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The purpose of this paper is to draw attention to the work of sociologists who laid the foundation for queer and crip approaches to disability and to address how queer and…
The purpose of this paper is to draw attention to the work of sociologists who laid the foundation for queer and crip approaches to disability and to address how queer and crip theory has and can help to re-conceptualize our understandings of health, illness, disability, and sexuality.
This paper is an examination of historical moments and prominent literature within medical sociology and sociology of disability. Sociological and popular understandings of disability and sexuality have often mirrored each other historically. Although this literature review focuses primarily on medical sociology and disability studies literature, some works of scholars specializing in gender studies, sexuality, literature, history, and queer studies are also included
In this paper, I argue that the medicalization and pathologization of human differences specifically as it pertains to sexuality and disability within the medical sociological literature have led to constructionist, social model, and feminist critiques. It is these critiques that then laid the foundation for the development of queer and crip theoretical approaches to both disability and sexuality.
Crip and queer approaches to disability provide a clear call for future sociological research. Few social science scholars have applied queer and crip approaches in empirical studies on disability. The majority of work in this area is located in the humanities and concerned with literary criticism. A broader array of empirical work on the intersection of sexuality and disability from queer/crip perspectives is needed both to refine these postmodern theoretical models and to examine their implications for the complex lived experience that lies at the intersection of sexuality and disability. In queering disability and cripping sexuality and gender, we may be able not only to more fully conceptualize disability, sexuality, and gender as individual social categories, but also to more fully understand the complex intersection of these social locations.
Rebecca Gasior Altman is a graduate student in the Department of Sociology at Brown University. Her focus is on medical sociology, environmental sociology, organizational theory, and social movement theory. Her current research projects analyze narratives about community toxics activism, environmental advocacy support organizations, and medical waste.Phil Brown is Professor of Sociology and Environmental Studies at Brown University. He is currently examining disputes over environmental factors in asthma, breast cancer, and Gulf War-related illnesses, as well as toxics reduction and precautionary principle approaches that can help avoid toxic exposures. He is the author of No Safe Place: Toxic Waste, Leukemia, and Community Action (Phil Brown & Edwin Mikkelsen), co-editor of a collection, Illness and the Environment: A Reader in Contested Medicine, and editor of Perspectives in Medical Sociology.Daniel M. Cress is Associate Professor of Sociology in the Department of Behavioral and Social Sciences at Western State College of Colorado. His research and teaching interests include social movements – particularly among poor and marginalized groups, environmental sociology, and globalization. His published work has focused on protest activity by homeless people.Jennifer Earl is an Assistant Professor of Sociology at the University of California, Santa Barbara. Her research areas include social movements and the sociology of law, with research emphases on the social control of protest, social movement outcomes, Internet contention, and legal change. Her published work has appeared in a number of journals, including the American Sociological Review, Sociological Theory, and the Journal of Historical Sociology.Myra Marx Ferree is professor of Sociology at the University of Wisconsin-Madison. Her work on social movements has focused on women’s mobilizations and organizations in Germany, the U.S., and transnationally, most recently looking at interactions between American and Russian feminists (Signs, 2001), German and American abortion discourses and the definition of radicalism (AJS, 2003), and the European Women’s Lobby in relation to transnational women’s organizations on the web (Social Politics, 2004).Joshua Gamson is Associate Professor of Sociology at the University of San Francisco. He is author of Freaks Talk Back: Tabloid Talk Shows and Sexual Nonconformity (Chicago, 1998), Claims to Fame: Celebrity in Contemporary America (California, 1994), and numerous articles on social movements, gay and lesbian politics, popular culture and media. He is currently working on a biography of the disco star Sylvester.Teresa Ghilarducci is Associate Professor of Economics and Director of the Higgins Labor Research Center at the University of Notre Dame. She is author of Labor’s Capital: The Economics and Politics of Private Pensions (MIT Press) and Portable Pension Plans for Casual Labor Markets: Lessons from the Operating Engineers Central Pension Fund (with Garth Mangum, Jeffrey S. Petersen & Peter Philips). She is a former Board of Trustees member of the Indiana Public Employees Retirement Fund, a former advisory board member for the Pension Benefit Guaranty Corporation, and a Fellow of the National Academy of Social Insurance.Brian Mayer is a doctoral student in the Sociology Department at Brown University. His interests include environmental and medical sociology, as well as science and technology studies. His recent projects include an investigation of the growth of the precautionary principle as a new paradigm among environmental organizations and a study of social movements addressing environmental health issues.Sabrina McCormick is a doctoral student in the Department of Sociology at Brown University. She is a Henry Luce Foundation Fellow through the Watson Institute of International Studies. Her main interests are environmental sociology, medical sociology, and the politics of development. As a Luce Fellow, she is engaged in comparing environmentally-based movements in the U.S. and Brazil. Additional special interests include the social contestation of environmental illness, the insertion of lay knowledge into expert systems, and the role of social movements in these struggles. She has recent publications by Ms. Magazine and The National Women’s Health Network related to these areas.Rachel Morello-Frosch is an assistant professor at the Center for Environmental Studies and the Department of Community Health, School of Medicine at Brown University. As an environmental health scientist and epidemiologist, her research examines race and class determinants of the distribution of health risks associated with air pollution among diverse communities in the United States. Her current work focuses on: comparative risk assessment and environmental justice, developing models for community-based environmental health research, children’s environmental health, and the intersection between economic restructuring and environmental health. Her work has appeared in Environmental Health Perspectives, Risk Analysis, International Journal of Health Services, Urban Affairs Review, Annals of the American Academy of Political and Social Sciences, and Environment and Planning C. She also sits on the scientific advisory board of Breast Cancer Action in San Francisco.Daniel J. Myers is Associate Professor, Chair of Sociology, and Fellow of the Kroc Institute for International Peace Studies at the University of Notre Dame. He has published work on collective violence, racial conflict, formal models of collective action, urban poverty, and the diffusion of social behavior in the American Sociological Review, American Journal of Sociology, Journal of Conflict Resolution, and Mobilization. He is also author of Toward a More Perfect Union: The Governance of Metropolitan America and The Future of Urban Poverty (both with Ralph Conant), and Social Psychology (5th edition) with Andy Michener and John Delamater. He is currently conducting a National Science Foundation-funded project examining the structural conditions, diffusion patterns, and media coverage related to U.S. racial rioting in the 1960s.Sharon Erickson Nepstad is Assistant Professor of Sociology at Duquesne University and the author of Convictions of the Soul: Religion, Culture, and Agency in the Central America Solidarity Movement (Oxford University Press, 2004).Francesca Polletta is Associate Professor of Sociology at Columbia University. She is the author of Freedom Is an Endless Meeting: Democracy in American Social Movements (University of Chicago, 2002) and editor, with Jeff Goodwin and James M. Jasper, of Passionate Politics: Emotions and Social Movements (University of Chicago, 2001). She has published articles on culture, collective identity, emotions, law, and narrative in social movements, and on the civil rights, women’s liberation, new left, and contemporary anti-corporate globalization movements.Nicole C. Raeburn is Assistant Professor and Chair of Sociology at the University of San Francisco. She is the author of the book, Changing Corporate America from Inside Out: Lesbian and Gay Workplace Rights (University of Minnesota Press, 2004). Her new research project compares the adoption of gay-inclusive workplace policies in the corporate, educational, and government sectors.Leila J. Rupp is Professor and Chair of Women’s Studies at the University of California, Santa Barbara. A historian by training, her teaching and research focus on sexuality and women’s movements. She is coauthor with Verta Taylor of Drag Queens at the 801 Cabaret (2003) and Survival in the Doldrums: The American Women’s Rights Movement, 1945 to the 1960s (1987) and author of A Desired Past: A Short History of Same-Sex Sexuality in America (1999), Worlds of Women: The Making of an International Women’s Movement (1997), and Mobilizing Women for War: German and American Propaganda, 1939–1945 (1978). She is also editor of the Journal of Women’s History.David A. Snow is Professor of Sociology at the University of California, Irvine. He taught previously at the universities of Arizona and Texas. He has authored numerous articles and chapters on homelessness, collective action and social movements, religious conversion, self and identity, framing processes, symbolic interactionism, and qualitative field methods; and has authored a number of books as well, including Down on Their Luck: A Study of Homeless Street People (with Leon Anderson), Shakubuku: A Study of the Nichiren Shoshu Buddhist Movement in America, 1960–1975, and The Blackwell Companion to Social Movements (edited with Sarah Soule & Hanspeter Kriesi). His most current research project involves an NSF-funded interdisciplinary, comparative study of homelessness in four global cities (Los Angeles, Paris, São Paulo, and Tokyo).Sarah A. Soule is an Associate Professor of Sociology at the University of Arizona. Her research examines U.S. state policy change and diffusion and the role social movements have on these processes. Current projects include the NSF-funded “Dynamics and Diffusion of Collective Protest in the U.S.” from which data for this paper come; an analysis of state-level contraception and abortion laws; an analysis of state ratification of the Equal Rights Amendment; and an analysis of state-level same-sex marriage bans. She has recently completed an edited volume, The Blackwell Companion to Social Movements, with David Snow and Hanspeter Kreisi.Verta A. Taylor is Professor of Sociology at the University of California, Santa Barbara. She is coauthor with Leila J. Rupp of Drag Queens at the 801 Cabaret (University of Chicago Press) and Survival in the Doldrums : The American Women’s Rights Movement, 1945 to the 1960s (Oxford University Press); co-editor with Laurel Richardson and Nancy Whittier of Feminist Frontiers VI (McGraw-Hill); and author of Rock-a-by Baby: Feminism, Self-Help and Postpartum Depression (Routledge). Her articles on the women’s movement, the gay and lesbian movement, and social movement theory have appeared in journals, such as The American Sociological Review, Signs, Social Problems, Mobilization, Gender & Society, Qualitative Sociology, Journal of Women’s History, and Journal of Homosexuality.Nella Van Dyke is currently an Assistant Professor in the Sociology Department at Washington State University. Her research focuses on the dynamics of student protest, social movement coalitions, hate crimes, and the factors influencing right-wing mobilization. Her recent publications include articles in Social Problems and Research in Political Sociology. She is currently conducting research on the AFL-CIO’s Union Summer student internship program and its influence on student protest, how the tactics of protest change over time, and how movement opponents influence the collective identity of gay and lesbian movement organizations.Stephen Zavestoski is an Assistant Professor of Sociology at the University of San Francisco. His current research examines the role of science in disputes over the environmental causes of unexplained illnesses, the use of the Internet as a tool for enhancing public participation in federal environmental rulemaking, and citizen responses to community contamination. His work appears in journals such as Science, Technology & Human Values, Journal of Health and Social Behavior, Sociology of Health and Illness, and in the book Sustainable Consumption: Conceptual Issues and Policy Problems.
The chapters PJ McGann and David J. Hutson have assembled for this volume are not only timely, coinciding with the appearance of DSM-V, but mark a defining moment in which a new subfield of medical sociology has emerged. Diagnosis, which refers both to diagnostic categories and the process of creating and applying them, is a central feature (Blaxter, 1978) – if not the central feature of medical work. Annemarie Jutel, who has done much to build the sociology of diagnosis, has described the wide array of “work” diagnosis performs in the medical world:Diagnosis is integral to medicine and the way it creates social order. It organizes illness: identifying treatment options, predicting outcomes, and providing an explanatory framework. Diagnosis also serves an administrative purpose as it enables access to services and status, from insurance reimbursement to restricted-access medication, sick leave and support group membership and so on… (Jutel, 2009, p. 278)
Purpose – This chapter presents a case for reframing medical sociology to focus on diagnosis as a pivotal category of analysis via an extended literature review of the diagnosis as a tool of medicine.
Methodology/approach – Conceptual overview.
Practical implications – By reviewing the range of social functions served by diagnosis, and the similarly wide assortment of social forces that shape diagnostic categories, this chapter pushes social scientists and theorists to consider diagnosis as a cornerstone to the understanding of health, illness, and disease.
Originality/value of paper – Building on Brown's earlier call for a sociology of diagnosis, this chapter sets forth potential parameters for this field. It defines how the study of diagnosis is dissipated across myriad areas of scholarship, including medicalization, disease theory, ethics, classification theory, and history of medicine. Extirpating diagnosis and revealing it for specific discussion provides an opportunity to study topics such as illness experiences, health social movements, and disease recognition from a different and rich perspective.
Knowledge integration is the process of building shared mental models. The integration of the diverse knowledge of the health professions in shared mental models is a…
Knowledge integration is the process of building shared mental models. The integration of the diverse knowledge of the health professions in shared mental models is a precondition for effective teamwork and team performance. As it is known that different groups of health care professionals often tend to work in isolation, the authors compared the perceptions of knowledge integration. It can be expected that based on this isolation, knowledge integration is assessed differently. The purpose of this paper is to test these differences in the perception of knowledge integration between the professional groups and to identify to what extent knowledge integration predicts perceptions of teamwork and team performance and to determine if teamwork has a mediating effect.
The study is a multi-center cross-sectional study with a descriptive-explorative design. Data were collected by means of a staff questionnaire for all health care professionals working in the rehabilitation clinics.
The results showed that there are significant differences in knowledge integration within interprofessional health care teams. Furthermore, it could be shown that knowledge integration is significantly related to patient-centered teamwork as well as to team performance. Mediation analysis revealed partial mediation of the effect of knowledge integration on team performance through teamwork.
In practice, the results of the study provide a valuable starting point for team development interventions.
This is the first study that explored knowledge integration in medical rehabilitation teams and its relation to patient-centered teamwork and team performance.
The purpose of this paper is to provide a literature review of investigations into the specific disability of deafness in the field of sociology and other closely related fields.
The purpose of this paper is to provide a literature review of investigations into the specific disability of deafness in the field of sociology and other closely related fields.
After a pilot search using databases appropriate to social science research, we developed key search terms and, using an inductive approach, we identified major themes in the literature.
Our review shows that deafness has been investigated for a long time in sociology and other related fields, that there is a wide range of themes in scholarly work on the experiences of deaf communities and deaf people, and that conceptualizations of deafness and d/Deaf communities have changed over time. We organize this paper around six major themes we identified, and a few highlighted pieces of scholarship illustrate these themes along the way. We particularly focus on scholarship from the late 1960s through the early 1990s as emblematic of seismic shifts in studying deafness, although we do highlight little known nineteenth century work as well.
This paper captures the legacy of this past scholarship and reveals that deafness is a rich site of inquiry that can contribute to the field of sociology. It is also a valuable resource for any future sociological research into deafness, deaf people, and deaf communities. We conclude with a discussion of our findings, commentary on the extent to which previous scholarship on the sociology of deafness has or has not figured into current scholarship and suggestions for future research.
Medical uncertainty is recognized as a critical issue in the sociology of diagnosis and medical sociology more generally, but a neglected focus of this concern is the…
Medical uncertainty is recognized as a critical issue in the sociology of diagnosis and medical sociology more generally, but a neglected focus of this concern is the question of patient decision making. Using a mixed methods approach that draws upon autoethnographic accounts and third-party interviews, we aim to illuminate the dilemmas of patient decision making in the face of uncertainty. How do patients and supportive caregivers go about navigating this state of affairs? What types of patient–doctor/healthcare professional relationships hinder or enhance effective patient decision making? These are the themes we explore in this study by following patients through the sequence of experiencing symptoms, seeking a diagnosis, evaluating treatment protocols, and receiving treatments. In general, three genres of culturally available narratives are revealed in the data: strategic, technoluxe, and unbearable health narratives.