Twin to Twin Transfusion Syndrome (TTTS) is a well understood, yet under-recognized, placental disease affecting any given pregnancy at a rate of 1 in 1,000. There is no clustering of TTTS; instead the threat remains pathologically distinctive due to its pervasiveness. However, while incidence rates are random, survival rates are not. Despite compliant acceptance of “routine prenatal care,” sadly, there are many women who for currently unknown reasons are not receiving the advanced prenatal care needed to appropriately screen for, diagnosis and treat TTTS. And these women are paying the ultimate price for such obstetrical oversight.
This study hypothesizes that differential care being given by primary obstetricians of TTTS patients is resulting in experienced inequalities. Utilizing social reproduction theory, and through ethnographic and quantitative analyses of primary data, this study seeks to divulge the complex social processes taking place (or failing to take place) within the world of American obstetrics, and begin to understand how they are affecting TTTS mortality and morbidity rates.
Findings illuminate a profound imbalance of power and influence amongst the following entities: American Congress of Obstetricians and Gynecologists and Society of Maternal Fetal Medicine; obstetrical training and practice; and levels of patient awareness and advocacy.
This study argues that the current social relations being reproduced by these entities are perpetuating a climate that allows for disregard of proper TTTS management. Specifically, this study theoretically explores what social relations and subsequent (in)actions are being reproduced prior to TTTS diagnoses, and applies the effects of those observations.
I would like to acknowledge the 2012–2013 Mark Diamond Research Fund grant at the University at Buffalo for granting the funds necessary to complete this work.
Nicholas, L. (2014), "An Examination of the Effects of Current Obstetrical Opinions, Diagnostic and Practice Trends in the Management of Twin to Twin Transfusion Syndrome Patients", Family and Health: Evolving Needs, Responsibilities, and Experiences (Contemporary Perspectives in Family Research, Vol. 8B), Emerald Group Publishing Limited, Bingley, pp. 169-222. https://doi.org/10.1108/S1530-35352014000008B015
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