The Impact of COVID-19 on the Lives of Persons With Intellectual Disabilities: A Participatory Research Project from Madrid, Spain

Abstract

This chapter presents the findings of a participatory research project on the impact of COVID-19 and the lockdown on the lives of people with intellectual disabilities in Madrid, Spain. It provides a brief overview of the social policy framework with regards to people with disabilities, and how the government responded to the needs of people with disabilities during the pandemic. The research was conducted by seven co-researchers with intellectual disabilities, who explored how people with intellectual disabilities in Madrid had experienced the lockdown and sanitary restrictions from March 2020 to November 2021. Participants included people living at home with their families, in group homes and in residential care. The findings are contrasted with other studies on the impact of the pandemic in Spain. The pandemic revealed the precariousness of the care system, and the urgent need to shift towards a human rights compliant service provision. Our study shows that people with intellectual disabilities experienced restrictions in different aspects of their lives during a longer period, that people living in residential care were more isolated and that there is a general concern with the future. People living in congregated settings were subject to higher restrictions. Some people had become care providers to their parents, and digital skills had been essential to keep in touch with partners, friends and family. Furthermore, people expressed a desire to regain their freedom, meet new people and a concern with lack of employment.

Citation

Velayos, A.P., Corona de la Iglesia, A., Castillo, Á.S., Urda, G.A., Gómez-Carrillo de Castro, M., Suils, M.S., Pilataxi, P.C. and Moreno, V.S. (2023), "The Impact of COVID-19 on the Lives of Persons With Intellectual Disabilities: A Participatory Research Project from Madrid, Spain", Genova, A., Scavarda, A. and Świątkiewicz-Mośny, M. (Ed.) Disability Welfare Policy in Europe, Emerald Publishing Limited, Leeds, pp. 141-166. https://doi.org/10.1108/978-1-80382-819-020231009