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Book part
Publication date: 28 February 2022

Sumathi Annamalai and LR Niranjan

In India, one in 500 people (Balaji, 2019) are diagnosed with ASD. Around 40 non-governmental organizations cater to Autism Spectrum Disorder (ASD) children; out of that, a few…

Abstract

In India, one in 500 people (Balaji, 2019) are diagnosed with ASD. Around 40 non-governmental organizations cater to Autism Spectrum Disorder (ASD) children; out of that, a few organizations focus on adults providing them vocational training to make them employable. One such exercise was initiated by SAP Labs India, a leading software company, and Enable India, an Indian NGO where they developed a focused training program for people with ASD and placed them in vital technical jobs in SAP Labs India (Karwa, 2016). First, we peek into the lifestyles of a few successful neurodiverse rock stars in India and their journey from becoming aware of their profile to establishing a career and becoming a role model to other people with ASD. Second, we present the autism landscape in India. Third, we explore the organizations that have hired people with ASD, their policies connected to neurodiversity, and the organizations that give training and support. Fourth, we present the potentials and the challenges people with ASD face. Fifth and final, we cover the role of different stakeholders to foster support and up-skill people with ASD for better community development.

Book part
Publication date: 30 July 2014

Emily Boshkoff Johnson

This chapter is a comprehensive discussion of autism spectrum disorder (ASD) across the globe (e.g., United States, China, Brazil, Japan and Turkey). Topics that are discussed…

Abstract

This chapter is a comprehensive discussion of autism spectrum disorder (ASD) across the globe (e.g., United States, China, Brazil, Japan and Turkey). Topics that are discussed include the following: diagnostic criteria and approaches; international perspectives of ASD; western and eastern assessment practices; cultural considerations of assessment of ASD; educational and medical interventions; behavioral and emotional interventions; complementary and alternative medical interventions; variations in educational services among countries; early intervention practices; adult services; national and international resources; and current needs and future directions.

Details

Special Education International Perspectives: Biopsychosocial, Cultural, and Disability Aspects
Type: Book
ISBN: 978-1-78441-045-2

Content available
Book part
Publication date: 28 February 2022

Abstract

Details

Generation A
Type: Book
ISBN: 978-1-80262-263-8

Book part
Publication date: 9 November 2020

Kristen Gillespie-Lynch, Patrick Dwyer, Christopher Constantino, Steven K. Kapp, Emily Hotez, Ariana Riccio, Danielle DeNigris, Bella Kofner and Eric Endlich

Purpose: We critically examine the idea of neurodiversity, or the uniqueness of all brains, as the foundation for the neurodiversity movement, which began as an autism rights…

Abstract

Purpose: We critically examine the idea of neurodiversity, or the uniqueness of all brains, as the foundation for the neurodiversity movement, which began as an autism rights movement. We explore the neurodiversity movement's potential to support cross-disability alliances that can transform cultures.

Methods/Approach: A neurodiverse team reviewed literature about the history of the neurodiversity movement and associated participatory research methodologies and drew from our experiences guiding programs led, to varying degrees, by neurodivergent people. We highlight two programs for autistic university students, one started by and for autistics and one developed in collaboration with autistic and nonautistic students. These programs are contrasted with a national self-help group started by and for stutterers that is inclusive of “neurotypicals.”

Findings: Neurodiversity-aligned practices have emerged in diverse communities. Similar benefits and challenges of alliance building within versus across neurotypes were apparent in communities that had not been in close contact. Neurodiversity provides a framework that people with diverse conditions can use to identify and work together to challenge shared forms of oppression. However, people interpret the neurodiversity movement in diverse ways. By honing in on core aspects of the neurodiversity paradigm, we can foster alliances across diverse perspectives.

Implications/ Values: Becoming aware of power imbalances and working to rectify them is essential for building effective alliances across neurotypes. Sufficient space and time are needed to create healthy alliances. Participatory approaches, and approaches solely led by neurodivergent people, can begin to address concerns about power and representation within the neurodiversity movement while shifting public understanding.

Details

Disability Alliances and Allies
Type: Book
ISBN: 978-1-83909-322-7

Keywords

Article
Publication date: 26 July 2021

Asmita Karmakar, Manisha Bhattacharya, Susmita Chatterjee and Atanu Kumar Dogra

The Autism-Spectrum Quotient (AQ) is a widely used tool to quantify autistic traits in the general population. This study aims to report the distribution, group differences and…

Abstract

Purpose

The Autism-Spectrum Quotient (AQ) is a widely used tool to quantify autistic traits in the general population. This study aims to report the distribution, group differences and factor structure of autistic traits in Indian general population. The work also assesses the criterion validity of AQ across three patient group samples – autism spectrum disorder (ASD), obsessive-compulsive disorder and social anxiety disorder.

Design/methodology/approach

In this study, psychometric properties of the adapted AQ were assessed among 450 neurotypical university students matched for age. Confirmatory factor analysis was done to see if the adapted AQ fits the original factor structure. Test–retest, internal consistency reliability and criterion validity were found out. Group differences (gender and field of study) in AQ were also assessed.

Findings

Autistic traits were found to be continuously distributed in the population, and patterns of group differences were consistent with previous studies. The adapted AQ had five factors resembling the original factor structure with a good fit, and 38 items instead of the original 50 items. Acceptable reliability coefficients were demonstrated along with criterion validity across clinical groups.

Originality/value

This work is the first to present the pattern of distribution and factor structure of autistic traits among neurotypical adults from Eastern India, a culturally different population, as well as a reliable and valid tool to assess autistic traits in Bengali, a language with 300 million speakers. The findings add to the growing literature on AQ measurement and the concept of autism as a quantitative trait, examined outside of the western samples.

Details

Advances in Autism, vol. 8 no. 3
Type: Research Article
ISSN: 2056-3868

Keywords

Article
Publication date: 1 May 2019

Naureen Bhullar

The purpose of this paper is to compare experiences of two parents of adolescents with Autism Spectrum Disorder (ASD) differing in gender, including their daily routines at school…

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Abstract

Purpose

The purpose of this paper is to compare experiences of two parents of adolescents with Autism Spectrum Disorder (ASD) differing in gender, including their daily routines at school and at home, challenging behaviour, social support and future plans for their children.

Design/methodology/approach

The parents of the two adolescents with ASD were interviewed with open-ended questions related to their children as well as their personal experiences, along with getting their individual responses for the established Satisfaction with Life Scale (SWLS).

Findings

There were similarities and differences in the parents’ experiences with their adolescent children with ASD. Similarities included a limited social support outside their families, hopes for the future of their children, where in they emphasised the need for some “normality” for their child, and a lack of plan in terms of legal guardianship and written wills after their own time. Some of the differences were also noted in the parents’ description of symptoms of their children, with the father of the female adolescent reporting more negative experiences both with his child, as well as with his spouse, a lack of social support and, subsequently, more “dissatisfaction” on the SWLS than the mother of the male adolescent.

Research limitations/implications

One of the major limitations of this study is the absence of feedback from the other parent besides the one being interviewed, due to which only one parental perspective was provided here.

Social implications

There are vital social implications of this study. Both parents reported a limited social support due to which they expressed the need for increasing awareness for ASD in the general society. These findings illustrate the need for a focus on designing interventions for improving outcomes for both parent and child in similar situations.

Originality/value

This study compared the experiences of two parents of adolescents with ASD, differing in gender and symptomology, but similar in other respects, including the family demographic characteristics and cultural context.

Details

Advances in Autism, vol. 5 no. 3
Type: Research Article
ISSN: 2056-3868

Keywords

Article
Publication date: 19 July 2021

Vinita Berry and Chavi Bhargava Sharma

This study aims to highlight the need for an interdisciplinary intervention approach to bring noteworthy changes in children with an autism spectrum disorder. It proposes to study…

Abstract

Purpose

This study aims to highlight the need for an interdisciplinary intervention approach to bring noteworthy changes in children with an autism spectrum disorder. It proposes to study how holistic individualized therapeutic plans can promote functionality even in the adolescent age. This study aims to channelize the restricted abilities in a positive manner and make it, a strength for the child. Social-emotional development along with academic goals is also proposed.

Design/methodology/approach

The paper is based on an exploratory study where participant observation was the main tool. Unstructured interviews with the therapists were conducted and the background history was taken. Documents and assessments related to the case were referred.

Findings

The paper provides empirical insight into the impact of an interdisciplinary intervention on autism spectrum disorder. It suggests that speech therapy, occupational therapy, special education and counseling taken up as a holistic approach and modified as per the needs and competence of the child prove to be effective. It also becomes evident that intervention can help the child to become functional and meaningful even if the intervention is started a little late in life. Consistency and intensity of interventions along with compassion play a very positive role in the life of children with autism.

Research limitations/implications

As the approach taken describes one case in depth, there is less probability of generalization of results. Therefore, it suggests a wide scope of testing the proposed propositions further.

Practical implications

This paper includes implications for the children with autism spectrum disorder, who: are not able to get early intervention for some reason and the ones who have special restricted abilities. It also is an inspiration for the service providers to develop comprehensive and interdisciplinary plans of intervention.

Social implications

This will help parents who somehow miss providing interventions at an early age to be hopeful and to seek help. The results are encouraging so as to make children with autism spectrum disorder more functional and acceptable in their lives.

Originality/value

This paper worked on the identified needs of children with autism but found that their restricted abilities that are commonly found can be used and channelized positively to become a strength. There is a scope and hope to guide these children toward a functional life where they can connect with others around them and are accepted and included in society. Individualized and interdisciplinary interventions prove to make these children happier and confident.

Details

Advances in Autism, vol. 8 no. 2
Type: Research Article
ISSN: 2056-3868

Keywords

Article
Publication date: 4 November 2020

Asmita Karmakar, Manisha Bhattacharya, Jayeeta Adhya, Susmita Chatterjee and Atanu Kumar Dogra

Autism spectrum disorders (ASD) are heterogeneous disorders, and heterogeneity lies both at genetic and phenotypic levels. To better understand the etiology and pathway that may…

Abstract

Purpose

Autism spectrum disorders (ASD) are heterogeneous disorders, and heterogeneity lies both at genetic and phenotypic levels. To better understand the etiology and pathway that may contribute to autism symptomatology, it is important to study milder expressions of autism characteristics – autistic traits or milder expressions of autism phenotype, especially in intergenerational context. This study aims to see the trend of association, if any, between child autism symptom and mothers’ autism phenotype as well as mothers’ theory of mind and to see if mothers’ theory of mind was associated with their own autistic traits.

Design/methodology/approach

Data were collected from 96 mothers of children with varying symptom severity of autism (mild, moderate and severe) using Autism Spectrum Quotient and faux pas recognition test. Analysis of variance, trend analysis and t-test were done.

Findings

Results showed a linear trend of relationship between mothers’ autism phenotype and child symptom severity. However, the groups did not have significant differences in theory of mind. Only a few components of theory of mind were found to be associated with autistic traits. These findings question the prevailing idea that theory of mind can be a reliable endophenotype of autism.

Research limitations/implications

There has been a lack of research assessing the possible link between parents’ autism phenotype and symptom severity of ASD children. This study is a preliminary step towards that direction. This study indicates a probability of shared genetic liability between mothers and offspring, which would have important consequences for understanding the mechanisms that lead to autism.

Practical implications

This study offers implications for treatment planning of those with clinical ASD. An awareness of parental factors is critical for any holistic intervention plan when a family seeks treatment for their child. This study suggests that while individualising interventions, clinicians may consider possible presence of high levels of autistic traits and related cognitive features present in the probands’ parents.

Originality/value

There has been lack of research assessing the possible link between parents’ autism phenotype and symptom severity of ASD children. This study, even though preliminary, is a step towards that direction. This study suggests that autism traits might be influenced by common genetic variation and indicates a probability of shared genetic liability between mothers and offspring, which would have important consequences for understanding the mechanisms that lead to autism.

Details

Advances in Autism, vol. 7 no. 2
Type: Research Article
ISSN: 2056-3868

Keywords

Content available
Book part
Publication date: 21 July 2022

Ian Ruthven

Abstract

Details

Dealing With Change Through Information Sculpting
Type: Book
ISBN: 978-1-80382-047-7

Content available
Book part
Publication date: 7 July 2022

Matthew Bennett and Emma Goodall

Abstract

Details

Addressing Underserved Populations in Autism Spectrum Research
Type: Book
ISBN: 978-1-80382-463-5

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