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Parental perspectives on support needs and availability of autism services in South and South-Eastern Europe

Ivana Vasilevska Petrovska (Macedonian Scientific Society for Autism, Skopje, Macedonia)
Anastasia C. Giannakopoulou (CYCLISIS, Patras, Greece)
Vassiliki Tsecoura (CYCLISIS, Patras, Greece)
Angela Winstanley (Shipcon, Limassol, Cyprus)
Roberto Miletto (Maendeleo for Children, Rome, Italy)
Georgeta Constanţa Roşca (Department of Education, Smaranda Gheorghiu School, Târgovişte, Romania)
Biserka Ivanova (The First National Dyslexia Centre, Rousse, Bulgaria)
Vasiliki Kaisa (DADAA – Association of People with Pervasive Developmental Disorder, Autism and Asperger, Komotini, Greece)
Vladimir Trajkovski (Macedonian Scientific Society for Autism, Skopje, Macedonia and Faculty of Philosophy, Institute of Special Education and Rehabilitation, Saints Cyril and Methodius University in Skopje, Skopje, Macedonia)

Advances in Autism

ISSN: 2056-3868

Article publication date: 9 July 2021

Issue publication date: 16 February 2022

128

Abstract

Purpose

Amid the expanding demand on the autism service delivery system, little knowledge is accumulated regarding access and availability of support and services in the region of Southern and South-Eastern Europe – critical for improvement of individual outcomes, as well as family quality of life. The purpose of this paper is to explore how service delivery systems are responding to the specific needs of autistic individuals with autism, as perceived by parents.

Design/methodology/approach

A qualitative exploratory descriptive method was used. Thematic analysis was used as a pragmatic method to report on the experiences of parents (92% mothers, n = 55) of children, youth and young autistic adults (76% male) across six South and South-Eastern European counties that participated in a survey involving a combination of qualitative and quantitative data collection.

Findings

Thematic analysis revealed three broad themes: challenging pathways to service utilization, insufficient service options and providers’ competences and lack of continuous and meaningful support across life span.

Originality/value

The findings from this study add to the small body of literature specific to South and South-Eastern Europe, by exposing problems related to meeting the needs of autistic children and youth and potential ways to strengthen services, as perceived by parents. The findings have potential policy ramifications for the region in which the research was conducted.

Keywords

Citation

Vasilevska Petrovska, I., Giannakopoulou, A.C., Tsecoura, V., Winstanley, A., Miletto, R., Roşca, G.C., Ivanova, B., Kaisa, V. and Trajkovski, V. (2022), "Parental perspectives on support needs and availability of autism services in South and South-Eastern Europe", Advances in Autism, Vol. 8 No. 2, pp. 132-146. https://doi.org/10.1108/AIA-11-2020-0066

Publisher

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Emerald Publishing Limited

Copyright © 2021, Emerald Publishing Limited

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