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Post-diagnostic dementia care is often fragmented in the United Kingdom, with great variation in provision. Recent policies suggest moving towards better community-based care for dementia; however, little is known on how this care is delivered. This study aimed to map the post-diagnostic dementia support provided in England a decade after the introduction of a National Dementia Strategy.

A mixed-methods e-survey (open Nov 2018–Mar 2019) of dementia commissioners in England recruited through mailing lists of relevant organisations was conducted. The authors descriptively summarised quantitative data and carried out thematic analysis of open-ended survey responses.

52 completed responses were received, which covered 82 commissioning bodies, with representation from each region in England. Respondents reported great variation in the types of services provided. Information, caregiver assessments and dementia navigation were commonly reported and usually delivered by the voluntary sector or local authorities. Integrated pathways of care were seen as important to avoid overlap or gaps in service coverage. Despite an increasingly diverse population, few areas reported providing dementia health services specifically for BME populations. Over half of providers planned to change services further within five years.

There is a need for greater availability of and consistency in services in post-diagnostic dementia care across England.

Post-diagnostic dementia care remains fragmented and provided by a wide range of providers in England.

This paper aims to strengthen the process of design thinking by aligning it with netnography, specifically auto-netnography, which this paper asserts is particularly suited to the task of studying and enriching the actions of “designerly types” who seek to fashion monetisable businesses.

This paper conducts an auto-netnography with a structure divined from established design thinking theory – that of empathising, defining, ideating, prototyping and testing – to afford an understanding of how a popular health food influencer designs a successful vegan restaurant.

This paper illustrates the empathetic relationship between a long-term audience member and an entrepreneur/designer/marketer. The intimate cultural analysis reveals the nature of their symbiotic entwinement. In a way that few other methods could, the method shows how this sense of reciprocity, deepens over time.

Conducting an auto-netnography is a prolonged and difficult task. Nonetheless, by revealing the rituals, expectations, roles and routines of content creators, designers and followers, this paper illustrates exciting possibilities for the enactment and development of design thinking in the marketing field.

Designerly types such as marketers and content creators should closely study, listen to and interact with consumers by using a similarly staged process that draws equally from design thinking and auto-netnography.

Prior to this study, existing research has not previously linked design thinking with either netnographic or auto-netnographic research.

The purpose of this paper is to explore the emergence of “Roma health and wellbeing” as a focus of attention in European research and in policy and the possible detrimental consequences of action founded on a generic representation of “Roma health.”

Based on discussions with and research conducted by scholars who work directly with Roma communities across European regions from a wide range of academic disciplines it suggests how future research might inform: a more nuanced understanding of the causes of poor health and wellbeing among diverse Roma populations and; actions that may have greater potential to improve the health and wellbeing among these populations.

In summary, the authors promote three types of research: first critical analyses that unpick the implications of current and past representations of “Roma” and “Roma health.” Second, applied participatory research that meaningfully involves people from specific self-defined Roma populations to identify important issues for their health and wellbeing. Third, learning about processes that might impact on the health and wellbeing of Roma populations from research with other populations in similarly excluded situations.

The authors provide a multidisciplinary perspective to inform research that does not perpetuate further alienation and prejudice, but promotes urgent action to redress the social and health injustices experienced by diverse Roma populations across Europe.

Medical uncertainty is recognized as a critical issue in the sociology of diagnosis and medical sociology more generally, but a neglected focus of this concern is the question of patient decision making. Using a mixed methods approach that draws upon autoethnographic accounts and third-party interviews, we aim to illuminate the dilemmas of patient decision making in the face of uncertainty. How do patients and supportive caregivers go about navigating this state of affairs? What types of patient–doctor/healthcare professional relationships hinder or enhance effective patient decision making? These are the themes we explore in this study by following patients through the sequence of experiencing symptoms, seeking a diagnosis, evaluating treatment protocols, and receiving treatments. In general, three genres of culturally available narratives are revealed in the data: strategic, technoluxe, and unbearable health narratives.

Purpose: Miscarriage is commonly understood as an involuntary, grieve-able pregnancy outcome. Abortion is commonly understood as a voluntary, if stigmatized, pregnancy outcome that people do not typically grieve. This chapter examines a nexus of the involuntary and voluntary: how people who chose abortion following observation of a serious fetal health issue make sense of their experience and process associated emotions.

Design: The author draws on semi-structured interviews with cisgender women who had an observed serious fetal health issue and chose to terminate their pregnancy.

Findings: Findings highlight an initial prioritization of medical knowledge in pregnancy decision-making giving way, in the face of the inherent limits of medical knowability, to a focus on personal and familial values. Abortion represented a way to lessen the prospective suffering of their fetus, for many, and felt like an explicitly moral decision. Respondents felt relief after the abortion as well as a sense of loss. They processed their post-abortion emotions, including grief, in multiple ways, including through viewing – or intentionally not viewing – the remains, community rituals, private actions, and no formalized activity. Throughout respondents’ experiences, the stigmatization of abortion negatively affected their ability to obtain the care they desired and, for some, to emotionally process the overall experience.

Originality/Value: This chapter offers insight into the understudied experience of how people make sense of a serious fetal health issue and illustrates an additional facet of the stigmatization of abortion, namely how stigmatization may complicate people’s pregnancy decision-making process and their post-abortion processing.

The purpose of this paper is to determine the extent of online communication by festivals regarding their sustainability practices using Cultivation Theory as the framework to determine perceived value creation.

A mixed method approach was utilized to achieve data triangulation through a content analysis of websites, content analysis of social media sites as well as interviews.

Findings indicated that 64% of festivals did not communicate any sustainable practices through their websites and only 6% communicated via social media. The most common sustainability practices communicated were waste management and sustainable transportation, yet few festivals engaged in effective, consistent and sufficient marketing of initiatives to festivalgoers. Best practice festivals (having communicated 5.47 initiatives or more) were found to have been significantly more likely than non-best practice festivals to be music festivals and have been in operation longer. Best practice festivals were also more likely than non-best practice festivals to have sustainability engrained into their corporate philosophy via a communicated sustainable vision and mission. Interviews revealed that most festivals did not have a designated role responsible for all sustainable initiatives and the responsibility was often taken on by volunteers or festival organizers. Festival organizers that communicated sustainability initiatives efficiently, consistently, and sufficiently perceived these efforts to benefit the festivals value amongst festivalgoers and host communities. Propensity to communicate sustainability initiatives was found to have been impacted by awareness, categorization, timing, policy and funding.

While the findings are limited to the country of Canada and the extent of communication on websites and social media platforms as well as those festivals who participated, interviews helped to overcome these limitations as they gained an understanding of what was undertaken but not necessarily communicated.

The findings generated from this study could be used as a guide for establishing a benchmark for festivals regarding sustainable communication as well as strategies for overall corporate responsibility. Content regarding sustainability at festivals is scarce, as is information on festival communication. As a result, this paper seeks to understand the sustainable initiatives that are being communicated by festivals.

This is the first time Cultivation Theory was used within a tourism context and may be a useful tool to determine value creation. Through Cultivation Theory, festival organizers believed to have the ability to impact perceived value of the festival by implementing efficient, consistent and sufficient communication of sustainability initiatives.

Drawing on ethnographic observations of diabetes (self-)management in French-speaking Switzerland and semi-structured interviews with healthcare practitioners, people living with diabetes and their relatives, the chapter aims at shedding light on self-tracking practices of people living with diabetes. It explores the ways people with diabetes measure and learn to recognise body symptoms of hypo- and hyperglycaemia through self-quantification, and act consequently. In particular, the chapter investigates recent medical devices – continuous and flash glucose monitoring systems – that reconfigure the work of health providers and self-care practices. It shows the self-monitoring practices and the resulting self-awareness people living with diabetes develop in interaction with technology and caregivers in order to undertake embodied actions. By pointing out that new technologies have facilitated the access to personal body information and the sharing of it, self-monitoring is also questioned as a form of surveillance, opening up issues of power and control over patients’ behaviours. With regard to this, the chapter illustrates that, occasionally, people with diabetes resist ‘docility’ through micro-powers at the level of everyday life by refusing to engage in their use and by developing personal strategies or ‘tactics’.

The view that physical education (PE) positively affects students’ perception of their own body efficacy and self-esteem is not often seen as related to issues of gender equality. Nevertheless, PE classes leave many girls with a negative physical experience, of weakness, clumsiness and heaviness. Although the ways in which the beauty myth undermines girls’ self-esteem and body image are quite known, until recently researchers in the field of PE have not focused on the possibility that PE teachers also play a role in disciplining girls’ bodies and subjectivities. Consequently, studies in this area tend to marginalize the covert exclusionary mechanism potentially exerted on girls who find their bodies unsuitable for PE. This study is the first to examine PE in Israel from a gender perspective. Some PE teachers in Israel are already aware to a certain extent of their educational role in legitimizing diversity in girls’ body shapes. How then do PE teachers negotiate this awareness with regard to the dominant discourses related to girls’ bodies? To explore this question, we conducted in-depth semi-structured interviews with 15 PE teachers. The analysis revealed two key features of PE teachers’ talk about girls’ bodies: acceptance of body shape diversity, and awareness of girls’ issues about their bodies. Our findings suggest that these progressive aspects of teachers’ perspectives on girls’ bodies are negotiated against older forms of girls’ body disciplining.

Across the European Community the demand for organically produced agricultural produce of all kinds (corn, fruit, vegetables etc) continues to rise at an exponential rate and the supply of locally produced organic products, although increasing slowly, is considerably less. Consequently organic produce is imported from around the world in order to satisfy demand; the average journey from farm to consumer of organic produce is 4,000 kilometres, with associated pollution effects of transportation. At the same time the European Commission openly espouses the free market philosophy which supposedly matches supply with demand while continuing to maintain its controversial Common Agricultural Policy (CAP) which is supposedly designed to support local farmers in producing the products demanded by local consumers, with the cost being incurred by those consumers in the form of higher prices. EC policy would therefore seem designed to promote locally grown organic produce but this is not happening; instead chemically based agriculture continues to predominate. The purpose of this paper is to examine the reasons for this through a review and critique of the European regulations concerning the support of farming. In doing so we argue that there are both intended and unintended consequences of the application of CAP throughout the EC and that one of the unintended consequences is that Rachel Carson's Silent Spring is increasingly becoming the norm across Europe. In considering the causes of this we argue that one major cause is predicated in accounting and its persistent failure to adequately account for externalities.

To examine the effects of leadership style on in-role performance through feedback seeking behavior (FSB) and engagement using the job demands resource theory (JD-R).

The sample consisted of 152 employees working in a Peruvian call center. Structural equation modeling (SEM) was used to test the research hypotheses.

Transformational leadership was significantly related to in-role performance, with FSB and engagement sequentially mediating the relationship.

This study highlights the motivational processes that can lead to employee engagement and performance within a call center and identifies the contribution of feedback seeking within this environment.