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Article
Publication date: 4 April 2016

Loren Leclezio and Petrus de Vries

Tuberous Sclerosis Complex (TSC) is associated with many learning, behavioural, neurodevelopmental and psychiatric difficulties. Over 90 per cent of those with TSC will have some…

Abstract

Purpose

Tuberous Sclerosis Complex (TSC) is associated with many learning, behavioural, neurodevelopmental and psychiatric difficulties. Over 90 per cent of those with TSC will have some of these concerns, yet typically no more than 20 per cent receive support and treatment. The purpose of this paper is to provide an overview of TSC-Associated Neuropsychiatric Disorders (TAND), explore barriers to identification and management of TAND, and propose possible next steps to improve assessment and treatment of TAND.

Design/methodology/approach

The paper combines a brief review of the multiple levels of TAND with a conceptual analysis of barriers and potential facilitators to assessment and intervention for TAND.

Findings

Results suggest that the perceived uniqueness of TAND leads to treatment paralysis for most healthcare professionals, thus explaining the assessment and treatment gap seen for TAND. This may in part be due to the multi-dimensionality of TAND, and in part due to lack of access to clear, useful and evidence-based resources for TAND.

Research limitations/implications

Identification of natural TAND clusters through machine-based learning and data reduction methodologies may yield a manageable number of natural groups of TSC-related neuropsychiatric problems, for which a basic “toolkit” of evidence-based interventions could be developed.

Practical implications

Families and clinicians will benefit from a toolkit of tried and tested resources and evidence-based information to guide further investigation and management of TAND.

Originality/value

Even though individuals will have unique TAND profiles, there may be key natural TAND clusters – combinations of behaviours across multi-dimensional levels – that will simplify and improve access to further evaluation, treatment and neuroscientific research.

Article
Publication date: 4 April 2016

Helen Willacy

– The purpose of this paper is to describe the impact of having a child with tuberous sclerosis complex (TSC).

Abstract

Purpose

The purpose of this paper is to describe the impact of having a child with tuberous sclerosis complex (TSC).

Design/methodology/approach

The author explains the process her family has been through on their TSC journey.

Findings

Several themes emerge from the author’s story: a lack of awareness about relatively common conditions such as epilepsy; a dearth of accessible information provided to families; delays in identification/assessment and a lack of follow up on parents’ concerns; the wide range in the quality of advice provided from one professional/service to another; the extent to which parents have to advocate for their children and the importance of social support.

Originality/value

Few journal articles explore the impact of complex health conditions on families from their perspective and in their own words. This thought provoking viewpoint piece provides a powerful insight into the reality of having a child with TSC.

Details

Advances in Autism, vol. 2 no. 2
Type: Research Article
ISSN: 2056-3868

Keywords

Article
Publication date: 4 April 2016

Lisa Underwood

The purpose of this paper is to provide a brief, descriptive overview of Tuberous Sclerosis Complex (TSC) research with particular reference to studies on Autism Spectrum Disorder…

Abstract

Purpose

The purpose of this paper is to provide a brief, descriptive overview of Tuberous Sclerosis Complex (TSC) research with particular reference to studies on Autism Spectrum Disorder (ASD).

Design/methodology/approach

A search of electronic databases was carried out to identify English language articles on TSC. The literature was explored in more detail with a focus on neurodevelopmental disorders associated with TSC such as ASD.

Findings

The review included 3,679 references. The earliest articles identified were published in the early twentieth century. Since then research on TSC has advanced rapidly and is being carried out worldwide. Just 62 studies have focused on ASD in TSC, although the number of publications is increasing over time.

Research limitations/implications

More research on ASD in TSC is needed to benefit those affected by TSC and the broader ASD scientific community.

Practical implications

Practitioners working with children and adults with ASD should be aware of the wider health issues experienced by those with genetic conditions such as TSC. Similarly, clinicians working with those who have TSC should be aware of the high prevalence of ASD in the group and implications for the way they work with their patients.

Originality/value

This is the first paper to map and characterise the scientific literature on TSC. There remains a focus on the biomedical aspects of TSC with fewer studies on psychosocial/educational or family impacts. The review concludes with recommended research questions for the future.

Details

Advances in Autism, vol. 2 no. 2
Type: Research Article
ISSN: 2056-3868

Keywords

Book part
Publication date: 21 August 2017

Bruno Broucker, Kurt De Wit and Jef C. Verhoeven

This chapter discusses the implications of New Public Management (NPM) and of alternative theories on the higher education sector. Three clusters of alternative concepts and…

Abstract

This chapter discusses the implications of New Public Management (NPM) and of alternative theories on the higher education sector. Three clusters of alternative concepts and theories are identified, positioned in relation to NPM, and discussed. The chapter concludes that the different theoretical approaches: (1) cannot always be distinguished easily, (2) entail a risk of normativity due to the position of higher education in society, and (3) demonstrate that higher education policy and research are in need of a multi-theoretical approach that is able to put higher education back into its social, political, and economic context. By formulating research questions on the role of higher education and on the impact of former reforms, it is suggested that policy and research look further than the current concepts and theoretical approaches to build a new agenda for future.

Article
Publication date: 8 May 2009

Petrus C. van Duyne and Melvin R.J. Soudijn

The purpose of this paper is to generally express concern about the threat of crime‐money to the real estate sector and the lack of evidence coming forward from research and law…

1014

Abstract

Purpose

The purpose of this paper is to generally express concern about the threat of crime‐money to the real estate sector and the lack of evidence coming forward from research and law enforcement.

Design/methodology/approach

In addition to a review of the literature, this research project analysed the confiscation database of the Dutch prosecution office. From this base, the real estate confiscations from 2000 onwards were selected and analysed. The database management of the prosecution office proved to be extremely negligent.

Findings

The results could not substantiate the general concern that the crime‐money from the “underworld” was a real threat to the real estate market. Criminals did spend money on buying houses, sometimes big villas and a few of them had more property which was let. But this small financial criminal elite was widely spread over time and space.

Research limitations/implications

This research has to be continued on a cross‐country comparative basis, for which the first steps have been taken. In addition, the database analysis has to be complemented with an in‐depth criminal file analysis. This has started as a follow‐up study too.

Practical implications

The first practical outcome is that more must happen to lift “evidence based policy making” from its state of empty rhetoric: with the present database management there is no such a thing as “evidence base policy making”. The second practical implication is that crime‐money and laundering as a cross‐border phenomenon remains hardly understood as long data comparison are impossible due to the lack of common databases, which in addition are internationally polluted.

Originality/value

The paper is really new as there are no precedents thus far. This is regrettable, as research needs a stimulating surrounding. However, few scholars step forward while the law enforcement agencies are most reluctant to share data, even if anonymised.

Details

Journal of Money Laundering Control, vol. 12 no. 2
Type: Research Article
ISSN: 1368-5201

Keywords

Article
Publication date: 8 May 2018

Ronald F. Pol

This article aims to constructively critique the new global methodology for evaluating the effectiveness of anti-money laundering regimes against defined outcomes.

5183

Abstract

Purpose

This article aims to constructively critique the new global methodology for evaluating the effectiveness of anti-money laundering regimes against defined outcomes.

Design/methodology/approach

With surprisingly little discussion at the intersection of the money laundering and policy effectiveness and outcomes scholarship and practice, this article combines elements of these disciplines and recent peer-review evaluations, to qualitatively assess the Financial Action Task Force’s (FATF’s) anti-money laundering “effectiveness” methodology.

Findings

FATF’s “effectiveness” methodology does not yet reflect an outcome-oriented framework as it purports. Misapplication of outcome labels to outputs and activities miss an opportunity to evaluate outcomes, as the impact and effect of anti-money laundering policies.

Practical implications

If the “outcomes” of the “effectiveness” framework do not match the crime and terrorism prevention policy goals of nation states, the new “main” component for assessing the effectiveness of anti-money laundering regimes potentially detracts focus and resources from, rather than towards, intended policy objectives.

Originality/value

There is a dearth of scholarship whether the global anti-money laundering “effectiveness” framework is sufficiently robust to assess effectiveness as it purports. This article begins addressing that gap.

Details

Journal of Money Laundering Control, vol. 21 no. 2
Type: Research Article
ISSN: 1368-5201

Keywords

Article
Publication date: 16 May 2024

Nitin Garg, Neeraj Chaudhary and Priyanka Dalmia

Digital technologies have been found to have long-lasting impacts on poverty. This study has been conducted to shed light on the contributions made by digital technologies toward…

Abstract

Purpose

Digital technologies have been found to have long-lasting impacts on poverty. This study has been conducted to shed light on the contributions made by digital technologies toward poverty alleviation and also provide future research directions.

Design/methodology/approach

The authors thoroughly studied the sample of 258 publications from the Scopus database, covering the period from 1982 to June 2023. Using VOS viewer and Bibliometrix R, various graphs and networks are developed to understand publication trends, research collaborations and intellectual structures.

Findings

A significant amount of the existing literature on the impact of digital technologies on poverty alleviation demonstrates the need for more studies in this area. Lack of information and communication technology (ICT) infrastructure and access exhibits less opportunity for work, social networking and entrepreneurship, directly affecting people’s livelihoods in developing countries.

Practical implications

This study will help country planners, regulatory bodies and academicians get a deeper insight into the impact of digital technologies on poverty alleviation and also develop the future research agenda.

Originality/value

This study employs a considerable period of time, from the year 1982 to June 2023. To the best of authors’ knowledge, the current study is a pioneer in using bibliometric analysis to identify the impact of digital technologies on the alleviation of poverty. This attempt will surely be helpful to academicians, researchers and those working on identifying the impact of digital technology on poverty alleviation.

Details

Journal of Strategy and Management, vol. ahead-of-print no. ahead-of-print
Type: Research Article
ISSN: 1755-425X

Keywords

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