Search results

1 – 2 of 2
Article
Publication date: 1 December 2008

John Devapriam, Catherine Thorp, Freya Tyrer, Satheesh Gangadharan, Lammata Raju and Sabyasachi Bhaumik

People with learning disabilities have high dependency needs and high prevalence of physical, psychological and social morbidities. Some studies have shown that South Asian and…

Abstract

People with learning disabilities have high dependency needs and high prevalence of physical, psychological and social morbidities. Some studies have shown that South Asian and white populations have a similar prevalence of learning disabilities and related psychological morbidity (McGrother et al, 2002), although other studies have shown an increased prevalence of severe levels of learning disabilities in the South Asian population (Emerson et al, 1997). The aim of this study was to compare stress levels and unmet service needs in informal carers of South Asian and white adults with learning disabilities.A sample of 742 informal carers was selected from the Leicestershire Learning Disability Register. Data on carers' and subjects' demographic details, stress levels and unmet service needs were analysed and compared using chi‐square tests and logistic regression analyses. Substantial differences were observed between the two groups. Carers of South Asian adults with learning disabilities reported significantly higher levels of care provision and unmet needs. Major stress was reported in 23% of carers. This was more common in carers with poor health, in those caring for younger adults, carers of adults with psychological symptoms, and in those with an expressed need for moral support or respite care.Stress is common among informal carers of adults with learning disabilities and inequalities, in reported care given and unmet needs, exist between carers of South Asian and white adults. Practitioners need to be aware of factors associated with stress when assessing carers in this population.

Details

Ethnicity and Inequalities in Health and Social Care, vol. 1 no. 2
Type: Research Article
ISSN: 1757-0980

Keywords

Article
Publication date: 21 May 2021

Katherine Dewey and Melanie Hodgkinson

The purpose of this study is to explore fathers’ experiences of raising a child with autism spectrum disorder (ASD), taking into consideration how this experience fluctuates as…

Abstract

Purpose

The purpose of this study is to explore fathers’ experiences of raising a child with autism spectrum disorder (ASD), taking into consideration how this experience fluctuates as their child develops from infancy to adulthood.

Design/methodology/approach

Semi-structured interviews were used to investigate the experiences of fathers who have a young adult with ASD. Seven fathers participated in this study. Data was analysed using thematic analysis.

Findings

Four themes were identified, these were: ubiquitous impact, divergent support, impeding factors and facilitating factors.

Practical implications

Findings from this study highlighted the pervasive impacts of having a child with ASD. This study highlighted the need to educate health-care professionals, the general public and prospective fathers. Creating “dads groups” could help to direct fathers towards other people who understand their situation. Finally, trialling methods to accelerate fathers’ acceptance, such as acceptance and commitment therapy (ACT), could help to reduce psychological stress.

Originality/value

To date, most research largely focusses on mothers’ experiences, as mothers are typically seen as the primary caregiver. Previous research also tends to focus on the earlier years of life. This research addresses the often-overlooked topic of fathers’ experiences, investigating their experience of having a child with ASD from birth through to adulthood.

Details

Advances in Autism, vol. 8 no. 1
Type: Research Article
ISSN: 2056-3868

Keywords

1 – 2 of 2