qualitative research, disability and disabled researchers, the ideology of inclusive education, and experiences of post-secondary students who are identified as disabled. Nussbaum is a recipient of the AERA Disability Studies in Education Special Interest Group Outstanding Dissertation award.

Morgan V. Sanchez, PhD, is an Assistant Professor of Sociology at California State University, East Bay, USA. Her research interests include contested illnesses, illness narratives, and familial experiences of disability. She is currently working on a project using blogs to explore variations in contested illness narratives depending on the degree of medicalization.

Heidi Steinour, PhD, is a Visiting Instructor at The University of South Florida. She is also a Learning Experience Designer with Ellucian focusing on integrating educational technology into online learning. Her research areas focus on family, gender, and education with interests in pedagogy and curriculum design.

J. Dalton Stevens is a sociology Doctoral Student at Syracuse University, USA. His scholarship focuses on disability, aging and the life course, family, sex and gender, mortality, welfare policy, and qualitative/mixed methods. Stevens received graduate student paper awards from the American Sociological Association and the Society for the Study of Social Problems.

Ahoo Tabatabai, PhD, is an Associate Professor of Sociology and the Chair of the Department of Psychology and Sociology at Columbia College in Columbia Missouri, USA, and currently serves on the editorial board of Sociological Focus. Tabatabai’s scholarship and teaching interests include the study of disability, narratives, and identity.

Aliza H. Weiss is a Doctoral Student in the School of Education Counselor Education and Supervision and a Career Support Specialist at the Center for Transition Innovations at Rehabilitation Research and Training Center at Virginia Commonwealth University, USA. Weiss’ research interests include disability, postsecondary education/employment, and siblings of individuals with neurodevelopmental disabilities.

Melissa Jane Welch, PhD, is an Advocacy Specialist with The Arc of Larimer County, where she works to help disabled individuals and their families navigate systems of support in their communities. Welch’s research centers on various aspects of health, illness, and disability, including community engagement and participation, education, social movements, and collective identity.

Loren E. Wilbers, PhD, is an Assistant Professor of Sociology and Disability Studies Certificate Program Coordinator at the University of Wisconsin-Whitewater, USA, where she received the Chancellor’s Award on Disability Concerns. Wilbers’ research and teaching interests include disability, health and illness, and social psychology, with particular emphasis on chronic pain and family experiences with disability.

Prelims
Introduction Exploring Narrative as a Social Science Framework on Disability and Disabled People
Part I Cultural Stories of Disability and Individual Lives
Chapter 1 Reframing the Story of Helen Keller and Anne Sullivan: Resisting (Dis)ability Stereotypes through an Analysis of Children’s Literature
Chapter 2 “It’s Not That Way You Know, She Has a Good Future”: Women’s Experiences of Disability and Community-based Rehabilitation in Sri Lanka
Chapter 3 Test Anxiety: Participation and Exclusion beyond the Institution
Chapter 4 Narratives of Care and Citizenship: Mothering “Precariously Normal” Adult Sons and Daughters in an Age of Inequality
Chapter 5 “More than a Parent, You’re a Caregiver”: Narratives of Fatherhood in Families of Adult Sons and Daughters with Life-long Disabilities
Part II Cultural Stories of Disability and Organizations
Chapter 6 “You Won’t Tell That You Have Schizophrenia, Right? You Should Say You Have a Small Depression”: Organizational Narratives of “Adjusted” Workers with Disabilities and the Rhetoric of Reassurance in France
Chapter 7 “I Want to Go Places on My Own”: A Case-study of Virginia Commonwealth University ACE-IT in College
Chapter 8 More than Therapy: Conformity and Resistance in an Organizational Narrative of Disability and the Performing Arts
Part III Cultural Stories of Disability and Social Policies
Chapter 9 Narrative Productions of Problems and People in the Americans with Disabilities Amendment Act
Chapter 10 Institutional and Personal Narratives of Chronic Pain Management: Interrogating the Medical and Social Models of Disability
Chapter 11 Stuck in Transition with You: Variable Pathways to In(ter)dependence for Emerging Adult Men with Mobility Impairments
Chapter 12 Conflicting Narratives of Corporeal Citizenship: Medicaid Personal Care Attendant (PCA) Policy and Program Users’ Experiences of Cross-state Moves
Part IV Cultural Stories of Disability and Resistance
Chapter 13 Neither Victim nor Superhero: Reflections on Disability and Mental Health Counseling
Chapter 14 Self-study of Intersectional and Emotional Narratives: Narrative Inquiry, Disability Studies in Education, and Praxis in Social Science Research
Chapter 15 Neoliberalism and the Fight for the Child: Narratives of Queer Mothering
Chapter 16 Sick and Tired: Narratives of Contested Illness in Chronic Fatigue Syndrome Blogs
Chapter 17 “We Love Each Other into Meaning”: Queer Disabled Tumblr Users Constructing Identity Narratives through Love and Anger
Index