Take Care

ISBN: 978-1-78714-293-0, eISBN: 978-1-78714-292-3

Publication date: 23 June 2017


Grayson, D. (2017), "End-Notes", Take Care, Emerald Publishing Limited, Leeds, pp. 239-255. https://doi.org/10.1108/978-1-78714-292-320171017



Emerald Publishing Limited

Copyright © 2017 Emerald Publishing Limited

1Johnnie and Tiggy Walker are patrons of Carers UK. Tiggy’s account of her journey as carer and then being cared for, is movingly described in her book Unplanned Journey, 2015.

2 http://www.theguardian.com/guardian-observer-style-guide-c

3 Supporting Carers in Your Workforce: A Manager’s Handbook. Employers for Carers; 2015.

4Data collected by Carers UK.

5 http://www.age-platform.eu/age-work/age-policy-work/health/age-work/2656-interactive-platform-for-informal-carers-launched

6 Summary – Unpaid help: who does what? – SCP.

7Caregiving in the United States, National Alliance for Caregiving in collaboration with AARP (2009, November).

8Australian Bureau of Statistics (ABS). (2015). Retrieved from https://www.yooralla.com.au/news-and-media/statistics-and-infographics/support-carers,-family-and-support-workers/carers-in-australia. Accessed in October 2015.

9Cranswick, K. (1997). Canada’s caregivers: Canadian social trends. Ottawa: Statistics Canada.

10Sinha, M. (2012). Portrait of caregivers (Catalogue number 89-652-X). Retrieved from http://www.statcan.gc.ca/pub/89-652-x/89-652-x2013001-eng.pdf. Accessed in September 2013.

112012 General Social Survey (GSS). Canada, 2012.

12Creating longer, more fulfilling working lives: employer practice in five European countries, CIPD May 2016.

13 https://sustainabledevelopment.un.org/?menu=1300

14Carers UK. (2015). State of Caring Report 2015.

15Alone and Caring. (2015). Retrieved from http://www.carersuk.org/for-professionals/policy/policy-library/alone-caring. Accessed in April 2017.

16 http://news.gc.ca/web/article-en.do?nid=923149

17Goyer A. (2015). Juggling life, work and caregiving.

18Resnizky, S., Cohen, Y., & Brodsky J. (2016, December). Family caregivers and working life. Myers-JDC-Brookdale Institute Center for Research on Aging.

19Work + Care: Information for Employers. Retrieved from http://www.carers.net.nz/work-care-information-employers

20Hollander, J. M., Liu, G., & Chappell, N. (2009). Who cares and how much. Healthcare Quarterly, 12(2), 42–49.

21Canadian Institute for Health Information. (2012). National Health Expenditure Trends, 1975 to 2012, Table A1, $182 billion Total Health Expenditures in 2009.

22 https://caregiver.org/selected-caregiver-statistics

23 http://www.aarp.org/content/dam/aarp/ppi/2015/valuing-the-invaluable-2015-update-undeniable-progress.pdf

24Reinhard, S. C., Feinberg, L. F., Choula, R., & Houser, A. Insight on the issues valuing the invaluable: 2015 update. AARP Public Policy Institute.

25Deloitte Access Economics 2015.

26 http://www.carers.net.nz/blog/economic-value-and-impacts-family-caregiving-new-zealand-0

27Buckner, L. (2015). Valuing Carers 2015. University of Leeds & Sue Yeandle, University of Sheffield.

28Her Majesty’s Treasury Public Expenditure Statistical Analyses 2015.

29Forbes, www.forbes.com/companies/hsbc-holdings; www.forbes.com/companies/visa quoted in Valuing Carers 2015: The rising value of carers’ support.

30Buckner, L. (2015). Valuing Carers 2015. University of Leeds & Sue Yeandle, University of Sheffield.

31 Speaking to 6th International Caring Conference, Gothenburg, Sweden, September 2015.

32 Stages of the Caring Journey – Emily Holzhausen – September 2016, Carers UK internal working paper.

33Based on meeting 25 November 2016 and subsequent e-mail exchange.

34Carers UK. (2015). State of Caring 2015, Carers UK.

35 http://www.caringacross.org/stories/why-working-caregivers-need-paid-leave/

36 http://www.caringacross.org/stories/caregiving-while-working-full-time/

37 https://www.amazon.com/Alzheimers-Through-My-Mothers-Eyes-ebook/dp/B00H5QAY3A

38Based on: Inspiration – Carers Canada. Work & Care A Balancing Act p. 17 (2015); author’s interview 18 July 2016; and subsequent email exchange 2016-2017

39Carers UK Caring magazine 2016; interview with author 16 January 2017 and e-mail exchange

40Text provided by Vivien Kwok and subsequent emails 2016-2017.

41 http://www.recruitment-international.co.uk/news/employers-need-to-do-more-to-help-carers-27033.htm

42Quoted in The Financial Times The Big Read: US board composition: male, stale and frail? By Stephen Foley and Jennifer Bissell and David Oakley Published 16 August 2016.

43 https://www.sa.gov.au/topics/community-support/carers/carers-and-employment/for-employers-of-carers

44Yeandle S., Caring for our carers: An international perspective on policy developments in the UK, IPPR blog August 2016 http://www.ippr.org/juncture/caring-for-our-carers

45 Ibid.

46Metlife Mature Market Institute, National Alliance for Caregiving. (2006). The MetLife caregiving cost study: productivity losses to U.S. Business. Retrieved from http://www.caregiving.org/data/Caregiver%20Cost%20Study.pdf

47Duxbury, L., Higgins, C., & Schroeder, B. (2009). Balancing paid work and caregiving responsibilities: A closer look at family caregivers in Canada. A report submitted to Human Resources and Skills Development Canada. Retrieved from http://www.cprn.org/documents/51061_EN.pdf. Accessed on April 2017.

48Sherman, K.C., & Reed, K. (2008). Eldercare and job productivity: An accommodation analysis. Journal of Leadership Studies, 1(4), 23–36.

49Quoted in Government of Canada. (2015 January 21). When work and caregiving collide: How employers can support their employees who are caregivers. Report from the Employer Panel for Caregivers. Retrieved from http://www.ehospice.com/canadaenglish/Default/tabid/10678/ArticleId/13740. Accessed on April 2017.

50Lilly, M.B., Laporte, A., & Coyte, P. (2007). Labor market work and home care’s unpaid caregivers: A systematic review of labor force participation rates, predictors of labor market withdrawal, and hours of work. The Milbank Quarterly, 85, 641–690.

51Lilly, M. (2010). Curtailing the cost of caring for employers and employees: What every CEO should know, Von Canada.

52Hegewisch, A. (2009). Flexible working policies: A comparative review. Research Report 16. Equality and Human Rights Commission. Manchester: Equality and Human Rights Commission.

53Quoted in Slaughter, A.-M. (2015). Unfinished Business. p. 229.

54 http://www.100yearlife.com/

55Business in the Community. (2015). The Missing Million.

56Kumar, V., & Pansari, A. (2015). Measuring the benefits of employee engagement. MIT Sloan Management Review, 56(4), 67–72.

57Shuck, B., & Reio, T. G. (2014). Employee engagement and well-being: A moderation model and implications for practice. Journal of Leadership and Organizational Studies, 21(1), 43–58.

58Kruse, K. (2015). The ROI of employee engagement. Health Care Registration: The Newsletter For Health Care Registration Professionals, 24(6), 3–5.

59Lightle, S. S., Castellano, J., Baker, B., & Sweeney, R. J. (2015). The role of corporate boards in employee engagement. IUP Journal of Corporate Governance, 14(4), 7–13.

60Lifeng, Z., Wayne, S. J., & Liden, R. C. (2016). Job engagement, perceived organizational support, high-performance human resource practices, and cultural value orientations: A cross-level investigation. Journal of Organizational Behavior, 37(6), 823–844.

61Sivarethinamohan, R., & Aranganathan, P. (2011). Determinants of employee engagement and retention practices in indian corporate-principal component analysis. Asia Pacific Journal of Research in Business Management, 2(12), 1–17.

62Downey, S. N., Werff, L., Thomas, K. M., & Plaut, V. C. (2015). The role of diversity practices and inclusion in promoting trust and employee engagement. Journal of Applied Social Psychology, 45(1), 35–44. doi:10.1111/jasp.12273

63Benito-Osorio, D., Muñoz-Aguado, L., & Villar, C. (2014). The Impact of Family and Work-Life Balance Policies on the Performance of Spanish Listed Companies. M@N@GEMENT, 17(4), 214–236.

64Gastfriend, J. (2014). No one should have to choose between caregiving and work, Harvard Business Review Blog. Retrieved from https://hbr.org/2014/07/no-one-should-have-to-choose-between-caregiving-and-work/. Accessed on July 23, 2014.

65Downey, S. N., Werff, L., Thomas, K. M., & Plaut, V. C. (2015). The role of diversity practices and inclusion in promoting trust and employee engagement. Journal of Applied Social Psychology, 45(1), 35–44. doi:10.1111/jasp.12273

66Vogel, N. (2006). Meeting special needs: A benefit that adds value for both employees and employers. Compensation and Benefits Review, 38(2), 57–61. doi:10.1177/0886368706287370

67Shankar, T., & Bhatnagar, J. (2010). Work Life Balance, Employee Engagement, Emotional Consonance/Dissonance & Turnover Intention. Indian Journal Of Industrial Relations, 46(1), 74–87.

68Ali Omran, S. K. (2016). Work-family balance dilemma among employed parents (An empirical study). International Journal of Business and Economic Development, 4(1), 31–46.

69Rothmann, S., & Baumann, C. (2014). Employee engagement: The effects of work-home/home-work interaction and psychological conditions. South African Journal of Economic and Management Sciences, 17(4), 515–530.

70Boyar, S. L., Wagner, T. A., Petzinger, A., & McKinley, R. B. (2016). The impact of family roles on employee’s attitudes and behaviors. Journal of Management Development, 35(5), 623–635. doi:10.1108/JMD-07-2015-0096

71Shankar, T., & Bhatnagar, J. (2010). Work life balance, employee engagement, emotional consonance/dissonance and turnover intention. Indian Journal of Industrial Relations, 46(1), 74–87.

72Christ, G. (2016). Kicking wellness out of the workplace. EHS Today, 9(4), 15–17.

73 http://www.cipd.co.uk/pressoffice/press-releases/cipd-absence-management-061014.aspx

74 Author interview.

75Author interview with Sharon Graff and subsequent e-mail exchanges.

76Blueprint for Better Business. Retrieved from http://www.blueprintforbusiness.org/

77Employer Resource Guide Four Steps For Supporting Employees With Caregiving Responsibilities – ReACT.

78Best practice in supporting carers, Carer Positive Scotland, 2016.

79Quoted in Presentation to Sixth International Caring conference, Gothenburg, Sweden, September 2015.

80Snelling, S. (2014, March 26). Caregiving is a corporate issue: Next avenue. Retrieved from http://www.nextavenue.org/caregiving-corporate-issue/

81Carers NSW 2014 Carer Survey.

82Presentation to Sixth International Caring Conference, Gothenburg, Sweden, 3–6 September 2015.

83MetLife Mature Market Institute, & National Alliance for Caregiving. (2003). The MetLife Study of Sons at Work. Retrieved from www.caregiving.org

84Source: Euro-carers. European association working for carers, We care – Do you? Balancing work and care – An employer’s guide (p. 8).

85ReACT Employer resources: http://www.aarp.org/react/info-09-2013/react-johnshopkins-case-study.html

86Speech at 6th International Carers Conference, Gothenburg, 4 September 2015 as recorded by author.

87Anne-Marie Slaughter. Unfinished Business. p. 207.

88ReACT Employer resources. Retrieved from http://www.aarp.org/react/info-09-2013/react-johnsonjohnson-case-study.html

89Speech at 6th International Carers Conference, Gothenburg, 4 September 4 2015 as recorded by author.

90 Based on interview on 7 October 2015, further meeting on 19 October 2016 and e-mail exchanges 2016–2017.

91Sourced from Melville-Ross, J., Two for Joy 2016; various newspaper articles at the time of book publication; Melville-Ross article for International Business Times; and author interview on 20 January 2017.

92Interview with Tim Fallowfield, 24 August 2016.

93Based on published sources and see the TED talk with Steve Shirley filmed March 2015 (http://www.steveshirley.com/about/)

94Collins & Porras, Built to Last, 1994.

95 http://www.bitcni.org.uk/news/business-in-the-community-launches-employee-passport/

96Work & Care: The Necessary Investment: Combining Work and Care, The business case for carer-friendly workplaces -Report No. 2 Work & Care Initiative, Carers Australia, 2014.

97Quoted in Brufal, T. (December 2016). If you were a carer, what support would your organisation offer you? Forward Institute.

98Kumar, V., & Pansari, A. (2015). Measuring the benefits of employee engagement. MIT Sloan Management Review, 56(4), 67–72. http://www.topemployersforworkingfamilies.org.uk/index.php/special-awards/case/west-dunbartonshire-council

99 http://www.mitsubishicorp.com/jp/en/about/resource/diversity.html

100 http://www.mitsubishicorp.com/jp/en/about/resource/diversity.html

101Interview with Neville Hounsome Group, HR Director and Sarah Bissell Head of Reward, Hyde Housing, 21 March 2016.

102Bowness, S. (2015, August 18). The future of work: Why employers are caring for the caregivers, The Globe and Mail, August 18, 2015.

103See more at: http://www.shrm.org/hrdisciplines/benefits/articles/pages/2012nse.aspx#sthash.PhjTmJRg.dpuf

104Schurman, B. (2016). OECD Business Brief: Who cares for the caregivers. Retrieved from http://www.oecd.org/forum/oecdyearbook/who-cares-for-the-carevigers.htm

105Based on author interview and e-mail exchanges with Westpac 2016–2017.

106Derived from published sources and from their website: http://otsuka.csrportal.jp/en

107 http://eurocarers.org/InformCare

108 http://solutions.3m.com/wps/portal/3M/en_US/healthy-living/home/family/adult-elder-care/

109 http://hr.harvard.edu/caring-elders-and-other-adults

110 http://www.workingmums.co.uk/top-employers/unilever/

111Snelling, S. (2015, April 14). A New Era: Companies Supporting Caregivers, Forbes, Next Avenue. Retrieved from http://www.forbes.com/sites/nextavenue/2015/04/14/a-new-era-companies-supporting-caregivers/#10a9c1c20de4. Accessed on April 14, 2015.

112 http://www.taisei.co.jp/english/index.html

113Quoted in http://www.aarp.org/react/react-employer-best-practices/

114Author interview with Frank Nigriello 19 July 2016 and subsequent e-mail exchange 2016–2017.

115Quoted in Brufal T, ‘If you were a carer, what support would your organisation offer you?’ Forward Institute, December 2016.

116Author interviews with Susan Scott-Parker on 4 February 2016 and 18 January 2017 and e-mail exchanges 2016–2017.

117Age UK, & Carers UK. (July 2016). Walking the tightrope: The challenges of combining work and care in later life.

118Presentation, Carer Positive, Glasgow, February 2016.

119Author interview.

120Nash N. (2009). Disabled employee networks: A practical guide. Kate Nash Associates.

121Interview with Keith Edwards April 2015 and subsequent e-mail exchanges.

122Presentation to Employers for Carers Networking event October 2016 and e-mail exchanges 2016.

123 Disabled Employee Networks: A practical guide., Kate Nash Associates. 2015.

124Quoted in Brufal, T., (December 2016). ‘If you were a carer, what support would your organisation offer you?’ Forward Institute.

125Author e-mail exchange August 2015.

126 http://www.carerpositive.org/

127Author interview on 31 July 2015 and follow-up e-mail exchange January 2017.

128Carers UK case-study.

129 http://www.responsible100.com/

130See more at: http://www.aarpinternational.org/resource-library/resources/grosser-cleaning-and-care-services-2014-aarp-best-employer-international-award-recipient#sthash.O6mxdPn2.dpuf

131Author interview January 2017.

132Gratton, L., & Scott, A. (2016). The 100 year life. Bloomsbury Information.

133EU Commission Communication on CSR (October 2011). Retrieved from http://ec.europa.eu/enterprise/policies/sustainable-business/files/csr/new-csr/act_en.pdf. Accessed on April 2017.

134Ainsbury, R., & Grayson, D. (2014). Business critical: Understanding a company’s current and desired stages of corporate responsibility maturity, Doughty Centre for Corporate Responsibility Occasional Paper.

135The Evolution of the Desk (1980–2014). An initiative borne out of the Harvard Innovation Laboratory. The goal is to illustrate the impact that technology has had on our lives over the last 35 years. A cluttered desk, complete with a rolodex, a file cabinet, and a fax machine, transforms into a much cleaner, simpler surface consisting of only a laptop and a mobile phone. Retrieved from https://www.youtube.com/watch?v=Z6PzTUDfxc0. Accessed on April 2017.

136 http://www.zmescience.com/research/technology/smartphone-power-compared-to-apollo-432/

137Schwab, K. (2016 January 14). The Fourth Industrial Revolution: what it means, how to respond, WEF. Retrieved from https://www.weforum.org/agenda/2016/01/the-fourth-industrial-revolution-what-it-means-and-how-to-respond/. Accessed on April 2017.

138Unwin, J. (2016 November 24). Where next for civil society? Julia Unwin’s inaugural lecture for the Wales Council for Voluntary Action (WCVA) given at their AGM. Retrieved from https://www.jrf.org.uk/where-next-civil-society. Accessed on April 2017.

139 https://www.2degreesnetwork.com/services/collaboration-programs/

140Adler, R., Mehta, R., The National Alliance for Caregiving. (2014). Catalyzing technology to support family caregiving. Retrieved from http://www.caregiving.org/wp-content/uploads/2010/01/Catalyzing-Technology-to-Support-Family-Caregiving_FINAL.pdf. Accessed April 2017.

141Quoted in the “A Brave New World?” Accenture/BitC, November 2016.

142Claire, Z. (2016 March 22). This Non-profit Wants To Put Stay-At-Home Moms Back to Work, Fortune. Retrieved from http://fortune.com/2016/03/22/path-forward-returnship/ and Claire, Z. (2016 August 23). These six Tech Companies Are Recruiting Moms Who Left the Workplace. Fortune. Retrieved from http://fortune.com/2016/08/23/tech-jobs-mom-women-return-workplace/?xid=soc_socialflow_facebook_FORTUNE. Accessed on April 2017.

143Carers UK, & Employers for Carers. (2015). Caring and isolation in the Workplace: Impact report and recommendations. Retrieved from https://www.carersuk.org/for-professionals/policy/policy-library/caring-and-isolation-in-the-workplace. Accessed on April 2017.

144Triantafillou, J., et al. (2010). Informal care in the long-term care system: European Overview Paper, Athens/Vienna: Interlinks.

145Collinson, P. (2016). Self-employed set up co-operatives to share costs and services. The Guardian. 16 April. Retrieved from https://www.theguardian.com/money/2016/apr/16/self-employed-co-operatives-share-costs-srvices

146 http://womensenews.org/2016/07/clinton-offers-quiet-policy-lure-to-millions-of-unpaid-caregivers/

147When WORK and CAREGIVING Collide: How Employers Can Support Their Employees Who Are Caregivers.

148Supporting Working Carers: The Benefits to Families, Business and the Economy 2013.

149Supporting Working Carers: The Benefits to Families, Business and the Economy 2013.

150Eurofound 2011 and author email exchange with Mezzo, July 2016.

151 https://www.employersforcarers.org/about-us/efc-umbrella-membership

152Tearle, S. (2016 May 11). West Sussex County Council speaking at State of Caring Conference, London.

153Grayson, D., Nelson, J. Corporate Responsibility Coalitions: The Past, Present and Future of Alliances for Sustainable Capitalism Sheffield: Greenleaf Publishing; 2013.

154 http://www.carersaustralia.com.au/international-conference/

155 http://www.corporateknights.com/reports/global-100/

156ReACT represents nearly 1 million employees through its membership of more than 40 companies and non-profit organizations. ReACT seeks to create a supportive business environment where the challenges faced by caregivers juggling the demands of both work and caregiving for an adult with a chronic age-related disease are understood and recognised by employers so that employees can better meet their personal and professional responsibilities. Retrieved from www.respectcaregivers.org

157 http://societyoflaterlifeadvisers.co.uk/ and conversation with SOLLA co-founder Brian Fisher, Aviva, Bristol, November 25 2016.

158‘Collaborative Commitments’ - A think-piece by Professor David Grayson, Doughty Centre for Corporate Responsibility, Cranfield School of Management, Prime Minister’s Council on Social Action (2008).

159 http://www.ndis.gov.au/

160The Economist, Pride & Prejudice, The global elite at the World Economic Forum will be getting in touch with its LGBT side, at last, January 2017.

161E-mail exchange with author January 2017.

162Martin, R., & Osberg, S. Getting beyond better: How social entrepreneurship works. New York, NY: Harvard Business Review Press; 2015.

163See for example Cannon, F. (2017). The Agility Mindset: How reframing flexible working delivers competitive advantage. Palgrave Macmillan 2017 and The Agile Future Forum. Retrieved from http://www.agilefutureforum.co.uk/. Accessed on April 15 2017.