“I've Used My Wide Array of Skills to Create a Life for Myself”: Managing Narratives with Competing Goals in an Arts-based Disability Ally Organization

Abstract

Purpose: Artists with disabilities use their bodies and minds to create art. Yet, the prevailing cultural narrative that art is “therapeutic” for people with disabilities shifts attention from their creative accomplishments to their disabilities. Some ally organizations attempt to challenge the narrative that art is merely therapy for people with disabilities. However, drawing on narratives of “helping” people with disabilities attracts funding. This chapter examines how organizations navigate empowering allies while still maintaining funding.

Methods/Approach: This chapter uses narrative analysis of material accessed through a nonprofit arts-based disability ally organization's website to address two research questions: 1. How do ally organizations both draw on and resist cultural narratives of disability in order to garner public support?; and 2. How do personal narratives of disabled artists associated with ally organizations support and/or resist organizational and cultural narratives about the connection between disability and art?

Findings: The organization uses narratives to address important and sometimes conflicting goals. Personal narratives from artists with disabilities that are available through the website tell a range of stories about art and disability. The organization draws on these heterogeneous stories to position itself as an ally. By including such personal narratives on its website, the organization challenges the cultural narrative that the art produced by disabled artists is merely therapeutic.

Implication/Value: Much of the work on allyship focuses on how individuals can be allies. Examining ways in which organizations frame themselves as allies can help us to more fully understand allyship on multiple levels of social life.

Citation

Maconi, M.L. (2020), "“I've Used My Wide Array of Skills to Create a Life for Myself”: Managing Narratives with Competing Goals in an Arts-based Disability Ally Organization", Carey, A.C., Ostrove, J.M. and Fannon, T. (Ed.) Disability Alliances and Allies (Research in Social Science and Disability, Vol. 12), Emerald Publishing Limited, Leeds, pp. 87-109. https://doi.org/10.1108/S1479-354720200000012007