Information on the risk of dementia in aging persons with intellectual and/or developmental disability (IDD) in Manitoba, Canada is lacking. The purpose of this paper is to estimate dementia prevalence in adults with IDD.
Anonymized population-level health and non-health administrative data (1979-2012) contained in the Population Health Research Data Repository of the Manitoba Centre for Health Policy (MCHP) were linked to identify adults with IDD, and estimate the prevalence of dementia based on the presence of ICD codes. Prevalence of dementia was estimated for persons aged 18-55 years and 55+ years, and was reported by sex, type of residence, region of residence, neighbourhood income quintiles, and IDD diagnostic category.
Of the 8,655 adults with IDD identified, 8.1 per cent had an indication of dementia in their medical records; an estimate three times greater than that found for those without IDD (2.6 per cent). More than 17 per cent of Manitobans with IDD aged 55+ years had an indication of dementia, which was nearly twice the rate reported previously. Of those with IDD and dementia, 34.7 per cent lived in long-term care facilities.
Health and social support services are typically available to individuals with dementia aged 65+ years; thus, younger adults with IDD and dementia may not be eligible for those supports. To promote equity in health and access to care, dementia screening and increased supports for aging individuals with IDD are recommended.
Conflict of interests: the team declares no conflicts of interest.
The authors acknowledge and thank St Amant Inc., Winnserv Inc., Direct Action in Support of Community Homes (DASCH) Inc., Shalom Residences Inc., and New Directions for Children, Youth, Adults & Families for funding the project and their contribution to the research study summarised in this report. The authors acknowledge the Manitoba Centre for Health Policy (MCHP), University of Manitoba for use of data contained in the Population Health Research Data Repository (The Repository) under project HIPC approval number 2013/2014-42. The results and conclusions made are those of the authors and no official endorsement by the MCHP, Manitoba Health, Health Living and Seniors, Manitoba Department of Families, or other data providers are intended or should be inferred.
Shooshtari, S., Stoesz, B.M., Udell, L., Fenez, L., Dik, N., Burchill, C., Sachs, E. and Menec, V. (2017), "Aging with intellectual and developmental disabilities and dementia in Manitoba", Advances in Mental Health and Intellectual Disabilities, Vol. 11 No. 4, pp. 134-144. https://doi.org/10.1108/AMHID-03-2017-0007
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