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Book part
Publication date: 25 January 2023

László Bercse, Helen Portal and Milan Šveřepa

Inclusion Europe, the European movement of people with intellectual disabilities and their families, shared what people with intellectual disabilities and their families faced…

Abstract

Inclusion Europe, the European movement of people with intellectual disabilities and their families, shared what people with intellectual disabilities and their families faced during the COVID-19 crisis. Collecting information showed people with intellectual disabilities were segregated and discriminated against. The pandemic intensified and magnified the segregation and discrimination of people with intellectual disabilities, shedding light on their exclusion. Many human rights were violated. Therefore, such testimonies should encourage governments and institutions to urgently design a society that includes people with intellectual disabilities and their families.

Details

Disability Welfare Policy in Europe
Type: Book
ISBN: 978-1-80382-819-0

Keywords

Abstract

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Disability in the Time of Pandemic
Type: Book
ISBN: 978-1-80262-140-2

Book part
Publication date: 26 January 2023

Valérie Grand'Maison, Kathryn Reinders, Laura Pin, Jihan Abbas and Deborah Stienstra

In this chapter, we examine the unique and heightened negative impacts of the COVID-19 pandemic through tracing how the preexisting social conditions of exclusion and precarity in…

Abstract

Purpose

In this chapter, we examine the unique and heightened negative impacts of the COVID-19 pandemic through tracing how the preexisting social conditions of exclusion and precarity in which many disabled people live, effected access to safe, affordable, and accessible housing in Canada. We then illustrate the reverberating impacts housing choices have on how people with disabilities lived, lived well, and how they faced barriers to living well during the COVID-19 pandemic.

Methods/Approach

Using an intersectional livelihoods approach, we analyzed semi-structured interviews and focus groups with 32 diverse people with disabilities, 12 key informant semi-structured interviews, as well as academic and community literature and a social media scan of key disability advocacy organizations in Canada.

Findings

Pandemic-related policies in Canada often excluded people with disabilities, either overlooking barriers to access and safety, which exacerbated the already precarious livelihoods of people with disabilities or over-emphasized the usefulness of social adaptions such as work from home. These exclusions had more profound consequences for people with disabilities from historically marginalized groups, as they often faced increased barriers to livelihoods pre-pandemic, and disability- or care-specific policies failed to consider intersectional experiences of discrimination. People with disabilities formed communities of care to meet their needs and those of their loved ones.

Implications/Values

To achieve a responsive policy response that addresses the cascading impacts of risk and care, it is necessary for governments to engage, early and often, with people with disabilities, disability leaders and organizations in emergency planning and beyond.

Details

Disability in the Time of Pandemic
Type: Book
ISBN: 978-1-80262-140-2

Keywords

Book part
Publication date: 9 November 2020

Shixin Huang

Purpose: The purpose of this chapter is to scrutinize the apparent alliance between international and local disability rights movements by contextualizing the process in which the…

Abstract

Purpose: The purpose of this chapter is to scrutinize the apparent alliance between international and local disability rights movements by contextualizing the process in which the disability rights model is being diffused globally. It seeks to critically examine the transplantation and promotion of the international disability rights movement's rights-based model in China.

Approach: This chapter draws from 18 in-depth interviews with local and international disability rights activists through multisite ethnographic fieldwork in China in 2019.

Findings: This chapter finds that despite opening up spaces for resistance and emancipation locally, the international disability rights movement nevertheless constitutes what I call an enclave of rights that insulates the international rights model from the political, social, and economic realities on the ground. In the case of China, the authoritarian politics that define the relationship between the state and civil society, as well as the economic vulnerability of people with disabilities in the post-socialist market economy, limit, if not invalidate, the rights model espoused by the international disability rights movement.

Implications: The findings of this chapter challenge and complicate the current scholarship of the transnational disability rights movement beyond its normative claims of emancipation. They also explore potential spaces and direction for building a new transnational alliance that takes into account the local experience of disability in a rapidly globalized world.

Book part
Publication date: 25 January 2021

Ayşe Collins

Scholars mostly emphasise the social inclusion of people with disabilities; however, in most of these studies, disability is often touched on as ‘something that should be overcome…

Abstract

Scholars mostly emphasise the social inclusion of people with disabilities; however, in most of these studies, disability is often touched on as ‘something that should be overcome instead of accommodated’ and frequently considered as a ‘passive recipient’ of policies (Knight, 2015, p. 4). There have been very few disability studies in Turkey, and these generally focus on issues such as employment, education, accessibility to health care and, recently, accessible tourism. Consequently, the main focus of this study is the impact of the social inclusion of people with disabilities in performing arts events audiences on cultural value and cultural policy in Turkey. A qualitative study was conducted in order to explore social inclusion of audiences with disabilities regarding inequalities in attending performing arts events from multiple perspectives and their impact on cultural value. The study included sources from: (1) semi-structured interviews (n = 32); (2) site visits and observations across four sites (venues, offices, performance spaces) and (3) reviews of secondary data such as websites, policies, legislation, promotional materials, annual reports and internal documents. The most important impact of this study is that it is the first study conducted on participation of people with disabilities in performing arts events in Turkey. Moreover, the most pressing issues mentioned by almost all participants were the need for people with disabilities to demand inclusion, which is actually a birthright, by participating and making their needs visible.

Book part
Publication date: 10 June 2014

A person’s value in terms of physical and mental abilities, talents and skills is not simply located in degrees of her/his body’s ability to function. Efforts to achieve social…

Abstract

A person’s value in terms of physical and mental abilities, talents and skills is not simply located in degrees of her/his body’s ability to function. Efforts to achieve social and workplace equality for people with a physical/body or psychological/mental disability have grown to a transnational social movement. The community of people with a disability may be among the largest, most diverse group of people. By examining disability through lenses of cultural, economic, and political contexts, Chapter 10 underscores the importance of understanding how and why experiences and issues associated with social identity shaped by these dimensions has captured the attention of policymakers and employers around the world.

A person’s identity is socially constructed and impacted by government policy, cultural values, and organizational decision making. The field of disability studies is dedicated to advancing greater understanding of experiences of people with a disability and empowering them to pursue happy and fulfilling lives. Institutionalized manifestations of stigma, ableism, discrimination, and bias diminish these pursuits, however. People everywhere and the organizations staffed and managed by them are urged to consider the positive outcomes of fully embracing people with a disability for their ability to perform responsibilities and to bring unique perspectives on organizational practices and exchanges with key stakeholders. Chapter 10 examines subthemes central to the study of social identity among people with a disability: paradigm shift and policy making about disability, legislation and policy, people working with a disability in organizations, language and naming debates, and disability and other social identity intersectionalities.

Details

Practical and Theoretical Implications of Successfully Doing Difference in Organizations
Type: Book
ISBN: 978-1-78350-678-1

Keywords

Book part
Publication date: 12 June 2018

Megan A. Conway

This chapter explores the relationship between disability identity, civil rights, and the law. Twenty-five years after the passage of the Americans with Disabilities Act, the…

Abstract

This chapter explores the relationship between disability identity, civil rights, and the law. Twenty-five years after the passage of the Americans with Disabilities Act, the question remains why disability rights legislation does not go far enough toward addressing access, stigma, and discrimination issues. People with disabilities have found empowerment from disability rights laws, but these laws are also restrictive because they define people in relation to medical aspects of their disabilities and narrowly define society’s obligation for inclusion. The successes and failures of disability rights laws are an important contribution to the study of conceptions of difference.

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Special Issue: Law and the Imagining of Difference
Type: Book
ISBN: 978-1-78756-030-7

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Book part
Publication date: 25 January 2023

Adela Palazuelos Velayos, Adrián Corona de la Iglesia, Ángela Sánchez Castillo, Gema Alises Urda, María Gómez-Carrillo de Castro, Marta Sancho Suils, Paola Cauja Pilataxi and Víctor Sanz Moreno

This chapter presents the findings of a participatory research project on the impact of COVID-19 and the lockdown on the lives of people with intellectual disabilities in Madrid…

Abstract

This chapter presents the findings of a participatory research project on the impact of COVID-19 and the lockdown on the lives of people with intellectual disabilities in Madrid, Spain. It provides a brief overview of the social policy framework with regards to people with disabilities, and how the government responded to the needs of people with disabilities during the pandemic. The research was conducted by seven co-researchers with intellectual disabilities, who explored how people with intellectual disabilities in Madrid had experienced the lockdown and sanitary restrictions from March 2020 to November 2021. Participants included people living at home with their families, in group homes and in residential care. The findings are contrasted with other studies on the impact of the pandemic in Spain. The pandemic revealed the precariousness of the care system, and the urgent need to shift towards a human rights compliant service provision. Our study shows that people with intellectual disabilities experienced restrictions in different aspects of their lives during a longer period, that people living in residential care were more isolated and that there is a general concern with the future. People living in congregated settings were subject to higher restrictions. Some people had become care providers to their parents, and digital skills had been essential to keep in touch with partners, friends and family. Furthermore, people expressed a desire to regain their freedom, meet new people and a concern with lack of employment.

Details

Disability Welfare Policy in Europe
Type: Book
ISBN: 978-1-80382-819-0

Keywords

Book part
Publication date: 9 November 2020

Melinda Leigh Maconi

Purpose: Artists with disabilities use their bodies and minds to create art. Yet, the prevailing cultural narrative that art is “therapeutic” for people with disabilities shifts…

Abstract

Purpose: Artists with disabilities use their bodies and minds to create art. Yet, the prevailing cultural narrative that art is “therapeutic” for people with disabilities shifts attention from their creative accomplishments to their disabilities. Some ally organizations attempt to challenge the narrative that art is merely therapy for people with disabilities. However, drawing on narratives of “helping” people with disabilities attracts funding. This chapter examines how organizations navigate empowering allies while still maintaining funding.

Methods/Approach: This chapter uses narrative analysis of material accessed through a nonprofit arts-based disability ally organization's website to address two research questions: 1. How do ally organizations both draw on and resist cultural narratives of disability in order to garner public support?; and 2. How do personal narratives of disabled artists associated with ally organizations support and/or resist organizational and cultural narratives about the connection between disability and art?

Findings: The organization uses narratives to address important and sometimes conflicting goals. Personal narratives from artists with disabilities that are available through the website tell a range of stories about art and disability. The organization draws on these heterogeneous stories to position itself as an ally. By including such personal narratives on its website, the organization challenges the cultural narrative that the art produced by disabled artists is merely therapeutic.

Implication/Value: Much of the work on allyship focuses on how individuals can be allies. Examining ways in which organizations frame themselves as allies can help us to more fully understand allyship on multiple levels of social life.

Details

Disability Alliances and Allies
Type: Book
ISBN: 978-1-83909-322-7

Keywords

Book part
Publication date: 7 July 2006

Alicia Bercovich

A new measure of disability used in the 2000 Census allows an expanded data set on the population with disabilities within all regions of Brazil. Using two different…

Abstract

A new measure of disability used in the 2000 Census allows an expanded data set on the population with disabilities within all regions of Brazil. Using two different conceptualizations of disability including limitations in activities and impairments in body function and structure, the questions provide a richer source of information for policy issues. Initial use of the data has provided increased knowledge about the age, sex and racial makeup of the populations with disabilities and the geographic distribution of this population within Brazil.

Details

International Views on Disability Measures: Moving Toward Comparative Measurement
Type: Book
ISBN: 978-1-84950-394-5

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