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Book part
Publication date: 1 October 2020

Tim Gorichanaz

The self should not be understood atomistically; indeed, the very concept of the self is only necessary in social contexts. There is a link, then, between self and world. In my…

Abstract

The self should not be understood atomistically; indeed, the very concept of the self is only necessary in social contexts. There is a link, then, between self and world. In my view, this can be conceptualized through Luciano Floridi's concept of the ontic trust. This concept was named after the legal concept of the trust, in which one party (the trustor) settles some property on a second party (the trustee) for the benefit of a third party (the beneficiary). The ontic trust is entered unwillingly and inescapably, but it is not coercive; rather, it constitutes a caring bond, an invitation to respect and appreciate others (including other people and all organisms and things). The concept has seen some discussion, but no one has yet commented on the role of the self in the ontic trust. Selves are clusters of experience – we are all little corners of the universe. As participants in the ontic trust, we can see that we must take care of ourselves because that is tantamount to taking care of the universe. Thus, self-care is an important ethical directive in the information society. This is not a solipsistic or egotistical claim; rather, it is the recognition that without a good self, good work for others is not possible. It is the recognition that all beings are connected, but that certain actions must be directed by agents toward themselves for the subsequent betterment of all.

Details

Information Experience in Theory and Design
Type: Book
ISBN: 978-1-83909-368-5

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Book part
Publication date: 31 October 2014

Alexander I. Stingl

An inquiry into the constitution of the experience of patienthood. It understands “becoming a patient” as a production of a subjectivity, in other words as a process of…

Abstract

Purpose

An inquiry into the constitution of the experience of patienthood. It understands “becoming a patient” as a production of a subjectivity, in other words as a process of individuation and milieu that occurs through an ontology of production. This ontology of production can, of course, also be understood as a political ontology. Therefore, this is, first of all, an inquiry into a mode of production, and, secondly, an inquiry into its relation to the issue of social justice – because of effects of digital divisions. In these terms, it also reflects on how expert discourses, such as in medical sociology and science studies (STS), can (and do) articulate their problems.

Approach

An integrative mode of discourse analysis, strongly related to discursive institutionalism, called semantic agency theory: it considers those arrangements (institutions, informal organizations, networks, collectivities, etc.) and assemblages (intellectual equipment, vernacular epistemologies, etc.) that are constitutive of how the issue of “patient experience” can be articulated form its position within an ontology of production.

Findings

The aim not being the production of a finite result, what is needed is a shift in how “the construction of patient experience” is produced by expert discourses. While the inquiry is not primarily an empirical study and is also limited to “Western societies,” it emphasizes that there is a relation between political ontologies (including the issues of social justice) and the subjectivities that shape the experiences of people in contemporary health care systems, and, finally, that this relation is troubled by the effects of the digital divide(s).

Originality

A proposal “to interrogate and trouble” some innovative extensions and revisions – even though it will not be able to speculate about matters of degree – to contemporary theories of biomedicalization, patienthood, and managed care.

Details

Mediations of Social Life in the 21st Century
Type: Book
ISBN: 978-1-78441-222-7

Keywords

Book part
Publication date: 6 December 2021

Alessandro De Cesaris

The debate concerning the Quantified-Self Movement (QS) has been extremely polarised. As Tamar Sharon has pointed out, each aspect of the lifestyle promoted by Gary Wolf and Kevin…

Abstract

The debate concerning the Quantified-Self Movement (QS) has been extremely polarised. As Tamar Sharon has pointed out, each aspect of the lifestyle promoted by Gary Wolf and Kevin Kelly has provoked opposite reactions, generating a debate that revolves around some basic conceptual dichotomies: empowerment versus surveillance, self-awareness versus reductionism, and personalised healthcare versus disintegration of public assistance (Sharon, 2017). The aim of this chapter is to provide a critique of QS, namely an assessment of its limits and its (technological and social) conditions of possibility. In particular, the author’s analysis will focus on the relationship between technology and subjectivity, and its main theoretical framework will be Michel Foucault’s research on the notion of ‘care for the self’ (Foucault, 1986, 2005). Quantification is an essential and unescapable aspect of our present technological environment. The devices that make our onlife (Floridi, 2014) possible are connected with a complex technological system made of GPSs, satellites, computers, and networks. Health is no longer managed through a distinct set of practices within the limits of a well-defined space (the hospital or the ambulatory), but it rather becomes a dataset integrated into a system where all aspects of life (health, law, leisure, work, social relations) are treated and managed simultaneously. This technological condition implies a new form of cognitive and practical delegation (Ippolita, 2016; Morozov, 2013), which makes the very notion of ‘self-tracking’ at least problematic. Individuals do not track themselves anymore: on the contrary, they are tracked by prosthetic extensions of their own bodies. This, however, does not mean that they do nothing. Our digital devices require a specific set of practices, a determinate way of life. The author will argue that these practices are the product of design, understood as a specific way of conceiving and organising the interaction between subject and technical object (Flusser, 1999). Through our technological environment, design reshapes the social and political function of bodies, their interaction and the set of practices connected to them (Bratton, 2015; Dyer, 2016; Vial, 2014). Automated quantification is an aspect of our designed user experience. As such, this chapter discusses design as a key element to understand the role of quantification in our digital milieu. It analyses the QS movement as a specific way of responding to our new technological condition. The main research question will be the following: is QS to be regarded as a simple acceptance of a new form of delegated – and thus alienated – subjectivity, or is it a kind of practice that allows the subject to overcome his passivity, and to take part in the process through which quantification is designed and managed? Is it possible to understand QS as a technology of the self (Foucault, 1988, 2005)?

Details

The Quantification of Bodies in Health: Multidisciplinary Perspectives
Type: Book
ISBN: 978-1-80071-883-8

Keywords

Book part
Publication date: 12 July 2022

Antonio Pele

This chapter shows that Kant’s notion of human dignity can be understood as a novel ‘care of the self’ and an ‘art of not being governed’. Drawing on a Foucauldian approach, it…

Abstract

This chapter shows that Kant’s notion of human dignity can be understood as a novel ‘care of the self’ and an ‘art of not being governed’. Drawing on a Foucauldian approach, it demonstrates that Kant intends to shape an ethical subject that strives for freedom and self-mastery. It also argues Kant’s idea of dignity embodies a political and spiritual form of resistance against dominant relations of power and subjectivities. Thanks to this novel perspective, this chapter also offers novel insights on the political force of human dignity. With Kant, this notion becomes a ‘government of the self by oneself’.

Book part
Publication date: 1 January 2008

Ann Dill and Joanne Coury

Purpose – This chapter assesses the role of self-help groups within the emerging civil society in two transitional economies, Croatia and Slovenia, focusing on the impact of…

Abstract

Purpose – This chapter assesses the role of self-help groups within the emerging civil society in two transitional economies, Croatia and Slovenia, focusing on the impact of relationships with health or social care professionals and the state.

Methodology – Methods include participant observation, interviews, and document analysis of 31 groups studied intermittently from 2001 to 2007.

Findings – Self-help groups range from those three decades old to those dealing with “new social problems.” Groups, and the third sector generally, remain essentially dependent on the state. Few exist separately from formal service organizations. Those closely linked with medical institutions are challenged by state retrenchment and privatization. Others contend with funding instability, and Western models of non-profit development are expanding. Relationships with professionals are neither subservient nor independent; instead, groups act as corollaries and educators to the professional realm.

Implications, limitations, and value – Findings suggest more nuances in self-help groups' relations with the state and professionals than found in Western settings. This may illustrate both the potential and the limits of citizen involvement in new non-governmental sectors. It also demonstrates how relations between professionals and self-help groups depend on social and material relations well beyond the domain of systems of care. While specific findings cannot be generalized beyond the research settings, the study shows the importance of understanding such groups within social and political contexts. Contributions to civil society here included re-making public meanings, identities, and relations with professionalized systems. Further comparative assessment of self-help associations is essential to theory on the third sector in civil society.

Details

Patients, Consumers and Civil Society
Type: Book
ISBN: 978-1-84855-215-9

Book part
Publication date: 1 October 2020

Tim Gorichanaz

Some of today's most widely used technologies do not seem conducive to self-care, and consequently they do not nourish us as selves. Rather, in today's most lauded sociotechnical…

Abstract

Some of today's most widely used technologies do not seem conducive to self-care, and consequently they do not nourish us as selves. Rather, in today's most lauded sociotechnical systems, from Google search to Facebook, users' participation (free labor) is commodified and channeled into corporate profits. Users do engage in self-focused activities, such as posting selfies and status updates, but these do not have the character of self-care. This amounts to self-obsession without self-consideration. An illustration is given by comparing the early-modern artistic practice of self-portraiture with the modern-day smartphone practice of selfie-making. Self-portraiture has been shown to be conducive to self-care, whereas the selfie by and large is not. This comparison invites strategies for injecting self-care into selfie-making technology, as an entree into designing for self-care generally. These strategies include jardin secret, self-questioning, and multiplicity.

Details

Information Experience in Theory and Design
Type: Book
ISBN: 978-1-83909-368-5

Keywords

Book part
Publication date: 24 August 2005

Tadashi Saga

Care for the elderly is the most pressing problem now facing Japan. For maintaining a long and healthy life, it is important to refine the self-care of people and to create a…

Abstract

Care for the elderly is the most pressing problem now facing Japan. For maintaining a long and healthy life, it is important to refine the self-care of people and to create a well-balanced system of support involving health care, welfare, nursing care, and medical treatment. Mutual support within each local community is also indispensable for restructuring care-minding areas. Due attention should also be paid to the ethical aspects concerning care of the elderly. This chapter attempts to reflect on the brief history of the care for the elderly in Japan.

Details

Taking Life and Death Seriously - Bioethics from Japan
Type: Book
ISBN: 978-0-76231-206-1

Book part
Publication date: 6 August 2018

Gül Seçkin, Susan Hughes, Cassie Hudson, David Laljer and Dale Yeatts

Purpose: The aim of the study is to consider the use of the Internet as a potential facilitator of positive health-related perceptions. Specifically, we propose that online health

Abstract

Purpose: The aim of the study is to consider the use of the Internet as a potential facilitator of positive health-related perceptions. Specifically, we propose that online health information seeking fosters positive perceptions of health. Using path modeling, we theorized several mechanisms through which information seeking could be conducive to positive health perceptions, which we conceptualized into the following four dimensions: (1) sense of empowerment in managing health, (2) self-reported ability to take better care of health, (3) sense of improved health-related quality of life, and (4) self-reported improvement of health.

Methodology: Our sample consisted of respondents who have used the Internet as a resource for health information (n = 710), drawn from the largest national probability-based online research panel. Our comparison subsample consisted of older respondents (age ≥ 60; n = 194). We used Internet-specific measures and employed structural equation models (SEM) to estimate the direct, indirect, and total effects of health-related use of the Internet on subjective health perceptions. Based on our review of the literature, competent health communication with healthcare providers and sense of empowerment in managing personal health were modeled as mediator variables. We assessed whether the proposed mediational relationships, if significant, differed across our indicators of positive health perceptions and whether any differential associations were observed among older adults. We run parallel models for each indicator of positive health perception.

Findings: Provider-patient communication informed by the Internet resources were perceived to impart a greater sense of empowerment to manage health among our respondents, which in turn, was associated with perceived contributions to better self-reported ability to provide self-care, increased health-related quality of life, and improvement in self-reported health. The SEM results revealed a good fit with our full sample and subsample.

Research Implications: Conceptualization of the multidimensional aspects of online health information seeking with separate multi-indicator analyses of the outcome variable is important to further our understanding of how technology may impact the pathways involved in influencing health perceptions and as a result health outcomes.

Details

eHealth: Current Evidence, Promises, Perils and Future Directions
Type: Book
ISBN: 978-1-78754-322-5

Keywords

Abstract

Details

Occupational Therapy With Older People into the Twenty-First Century
Type: Book
ISBN: 978-1-83753-043-4

Book part
Publication date: 12 October 2011

Eva Kahana, Boaz Kahana, Loren Lovegreen, Jeffrey Kahana, Jane Brown and Diana Kulle

This chapter discusses challenges faced by older adult health-care consumers in obtaining access to responsive care from physicians relevant to a broad spectrum of health issues…

Abstract

This chapter discusses challenges faced by older adult health-care consumers in obtaining access to responsive care from physicians relevant to a broad spectrum of health issues ranging from prevention to chronic illness and end-of-life care. Based on our prior research with community-dwelling elders (E. Kahana & B. Kahana, 2003, 2010), we propose a conceptual model of consumer self-advocacy for better access to effective health care in late life. We argue that older adults who are well informed and confident health-care partners and who involve their physicians in active dialogue will experience better care, and will be more satisfied with their health care. We present findings from our studies of cancer prevention and from our research focused on end-of-life care relevant to patient self-advocacy. We also discuss the role of educational interventions and of patient empowerment in facilitating greater access to responsive health communication and health care, particularly among elders who are disadvantaged and who have low health literacy.

Details

Access to Care and Factors that Impact Access, Patients as Partners in Care and Changing Roles of Health Providers
Type: Book
ISBN: 978-0-85724-716-2

Keywords

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