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Uncertainty in illness among individuals with schizophrenia: a phenomenology study in Indonesia

Fardelyn Hacky Irawani (Master Program of Nursing Science, Faculty of Nursing, Universitas Syiah Kuala, Banda Aceh, Indonesia)
Asniar Asniar (Department of Community Health Nursing, Faculty of Nursing, Universitas Syiah Kuala, Banda Aceh, Indonesia)
Marthoenis Marthoenis (Department of Psychiatry and Mental Health Nursing, Faculty of Nursing, Universitas Syiah Kuala, Banda Aceh, Indonesia)

Journal of Public Mental Health

ISSN: 1746-5729

Article publication date: 27 July 2022

Issue publication date: 16 August 2022

83

Abstract

Purpose

Individuals with schizophrenia experience uncertainty due to the unpredictable symptoms, the course of the illness and poor knowledge about the disease, treatment and prognosis. Uncertainty in illness is linked with poor treatment outcomes, coping strategies, check-up decisions and psychological distress. This study aims to explore the uncertainty in illness among individuals with schizophrenia.

Design/methodology/approach

Eight individuals with schizophrenia living in the community were interviewed regarding their illness. The phenomenology approach was used to collect and analyze the data.

Findings

Three themes emerged from the findings of the study; the unpredictable course of the illness, compliance amid uncertainty and uncertainty of information about their illness. This study provides an essential overview of how patients with schizophrenia live in uncertain conditions.

Originality/value

It should be considered by various parties, particularly the community mental health nurses working with individuals with schizophrenia. Considering the uncertainty of illness while looking after or interacting with patients and their family is significant in improving adequate mental health-care delivery.

Keywords

Acknowledgements

Authors contributions: FHI, MM and AS designed the study. FHI conducted the research, examined the data and synthesized the findings with AS. MM and AS drafted the report. The final manuscript was read and approved by all of the authors.

Citation

Irawani, F.H., Asniar, A. and Marthoenis, M. (2022), "Uncertainty in illness among individuals with schizophrenia: a phenomenology study in Indonesia", Journal of Public Mental Health, Vol. 21 No. 3, pp. 239-249. https://doi.org/10.1108/JPMH-03-2022-0025

Publisher

:

Emerald Publishing Limited

Copyright © 2022, Emerald Publishing Limited

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