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Book part
Publication date: 26 January 2023

Valérie Grand'Maison, Kathryn Reinders, Laura Pin, Jihan Abbas and Deborah Stienstra

In this chapter, we examine the unique and heightened negative impacts of the COVID-19 pandemic through tracing how the preexisting social conditions of exclusion and precarity in…

Abstract

Purpose

In this chapter, we examine the unique and heightened negative impacts of the COVID-19 pandemic through tracing how the preexisting social conditions of exclusion and precarity in which many disabled people live, effected access to safe, affordable, and accessible housing in Canada. We then illustrate the reverberating impacts housing choices have on how people with disabilities lived, lived well, and how they faced barriers to living well during the COVID-19 pandemic.

Methods/Approach

Using an intersectional livelihoods approach, we analyzed semi-structured interviews and focus groups with 32 diverse people with disabilities, 12 key informant semi-structured interviews, as well as academic and community literature and a social media scan of key disability advocacy organizations in Canada.

Findings

Pandemic-related policies in Canada often excluded people with disabilities, either overlooking barriers to access and safety, which exacerbated the already precarious livelihoods of people with disabilities or over-emphasized the usefulness of social adaptions such as work from home. These exclusions had more profound consequences for people with disabilities from historically marginalized groups, as they often faced increased barriers to livelihoods pre-pandemic, and disability- or care-specific policies failed to consider intersectional experiences of discrimination. People with disabilities formed communities of care to meet their needs and those of their loved ones.

Implications/Values

To achieve a responsive policy response that addresses the cascading impacts of risk and care, it is necessary for governments to engage, early and often, with people with disabilities, disability leaders and organizations in emergency planning and beyond.

Details

Disability in the Time of Pandemic
Type: Book
ISBN: 978-1-80262-140-2

Keywords

Book part
Publication date: 26 January 2023

Srishti Jaitely and Navjit Gaurav

In India, people with disabilities (PWDs) have emerged as one of the most vulnerable populations during COVID-19, particularly those living in informal settlements. Although the…

Abstract

Purpose

In India, people with disabilities (PWDs) have emerged as one of the most vulnerable populations during COVID-19, particularly those living in informal settlements. Although the government has made efforts to ensure healthcare access for all, these efforts seem inadequate considering that PWDs' needs vary greatly depending on type and degree of disability. The purpose of the study is to identify barriers in healthcare access for PWDs in Mumbai's informal settlements during COVID-19.

Methods

A qualitative approach employed multiple case study methods. Eight PWDs were selected as cases from the informal settlements of M-East Ward, Mumbai. The data was gathered using observation and interaction with the PWDs. Data were analyzed for emergent themes to explore the presence, meaning, and relationships of barriers faced by PWDs accentuated by pandemic.

Findings

Findings indicate a complex and compounded interplay of structural, administrative, psycho-social, and technological factors which created numerous challenges for PWDs to access healthcare provisions during pandemic. These factors include socioeconomic challenges, the built environment inaccessibility, limited transportation facilities, and lack of trained healthcare personnel to support PWDs.

Implications

This research adds to an understanding of the barriers faced by PWDs and provides insights for formulating contextualized policies to ensure accessible health services for PWDs when needed. Findings point out ways in which understanding the barriers would help to identify the gaps in the resource system, and to mobilize required resources in the relevant healthcare departments.

Details

Disability in the Time of Pandemic
Type: Book
ISBN: 978-1-80262-140-2

Keywords

Book part
Publication date: 26 January 2023

Jayajit Chakraborty

This chapter addresses the growing need to analyze the relationship between COVID-19 vulnerability and disability status at the national scale in the US. It presents a…

Abstract

Purpose

This chapter addresses the growing need to analyze the relationship between COVID-19 vulnerability and disability status at the national scale in the US. It presents a quantitative study that seeks to determine whether US counties more vulnerable to the COVID-19 pandemic contain significantly higher percentages of people with disabilities (PwDs), in general, and socially disadvantaged PwDs (based on their ethnicity/race, biological sex, age poverty, and employment status), in particular.

Methods/Approach

Vulnerability to COVID-19 is measured using the COVID-19 Pandemic Vulnerability Index (PVI) model developed by the National Institute of Environmental Health Sciences, which integrates multiple variables into relevant indicators that are weighted and combined to formulate a county-level PVI score. These scores are linked to a wide range of disability-related variables from the 2019 American Community Survey five-year estimates. Statistical analyses are based on multivariable generalized estimating equations that extend the generalized linear model to account for spatial clustering.

Findings

US counties more vulnerable to the COVID-19 pandemic are characterized by significantly higher percentages of PwDs, when vaccination is considered in estimating the PVI. These counties also contain significantly higher percentages of ethnic/racial minority, female, below poverty, and unemployed PwDs, in multiple timeframes of the pandemic.

Implication/Value

The findings provide important insights and new knowledge on the relationship between COVID-19 vulnerability and socially disadvantaged PwDs in the US. The county-level associations highlight the need for additional data and more detailed analysis to examine the differential impacts of this pandemic on PwDs, as well as formulate appropriate intervention strategies.

Book part
Publication date: 26 January 2023

Kim Fernandes and Tanushree Sarkar

In this chapter, we examine how the media in India constructed the lives, needs, and desires of disabled children in India during the tumultuous pandemic.

Abstract

Purpose

In this chapter, we examine how the media in India constructed the lives, needs, and desires of disabled children in India during the tumultuous pandemic.

Methods/Approach

Through critical discourse analysis, we address how children's bodies and needs have been explicitly discursively constructed as “excessive,” while implicitly drawing upon neoliberal, ableist logics of loss and productivity.

Findings

We foreground how the framing of COVID-19 as a disaster in the Indian context obscures state neglect, suggesting that inequality has been the result of the pandemic rather than the limits of state care under neoliberal ableism. Despite the recognition of gaps in the care received by disabled children, neoliberal, entrepreneurial solutions have emerged as a new, widely touted form of care during the pandemic.

Implication/Value

Through our analysis, we highlight how disabled children have been neglected by the state and constructed as burdensome and vulnerable. We argue that this occurs when disabled children's bodyminds do not conform to an ideal of the self-reliant, independent citizen under the logics of neoliberal ableism. Our work demonstrates how children with disabilities are discursively rendered absent from conceptualizations of normate citizenship, unless seen as contributing to current or future aspirations for state productivity and growth.

Details

Disability in the Time of Pandemic
Type: Book
ISBN: 978-1-80262-140-2

Keywords

Book part
Publication date: 17 December 2016

Abstract

Details

Sociology Looking at Disability: What Did We Know and When Did We Know it
Type: Book
ISBN: 978-1-78635-478-5

Book part
Publication date: 9 November 2020

Melinda Leigh Maconi

Purpose: Artists with disabilities use their bodies and minds to create art. Yet, the prevailing cultural narrative that art is “therapeutic” for people with disabilities shifts…

Abstract

Purpose: Artists with disabilities use their bodies and minds to create art. Yet, the prevailing cultural narrative that art is “therapeutic” for people with disabilities shifts attention from their creative accomplishments to their disabilities. Some ally organizations attempt to challenge the narrative that art is merely therapy for people with disabilities. However, drawing on narratives of “helping” people with disabilities attracts funding. This chapter examines how organizations navigate empowering allies while still maintaining funding.

Methods/Approach: This chapter uses narrative analysis of material accessed through a nonprofit arts-based disability ally organization's website to address two research questions: 1. How do ally organizations both draw on and resist cultural narratives of disability in order to garner public support?; and 2. How do personal narratives of disabled artists associated with ally organizations support and/or resist organizational and cultural narratives about the connection between disability and art?

Findings: The organization uses narratives to address important and sometimes conflicting goals. Personal narratives from artists with disabilities that are available through the website tell a range of stories about art and disability. The organization draws on these heterogeneous stories to position itself as an ally. By including such personal narratives on its website, the organization challenges the cultural narrative that the art produced by disabled artists is merely therapeutic.

Implication/Value: Much of the work on allyship focuses on how individuals can be allies. Examining ways in which organizations frame themselves as allies can help us to more fully understand allyship on multiple levels of social life.

Details

Disability Alliances and Allies
Type: Book
ISBN: 978-1-83909-322-7

Keywords

Content available
Book part
Publication date: 9 November 2020

Abstract

Details

Disability Alliances and Allies
Type: Book
ISBN: 978-1-83909-322-7

Content available
Book part
Publication date: 21 November 2011

Abstract

Details

Disability and Community
Type: Book
ISBN: 978-0-85724-800-8

Book part
Publication date: 21 November 2011

Liat Ben-Moshe is a postdoctoral fellow in the Department of Disability and Human Development at the University of Illinois at Chicago. Her dissertation, as part of a PhD in…

Abstract

Liat Ben-Moshe is a postdoctoral fellow in the Department of Disability and Human Development at the University of Illinois at Chicago. Her dissertation, as part of a PhD in Sociology and Disability Studies at Syracuse University, examined abolitionary demands to close down repressive institutions that house those labeled as criminals, mentally disabled, and mentally ill. Liat has written on topics such as the International Symbol of Access, inclusive pedagogy, academic repression, disability, anticapitalism and anarchism, queerness and disability, deinstitutionalization and incarceration, and the politics of abolition.

Details

Disability and Community
Type: Book
ISBN: 978-0-85724-800-8

Content available
Book part
Publication date: 27 December 2013

Abstract

Details

Disability and Intersecting Statuses
Type: Book
ISBN: 978-1-78350-157-1

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