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Looking for Information
Type: Book
ISBN: 978-1-80382-424-6

Content available
Book part
Publication date: 30 June 2023

Lisa M. Given, Donald O. Case and Rebekah Willson

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Looking for Information
Type: Book
ISBN: 978-1-80382-424-6

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Household Self-Tracking during a Global Health Crisis
Type: Book
ISBN: 978-1-80043-915-3

Open Access
Book part
Publication date: 4 May 2018

Syahril Efendi, Baihaqi Siregar and Heru Pranoto

Innovation in a decentralized blockchain infrastructure can be used by medicine as a prerequisite for the exchange of patient data. Developments in the medical device industry…

Abstract

Innovation in a decentralized blockchain infrastructure can be used by medicine as a prerequisite for the exchange of patient data. Developments in the medical device industry that support the technology of the internet of things and wireless sensor networks also facilitate the examination of patient medical records that no longer require visits to the practice of doctors or hospitals which in some cases takes in a considerable time. Not to mention the consideration of traffic congestion and busy routine in the work. Patients can check their healthcare concerns using only sensors such as e-Health Sensor Shield Platform which then sends recording results through the transmission line to the data lakes. However, this patient’s medical record data is very confidential and may only be accessed by certain parties only. This required the design of the concept of security in the transmission of data so that the data does not leak to parties who are not eligible. This paper attempts to provide an overview of the concept of using encryption with an asymmetric key for securing data from sensors to data lakes before forwarding to a decentralized, interconnected blockchain infrastructure.

Book part
Publication date: 25 July 2008

Kimberly A. Galt, Karen A. Paschal, Amy Abbott, Andjela Drincic, Mark V. Siracuse, James D. Bramble and Ann M. Rule

This mixed methods multiple case study examines the knowledge, understanding, and awareness of 25 health board/facility oversight managers and 20 health professional association…

Abstract

This mixed methods multiple case study examines the knowledge, understanding, and awareness of 25 health board/facility oversight managers and 20 health professional association directors about privacy and security issues important to achieving health information exchange (HIE) in the state of Nebraska. Within case analyses revealed that health board/facility oversight managers were unaware of key elements of the federal agenda; their concerns about privacy encompassed broad definitions both of what constituted a “health record” and “regulations centeredness.” Alternatively, health professional association leaders were keenly aware of national initiatives. Despite concerns about HIE, they supported information exchange believing that patient care quality and safety would improve. Cross-case analyses revealed a perceptual disconnect between board/facility oversight managers and professional association leaders; however, both favored HIE. Understanding state-level stakeholder perceptions helps us further understand our progress toward achieving the national health information interoperability goal. There is an ongoing need to assure adequate patient privacy protection. Licensure and facility boards at the state level are likely to have a major role in the assurance of patient protections through facility oversight and provider behavior. The need for these boards to take an active role in oversight of patient rights and protections is imminent. Similarly, professional associations are the major vehicles for post-graduate education of practicing health professionals. Their engagement is essential to maintaining health professions knowledge. States will need to understand and engage both of these key stakeholders to make substantial progress in moving the HIE agenda forward.

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Patient Safety and Health Care Management
Type: Book
ISBN: 978-1-84663-955-5

Book part
Publication date: 30 June 2017

Leslie P. Francis and John G. Francis

Reusing existing data sets of health information for public health or medical research has much to recommend it. Much data repurposing in medical or public health research or…

Abstract

Reusing existing data sets of health information for public health or medical research has much to recommend it. Much data repurposing in medical or public health research or practice involves information that has been stripped of individual identifiers but some does not. In some cases, there may have been consent to the reuse but in other cases consent may be absent and people may be entirely unaware of how the data about them are being used. Data sets are also being combined and may contain information with very different sources, consent histories, and individual identifiers. Much of the ethical and policy discussion about the permissibility of data reuse has centered on two questions: for identifiable data, the scope of the original consent and whether the reuse is permissible in light of that scope, and for de-identified data, whether there are unacceptable risks that the data will be reidentified in a manner that is harmful to any data subjects. Prioritizing these questions rests on a picture of the ethics of data use as primarily about respecting the choices of the data subject. We contend that this picture is mistaken; data repurposing, especially when data sets are combined, raises novel questions about the impacts of research on groups and their implications for individuals regarded as falling within these groups. These impacts suggest that the controversies about de-identification or reconsent for reuse are to some extent beside the point. Serious ethical questions are also raised by the inferences that may be drawn about individuals from the research and resulting risks of stigmatization. These risks may arise even when individuals were not part of the original data set being repurposed. Data reuse, repurposing, and recombination may have damaging effects on others not included within the original data sets. These issues of justice for individuals who might be regarded as indirect subjects of research are not even raised by approaches that consider only the implications for or agreement of the original data subject. This chapter argues that health information should be available for reuse, information should be available for use, but in a way that does not yield unexpected surprises, produce direct harm to individuals, or violate warranted trust.

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Studies in Law, Politics, and Society
Type: Book
ISBN: 978-1-78714-811-6

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The Politics and Possibilities of Self-Tracking Technology
Type: Book
ISBN: 978-1-80043-338-0

Book part
Publication date: 21 November 2005

Gloria J. Leckie and Lisa M. Given

The history of the public library is long and rich, and continues to reflect this institution's initial mission: to respond to the needs of an evolving democratic society. From…

Abstract

The history of the public library is long and rich, and continues to reflect this institution's initial mission: to respond to the needs of an evolving democratic society. From its early days as a subscription service for the middle-class, through its evolution to become an educational site for the lower-classes and new immigrants, the public library has served as a touch-stone for urban industrial society in North America (Lerner, 1998, p. 138; Shera, 1974). Over the past century, public libraries have evolved to respond to the growing needs of the communities they serve and continue to do so with recent advances in technologies (such as DVDs, electronic books, the Internet, etc.), and with a more global outlook on the ways that people seek and share information. Indeed, the public library's constituents today are exceedingly diverse, including children and adults from a broad range of socio-economic, cultural, and educational backgrounds, all of whom seek information for a variety of personal and work-related purposes. The fact that public libraries have been fulfilling patrons' information needs for well over a century is a testament to their enduring success and versatility as information providers, and also points to the overall effectiveness of public librarians as intermediaries in the provision process.

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Advances in Librarianship
Type: Book
ISBN: 978-0-12024-629-8

Book part
Publication date: 17 September 2014

Laura I. Spears and Marcia A. Mardis

The purpose of this study was to determine the extent to which academic researchers consider the relationship between broadband access and children’s information seeking in the…

Abstract

Purpose

The purpose of this study was to determine the extent to which academic researchers consider the relationship between broadband access and children’s information seeking in the United States. Because broadband has been cited as an essential element of contemporary learning, this study sought to identify gaps in the attention given to the role of broadband in the information seeking environment of youth.

Approach

The researchers conducted a mixed method synthesis of academic research published in peer-reviewed journals between 1991 and 2011 that reported the information seeking of children aged 5–18 years. Quantitative and qualitative data were gathered from leading databases, analyzed separately, and conclusions drawn from integrated results.

Results

The results of this study indicated that broadband is rarely considered in the design of children’s information seeking published in peer-reviewed research journals. Only 15 studies showed any presence of broadband in study design or conclusions. Due to the small number of qualifying studies, the researchers could not conduct the synthesis; instead, the researchers conducted a quantitative relationship analysis and qualitative content analysis.

Practical implications

Given the focus of policymaking and public discussion on broadband, its absence as a study consideration suggests a crucial gap for scholarly researchers to address.

Research limitations

The data set included only studies of children in the United States, therefore, findings may not be universally applicable.

Originality/value

Despite national imperatives for ubiquitous broadband and a tradition of information seeking research in library and information science (LIS) and other disciplines, a lack of academic research about how broadband affects children’s information seeking persists.

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New Directions in Children’s and Adolescents’ Information Behavior Research
Type: Book
ISBN: 978-1-78350-814-3

Keywords

Book part
Publication date: 27 November 2023

Cristina Vaz de Almeida, Diogo Franco Santos and Patrícia Martins

Today’s young people were born and raised in a digitally dominated world, therefore they quickly and intuitively navigate the web, which brings them undeniable advantages in the…

Abstract

Today’s young people were born and raised in a digitally dominated world, therefore they quickly and intuitively navigate the web, which brings them undeniable advantages in the search for health information, but at the same time posing some risks. The authors conducted a narrative review of Portuguese and international scientific publications using the MeSH terms [Health literacy], [digital], [young people], [education] and [social media]. Among the various solutions presented, and considering the ease and speed to which young people are accustomed to when accessing digital information, the paths to be taken towards safe and effective navigation are related to solutions that promote a greater health literacy (HL). To bet on the promotion of HL in the younger generations is to invest in the improvement of their health and well-being, considering the ACCESS Young people are more likely to search and have access to health information through the digital environment, therefore it is important to reach them by means of interactive and appealing online content (e.g. short videos); COMPREHENSION, it is essential to disseminate reliable information and to involve their close social networks, including parents/legal guardians, social workers, teachers, among other community members; USE ensuring a correct and responsible use of health resources requires involving young people in the process of creating HL programs since its early steps. Results show that the digital promotion of HL as a valuable tool to reach younger generations, who are avid consumers of social media and many other online platforms.

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Technology-Enhanced Healthcare Education: Transformative Learning for Patient-centric Health
Type: Book
ISBN: 978-1-83753-599-6

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