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Book part
Publication date: 9 November 2006

Carol M. Szymanski

Individuals with disabilities may not be aware of their communicative, academic, social, and/or vocational needs. Over the last 20 years, self-advocacy has been referred to as a…

Abstract

Individuals with disabilities may not be aware of their communicative, academic, social, and/or vocational needs. Over the last 20 years, self-advocacy has been referred to as a goal for education, a civil rights movement, and a component of self-determination (Test, Fowler, Wood, Brewer, & Eddy, 2005). As a measurable skill, self-advocacy can be specifically defined as a skill that helps “individuals communicate their needs and stand up for their own interests and rights” (Yuan, 1994, p. 305). Individuals diagnosed with a variety of disabilities (learning disabilities, cognitive impairments, language disorders, etc.) experience difficulty in achieving success in situations where they are required to communicate their needs and stand up for their rights. Test et al. (2005) documented 25 definitions of self-advocacy that were published between 1977 and 2002. The most recent definition focused on self-advocacy in the realm of social change and civil rights; the enablement of individuals with disabilities to make decisions, speak for themselves, and stand up for their rights.

Details

Current Perspectives in Special Education Administration
Type: Book
ISBN: 978-1-84950-438-6

Article
Publication date: 23 August 2020

Hozan Latif Rauf, Kagan Gunce and Munevver Ozgur Ozersay

The study aims to identify the issues that restrict students to show their real performance in the design due to lacking of self-advocacy skills and suggesting a new concept to…

Abstract

Purpose

The study aims to identify the issues that restrict students to show their real performance in the design due to lacking of self-advocacy skills and suggesting a new concept to overcome these difficulties.

Design/methodology/approach

The current literature was surveyed to form a comprehensive understanding of the issue. A case study has been taken for three years and two groups of students were taken. Results achieved and discussed.

Findings

The result of the study showed that those students who undergo an environment equipped with knowledge about self-advocacy can perform better and the success level is relatively higher amongst these students.

Originality/value

This study contributes to the current literature an original knowledge that has not been previously written about (empowering self-advocacy amongst students of interior architecture). The profession of interior architecture is a relatively new profession and faces challenges in fixing its feet on the ground that is why the subject can add a real value to it to alleviate the challenge.

Article
Publication date: 20 February 2019

William James Zuber and Colin Webber

The purpose of this paper is to examine current research on self-advocacy and self-determination of autistic students in order to provide an overview of the research and to…

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Abstract

Purpose

The purpose of this paper is to examine current research on self-advocacy and self-determination of autistic students in order to provide an overview of the research and to critically evaluate researcher’s methods of inclusivity of autistic people. Additionally, this paper will critically analyse the discourse of the current research to assess the extent of deficit, stigma and pathology discourse.

Design/methodology/approach

Research will be selected from a list of criteria which is to seek research that is inclusive of autistic people. The research will be analysed using elements of critical discourse analysis, critical disability studies and critical autism studies. The critical autism studies approach used in this paper is emancipatory to promote autistic scholarship, autistic inclusivity and autistic led research methods.

Findings

The result of this paper is that by prioritising, and including autistic individuals in the studies about them provides valuable educational insights and often challenges assumptions, stigmas and stereotypes of autistic individuals.

Research limitations/implications

The findings of the paper may be limited by the selection of literature reviewed and generalizability, therefore, researchers are encouraged to explore further.

Practical implications

This paper holds potential implications that question the consistency of current discourse and research into self-advocacy for autistic individuals in addition to providing effective research, teaching and support strategies based on insight. This paper also highlights some research that challenges assumptions of autistic individuals.

Social implications

This paper challenges assumptions and stigmas associated with autistic individuals and demonstrates the importance of self-advocacy and self-determination. This research transforms the paradigm of autism and education practice that has the potential to improve autistic individuals’ education and ultimately, improve their lives.

Originality/value

This research is important and valuable as there is limited research in this area. The potential of this research is that it can shift the broad perceptions of autism and make improvements in education and autistic individuals lives.

Details

Advances in Autism, vol. 5 no. 2
Type: Research Article
ISSN: 2056-3868

Keywords

Article
Publication date: 7 April 2015

Rob Greig

– The purpose of this paper is to provide a commentary on the preceding article “Changing organisational culture: another role for self-advocacy”.

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Abstract

Purpose

The purpose of this paper is to provide a commentary on the preceding article “Changing organisational culture: another role for self-advocacy”.

Design/methodology/approach

The paper suggests that self-advocacy has the potential to be a significant influence on organisational culture, but questions whether self-advocacy's current funding regime and limited focus on outcomes makes this possible.

Research limitations/implications

This issue is identified as one where further research would be beneficial.

Practical implications

If organisations are to use self-advocacy as a route of cultural change, it is suggested that attention will need to be given to issues of independent funding, management change objectives and whole system change.

Originality/value

If evidence were generated to support the belief that self-advocacy can impact on organisational culture, the consequences for how society and services behave towards people with learning disabilities could be significant.

Details

Tizard Learning Disability Review, vol. 20 no. 2
Type: Research Article
ISSN: 1359-5474

Keywords

Article
Publication date: 7 April 2015

Robin Miller

Improvements in organisational culture are a common recommendation of enquiries into system failure and an aspiration of policy. The purpose of this paper is to explore an…

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Abstract

Purpose

Improvements in organisational culture are a common recommendation of enquiries into system failure and an aspiration of policy. The purpose of this paper is to explore an initiative to change culture in a low-secure service through the introduction of a self-advocacy group.

Design/methodology/approach

An independent evaluation was carried out by a university research team. A theory-based methodology was deployed with qualitative data gathered through observations, interviews and focus groups.

Findings

Culture change was reported by senior managers and clinicians in relation to the transparency of the service, decision making regarding resources, and engagement of patients in redesign. Self-advocacy group members reported a different relationship with senior management which in turn enabled greater influence in the organisation. Achieving these impacts relied on independent and skilled external facilitation, support from senior managers, and a calm and democratic atmosphere in the meetings. Ward staff were kept at an arms-length from the group and were less certain that it had made any difference to the way in which the ward operated.

Research limitations/implications

The research was only based in one organisation and the impacts of the initiative may vary with a different local context. Research in a wider sample of organisations and culture change initiatives will provide greater insights.

Practical implications

Self-advocacy groups can lead to organisation culture change alongside benefits for individual group members but require funding, external and independent facilitation, and organisational endorsement and support.

Originality/value

This paper adds to the limited literature regarding culture change in secure services and services for people with a learning disability in general and also to the understanding of the impact of self-advocacy groups.

Details

Tizard Learning Disability Review, vol. 20 no. 2
Type: Research Article
ISSN: 1359-5474

Keywords

Book part
Publication date: 12 October 2011

Eva Kahana, Boaz Kahana, Loren Lovegreen, Jeffrey Kahana, Jane Brown and Diana Kulle

This chapter discusses challenges faced by older adult health-care consumers in obtaining access to responsive care from physicians relevant to a broad spectrum of health issues…

Abstract

This chapter discusses challenges faced by older adult health-care consumers in obtaining access to responsive care from physicians relevant to a broad spectrum of health issues ranging from prevention to chronic illness and end-of-life care. Based on our prior research with community-dwelling elders (E. Kahana & B. Kahana, 2003, 2010), we propose a conceptual model of consumer self-advocacy for better access to effective health care in late life. We argue that older adults who are well informed and confident health-care partners and who involve their physicians in active dialogue will experience better care, and will be more satisfied with their health care. We present findings from our studies of cancer prevention and from our research focused on end-of-life care relevant to patient self-advocacy. We also discuss the role of educational interventions and of patient empowerment in facilitating greater access to responsive health communication and health care, particularly among elders who are disadvantaged and who have low health literacy.

Details

Access to Care and Factors that Impact Access, Patients as Partners in Care and Changing Roles of Health Providers
Type: Book
ISBN: 978-0-85724-716-2

Keywords

Book part
Publication date: 23 June 2020

Danny Wade and Muffy Walter

While protests are important for communal and “in the moment” communication, we rely on writing when we want to think more deeply and express concerns and issues in our lives and…

Abstract

While protests are important for communal and “in the moment” communication, we rely on writing when we want to think more deeply and express concerns and issues in our lives and the lives of others. Writing teachers have a duty to instill in students the impact writing can have on influencing society and its issues. In this chapter, the authors argue for and demonstrate how active citizenship can be encouraged and taught through writing. Inspired by one of the author’s negative police interactions, the authors were compelled to push beyond the protest and begin instructing students in active citizenship through the rhetorical practice of writing. Authors were curious to know how a unit on advocacy writing would influence students’ understandings of using writing to solve social problems. This led to the research question examining how viable an advocacy unit for a first-year writing class is with influencing students’ perceptions of using their voices to advocate for self and for others. To study this question the authors conducted a qualitative classroom inquiry experiment where they collected a variety of data. They examined pre- and post-reflections on advocacy/active citizenship, self-advocacy writing samples, and community advocacy writing samples. Through analysis of these artifacts, this chapter describes how the sequence of writing assignments affected students’ perceptions of themselves as active citizens and the power they have to advocate for change through writing.

Details

Civil Society and Social Responsibility in Higher Education: International Perspectives on Curriculum and Teaching Development
Type: Book
ISBN: 978-1-83909-464-4

Keywords

Book part
Publication date: 9 November 2020

Nicki Pombier

Purpose: This chapter proposes narrative allyship across ability as a practice in which nondisabled researchers work with disabled nonresearchers to co-construct a process that…

Abstract

Purpose: This chapter proposes narrative allyship across ability as a practice in which nondisabled researchers work with disabled nonresearchers to co-construct a process that centers and acts on the knowledge contained in and expressed by the lived experience of the disabled nonresearchers. This chapter situates narrative allyship across ability in the landscape of other participatory research practices, with a particular focus on oral history as a social justice praxis.

Approach: In order to explore the potential of this practice, the author outlines and reflects on both the methodology of her oral history graduate thesis work, a narrative project with self-advocates with Down syndrome, and includes and analyzes reflections about narrative allyship from a self-advocate with Down syndrome.

Findings: The author proposes three guiding principles for research as narrative allyship across ability, namely that such research further the interests of narrators as the narrators define them, optimize the autonomy of narrators, and tell stories with, instead of about, narrators.

Implications: This chapter suggests the promise of research praxis as a form of allyship: redressing inequality by addressing power, acknowledging expertise in subjugated knowledges, and connecting research practices to desires for social change or political outcomes. The author models methods by which others might include in their research narrative work across ability and demonstrates the particular value of knowledge produced when researchers attend to the lived expertise of those with disabilities. The practice of narrative allyship across ability has the potential to bring a wide range of experiences and modes of expression into the domains of research, history, policy, and culture that would otherwise exclude them.

Book part
Publication date: 28 February 2022

Christine L. Nittrouer, Evan E. Dean and Karrie A. Shogren

Autism Spectrum Disorder (ASD) is the fastest-growing disability in the US; despite years of federal policy aimed at enhancing employment outcomes for this population, these…

Abstract

Autism Spectrum Disorder (ASD) is the fastest-growing disability in the US; despite years of federal policy aimed at enhancing employment outcomes for this population, these outcomes remain limited. Little is known about the allyship strategies used to support job seekers with ASD to communicate with potential employers. The current study assesses self-advocates with ASD and supporters of people with ASD (e.g., family members, caregivers, employment specialists, vocational rehabilitation professionals) about the advocacy strategies they have implemented during the hiring process to enhance communication with employers. Study participants rated the effectiveness of the strategies that others may use, as well as the strategies they have used when seeking employment for an open position. Finally, a variety of psychological variables (e.g., self-determination, self-advocacy, global self-esteem, mentorship, incivility) were measured that are suspected to influence the use of these strategies in seeking employment. Findings inform effective support and advocacy strategies as well as ways that varying psychological variables predict the use of these strategies, informing personalization of interventions and supports for self-advocates and allies.

Details

Generation A
Type: Book
ISBN: 978-1-80262-263-8

Keywords

Book part
Publication date: 9 November 2020

Helen Rottier and Morton Ann Gernsbacher

Purpose: Due to the developmental nature of autism, which is often diagnosed in preschool or elementary school-aged children, non-autistic parents of autistic children typically…

Abstract

Purpose: Due to the developmental nature of autism, which is often diagnosed in preschool or elementary school-aged children, non-autistic parents of autistic children typically play a prominent role in autism advocacy. However, as autistic children become adults and adult diagnoses of autism continue to rise, autistic adults have played a more prominent role in advocacy. The purpose of this chapter is to explore the histories of adult and non-autistic parent advocacy in the United States and to examine the points of divergence and convergence.

Approach: Because of their different perspectives and experiences, advocacy by autistic adults and non-autistic parents can have distinctive goals and conflicting priorities. Therefore, the approach we take in the current chapter is a collaboration between an autistic adult and a non-autistic parent, both of whom are research scholars.

Findings: The authors explore the divergence of goals and discourse between autistic self-advocates and non-autistic parent advocates and offer three principles for building future alliances to bridge the divide between autistic adults and non-autistic parents.

Implications: The chapter ends with optimism that US national priorities can bridge previous gulfs, creating space for autistic adult and non-autistic parent advocates to work together in establishing policies and practices that improve life for autistic people and their families and communities.

Details

Disability Alliances and Allies
Type: Book
ISBN: 978-1-83909-322-7

Keywords

1 – 10 of 551