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Article
Publication date: 15 May 2017

Juliet Harland, Peter A. Bath, Ann Wainwright and Jeremy Seymour

The purpose of this paper is to investigate the information behaviours of patients newly diagnosed with dementia.

Abstract

Purpose

The purpose of this paper is to investigate the information behaviours of patients newly diagnosed with dementia.

Design/methodology/approach

This is a cross-sectional qualitative study, using in-depth interviews with 13 people recently diagnosed with dementia.

Findings

Reactions to a diagnosis of dementia varied and these influenced the perception of the value of information when making sense of the diagnosis. Information was avoided if participants did not feel that they could influence their situation; instead, participants relied on internal explanations to normalise their memory loss. Barriers to information seeking and use included not knowing who to speak to, perceived stigma associated with dementia and difficulty of applying generic information to own situation. Some participants valued information that confirmed their suspicions and provided explanations.

Research limitations/implications

This study was based on a small sample size (n=13), the findings may not be generalisable to all people with dementia; however, the findings may be transferable to people who have recently been diagnosed with dementia.

Practical implications

There is not a one-size-fits-all approach to information provision for people with dementia at diagnosis, information should be tailored to individuals.

Social implications

There is a need to address the feeling of powerlessness and futility that some people with dementia experience at diagnosis, as this precludes independent information seeking and use. People receiving a diagnosis may need additional support and information pertinent to their specific circumstances, separate from the information needs of their carer(s).

Originality/value

The study provides a new understanding of the information behaviours of people recently diagnosed with dementia and how these differ from those of informal carers.

Details

Aslib Journal of Information Management, vol. 69 no. 3
Type: Research Article
ISSN: 2050-3806

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Book part
Publication date: 29 August 2018

Matt Bolton and Frederick Harry Pitts

Abstract

Details

Corbynism: A Critical Approach
Type: Book
ISBN: 978-1-78754-372-0

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Abstract

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Trump Studies
Type: Book
ISBN: 978-1-78769-779-9

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Book part
Publication date: 29 August 2018

Matt Bolton and Frederick Harry Pitts

Abstract

Details

Corbynism: A Critical Approach
Type: Book
ISBN: 978-1-78754-372-0

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Book part
Publication date: 30 September 2021

Mike O'Donnell

Abstract

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Crises and Popular Dissent
Type: Book
ISBN: 978-1-80043-362-5

Content available
Book part
Publication date: 6 January 2020

Óscar García Agustín

Abstract

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Left-Wing Populism
Type: Book
ISBN: 978-1-83909-203-9

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Abstract

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Crises and Popular Dissent
Type: Book
ISBN: 978-1-80043-362-5

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Abstract

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Histories of Economic Thought
Type: Book
ISBN: 978-0-76230-997-9

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Abstract

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Understanding Brexit
Type: Book
ISBN: 978-1-78714-679-2

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Book part
Publication date: 23 November 2018

Tara Brabazon, Steve Redhead and Runyararo S. Chivaura

Abstract

Details

Trump Studies
Type: Book
ISBN: 978-1-78769-779-9

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