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Article
Publication date: 19 June 2023

Efpraxia D. Zamani, Laura Sbaffi and Khumbo Kalua

The aim of this study was to address the unmet information needs of Malawian informal carers. We report on a three-year project which we co-created with informal carers, medical…

Abstract

Purpose

The aim of this study was to address the unmet information needs of Malawian informal carers. We report on a three-year project which we co-created with informal carers, medical doctors and NGOs with the view to disseminate health advisory messages.

Design/methodology/approach

This study was developed on the principles of co-production. The impact of our health advisory messaging approach was assessed through observations and questionnaire-based surveys for quality, clarity and usefulness.

Findings

The messages were disseminated beyond the local support groups and reached a much wider community via word of mouth. The messages also led to short and medium term benefits for informal carers and their loved ones.

Originality/value

Our findings highlight the importance of understanding the contextual conditions of informal caring and that of co-producing interventions with the people these aim to benefit.

Details

Journal of Documentation, vol. 80 no. 1
Type: Research Article
ISSN: 0022-0418

Keywords

Content available
Book part
Publication date: 4 October 2023

Alisoun Milne and Mary Larkin

Abstract

Details

Family Carers and Caring
Type: Book
ISBN: 978-1-80043-346-5

Article
Publication date: 6 February 2023

Rachel Crossdale and Lisa Buckner

Since the start of the Carers’ Movement research into unpaid care and carers has been used to advocate for policy change. The purpose of this paper is to address the changes in…

Abstract

Purpose

Since the start of the Carers’ Movement research into unpaid care and carers has been used to advocate for policy change. The purpose of this paper is to address the changes in research into unpaid care and carers since the start of the Carers’ Movement and to explore the relationship between these changes and social policy.

Design/methodology/approach

This research paper is based on a qualitative study of documents within the Carers UK archive.

Findings

Research into unpaid care and carers has changed focus from caregiving as an identity and lifestyle to an interruption to “normal” life and employment. Changes in research are intertwined with changes in policy, with research evidencing advocation for policy change and policy change fuelling further research. Changes in the methodology of this research exposes transition points in the Carers’ Movement and in social research more broadly.

Practical implications

This paper contributes to critical understandings of the relationship between research into unpaid care and caring and policy. The paper also contributes to debates on methodology, exploring how the methodological zeitgeist presents in archived research.

Social implications

Understanding how current research into unpaid care and carers has been developed and acknowledging the role of policy in research development brings available data on unpaid care and caring under scrutiny.

Originality/value

This paper is original in developing a critical analysis of the relationship between research into unpaid care and carers and social policy.

Details

International Journal of Sociology and Social Policy, vol. 43 no. 11/12
Type: Research Article
ISSN: 0144-333X

Keywords

Article
Publication date: 21 July 2023

Julie Feather

This paper aims to provide a response to the previously published paper on “Gerontocracy”.

Abstract

Purpose

This paper aims to provide a response to the previously published paper on “Gerontocracy”.

Design/methodology/approach

This paper views care services through the lens of safeguarding, risks and responsibility in contradistinction from the largely economic and cost relevant argument put forward in the original paper.

Findings

This paper articulates the contribution of informal carers to integrated care solutions solely from an economic perspective overlooks the wider human and social dimensions of care provision in society.

Originality/value

Engaging in the wider debate about the status, contribution of informal carers to care solutions highlights the complexity of the carers' role in society which should evoke a more holistic debate of this important topic.

Details

Journal of Integrated Care, vol. 31 no. 3
Type: Research Article
ISSN: 1476-9018

Keywords

Abstract

Details

Occupational Therapy With Older People into the Twenty-First Century
Type: Book
ISBN: 978-1-83753-043-4

Article
Publication date: 15 August 2022

Sarah Marie Nogues and Diane-Gabrielle Tremblay

As employed carers tend to experience work interruptions and conflict between work and care, especially women, this paper aims to assess the availability and accessibility of…

Abstract

Purpose

As employed carers tend to experience work interruptions and conflict between work and care, especially women, this paper aims to assess the availability and accessibility of carer-friendly workplace policies (CFWPs) in Quebec workplaces.

Design/methodology/approach

An online survey was distributed to members of the Association of Human Resources Management Counsellors in Quebec. The authors used a validating quantitative data design. The data was collected between October 2019 and the end of February 2020 and the questionnaire yielded 122 valid responses.

Findings

Adult/elder care responsibilities remain systematically perceived less important than childcare or general work-life balance needs. The current distribution of CFWPs within Quebec workplaces is unlikely to ensure carers sufficient support to prevent or significantly mitigate negative repercussions. Notable differences were found between organization type and size.

Practical implications

There is a need for expanding CFWPs through increased support services, educational workshops, broader access to flexible work arrangements and manager training.

Social implications

The results support recent research findings pointing that women with caring responsibilities face important opportunity costs and risk falling in precariousness. Carers should be able to maintain a social income from other sources to compensate a reduced activity on the labor market.

Originality/value

By investigating the availability of CFWPs in Quebec workplaces, this paper adds insights regarding the availability and access to CFWPs regionally and in small and medium size workplaces, rather than identifying best practice from workplaces across the globe. Workplace policies are analyzed for adult/elder care specifically.

Details

International Journal of Sociology and Social Policy, vol. 43 no. 5/6
Type: Research Article
ISSN: 0144-333X

Keywords

Abstract

Details

The Disabled Tourist: Navigating an Ableist Tourism World
Type: Book
ISBN: 978-1-80455-829-4

Open Access
Article
Publication date: 24 October 2023

Barbara Gösenbauer

The comment addresses the idea of substituting professional elder care with informal care provided by early retirees to save economic costs.

163

Abstract

Purpose

The comment addresses the idea of substituting professional elder care with informal care provided by early retirees to save economic costs.

Design/methodology/approach

The comment arose from reading “How to handle gerontocracy”, scientific research and critical, analytical thinking.

Findings

While having early pensioners deliver elderly care has positive implications, substituting professional with informal care must be challenged. First, the “unused reservoir” of early pensioners might be overestimated, as they often already have care responsibilities. Second, the substitution of professional services is already happening due to staff shortages. Third, untrained caregivers might struggle to provide the needed care quality, resulting in worse health outcomes (and higher follow-up costs). Finally, there are concerns of social sustainability: because of role expectations, mainly women may take on care tasks, reinforcing social inequality. Also, the third sector might lose hours of volunteer work.

Originality/value

The comment appeals to a critically rethinking of the idea of substituting professional services with informal care provision and argues for differentiated and well-tailored policy measures, taking into account the complex nature of (informal) caregiving.

Details

Journal of Integrated Care, vol. 31 no. 5
Type: Research Article
ISSN: 1476-9018

Keywords

Article
Publication date: 9 January 2024

Abd Alhadi Hasan and Amal Alsulami

The study aims to identify the predictors of depression and anxiety among carers of hospitalized patients with mental illness in Eradah Complex for Mental Health Hospital.

Abstract

Purpose

The study aims to identify the predictors of depression and anxiety among carers of hospitalized patients with mental illness in Eradah Complex for Mental Health Hospital.

Design/methodology/approach

A descriptive correlational study design was conducted using a convenient sample of family carers of patients with mental illness (N = 216). The study used the Beck Depression Inventory and Anxiety Inventory scales.

Findings

The results of regression models revealed that the socio-demographic characteristics of the family carers showed that age is a statistically significant predictor of family carers depression and anxiety scores. In addition, the age of the family carers explained 36% of the variance in the family carers depression and anxiety scores, while marital status explained 64% of the total variance in the family carers’ depression and anxiety scores. Furthermore, having received support in caring significantly predicted depression and anxiety scores, and this was the case for occupation status and being diagnosed with any form of chronic illness.

Practical implications

Based on the findings of this study, the authors opine that evaluations of carers’ cognitive strategies and social support are needed to determine the risk of depression in carers of mental patients.

Originality/value

This study is the one of the limited studies conducted in Saudi Arabia to identify predictor of depression and anxiety among caregivers of hospitalized patients with mental illness. The study has used a validated scales to assess the main study outcomes.

Details

Mental Health and Social Inclusion, vol. ahead-of-print no. ahead-of-print
Type: Research Article
ISSN: 2042-8308

Keywords

Book part
Publication date: 24 November 2023

Rahena Mossabir

Exploring subjective experiences of people living with dementia through qualitative research has become increasingly common in recent decades. Nonetheless, researchers have shared…

Abstract

Exploring subjective experiences of people living with dementia through qualitative research has become increasingly common in recent decades. Nonetheless, researchers have shared a number of ethical challenges in involving people living with dementia in research. A concept that has been influential in discussions about ethics within the field of dementia care, in particular, is person-centredness. A person-centred approach reflects values of respect for personhood and the rights of a person and of building mutual trust and understanding. This chapter presents my experience of adopting person-centred ethical practices in a sensory ethnographic study involving older adults living with dementia. I highlight person-centred ethical considerations at the design stage of my study and occasions during the conduct of my research when research methods and processes were adapted to further meet the needs of the participants. A person-centred approach required that I continually assessed the need to make ethical decisions in every aspect of the research process throughout its duration. Building and drawing on positive researcher–participant relationships to inform those decisions and an adaptable research design allowing research practices to be adapted in situ were therefore essential.

Details

Ethics and Integrity in Research with Older People and Service Users
Type: Book
ISBN: 978-1-80455-422-7

Keywords

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