Collective effort to enhance the quality of research evidence in intellectual and developmental disabilities: a case study of an academic-practice network

Abstract

Purpose

With a historic lack of attention to synthesis methods such as systematic review and meta-analysis and a lack of randomised controlled trials, the evidence base for behavioural interventions for children and adults who are autistic or are diagnosed with developmental disabilities is patchy. The Sharland Foundation Developmental Disabilities Applied Behavioural Research and Impact Network (SF-DDARIN), a network of like-minded researchers and practitioners across the UK, aims to address this. The purpose of this paper is to describe the network’s work and provide the context for the remaining articles in the special issue that exemplify network projects.

Design/methodology/approach

In this case study paper, the authors describe how the SF-DDARIN works and is resourced, detailing the process used to maximise research opportunities by facilitating network members working together. The authors outline the progressive research steps that the SF-DDARIN has identified are needed to develop and improve the evidence base for behavioural interventions systematically and, with examples, describe how the network delivers these steps.

Findings

Since its establishment in 2016, the SF-DDARIN network members have collectively worked on more than 53 projects involving over 50 researchers, had over 120 special schools contribute to projects and have recruited over 500 participants. This has been achieved through funding from the Sharland Foundation, primarily to cover the staffing costs of a small support team and internship partnerships with external organisations. Some projects have attracted external funding.

Originality/value

SF-DDARIN may provide an innovative, effective and resource-efficient model for other groups seeking to develop and extend their evidence base in developmental disability research.

Citation

Grindle, C., Denne, L.D., Roberts-Tyler, E.J., Sapiets, S.J., Apanasionok, M.M., Hughes, J.C., Hastings, R.P., Gore, N., Baker, P. and McDowell, C. (2024), "Collective effort to enhance the quality of research evidence in intellectual and developmental disabilities: a case study of an academic-practice network", Tizard Learning Disability Review, Vol. ahead-of-print No. ahead-of-print. https://doi.org/10.1108/TLDR-08-2023-0018