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Book part
Publication date: 25 November 2019

J. Dalton Stevens

To understand how young men with disabilities react against overarching narratives of independence during the transition to adulthood in independent living and interdependent…

Abstract

Purpose

To understand how young men with disabilities react against overarching narratives of independence during the transition to adulthood in independent living and interdependent living arrangements with parents in order to address the gap between transition policy and real lived experience.

Methods/Approach

I use life history interviews and ethnographic “go-alongs” with nine men with mobility impairments to understand how they experience and make sense of independent living and interdependence during the transition to adulthood. Transcripts and field notes were analyzed using grounded theory methodology.

Findings

Data reveal diverging pathways participants took to interdependent living situation, rooting before transition, and returning during transition. These pathways are shaped by logics of residential decision-making: accessibility expectations and individual adaptability. Those who rooted before transition developed accessibility expectations that motivated them to remain living their parents’ homes while those who returned during transition relied on individual adaptability to overcome physical inaccessibility. Individual adaptability did not overcome inaccessibility – all returned to their parents’ homes. Pathways shape how each group of participants experienced and made sense of interdependent living arrangements and independent living. Those who rooted before transition found interdependence to be a route to increased independence, and did not consider independent living a marker of adulthood. Those who returned during transition found that the interdependence they experienced increased feelings of dependence.

Implications/Value

Experiences and meanings emerging adults with disabilities have during the transition to adulthood reveal the complexity of interdependence and independent living. The pathways and the social forces shaping those pathways to interdependent living arrangements have implications for life course theory and disability policy.

Details

New Narratives of Disability
Type: Book
ISBN: 978-1-83909-144-5

Keywords

Article
Publication date: 1 August 2007

Melanie Henwood and Bob Hudson

At a time when there is much debate about the nature of self‐directed support and the development of individual budgets, the role of the Independent Living Funds comes into…

Abstract

At a time when there is much debate about the nature of self‐directed support and the development of individual budgets, the role of the Independent Living Funds comes into question. This article reports on the findings of an independent review of the ILF undertaken for the Department for Work and Pensions. It is argued that, while in many ways ahead of its time at its creation in 1988, the ILF is no longer at the leading edge of policy and practice in supporting independent living such as have been promoted under the auspices of In Control.There is much that can be done to improve the operation of the ILF and the experience which people have of using it, and the report made multiple recommendations for change. However, in the longer term the case is made that the ILF should not have an ongoing and separate existence, and there is a presumption of full incorporation within individualised budgets.

Details

Journal of Integrated Care, vol. 15 no. 4
Type: Research Article
ISSN: 1476-9018

Keywords

Article
Publication date: 7 June 2013

Kate Karban, Caroline Paley and Kim Willcock

The purpose of this paper is to present results from an evaluation of the experience of a move to independent living for people with mental health needs or a learning disability…

Abstract

Purpose

The purpose of this paper is to present results from an evaluation of the experience of a move to independent living for people with mental health needs or a learning disability. The discussion focuses on the shift in organisational culture from providing care within a hostel setting to supporting people in their own tenancies.

Design/methodology/approach

The evaluation was underpinned by a participatory action research design. A total of ten co‐researchers with experience of using services or as carers were recruited. Qualitative data was obtained from “before” and “after” interviews with residents, staff and relatives.

Findings

Widespread satisfaction was expressed with people's new homes. Many residents were found to be increasingly independent. There was some evidence of concerns regarding the pace and process of change and the introduction of new practices to promote independence.

Research limitations/implications

The timing of the evaluation limited the opportunity for comprehensive “before” and “after” data collection. The involvement of co‐researchers required considerable time and support although the experience of those involved was positive.

Practical implications

Learning from this evaluation emphasises the importance of support and preparation for staff as well as residents, in moving from hostel to independent living.

Social implications

This study highlights the advantages of a participatory design in evaluating a major change in service delivery.

Originality/value

This paper raises important issues about organisational change. It contributes to wider debates regarding the implementation of personalisation and recovery‐focused agendas.

Details

Housing, Care and Support, vol. 16 no. 2
Type: Research Article
ISSN: 1460-8790

Keywords

Article
Publication date: 17 October 2023

Teresa June Atkinson, Rebecca Oatley and Simon Evans

The purpose of this paper is to report on a scoping review of the advantages and challenges of extra care housing (ECH) provision in the UK for people living with dementia. Access…

Abstract

Purpose

The purpose of this paper is to report on a scoping review of the advantages and challenges of extra care housing (ECH) provision in the UK for people living with dementia. Access to suitable housing is a fundamental right for people living with dementia and can enable people to live as well as possible (Twyford and Porteus, 2021). Understanding the advantages and disadvantages of different models of housing with care has been identified as a research priority by people living with dementia (Barrett et al., 2016) but “there is no current consensus on the best model of specialist housing for people with dementia” (Twyford and Porteus, 2021, p. 29).

Design/methodology/approach

This scoping review identifies the advantages and disadvantages of living in ECH for people with dementia. It is the preliminary stage of a study that seeks to develop knowledge about different models of ECH for people living with dementia (Atkinson et al., 2021).

Findings

Advantages include the promotion of independence, flexible staffing, safety and security, social inclusion, physical design and integrated service provision. Disadvantages include barriers to entry, tensions between independence and support, managing advanced dementia, resourcing flexible care, managing social exclusion, loneliness and stigma and a disabling environment.

Research limitations/implications

The scoping review reinforces the need for further research into different models of ECH provision in the UK for people living with dementia. The review provides insight that is of benefit to all stakeholders involved in ECH and contributes to the development of evidence-based provision called for in the recent All Party Parliamentary Group inquiry (Twyford and Porteus, 2021).

Originality/value

This scoping review summarises the current position for people living with dementia in ECH.

Details

Housing, Care and Support, vol. 26 no. 3/4
Type: Research Article
ISSN: 1460-8790

Keywords

Article
Publication date: 5 November 2020

Xin Hu

The majority of older Australians prefer living in their own home. Home modifications support older adults' ageing-in-place through mitigating environmental hazards of their home…

Abstract

Purpose

The majority of older Australians prefer living in their own home. Home modifications support older adults' ageing-in-place through mitigating environmental hazards of their home, and there is an increased interest in modifying older adults' residential environment in sustainable ways. However, an in-depth understanding of sustainability perceptions of home modification service providers (HMSPs) is lacking in Australia. Thus, the study aims to address this research gap.

Design/methodology/approach

Qualitative content analysis was adopted to identify sustainability perceptions through analyzing the retrieved home modification business information from the selected HMSPs' official websites. The results of qualitative content analysis were further analyzed by using independent-samples t-test and chi-square contingency table analysis to investigate the relationships between HMSP type and sustainability.

Findings

In total, 54 sustainability perceptions were identified, with the crucial ones being safe living environment, independent living and service diversity. Overall, there are no significant differences in sustainability perceptions between charitable and non-charitable HMSPs. Nevertheless, charitable HMSPs place more importance on social sustainability in comparison with non-charitable HMSPs.

Originality/value

The study results facilitate understanding about HMSPs' sustainability perceptions and sustainable home modifications in the ageing society, which facilities theory advancement and industry practice in the home modification area.

Details

Engineering, Construction and Architectural Management, vol. 28 no. 9
Type: Research Article
ISSN: 0969-9988

Keywords

Article
Publication date: 16 May 2009

Bishnu Sharma, Michael Harker, Debra Harker and Karin Reinhard

This aim of this study is to investigate whether food choice varies by the place of residence (dependent or independent) of a group of young adults.

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Abstract

Purpose

This aim of this study is to investigate whether food choice varies by the place of residence (dependent or independent) of a group of young adults.

Design/methodology/approach

A self‐administered questionnaire was used to collect quantitative data from 305 German students between the ages of 18 to 24 years.

Findings

It was found that students who lived in the family home consumed more helpings of both fruit and vegetables each day, compared with young adults who lived independently. Further, higher proportions of dependent students ate more servings of every food group each day compared with their independent counterparts. It was also found that there is a significant difference in mood, weight concern and attitudes towards healthy eating between students under 21‐years‐old and those above 21‐years‐old.

Research limitations/implications

The research was a cross‐sectional study of a selected group of German university students from a single campus that was based on a quota sample and assessed self‐reported behaviour on a self‐administered questionnaire. While the limitations associated with these aspects of research design affect the generalizability of the findings, they, nonetheless, do not detract from the strengths and novelty of the research.

Practical implications

In terms of education, campaigns may consider focusing on improving the attitude toward healthy eating among young German adults who live in a dependent arrangement within the family home, perhaps encouraging the young adult to be an influencer in food purchases. Furthermore, it is suggested that social marketing campaigns that educate young adults about food‐related activities, such as budgeting, preparation and cooking, in readiness for, or in the early stages of, their transition to independent living would yield positive results. The motivation component of social marketing may also be informed by the research findings. Specifically, persuasive messages that correspond with Sheth and Frazier's inducement process may encourage healthier eating.

Originality/value

Being a relatively unexplored area, the findings are novel and provide valuable insights for the implementation of an inducement process for planned social change as well as informing the education and motivation elements of intervention strategies.

Details

British Food Journal, vol. 111 no. 5
Type: Research Article
ISSN: 0007-070X

Keywords

Book part
Publication date: 26 November 2019

Emily C. Bouck and Jiyoon Park

Transition is important to all students but especially important to students with intellectual disability who may need additional supports throughout their vertical transitions in…

Abstract

Transition is important to all students but especially important to students with intellectual disability who may need additional supports throughout their vertical transitions in education. This chapter discusses different vertical transitions students with intellectual disability face in education, with particular attention to the movement from high school to adult life. Throughout the chapter, research regarding current transition practices and outcomes for students with intellectual disability is discussed as well as evidence-based practices to support students with intellectual disability as they transition to post-school.

Details

Special Education Transition Services for Students with Disabilities
Type: Book
ISBN: 978-1-83867-977-4

Keywords

Article
Publication date: 14 November 2023

Sajay Arthanat, Hannah Rossignol, Elizabeth Preble, Kali Grimm, Marguerite Corvini, John Wilcox, Semra Aytur and Marcy Doyle

Telepresence robots have gained prominence as a novel technological modality for mobile videoconferencing. Although the technology has mass appeal in the realm of telehealth and…

Abstract

Purpose

Telepresence robots have gained prominence as a novel technological modality for mobile videoconferencing. Although the technology has mass appeal in the realm of telehealth and patient–health provider communication, its integration in community living settings for older adults has not been extensively studied. The aim of this study was to gather the perspectives of residents, trainers and staff at a retirement facility on their experience with a telepresence robot during and following a five-week wellness program.

Design/methodology/approach

The study employed semi-structured interviews with ten stakeholders who were involved in the wellness program followed by a qualitative content analysis of the data. The Unified Theory of Acceptance and Use of Technology served as the interview framework to explore the facilitators and barriers to the implementation of the robot.

Findings

Independent coding of the data by the study investigators identified discrete as well as interconnected categories among the stakeholders. Residents expressed their changing ideation of the robot, affinity toward the technology, preference for human connection and future value. Perspectives of the trainers, the fellow residents (ambassadors) and staff pertained to their need for increased engagement, growing comfort with the technology, usability challenges and importance of coordination and training.

Originality/value

Older adults' outlook and comfort with telepresence robots improve with continuing exposure to the technology for healthcare and social connectivity needs. However, in-person care is also preferred initially and periodically to engage with their health providers meaningfully and effectively via the robot. To address long term feasibility and usability, the authors propose a hierarchical approach when integrating telepresence robots in community living facilities for older adults. Information technology education, staff training and reliable internet connectivity are the precursors to optimizing the value and perceived usefulness of the technology.

Details

Journal of Enabling Technologies, vol. 18 no. 1
Type: Research Article
ISSN: 2398-6263

Keywords

Article
Publication date: 9 November 2010

Camilla Parker

In March this year the European Coalition for Community Living published Wasted Time, Wasted Money, Wasted Lives… A Wasted Opportunity? This reported on how the current use of…

Abstract

In March this year the European Coalition for Community Living published Wasted Time, Wasted Money, Wasted Lives… A Wasted Opportunity? This reported on how the current use of European Union Structural Funds perpetuates the social exclusion of disabled people in central and eastern Europe by failing to support the transition from institutional care to community‐based alternatives. This paper summarises its key findings and recommendations.

Details

Tizard Learning Disability Review, vol. 15 no. 4
Type: Research Article
ISSN: 1359-5474

Keywords

Article
Publication date: 20 April 2009

Charles Lowe

This paper is an argument for a more holistic approach to independent living. Telecare and telehealth, as these services are being delivered in practice, risk increasing the…

Abstract

This paper is an argument for a more holistic approach to independent living. Telecare and telehealth, as these services are being delivered in practice, risk increasing the isolation of vulnerable people. Though undesirable in its own right, this isolation often leads to depression, which in turn typically increases the costs of medical treatment substantially. The resultant lack of mental stimulation also creates the conditions for earlier onset of dementia. Finally, loss of identity exacerbates both depression and lack of stimulation. To overcome these problems, the technology should also be used to encourage users of telecare and telehealth to maintain and grow their engagement with wider society and to promote ‐ rather than restrict ‐ their mobility.

Details

Journal of Assistive Technologies, vol. 3 no. 1
Type: Research Article
ISSN: 1754-9450

Keywords

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