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Progress on Participation? Self‐Advocate Involvement in Learning Disability Partnership Boards

Rachel Fyson (Norah Fry Research Centre, Bristol)
Gordon McBride (Swindon People First Research Team)
Brian Myers (Swindon People First Research Team)

Tizard Learning Disability Review

ISSN: 1359-5474

Article publication date: 1 July 2004



The aim of the research described was to gather information about both the objective and the subjective experiences of self‐advocates who had attended learning disability partnership boards, in order to promote effective practices. Findings show that, although people with learning disabilities were present at meetings, a variety of barriers limited their ability to participate actively. Problems included lack of financial and practical help as well as the limited availability of accessible information. There were also, however, examples of good practice, and many self‐advocates were pleased at how their local authorities were beginning to implement effective partnership working practices. Ways of supporting self‐advocates and other people with learning disabilities to fulfil a truly representative, rather than a merely symbolic, function at partnership board meetings are discussed.An accessible summary of these findings is available to download from the project website:


Fyson, R., McBride, G. and Myers, B. (2004), "Progress on Participation? Self‐Advocate Involvement in Learning Disability Partnership Boards", Tizard Learning Disability Review, Vol. 9 No. 3, pp. 27-36.



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Copyright © 2004, Emerald Group Publishing Limited

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