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1 – 10 of 45Mike Slade, Premila Trivedi, Ruth Chandler and Mary Leamy
The purpose of this paper is to consider the process of working with a Lived Experience Advisory Group (LEAP) and its outcomes in REFOCUS, a large five-year programme of…
Abstract
Purpose
The purpose of this paper is to consider the process of working with a Lived Experience Advisory Group (LEAP) and its outcomes in REFOCUS, a large five-year programme of recovery research.
Design/methodology/approach
Narrative reflections on the experience of working with LEAP were collected from five members and the chair of LEAP, two REFOCUS researchers and the principal investigator. These were synthesised to show both the process and outcomes of LEAP involvement in REFOCUS, and how involvement evolved organically over time.
Findings
Individual reflective accounts showed how working with LEAP impacted (to a greater or lesser extent) on each individual involved in the process, providing new insights and influencing, to varying degrees, the way in which they then worked with LEAP. Synthesis of the reflections showed how these changes impacted organically on LEAP’s process of involvement, with a shift in LEAP’s role from being purely consultative/advisory towards one which was much more about co-production, with LEAP pro-actively contributing to some aspects of REFOCUS in the later stages of the study.
Practical implications
The authors stress the importance of considering process as well as outcomes in patient and public involvement, and make practical recommendations for improving both in future programmes of research.
Originality/value
This is the first empirical evaluation of user and carer involvement and its development during a large recovery research programme.
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Glenn Roberts, John Good, James Wooldridge and Elina Baker
This paper aims to describe a review and overview of the issue of developing guidance on implementing recovery and supporting organisational change, focused specifically…
Abstract
Purpose
This paper aims to describe a review and overview of the issue of developing guidance on implementing recovery and supporting organisational change, focused specifically on seeking to clarify the many different contributions that “lived experience” could make to training and workforce development.
Design/methodology/approach
The particular focus of our workshop was to clarify the key issues in workforce development, training for a recovery‐focused service and the contribution of “lived experience”. A particular outcome was to emphasise the benefits of collaborative co‐working between people who use services and practitioners at all levels.
Findings
A key element of our learning has been in valuing collaborative co‐working and the synergism of personal experience, professional training, research and evaluation.
Originality/value
The paper draws out what lessons have been learned already and sketches guidance for future practice and service development.
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Helen Spandler and Mick McKeown
The purpose of this paper is to explore the case for a truth and reconciliation (T&R) process in the context of mental health services.
Abstract
Purpose
The purpose of this paper is to explore the case for a truth and reconciliation (T&R) process in the context of mental health services.
Design/methodology/approach
The approach is a conceptual review of T&R approaches; a consideration of why they are important; and how they might be applied in the context of mental health services and psychiatry. First, the paper sets out a case for T&R in psychiatry, giving some recent examples of how this might work in practice. Then it outlines potential objections which complicate any simplistic adoption of T&R in this context.
Findings
In the absence of an officially sanctioned T&R process a grassroots reparative initiative in mental health services may be an innovative bottom-up approach to transitional justice. This would bring together service users, survivors and refusers of services, with staff who work/ed in them, to begin the work of healing the hurtful effects of experiences in the system.
Originality/value
This is the first paper in a peer-reviewed journal to explore the case for T&R in mental health services. The authors describe an innovative T&R process as an important transitional step towards accomplishing reparation and justice by acknowledging the breadth and depth of service user and survivor grievances. This may be a precondition for effective alliances between workers and service users/survivors. As a result, new forms of dialogic communication and horizontal democracy might emerge that could sustain future alliances and prefigure the social relations necessary for more humane mental health services.
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Takashi Iseda, Kazuo Ogawa, Kenichi Hasegawa, Syudo Yamasaki, Atsushi Nishida and Geoff Shepherd
This paper aims to introduce Seikatsu Rinsho, a values-based approach to supporting recovery based on identifying service user values and aspirations that have been…
Abstract
Purpose
This paper aims to introduce Seikatsu Rinsho, a values-based approach to supporting recovery based on identifying service user values and aspirations that have been developed since 1958 in Japan where mental health services are still hospital-based and user involvement is not well-developed. This paper believes this will be of great implications for future practices around the world.
Design/methodology/approach
Hope is essential to recovery and that hope is dependent on identifying what service users really want for themselves (aspirations) and then ensuring that these are communicated to – and supported by – professionals and carers. This is achieved through examining the life events, which are likely to trigger relapse for a specific individual, the important choices that the person has made throughout his/her life course and the reasons behind them. Through a process of “co-production”, an attempt is made to understand the values expressed in these choices in the context of family history over several generations.
Findings
The attempt to examine both life events throughout the life course and family history over generations was found to be an effective way to understand a service user and his/her family and then support recovery. The cases where even people with severe and persistent mental health problems have successfully achieved full recovery have been accumulated.
Research limitations/implications
The limitations of the approach in the context of Japanese mental health services, and the necessity of additional evidence are acknowledged and some thoughts shall be given to future development.
Originality/value
Seikatsu Rinsho approach can provide a new angle to understand service users and family and a new way to support recovery.
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Dolly Sen, Sarah Morgan and Jerome Carson
The development of the recovery approach must mean a fundamental change in how mental health services see service users, for as the Social Perspectives Network paper…
Abstract
The development of the recovery approach must mean a fundamental change in how mental health services see service users, for as the Social Perspectives Network paper rhetorically asks, ‘Whose Recovery is it?’, it is, of course, the service users' (Social Perspectives Network, 2007). The recent influential Sainsbury Centre for Mental Health report, suggests that professionals need to move from a position of ‘being on top, to being on tap’ (Shepherd et al, 2008). Service users need to take a more central role in the whole recovery debate. One of the ways that this aim can be realised is by looking at ‘recovery heroes’. These are individuals whose journey of recovery can inspire both other service users and professionals alike.
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Fola Esan, Katie Case, Jacques Louis, Jemma Kirby, Lucinda Cheshire, Jannette Keefe and Maggie Petty
This paper aims to describe how a patient centred recovery approach was implemented in a secure learning disabilities service.
Abstract
Purpose
This paper aims to describe how a patient centred recovery approach was implemented in a secure learning disabilities service.
Design/methodology/approach
There are no specific tools for measuring recovery in a secure learning disabilities service. The Recovery Star; a measure of individual recovery was adopted for use among the patients. Staff underwent training on the use of the Recovery Star tool after which a multidisciplinary steering group made some modifications to the tool. Training was cascaded to staff throughout the service and use of the Recovery Star tool was embedded in the care programme approach process.
Findings
It was found that implementing a recovery approach with the Recovery Star tool was a beneficial process for the service but that services will require a whole systems approach to implementing recovery. Key workers working with patients thought that the structure of the Recovery Star tool opened up avenues for discussing topics covered in the domains of the Recovery Star tool which may otherwise have not been discussed as fully.
Practical implications
The availability of a tool, integrated into existing service processes, e.g. care programme approach and accompanied by a systems approach, equips patients and staff for articulating and measuring the recovery journey.
Originality/value
The paper shows that the Recovery Star tool, embedded in a care programme approach process, equips patients and staff for measuring the recovery journey.
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Rosie Elizabeth Allen, Jerome Carson, Bethany Merrifield and Stacey Bush
The purpose of this paper is to compare a group of service users with mental health problems with a community comparison group of gym attenders.
Abstract
Purpose
The purpose of this paper is to compare a group of service users with mental health problems with a community comparison group of gym attenders.
Design/methodology/approach
Cross-sectional questionnaire surveys were conducted at a large gym (n = 181) and two community mental health facilities (n = 127) in the Greater Manchester area using a convenience sample approach. All participants completed the PERMA Scale, a measure of flourishing.
Findings
Gym attenders scored significantly higher on the five elements of PERMA. Their physical health ratings were almost double. They also had significantly lower levels of negative emotions and loneliness and higher levels of overall happiness.
Research limitations/implications
This study only considered levels of flourishing. Previous studies of quality of life have shown similar disparities between people with mental health problems and others.
Practical implications
Professor Seligman has claimed that improving levels of flourishing is the main aim of positive psychology. The present study suggests this may be especially challenging for people with mental health problems.
Social implications
The concept of flourishing could provide a more positive non-medical focus for mental health services, in the development of what some have called positive psychiatry. This complements the current recovery model.
Originality/value
To the best of the authors’ knowledge, this is one of the first studies to compare flourishing levels between individuals with mental health problems and a community comparison group using the PERMA Scale.
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