Search results

Stay-at-home and lock-down orders issued by the Ontario government at the beginning of the COVID-19 pandemic led to the closure of many community-based programs for people labelled/with intellectual disabilities. L'Arche Toronto Sol Express, an interdisciplinary arts program located in Toronto, is one example of a program that rapidly changed its program delivery to an online format so that participants could remain engaged and collaborative projects could continue. Similarly, participants had to adapt to new programs with virtual formats, and to accessing programs from their own homes as opposed to gathering with others in the community.

To reflect on these changes, Sol Express members and creative facilitators together conducted a participatory research project which considered the impact of the online format on individual participants and the group as a whole. Following the principles of emancipatory and participatory research, a research team was established and focus groups were held to explore people's experiences.

Our findings suggest that while there were many difficult aspects to the pandemic, people also experienced situations of learning and growth. However, our project also points to issues of inequity in the pandemic's effects, such as the inability for technology to incorporate diverse communication methods, and concerns regarding members of the extended community who remain disengaged or ‘lost’ due to a lack of technological and personal support.

Although our research focused on an arts group for people labelled/with intellectual disabilities, our findings can be applied to the broader community, especially regarding the benefits of in-person gathering and what is lost when programs are held exclusively online.

Often, researchers view silence as antagonistic to equity-aimed projects. Because verbal, written, and textually agentive communications are presumed to be the most valid qualitative-research data, moments of silence are under-analyzed. Yet, we argue that silence holds meaning as data and that it is a valid, rich form of communication.

Through this reflective analysis of silence, we invite readers to reconceptualize silence in research from a critical disability-research perspective with emphasis on crip willfulness. We introduce silence as an interpretive, agentive and relational gesture.

We attend to silence as necessary in all research because it helps researchers excavate able-bodied expectations about communication in qualitative-data-collection practices.

We demonstrate that silences in research can be an interpretive, relational, and agentive gesture that can teach us about taken-for-granted assumptions about research practices. Revisiting our research encounters with this framing of silence informed by critical disability studies allows us to question how traditional social science research methods value some modalities of expression over others. Rather than viewing silence in research as moments when nothing happens, we show that silence indicates something happening and is valid data.