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1 – 10 of 160David Birnbaum, Kathryn Gretsinger, Marcy G. Antonio, Elizabeth Loewen and Paulette Lacroix
Expanding networks of data portals and repositories linked to electronic patient record systems, along with advances in information technology, have created both new opportunities…
Abstract
Purpose
Expanding networks of data portals and repositories linked to electronic patient record systems, along with advances in information technology, have created both new opportunities in improving public health and new challenges in protecting patient privacy. The purpose of this paper is to review stakeholder perspectives and provide a framework for promoting implementation of current privacy protection improvement recommendations.
Design/methodology/approach
This paper summarizes a workshop session discussion stemming from the 2017 Information Technology and Communication in Health (ITCH) biennial international conference in Victoria, British Columbia, Canada. The perspectives within health service research, journalism, informatics and privacy protection were represented.
Findings
Problems underlying gaps in privacy protection in the USA and Canada, along with then-current changes recommended by public health leaders as well as Information and Privacy Commissioners, were identified in a session of the 2015 ITCH conference. During the 2017 conference, a workshop outlined the current situation, identifying ongoing challenges and a lack of significant progress. This paper summarizes that 2017 discussion identifying political climate as the major impediment to progress on this issue. It concludes with a framework to guide the path forward.
Originality/value
This paper provides an international perspective to problems, resources and solution pathways with links useful to readers in all countries.
Details
Keywords
From a perspective inside one of the most advanced of the state programs, this presentation aims to explore issues of whom are we trying to reach; what information are we trying…
Abstract
Purpose
From a perspective inside one of the most advanced of the state programs, this presentation aims to explore issues of whom are we trying to reach; what information are we trying to convey; when did this reporting start; where can anyone find reports; why are we doing this; and how does it work. This is, however, neither a typical consumer informatics problem nor a subject that public health is used to dealing with.
Design/ methodology/ approach
The paper is a narrative review of personal experience.
Findings
Despite achievements, there are fundamental knowledge gaps and unsubstantiated assumptions underlying mandatory public reporting. Research and better role delineation are urgently needed to optimize current choices and ultimately determine whether this is the most cost‐effective strategy among alternative prevention investments.
Practical implications
Public health departments are in uncharted territory with this new area of activity, faced with fundamental knowledge gaps that potentially hamper chances of success. Perspectives explored in this part of the Universities Council Symposium help frame a research agenda and guide evolution of less advanced programs.
Originality/value
The Universities Council, established and coordinated by Washington State's HAI Program, is unique in taking an interdisciplinary approach to comprehensive examination of the unsubstantiated assumptions underlying mandatory public reporting.
Details