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We compare the deinstitutionalization of psychiatric patients and the developmentally disabled in the United States and demonstrate that there were two path-dependent processes with significant qualitative and quantitative differences, ultimately leading to better outcomes for developmentally disabled individuals.

Using secondary literature, we construct a sustained comparison of the two processes in terms of outcomes, timing, tempo, extent, funding, demographic composition, and investment in community services. We then reconstruct the strategies of de-stigmatization and framings of moral worth deployed in the two cases, analyzing their effects on deinstitutionalization in terms of conceptions of risk, rights, and care.

Deinstitutionalization began later for developmentally disabled individuals than for psychiatric patients, and was a more gradual, protracted process. It was not driven by fiscal conservatism, discharges, and the trans-institutionalization of the senile aged, as was deinstitutionalization for psychiatric patients, but primarily by the prevention of institutionalization of young children, and increased investment in infrastructure. Consequently, the deinstitutionalization of the developmentally disabled was far more thorough and successful. The process was shaped by the framing of the developmentally disabled as “forever children” by parents’ organizations that demanded a balance between autonomy, protection, and the provision of care. In contrast, the deinstitutionalization of psychiatric patients was shaped by their framing as autonomous citizens temporarily suffering from “mental health problems” that could be prevented, treated, and cured. This frame foregrounded the right to choose (and also refuse) treatment, while undervaluing the provision of care.

Charles Darwin's correspondence with Dr. John Down indicates that both men thought of people with mental retardation as being akin to humanity's evolutionary predecessors. Recent attempts to teach people with mental retardation to use the computer languages taught to apes show that this conceptualization of mental retardation has remained an unspoken and perhaps unformulated element in public and professional attitudes to people with disabilities ever since. Refuting this conceptualization points the way to a more productive approach to the conditions now classified as ‘mental retardation’.

This chapter traces the history of intellectual disabilities by exploring significant historical periods and personalities who impacted the disability field and specifically the area of intellectual disability. Like other documented histories, the purpose of this chapter is to instruct and inform readers about the historical underpinnings of the labels, practices, and programs related to intellectual disability that are in effect today. While this chapter is not intended to be prescriptive in how the information presented here is to be interpreted, we are acutely aware that historical accounts are often interpreted based upon contemporary ideologies, knowledge, and practices. As such, as a historical account, this chapter is no exception. Current belief and practices about intellectual disabilities indeed influence the choices that, we as the chapter authors, made about the relative importance of the events that we select to highlight in this chapter. Nonetheless, this account reflects the events and personalities who, in our estimation, transformed and/or advanced the field of intellectual disability. We open with a brief prologue of the representations of the intellectual disability in popular culture and its potential impact on perceptions of persons with intellectual disability.

Structural Equating Modeling (SEM) is a formal model for representing dependency relations between variables of psychological events and may be used for verifying the structural organization of a theoretical model. “Rules of thumb” for the use of SEM are presented regarding each step of its application: specification of the structural model, measurement of the psychological event, and estimation of the adequacy of the model in representing the event. The investigation of the factorial structure of Greenspan's model of personal competence is presented as an example of SEM application with participants with disabilities.

We hold these truths to be self-evident, that all men are created equal, that they are endowed by their Creator with certain unalienable Rights, that among these are Life, Liberty and the pursuit of Happiness. (Declaration of Independence, 1776)

Recidivism is often used to measure the success of the criminal justice initiatives. We explore alternate measures of success that were identified for special offenders through the development of program theory. Using content analysis of 50 closed files from the Special Offenders Services program in Lancaster County, PA, we found that most offenders completed the program without re-offending, maintained their medication, participated in counseling, fulfilled their court cost obligations, and had few housing transitions. However, there were differences between parolees and probationers in terms of their outcomes. We recommend that special offender programs use uniform data-recording procedures.

Recently, the interaction of mass education and the education of people with disabilities has been widely discussed in Russia. This is positive aspect because for a long time these systems were isolated from the other. There are a lot of reasons for such isolation including the political processes in Russia, the peculiarities of the educational system, and the education and training of general and special education staff.

Lately, some positive tendencies in the development of special education have developed; however, it still needs to be accelerated. For example, recently, a series of legal documents defining the fundamental rights of people with disabilities have occurred as well as the adoption of a state regulatory policy in relation to them. The new law on education, which clearly defines the concepts that had not been fixed in any normative act earlier, has come into force and has improved the opportunities for people with disabilities not only to provide secondary education but also to expand the opportunities for vocational education for them. However, there is still a lot of work to be done.

This chapter will present the system of special education in Russia as it has been shaped throughout the years and will describe the prospects for continued development and existing problems. It should be noted that the Russia’s disability system involves persons with physical and mental impairments for which it has been difficult or impossible to provide education in general education classes.

Twelve percent of families in the United States have a child with a disability, yet little is known about the long-term consequences of growing up with a disabled sibling. This study builds on previous research regarding disability effects on families and offers an additional view on the linked lives of families and, in particular, siblings. Using secondary data from the National Longitudinal Survey of Youth 1979 Children and Young Adults, this study examines the odds of college completion among young adults with a disabled sibling during childhood. Specifically, I examine the gender differences among those who had a sibling with a disability. Women are more than 35% less likely to complete college if they had a disabled sibling during childhood; there is no significant difference by sibling disability status for boys. To understand whether children in low-resourced families are particularly penalized by having a disabled sibling, I examine whether various family resources attenuate the low graduation odds among those who had a disabled sibling. I find that having stably married parents during childhood largely eliminates the college completion gap between those with and without a disabled sibling. However, increases in mothers' education or family income do not attenuate the college completion gap. By identifying this gender disadvantage in college completion, this study shows that disabilities have consequences not just for disabled individuals but for their siblings as well, shining a light on a hidden cost of disability on families.

As sociologists we all try to make a contribution to our field. Having completed our comprehensives and dissertations we have read in depth in several areas, have focused on an area that interests us, and have learned the research process whether it uses quantitative or qualitative methodology. We all make our contributions available to the field, but occasionally one among us makes a startling discovery, has an unusual idea or a way to approach a problem, starts examining a new problem at just the right moment, or has an insight into a specific conceptual problem with unusual alacrity. A few among us combine all that skill and happenstance and lead the way into new sociological insights, new areas of research and provide a notable foundation or advancement to an area of knowledge. Saad Nagi is one of those contributors with vision, insight, and skill to see ahead of his time. This paper attempts to bring together in one place his major contributions to the disability knowledge base in sociology.

The approach used in this paper is an in depth review of all of Nagi’s published works in the area of disability. The published literature is grouped into the five areas in which Nagi made major contributions, including major research of the Social Security Disability Insurance process; development of a framework for the disability process; epidemiological definitions and research; development of a coherent set of disability measures; and an examination of the social problem, policy, and program process as developed and practiced in this country.

Nagi made a large and significant contribution in all the areas listed above and much of the measurement, and process examination is still relevant and useful in current research. His framework is still the basis for the very newest models of disability which dominate disability research today.

Researchers need to go back to find Nagi books and articles written in the 60s, 70s, and 80s to ground their work in the originals rather than to take the interpretations of others on this material. The ICF and the Social Model did not originate in Europe alone, but much of the work began in the states in the early 60s with the work of Nagi, Haber, and others and should not be overlooked or ignored.

Minamata disease was first officially recognized in May 1956. Its earliest victims were small children. Environmental contamination most rapidly and seriously affected the physiologically weak among the residents. However, the outbreak of the disease in humans was preceded by abnormalities in the natural environment such as massive death of fish and shellfish, and the abnormal behavior and death of cats. It used to be considered that poisoning was caused by direct exposure to a toxic substance, and that toxic substances did not pass the placenta. Minamata disease is an indirect poisoning by methyl mercury through the food chain as a result of environmental contamination, and is the first known disease to cause abnomalities in the fetus due to a toxic agent passing through the placenta. Minamata disease, therefore, had implications in various fields. Namely it also stirred up legal, ethical, and eugenic arguments concerning fetal protection. This report reviews the course of Minamata disease, and evaluates its impacts. “Minamata Studies” has three intellectual and scientific missions to change the social systems that caused the disease; to pursue environmental justice; and to explore the possibility of an environment that permits coexistence not only of all humans, but of all living things.