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Article
Publication date: 27 November 2020

Steve Chapman, Michael Lillis, Sammy Lamb, Matt Clifton and Charlotte Clay

As self-advocate leaders, the authors aim to present the perspective of people with learning disabilities on “Behaviour that Challenges: A Unified Approach”. Building on firsthand…

196

Abstract

Purpose

As self-advocate leaders, the authors aim to present the perspective of people with learning disabilities on “Behaviour that Challenges: A Unified Approach”. Building on firsthand accounts which reveal compassion and cruelty in the health-care system, the authors propose ways of working, which confirm and add to the thinking in “A Unified Approach”, especially “Capable Environments”.

Design/methodology/approach

To ensure integrity, the authors engaged contributors with lived experience of admission to secure care after acting in ways that put themselves or others at risk. The authors included the perspective of people whose severe learning disabilities limit them to few or no words as best they could by interviewing their parents. The authors were supported and advised in the writing of this commentary while retaining full control throughout.

Findings

While recognising compassionate care, the authors suggest the provider’s power over a person’s life is a central reason for the care system’s vulnerability to the cruelty evident in firsthand accounts. The authors propose practical ways to offset this power. Firsthand accounts suggest the key features of capable environments are communication, valuing families and developing a valued, caring, well-trained workforce. Lived experience in workforce training and peer-support to individuals offer great potential to transform outcomes.

Originality/value

The perspectives of diverse contributors with learning disabilities bring lived experience insight to the challenges of “behaviour that challenges”. The authors aim to add value by blending lived experience viewpoints with the emotion of firsthand accounts of care. The insights of lived experience – too often a marginal consideration in health-care design – are presented here as central to care that fully achieves what people want and need.

Details

Tizard Learning Disability Review, vol. 25 no. 3
Type: Research Article
ISSN: 1359-5474

Keywords

Content available
559

Abstract

Details

Library Hi Tech News, vol. 16 no. 9/10
Type: Research Article
ISSN: 0741-9058

Abstract

Details

Pedagogies of Possibility for Negotiating Sexuality Education with Young People
Type: Book
ISBN: 978-1-78769-743-0

Content available
Book part
Publication date: 16 September 2019

Lorien Pratt

Abstract

Details

Link
Type: Book
ISBN: 978-1-78769-654-9

Article
Publication date: 1 February 1918

We can by no means join in the pæan of self‐satisfaction which is sounded in the Library Association Record for January. There it is urged that three important months have passed…

Abstract

We can by no means join in the pæan of self‐satisfaction which is sounded in the Library Association Record for January. There it is urged that three important months have passed since the Conference, and that they have been fruitful in energetic work and that the harvest is visible in the Council notes published in the same number. We have read them with sympathetic and critical care, but while we see evidence that some of the points raised at the Library Association Conference in October have been considered, we see very few results have been achieved. Questions we would ask are these:—

Details

New Library World, vol. 20 no. 8
Type: Research Article
ISSN: 0307-4803

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