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Article

Janne Lahtiranta

Health care has come to a turning point. Particularly due to aging societies and economic pressure placed on health care system, health is rapidly becoming one's own…

Abstract

Purpose

Health care has come to a turning point. Particularly due to aging societies and economic pressure placed on health care system, health is rapidly becoming one's own responsibility. This fundamental paradigm shift does not only affect the way health care services that will be provided in the near future but it also places enormous health information management demands on the laypeople. The purpose of this paper is to look into this emerging phenomenon, its current challenges and available solutions.

Design/methodology/approach

In order to identify different kinds of solutions used for personal health information management (PHIM) and related challenges, a bibliographical review is conducted using five online databases. The review focuses on articles that emphasize personal nature of the health information management. The bibliographical review is also extended to some of the articles cited in the original review. To support discoveries from the bibliographical review, the results are compared to free electronic personal health records of different types.

Findings

The paper identifies some of the most current challenges in the field of PHIM and provides an outline for overcoming them. Proposed guidelines include a concept of citizen pathways (CPs) that can be used for complementing the currently available solutions from a citizen‐centric perspective.

Research limitations/implications

The paper points out near‐future development directions for the PHIM solutions in the form of identified and relevant challenges and characterized CPs. However, the forward‐looking conclusions are based on a bibliographical review and analysis of existing systems, and therefore their functionality and applicability are not tested in practice.

Originality/value

The findings of this paper can be used in shaping PHIM solutions of the near future. The described challenges can also be used to identify potential problems of the internet and new media on a larger scale in the context of health and medical informatics.

Details

Journal of Systems and Information Technology, vol. 11 no. 3
Type: Research Article
ISSN: 1328-7265

Keywords

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Article

Sujin Kim, Sue Yeon Syn and Donghee Sinn

The purpose of this paper is to empirically test whether individuals’ internal factors (prior knowledge, resources, and capability) and environmental factors (stimuli…

Abstract

Purpose

The purpose of this paper is to empirically test whether individuals’ internal factors (prior knowledge, resources, and capability) and environmental factors (stimuli, limitation) have any influence on the development of personal health information management (PHIM) literacy skills and which constructs are statistically associated with general health-related outcomes.

Design/methodology/approach

Survey responses were collected from Amazon’s Mechanical Turk (mTurk), a crowdsourcing internet service, in December 2013. A total of 578 responses were analyzed using partial-least squares structural equation modeling technique.

Findings

The model as a whole exhibited 62.8 percent of variance in health-related outcomes. The findings suggest that prior knowledge has a direct effect on health literacy (HL) skills (H3: β=0.212, p<0.001). The PHIM stimuli (H4: β=0.475, p<0.001) have a direct impact on HL skills, and they have an indirect effect on the comprehension of stimuli (H6: β=0.526, p<0.001) through the mediator of stimuli and the knowledge variable.

Research limitations/implications

One possible limitation of this study is that the study may include a highly technology literate group, as survey respondents were recruited from the online service mTurk.

Practical implications

The study poses implications for further research and practice. This research was an exploratory work for further model development so future studies should investigate deeper into real personal health record (PHR) user groups (e.g. patients and caregivers). For example, studies by White and Horvitz (2009a, b) conducted real-time user studies that the authors could apply to the authors’ future PHR studies. Since the findings cannot be generalizable to these specific groups, similar research may be conducted. Using caregiver groups of PHR users in comparison to patient groups could determine the similarities and differences of their PHIM activities and related outcomes for optimal design of self-care management.

Social implications

Further, it is suggested to conduct large scale, real-time-based studies using a PHR transaction log analysis to achieve conclusiveness and generalizability. Additionally, future studies should address not only diverse real-time user groups, but also various PHR data sources and their presentation issues.

Originality/value

This study model offers an important perspective on PHIM and its causal pathway for use not only by patient educators and healthcare providers but also information providers, personal health record (PHR) system developers, and PHR users.

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Article

Yuanyuan Feng and Denise E. Agosto

Building on theoretical foundation of personal information management (PIM) in information science, this paper seeks to understand how activity tracker users manage their…

Abstract

Purpose

Building on theoretical foundation of personal information management (PIM) in information science, this paper seeks to understand how activity tracker users manage their personal health information generated by their devices and to elucidate future activity tracking technology in support of personal health information management (PHIM). This paper aims to discuss this issue.

Design/methodology/approach

The authors conducted a web survey study with a specific group of activity tracker users – amateur runners. This survey collected both quantitative and qualitative data on participants’ engagement with activity tracking technology, their PHIM practices with the information generated by the technology and how their needs were being met by their activity tracking technology use and PHIM practices.

Findings

Amateur runners surveyed in this study exhibit long-term engagement and frequent interaction with activity tracking technology. They also engage in PHIM practices by using a range of PHIM tools and performing various PHIM activities. Furthermore, they use activity tracking technology and engage in PHIM practices to meet various health/fitness-related needs and information needs, while some of these needs such as performance needs and overarching needs are only partially met or unmet.

Originality/value

This research discusses amateur runners as power users of activity tracking technology, provides timely updates to PIM and PHIM research in light of a new type of personal health information, and generates design considerations for future activity tracking technology in support of PHIM. It also brings together previously disparate research regarding everyday life PHIM in information science, human–computer interaction and health informatics.

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Article

Enrico Maria Piras and Alberto Zanutto

Personal Health Record (PHR) systems make possible to integrate data from different sources and circulate them within the illness care and management network. The new…

Abstract

Purpose

Personal Health Record (PHR) systems make possible to integrate data from different sources and circulate them within the illness care and management network. The new arrangements prefigure a redefinition of the relations among healthcare practitioners, patients, and caregivers. The purpose of this paper is to consider the role and the meanings attributed to information when a technical artifact enables new forms of communication within the healthcare management network.

Design/methodology/approach

The authors adopted a qualitative research design, conducting a pre-post analysis on a theoretical sample of patients and of a paediatrics department. The authors selected 12 patients (six females and six males) aged between four and 20 years old.

Findings

The patients were willing to act as “stewards of their own information” (Halamka et al., 2008), but they interpreted this role in terms of restricting access to their information, rather than facilitating its dissemination. In fact, the PHR was symbolized as an instrument to support personal diabetes management but the patients want to preserve their own competence and independent management on the information regarding their “Personal” diseases.

Originality/value

This work highlights two connotation of “Personalinformation. The first is the dimension of the right to the privacy of information when it is believed that it may be used to pass judgement on the patient. The second connotation of “Personal” is the assertion by patients of their competence and autonomy in interpreting the information on the basis of personal knowledge about their diabetes.

Details

Information Technology & People, vol. 27 no. 4
Type: Research Article
ISSN: 0959-3845

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Article

Kisha Hortman Hawthorne and Lorraine Richards

This paper examines existing research on the topic of personal health records (PHRs). Areas covered include PHR/patient portal, recordkeeping, preservation planning…

Abstract

Purpose

This paper examines existing research on the topic of personal health records (PHRs). Areas covered include PHR/patient portal, recordkeeping, preservation planning, access and provider needs for future reuse of health information. Patient and physician PHR use and functionality, as well as adoption facilitators and barriers, are also reviewed.

Design/methodology/approach

The paper engages in a review of relevant literature from a variety of subject domains, including personal information management, medical informatics, medical literature and archives and records management literature.

Findings

The review finds that PHRs are extensions of electronic records. In addition, it finds a lack of literature within archives and records management that may lead to a less preservation-centric examination of the new PHR technologies that are desirable for controlling the lifecycle of these important new records-type.

Originality/value

Although the issues presented by PHRs are issues that can best be solved with the use of techniques from records management, there is no current literature related to PHRs in the records management literature, and that offered in the medical informatics literature treats the stewardship aspects of PHRs as insurmountable. This paper offers an introduction to the aspects of PHRs that could fruitfully be examined in archives and records management.

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Article

Sue Yeon Syn, Donghee Sinn and Sujin Kim

This study aims to investigate how college students' personal information behaviors were impacted by contexts, resource types and perceptions of personal information management.

Abstract

Purpose

This study aims to investigate how college students' personal information behaviors were impacted by contexts, resource types and perceptions of personal information management.

Design/methodology/approach

Using an online survey, a total of 1,194 valid responses were collected from college students. The three contexts used for this study include academic, health and personal digital history. Specific scenarios, along with sets of resource types, were provided for each context.

Findings

The findings show that college students' perceptions and contexts strongly influence their activities related to personal information, and that resource types impact their activities depending on the context in which the resource types are situated. The findings of this study provide evidence of how varying factors influence personal information behaviors at different levels. Information professionals need to design their services and programs in a way that is cognizant of the factors that influence users and the challenges that users meet with in different contexts and resource types.

Originality/value

The findings of this study contribute to personal information research by providing an understanding of how context, perceptions and resource types intertwiningly influence personal information behaviors. This study provides an insight into widely accepted patterns and perceptions of personal information behavior with particular information resource types and within specific contexts.

Details

Aslib Journal of Information Management, vol. 72 no. 6
Type: Research Article
ISSN: 2050-3806

Keywords

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Article

Anna Marie Johnson, Amber Willenborg, Christopher Heckman, Joshua Whitacre, Latisha Reynolds, Elizabeth Alison Sterner, Lindsay Harmon, Syann Lunsford and Sarah Drerup

This paper aims to present recently published resources on information literacy and library instruction through an extensive annotated bibliography of publications…

Abstract

Purpose

This paper aims to present recently published resources on information literacy and library instruction through an extensive annotated bibliography of publications covering all library types.

Design/methodology/approach

This paper annotates English-language periodical articles, monographs, dissertations and other materials on library instruction and information literacy published in 2017 in over 200 journals, magazines, books and other sources.

Findings

The paper provides a brief description for all 590 sources.

Originality/value

The information may be used by librarians and interested parties as a quick reference to literature on library instruction and information literacy.

Details

Reference Services Review, vol. 46 no. 4
Type: Research Article
ISSN: 0090-7324

Keywords

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Article

Anna Marie Johnson, Claudene Sproles, Robert Detmering and Jessica English

The purpose of this paper is to provide a selected bibliography of recent resources on library instruction and information literacy.

Abstract

Purpose

The purpose of this paper is to provide a selected bibliography of recent resources on library instruction and information literacy.

Design/methodology/approach

The paper introduces and annotates periodical articles, monographs, and audiovisual material examining library instruction and information literacy.

Findings

Information is provided about each source, and the paper discusses the characteristics of current scholarship, and describes sources that contain unique scholarly contributions and quality reproductions.

Originality/value

The information may be used by librarians and interested parties as a quick reference to literature on library instruction and information literacy.

Details

Reference Services Review, vol. 40 no. 4
Type: Research Article
ISSN: 0090-7324

Keywords

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Article

Janne Lahtiranta, Jani S. S. Koskinen, Sari Knaapi-Junnila and Markku Nurminen

Service alignment between health service provider and patient is changing. Instead of placing responsibilities into the hands of a provider, new forms of co-operation are…

Abstract

Purpose

Service alignment between health service provider and patient is changing. Instead of placing responsibilities into the hands of a provider, new forms of co-operation are emerging in which patients are regarded as a resource and a partner. In order to see this vision come to life, mechanisms that: first, support patient’s health decision making; and second, integrate matters of health into a wider ensemble that is health space; the overarching state of health-related affairs, are needed. In the following, these kinds of mechanisms are investigated and their applicability is discussed in relation to a national project. The paper aims to discuss these issues.

Design/methodology/approach

The work is exploratory and conceptual, focussing more on people than on technology. In the work, findings related to a concept of a health navigator; an artefact of personal health decision support, are assembled into a framework that bases on key sociological theories. The empirical elements focus on observations made on applicability of the concept, and the underlying framework of citizen-centric electronic health services.

Findings

The authors argue that the discussed concept, when applied to personal health decision making according to the underlying framework, has a potential to change health service provisioning. In addition to stimulating new kind of co-operation between the health service provider and the citizen, the concept gives form to, somewhat idealized, notions of patient choice and empowerment.

Research limitations/implications

The work described here is exploratory and forward-looking. Even though the concept and the framework are tested to a degree in a national project, more practice-oriented work is needed in terms of real-world applicability. It follows from this that the work is a conceptual elaboration on the future of personal health decision making.

Originality/value

The findings, including the discussed challenges and needs, stem from real-world observations; from the needs of citizens. As such, they indicate a direction into which the development of personal health records and health decision support aids should go.

Details

Information Technology & People, vol. 28 no. 4
Type: Research Article
ISSN: 0959-3845

Keywords

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Article

Essam Mansour

This paper aims to investigate the perception of Egyptian patients about the use of personal health records (PHRs).

Abstract

Purpose

This paper aims to investigate the perception of Egyptian patients about the use of personal health records (PHRs).

Design/methodology/approach

A quantitative research methodology was adopted in the form of a survey.

Findings

Over one-third of the selected sample was found to use PHRs. The study found that the use of PHRs by Egyptian patients was moderate. All PHRs users confirmed that they were very interested in the doctors’ notes and the laboratory reports recorded in their records. A very large number of PHR users confirmed that their use of these records was at least fairly easy for them and all of them confirmed that the use of these records was at least fairly useful. Above two-third of PHR users answered at least “somewhat yes” that their PHRs were accurate and over half of them answered at least “somewhat yes” that their PHRs were complete. The highest percentage of PHR users agreed that the use of PHRs would enhance their trust in their doctors and nurses. Close to half of PHR users expressed some concern about sharing their records. Violation of privacy in the use of these medical records, followed by the complexity of using them, as well as lack of awareness about them, was also significant to PHR users.

Originality/value

Understanding Egyptian patients perceptions of using PHRs may significantly aid in eliminating barriers and accelerating the adoption and use of these records to improve patient care.

Details

Global Knowledge, Memory and Communication, vol. 67 no. 8/9
Type: Research Article
ISSN: 0024-2535

Keywords

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