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The purpose of this paper is to explore perceptions of quality of life (QoL) of people with a dual diagnosis of learning disability and autism to facilitate a better…
The purpose of this paper is to explore perceptions of quality of life (QoL) of people with a dual diagnosis of learning disability and autism to facilitate a better understanding for clinical practice and service provision.
Mixed methods were used to gain perceptions of QoL from 20 individuals referred to their local diagnostic service. Individuals completed questionnaires and participated in in-depth interviews which were thematically analysed.
Subjective wellbeing scores were lower than those found in previous research. Social interaction was raised extensively with participants describing both positive and negative perceptions. The need for tailored social support and the value of individual control over environment were raised.
The study was small in scale and limited to subjects who had been referred for a diagnostic service. The study identified the need for further investigation, particularly in relation to the social relationships domain of QoL, and the impact of stress and anxiety.
This study demonstrated that it is possible to access views from this group and that these views are nuanced. It suggests differences between reported QoL in people with learning disabilities who are and who are not autistic. Service design and individual approaches could be improved by a better understanding of these differences.
In this essay I discuss how law and legal precedent present a false or eschewed construction of the past. The Chicago Haymarket Riot in 1886 and the subsequent trial of…
In this essay I discuss how law and legal precedent present a false or eschewed construction of the past. The Chicago Haymarket Riot in 1886 and the subsequent trial of eight rioters in Spies vs. People provide a dramatic illustration of the lasting consequences of privileging some historical narratives and silencing others. Occurring as it did at the dawn of the “Red Scare,” the miscarriage of justice in Spies vs. People acts as a landmark precedent in a tradition within the United States of extra-judicial lawlessness that stretches from this case through 100 years of labor turmoil, two World Wars, McCarthyism, the Cold War, and up to the current War on Terror. Moreover, these instances of lawlessness and extra-judicial activity, while not written into legal records, nonetheless resurface again and again to form patterns of behavior that amount to what I call precedents of injustice, and which I argue are as integral to law as any formal legal precedents. By way of conclusion I urge all sociolegal scholars to remain attentive to the wider historical contexts which over time are repeatedly silenced through the institutionalized legal processes of denial and forgetfulness.
Nutrition and exercise matter for everyone, including people with learning disabilities. Poor nutrition and lack of exercise can have adverse effects on emotional and…
Nutrition and exercise matter for everyone, including people with learning disabilities. Poor nutrition and lack of exercise can have adverse effects on emotional and physical health and well‐being, which then affect the ability to cope with the demands of everyday life, including independent living and enjoyment of voluntary or paid work, college and leisure activities. Support staff need training and advice to understand this if they are to facilitate optimal quality of life.
Purpose – This chapter explains how the library profession is well-suited to developing and delivering library services that target the growing opportunity gap in the…
Purpose – This chapter explains how the library profession is well-suited to developing and delivering library services that target the growing opportunity gap in the United States and identifies barriers to advancing this professional objective more widely in public libraries. The chapter identifies leadership and organizational development, enhanced graduate training and continuing education, and the need to overcome excessive modesty and passivity as fundamental to advancing this role.
Approach – This chapter documents declining opportunity in the United States. It summarizes the history of librarians’ professional accomplishments and services, and recent public library projects that illustrate the aptitude, expertise, values, and culture necessary to address declining opportunity. Reviewing pertinent literature and the authors’ observations, this chapter identifies barriers librarians face in rising to this challenge and offers solutions.
Findings – Factors limiting public librarians’ ability to address declining opportunity include too few leaders with a vision for librarianship rising to pivotal challenges, such as declining opportunity, and the management skills or training necessary to develop librarians’ potential to target such objectives; professional modesty and passivity rooted in gender bias; absence of graduate training and continuing education in quantitative and qualitative analyses as applied to decision-making, basic evaluation, and advocacy; and inadequate understanding of research and its application to services that target declining opportunity.
Originality/Value – The chapter elucidates the underdeveloped capacity of professional librarians to apply their aptitude, expertise, and professional values to one of the greatest challenges of our era – the decline of opportunity in the United States – and outlines steps that will support that goal.
In the summer of 1971 I found myself on a London‐bound train wondering why on earth I had said goodbye to my wife in order to spend a week on a DES course in group teaching methods at the Polytechnic of Central London. Didn't I have a research project to attend to? And what about those lecture notes? Could I really afford this week of eating too much food and talking to people I would probably never meet again! On arrival my mind was firmly made up — I could not afford the time, but it was too late to do anything about it. The reception at PCL eased my conscience a little but my first impressions of some of the course members dampened my spirits yet further. Surely I can't put up with a week of their company! And when I looked at the programme my feelings were reinforced. Who on earth was this fellow Rackham, down to talk about measuring behaviour on the first day? I hoped he would be some uninspiring unknown who would further reinforce my rapidly solidifying attitudes against the course. But Monday was a very different day. From the moment Neil Rackham was introduced I experienced an awful guilty feeling, for I realised that what he was going to talk about was so relevant to my own work. More importantly, what he actually did talk about was relevant, too. All those points about factual scoring, tally marks, ratio analysis of behavioural items, observed frequencies — why, was I not trying to do the same thing with my DMS students? Were not my colleagues and I doing group type activities on residential courses, and were we not always meeting to discuss ways of observing group behaviour and feeding back the information?
Travel motivation has received considerable attention in the tourism literature. Although motivation is only one variable explaining tourist behaviour, it is regarded as…
Travel motivation has received considerable attention in the tourism literature. Although motivation is only one variable explaining tourist behaviour, it is regarded as one of the most important. Hence, nature‐based tourism resources as non‐market goods or destination goods have their own economic value, which is frequently neglected. This paper seeks to examine this issue.
The Delphi study among tourism experts attempts to quantify the value and significance of nature and landscape for tourists’ travel motivation for vacations in the Tirol at present and in the future.
The survey shows that particularly in the summer season Nature/Landscape is the most important theme for summer vacation in the Tirol today and will be even more in 2020. Therefore, it clearly is one of the most essential travel motives in the eyes of the experts. Nature‐based vacation has a strong significance and value for the Tirol, with Nature ranging among the top three strengths in the Delphi survey.
The Tirol provides very good prerequisites with regard to nature and experts see high importance in natural resources in 2020 in winter and summer alike. This indicates that tourist providers have to continue producing nature‐based products, offers and attractions in order to meet the challenges of the market.
The current findings add to a growing body of literature on travel motivation and the findings will enhance the understanding of the significance and value of non‐market goods for travel decisions.
Reference librarians in various library settings are often assigned responsibilities for training students, support staff, or other new professionals, a task for which…
Reference librarians in various library settings are often assigned responsibilities for training students, support staff, or other new professionals, a task for which they rarely have sufficient professional education. This bibliography recommends readings on topics that will assist reference librarians in understanding the philosophy of staff development. The readings listed here cover subjects such as: establishing an atmosphere that facilitates learning, assessing training needs, describing competent performance, writing clear and specific objectives, selecting appropriate training methods, maintaining skills and providing feedback, and evaluating the effectiveness of a training program.
Purpose – This chapter will discuss how the positional self and prior experiences can influence the emotional self within the research journey, for example, being a…
Purpose – This chapter will discuss how the positional self and prior experiences can influence the emotional self within the research journey, for example, being a sibling and losing a sibling. It explores the researcher’s emotional experience when working with children and their families, with a specific focus on the influence of the researcher presence and the sibling equilibrium.
Methodology/Approach – The chapter draws on the dramaturgical social interactions encountered in qualitative research which explored the experiences of siblings living in the context of cystic fibrosis. The study uses narrative inquiry and creative participatory methods to elicit sibling stories and provides insight into their worlds.
Findings – The chapter reflects on specific situations encountered on entering, engaging in and leaving the field, which had a significant emotional impact. Two sibling vignettes will be presented along with a discussion of how reflective metaphorical expression can be applied as a method of processing and coping with the research context.
Originality/Value – The chapter argues that the positional self and prior experiences can influence the emotional self within the research journey, and that reflective metaphorical expression can be used as a strategy to process thoughts and gain greater understanding of a situation as well as to provide an emotional release for the researcher. It also suggests that conducting research over a longer time period, as opposed to one visit, can be beneficial in terms of participant and researcher emotional transition.