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This is an important time to be taking stock of mental health service user/survivor campaigning and involvement. Big changes are taking place in social care. These will also impact on developments taking place in mental health services, with the plan to trial personal budgets in the National Health Services announced in Lord Darzi's report in July 2008. This article details the past, present and future of the survivor movement from Peter Beresford's personal point of view.

The paper's purpose is to reopen a debate around the potential impact of narrow conceptualisations of inclusion, or participation, of service users in current mental health policy development and implementation.

The approach here is a conceptual analysis of the continuity of “‘New Labour’ thinking” and its connection to Putnam on social capital and citizenship, whilst also offering counter critiques drawing on Bourdieu, Rose, and Arnstein.

The findings show the potential for disempowerment and argue for alternative service user action, either contracting on “their own rules of engagement” or specifically taking up an oppositional stance to disempowering forms of involvement. The authors also draw attention to the influence of differing English and Scottish policy drivers which appear to offer potentially different forms of engagement.

The paper offers a fresh analysis that particularly points to the potential value of service user groups considering alternative forms of involvement, rather than those prescribed by “Third Way” or “Big Society” thinking.

The purpose of this paper is to describe the conceptual basis and development of Prosper: an emerging and evolving self-directed network and movement for people with lived experience of mental health problems in South West London.

The conceptual principles from which Prosper emerged – co-production, recovery and social movement approaches – are outlined. The ways in which these ideas were translated into action, the guiding principles and operation of Prosper are then described.

An evolving self-directed network and movement has been developed that comprises around 150 “members” and a wider network of 20 service user groups across South West London. As well as open forums, collective actions fall under the themes of “create” (peer support, outreach, campaigns, training) and “collaborate” (partnership working with user-led organisations and a Recovery College, peer support networks, supporting the development of personal health budgets and local commissioning, and consultancy). This network has initially been funded by South West London and St George's Mental Health Trust with a view to it becoming an independent entity.

The innovative and evolving social network and movement for people with lived experience of mental health problems that is continuously influenced and changed by the skills, ideas and energy of its growing and developing membership could act as a useful model for others to follow.

The purpose of this paper is to explore how those engaged in service user involvement (SUI) initiatives perceive involvement and recovery; whether involvement is related to their recovery process and, if so, how.

An exploratory qualitative method, social constructionist grounded theory, was adopted throughout the research process. Nine semi-structured interviews were undertaken with participants who self-defined as having current or previous mental health problems and who were engaged in SUI initiatives.

Most participants identified explicit links between their own experiences of SUI and recovery. These links represented a connection between the characteristics they perceived to be inherent to involvement and their personal definitions of recovery. In contrast, experiences of consultation and involvement as patient service users was limited and identified as an area for improvement. The core of the tentative grounded theory constructed suggests that individuals found in involvement elements which were concordant with and supported their own definitions of recovery and which were not apparent in their experiences as patients.

The small sample and narrow constituency of participants limit the nature of the claims made by the study.

This study highlights the value of involvement in promoting recovery and indicates the merit of promoting meaningful involvement across the spectrum of the service user experience.

This study offers a unique contribution to the current literature, highlighting the links made between involvement and personal recovery.

The purpose of this paper is to examine service-users’ experiences of mentoring trainee clinical psychologists as part of an involvement initiative on a doctoral training course.

Seven service-users were paired with trainee clinical psychologists. Pairs met for one hour monthly over six months. Meetings were unstructured, lacked a formal agenda and were not evaluated academically. All seven mentors were interviewed. They were asked about positive and negative experiences, as well as about the support provided. Transcripts were subject to thematic analysis and themes were reviewed by mentors in a follow-up meeting.

Overall, the results demonstrate that service-users can be involved in training in a way that they find meaningful and contribute to their recovery. Seven themes were identified: giving hope and optimism; making a difference; personal and professional development; the process; practicalities/logistics; support (positives); and support (areas for improvement).

The importance of designing involvement initiatives in a way which implicitly supports service-user values was highlighted. Recommendations for designing effective support structures are given. The authors were also involved in the scheme which could have introduced bias.

The research exploring service-users’ experiences of involvement in training health professionals is limited. This was the first study to explore in depth service-users’ perspectives of involvement in a scheme such as the mentoring scheme. If initiatives are to seriously embrace the values of the service-user movement then seeking service-users’ perspectives is vital.

The purpose of this paper is to outline what peer support is, covering its history, variations and benefits, then goes on to discuss what the challenges have been to authenticity and what the future holds for peer support.

The authors argue for the necessity of service user leadership in peer support based on both the Service User Involvement Directorate’s (SUID’s) experience and UK-wide learning.

Peer support brings wellbeing and confidence benefits both to the supporter and the supported. However, the lack of understanding of what peer support is, the current climate of austerity and over-professionalisation can threaten the transformational power of genuine peer support.

Peer support is always evolving, and there are areas like the criminal justice service and secure services where more work needs to be done.

Commissioners/funders of mental health services should recognise the value of peer support and its potential for better wellbeing outcomes, while understanding the necessity of service user leadership to maximise its beneficial potential.

The paper looks at peer support at the point in time a decade after the formation of the SUID at Together and four years since the UK mental health strategy No Health Without Mental Health (Department of Health, 2011) and explores the challenges faced at a time when the value of peer support is generally accepted in legislation.

This paper aims to detail the work of Nasa Begum in the disabled people's movement in the UK.

The paper provides information on Nasa's background and her work as a social worker, researcher and activist in the disability movement.

Nasa was a black disabled woman who used mental health services. This paper focuses particularly on how she brought the perspectives of black disabled people to the disabled people's movement and the health and social care field.

The paper demonstrates that Nasa has left a clear legacy of principles that show how things can and should be done when policy makers and service providers want to work in an inclusive way.

The purpose of this paper is to provide a social construction of remission in relation to schizophrenia by the people affected most. The qualitative perspective utilised is a contrast to the majority of papers around, which have been quantitative when addressing the concept of remission for people with a diagnosis of schizophrenia. This paper acknowledges and demonstrates evidence of listening to the stakeholder groups affected by the issues associated with remission and recovery, and delivers clarity around the phenomena of remission in relation to recovery.

A constructivist grounded theory approach was employed, exploring participants’ interpretation of the concept of remission in schizophrenia. A purposive sample, of nine professionals, ten service users and seven carers, was recruited from two community mental health teams in the UK. Semi-structured interviews were employed to yield the data and all interview transcripts were analysed utilising “qualitative codes” thereby defining what is seen in the data. Diagramming and concept mapping was employed. Theoretical sensitivity was applied to demonstrate remission in abstract terms and to illustrate the openness, transparency and intention of the study.

The findings resulted in a conceptual map of the themes generated from the data. From this map four possible trajectories were developed, each highlighting a route which could be taken and the issues faced along the way. Positive and negative aspects of the trajectories offer discussion points for service users and practitioners alike to consider in their professional relationship. In addition a representation of the current interplay between recovery and remission is highlighted to offer clarity in relation to present service provision.

The perspective and opinion from practitioners in Primary Care services was not proposed or included within this study. To gain an improved and realistic insight into this perspective a range of practitioners from primary care could provide valuable data for any future study as this would prove to be a valuable enhancement. This study offered a broad overview of professional groups with the ability to discuss mental health services, although it did not allow for a concentration from specific professional groups and therefore they were not able to fully represent their professional group.

This paper has illuminated the area of remission for people with schizophrenia and will therefore have practical implications in respect of on-going service development. In particular the interface between primary and secondary services which have struggled to employ consistent terminology serving only to confuse service users and service providers alike. The trajectories illustrated in this study offer clarity and understanding and direction for improved practice to facilitate recovery for people with a diagnosis of schizophrenia. Shared understanding of concepts between service users and providers could be a large move in a positive direction.

The movement of people formerly diagnosed with schizophrenia from secondary mental health services back to primary care may have huge social implications. Resistance, stigma and ignorance play a large part in services “having to” retain people within secondary mental health services. Misunderstandings around diagnosis, and terms such as remission and recovery fuel such confusion resulting in a risk averse position for most. This study clarifies some of the issues in relation to the transition back to society and citizenship for people and offers scope for further research of a qualitative nature too.

Previous studies around the concept of remission for people with a diagnosis of schizophrenia have centred on medication efficacy, utilising remission criteria to determine changes in symptomolotolgy. These quantitative papers have not addressed service users, carers or practitioners in healthcare in relation to their understanding of the term remission, in relation to recovery; or whether they feel it would be of use in clinical practice. This study addressed those issues gaining valuable in-depth data from participants, deriving the social construction of remission and the impact it may have in clinical practice in a non-pathologising perspective.

This paper aims to conceptualise the residential and psychiatric hospital as a space where criminality and social harms can emerge. Because of recent media scandals over the past 10 years concerning privately-owned hospitals, this study examines the lived experiences of service users/survivors, family members and practitioners to examine historic and contemporary encounters of distress and violence in hospital settings.

The study consists of 16 biographical accounts exploring issues of dehumanising and harmful practices, such as practices of restraint and rituals of coercive violence. A biographical methodology has been used to analyse the life stories of service users/survivors (n = 9), family members (n = 3) and professional health-care employees (n = 4). Service users/survivors in this study have experienced over 40 years of short-term and long-term periods of hospitalisation.

The study discovered that institutional forms of violence had changed after the deinstitutionalisation of care. Practitioners recalled comprehensive experiences of violence within historic mental hospitals, although violence that may be considered criminal appeared to disappear from hospitals after the Mental Health Act (1983). These reports of criminal violence and coercive abuse appeared to be replaced with dehumanising and harmful procedures, such as practices of restraint.

The data findings offer a unique interpretation, both historical and contemporary, of dehumanising psychiatric rituals experienced by service users/survivors, which are relevant to criminology and MAD studies. The study concludes by challenging oppressive psychiatric “harms” to promote social justice for service users/survivors currently being “treated” within the contemporary psychiatric system. The study intends to conceptualise residential and psychiatric hospitals as a space where criminality and social harms can emerge. The three aims of the study examined risk factors concerning criminality and social harms, oppressive and harmful practices within hospitals and evidence that violence occurs within these institutionalised settings. The study discovered that institutional forms of violence had changed after the deinstitutionalisation of care. These reports of violence include dehumanising attitudes, practices of restraint and coercive abuse.