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The research for this study engages and assesses the relationship of the media from the 20th to the 21st century, combining scholar activism and public leadership in the disability rights movement. Having chronicled the disability rights movement from its roots, this chapter presents the discourse of media and movement, sampling mainstream media along with the advocacy and alternative media in support of disability rights. A range of media forms are engaged from advocacy bulletins to mainstream news media to public broadcasts that represent the diversity and complexity of the movement as it continues into the 21st century, pressing for the universalism of human rights for all.

We explore the effects and interplay of physical and social environments on the inaccessibility of gynecological health care for women with spinal cord injury. We also explore women’s responses to the inaccessibility of this care, in hopes of trying to understand better how women navigate their gynecological health and health care when faced with physical and social environmental constraints.

The data for this phenomenological study were gathered using in-depth, qualitative interviews with 20 women living with spinal cord injuries in or around Detroit, Michigan. Each interviewee was questioned about overall health and physical functioning, accessibility of doctor offices, interactions with health care providers, gynecological health-seeking behaviors, and complementary and alternative medicine use. In this paper we report on data on women’s difficulties in securing gynecological health care experiences and related attitudes and practices.

Findings echo past literature about the inaccessibility of doctor’s offices, including the lack of suitable exam tables and medical equipment. Office staff varied in their willingness to help transfer women from wheelchairs to exam tables as well, often creating what we term an inaccessible social environment. Individual women in our sample found different strategies for navigating the environmental contexts of a doctor’s office and the encounters that they had with providers within medical settings. These strategies had varying impacts on individuals’ abilities to secure gynecological health care.

Our findings point to the possibility of an interplay between and intersection of physical and social environments within medical settings that needs to be explored further and, potentially, the primary importance of the social environment over the physical environment in determining whether an individual’s disability makes health care inaccessible.

Sustaining a spinal cord injury (SCI) at any point in time is life-altering – physically, emotionally, and financially – for all persons affected by the injury, but it can place unique challenges on younger married couples. This study examines the transition to injury for 18 couples (ages 21–55). Data were collected using individual interviews with each partner at three time points following injury and observation in the rehabilitation setting (Creekview). This resulted in 96 individual interviews and 300 hours of observation. Using the life course perspective as a guiding theoretical framework and thematic analysis, I examined how the healthcare institution influenced the couples' relationship during their rehabilitation stay and the subsequent transition home. Creekview staff and couples accepted and reinforced the dominant cultural narrative that women are natural caregivers, but larger social structures of class, gender, and the division of paid and unpaid labor worked together to push some women into caregiving faster or prevented other women from engaging in caregiving. This study examines how younger couples move through the caregiving career during an off-time transition when the expected outcome is not long-term care placement or death. This study identified three main types of caregivers, each with their own path of caregiving – naturalized, constrained, and resistant caregivers. Overall, the transition to injury is complex and this study highlights some of the ways the marital relationship is affected by a nonnormative, unexpected transition.

Students with physical and health impairments represent a small but growing group of individuals with diverse educational needs. They are those students whose physical limitations or health problems interfere with school attendance or learning to such an extent that special services, training, equipment, materials, or facilities are required. Therefore, the purpose of this chapter is to discuss some of these impairments and acquaint both general and special educators with interventions for helping students with physical and health impairments succeed.

The purpose of this paper is to explore the multi-level mechanisms of institutional formation and change and, in particular, how this occurs through the interplay of multi-level mechanisms? This is answered with a processual analysis of the International Paralympic Committee which is the international governing body of sports for people with an impairment.

This study uses a case-study approach based upon archival records, collected in relevant national and international sport organizations. More than 2,700 pages of archives were gathered, some of them being accessible to researchers for the first time. Embargo was also successfully lifted on recent and sensitive documents.

This study highlights multi-level mechanisms involved in institutional change processes triggered by a shifting institutional logic at the organizational field level. This paper also shows how field logic shifted at the moment of alignment between the societal, field and organizational levels. Moreover, it underlines how societal discourses influenced processes of institutional change by shaping the range of organizational actions available at the organizational and field levels.

This paper proposes a rare account of institutional change processes in which interplay between the societal, field, and organizational levels is analyzed. Furthermore, this paper provides a longitudinal investigation of an under-researched empirical setting, the Paralympic movement. Finally, this study integrates insights from the disability studies’ research field, which significantly deepens this analysis.

In ethnographic research, negotiating insider–outsider perspectives is essential in order to get closer to the participants’ lives. By highlighting the importance of empathy and reflexivity, the paper attempts to trace my reflexive navigation as a novice researcher as I enter the field as an outsider. The process of co-creation between the researcher and the participant is mediated by the nuances of the researcher’s identity, thereby shaping the researcher–participant relationship.

The current study elaborates my journey as a Ph.D. scholar in an ethnographic study of persons with spinal cord injury or amputation. The different themes organised around my personal reflections discuss the various challenges I faced and how I navigated through them.

The paper reflects on how different aspects of my identity, such as being non-disabled, a female and differences in socioeconomic status shaped the researcher–participant relationship. Additionally, it highlights how I traverse through the blurred worlds of insider–outsider and explore the role of reflexivity and empathy in creating a horizontal researcher–participant relationship.

This reflexive journey offers potential insights into budding researchers who often face dilemmas whether or not it is necessary for qualitative researchers to be members of the population they are studying. The paper also contributes to an understanding around practising reflexivity while working with a sensitive population. It argues researchers to look beyond the insider–outsider debate and utilise reflexivity as a tool for a nonhierarchical researcher–participant relationship.

The “New Paradigm” of disability and the International Classification of Function Disability and Health both describe an ecological model of disability that has significantly influenced policy and law, and this model is frequently cited as a background in published research. Given the central role of “the environment” in this ecological model, we asked, what is the status of research on the environment and disability? Specifically, is a scoping review warranted in this area of research?

We conducted a “rapid scan” of the National Rehabilitation Information Center (NARIC) database for articles reporting studies of the environment – defined as the arranged or built environment. We also scanned Google Scholar to ascertain the frequency of articles that might report research into the environment.

NARIC archived 12,486 items published from January 2007 to June 2012; 530 (4.2%) of which contained the search term “environment.” Of the 530 items, 78 (14.7%) also included the terms architecture space, accessibility, and ICF. Over the same time period, Google Scholar returned 109,000 entries to search terms “disability and environment,” 349 (0.3%) of which also included the terms architecture space, accessibility, and ICF.

This application of a method for rapidly assessing the status of the literature suggests that research into some aspects of the environment and disability may be under-represented. A more complete review, requiring more resources, is warranted.

The purpose of this study is to analyze public perceptions of disability and gain insight into the types of health conditions nondisabled people believe should be protected by the Americans with Disabilities Act (ADA). Understanding how the public interprets the ADA could offer perspective on which disabilities are viewed as legitimate and which are not. Data were gathered from a convenience sample of members from local community groups and college classrooms in a metropolitan university setting. Our analyses evaluate the clustering of health condition types due to similar traits and identify which attributes of the health conditions generate this clustering. Results from a series of quantitative and qualitative analyses (e.g., hierarchical cluster analysis, frequency analysis, discourse analysis, etc.) indicate nondisabled respondents perceive physical and cognitive health conditions that are visible, static, and externally acquired as legitimate disabilities that should be protected by the ADA.

This chapter explores the challenges for the application of the concept of disability to other categories of oppression utilized in the notion of intersectionality.

The concept of intersectionality argues that oppression occurs within the contexts of class, race/ethnicity, religion, gender, and sexual orientation. We raise questions about the applicability of intersectionality to persons with disabilities. Using a Symbolic Interactionist approach to understand the matrix of domination or subordination, we examine how well disability as a category of disadvantage applies to intersectionality.

We argue that the fluid, heterogeneous, and discordant status characteristics, physicality, and diagnostic ambiguity of disability present a considerable challenge for the application of intersectionality as a useful paradigm for disability studies. While several ascribed statuses may contribute to the oppression of persons with disabilities, disability itself offers many unique challenges to understanding the intersection of these traits in the lives of these same people.

The conceptual uniqueness of disability produces rather complex methodological circumstances for understanding the social identity of persons with disabilities who are simultaneously members of additional categories of oppression. These complex and challenging methodological issues can best be met qualitatively, i.e., by approaching disability as lived experience.

For students of intersectionality, this chapter offers a comprehensive analysis and assessment of the concept of disability as a category of oppression.