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This study examined access to and quality of supports for families of adolescents with disabilities.

An online survey was completed by family members of transition-aged young adults who had participated in parent training sessions on topics related to transitions to adulthood. Survey responses came from all 50 states, the District of Columbia, and 4 U.S. territories.

More than one-third of families reported unmet information needs related to areas such as employment, housing, preparing for adult relationships, and preparing others to support the family members with disabilities. Families of younger transition-aged youth, youth with Autism Spectrum Disorder or other disabilities, and families with lower household incomes reported more unmet needs. The overall quality of services families reported receiving was 2.19 on a 4-point scale of 1 to 4. Parents reported needing more information and quality of supports related to the transition of youth from school to adulthood.

Given the scope of unmet needs, ongoing collaboration between schools, agencies, organizations, and other entities that serve families is critical. While schools play a key role in supporting the transition process, other organizations also have a role.

The results from this survey demonstrate that the need for support is not limited to youth with disabilities, but that family members also have information and support needs related to their roles as caregivers in the transition process.

This survey provides information about unmet needs and current services from a national sample that includes often underserved populations and includes sufficient numbers of respondents to allow comparisons between families, based on the type of disability their family member had.

This chapter explores the parental experiences of 21 mothers of young and/or adult children who have been diagnosed with developmental disabilities (DD). Specific attention is paid to mothers’ reflections on marginalization, stress, and resiliency. Intersectionality of marginalization was explored with a select number of participants who identified with minority racial groups, with the LGBTQ community, and/or as a single or young mother. Data were collected via semi-structured interviews and analyzed using the constant comparative method. Eighteen mothers reported experiencing elevated levels of stress specifically related to challenges associated with DD; the need for greater investments of time and money was emphasized. However, nearly every participant highlighted stories of resilience and acclimation to these challenges associated with raising a child with DD. Thirteen mothers overtly discussed experiences of discrimination and marginalization. Some of these scenarios included being stared at or criticized in public, being excluded from social events, and facing discrimination within school settings. Select participants from marginalized backgrounds (being as a young parent, or as Black, single, lesbian, bisexual, and/or transgender) provided insight into how layers of marginalization negatively impacted their parental experiences. These personal accounts provide additional evidence that mothers of children with DD experience courtesy stigma. In addition, they provide a holistic illustration of motherhood experiences that does not center on only negative or positive aspects. Finally, the reports of mothers who identified with multiple marginalized identities strengthen the call for additional empirical focus on intersectionality as it concerns mothers of children with DD.

Barriers to employment are a significant issue in the United States and abroad. As civil rights legislation continues to be enforced and as employers seek to diversify their workplaces, it is incumbent upon the management field to offer insights that address obstacles to work. Although barriers to employment have been addressed in various fields such as psychology and economics, management scholars have addressed this issue in a piecemeal fashion. As such, our review will offer a comprehensive, integrative model of barriers to employment that addresses both individual and organizational perspectives. We will also address societal-level concerns involving these barriers. An integrative perspective is necessary for research to progress in this area because many individuals with barriers to employment face multiple challenges that prevent them from obtaining and maintaining full employment. While the additive, or possibly multiplicative, effect of employment barriers have been acknowledged in related fields like rehabilitation counseling and vocational psychology, the Human Resource Management (HRM) literature has virtually ignored this issue. We discuss suggestions for the reduction or elimination of barriers to employment. We also provide an integrative model of employment barriers that addresses the mutable (amenable to change) nature of some barriers, while acknowledging the less mutable nature of others.

Using Andersen’s (1968) behavioral model of health services use as a guiding conceptual framework, this study examined how receipt of family-centered care relates to the perceived family challenges for families of children with autism spectrum disorder (ASD).

Data from the 2009–2010 National Survey of Children with Special Health Care Needs (NS-CSHCN) were analyzed for 812 parents of children with ASD.

Multiple regression analyses provided substantive statistical evidence that a child’s race, the adequacy of a family’s insurance, and the stability of child’s health care needs significantly contributed to predicting his or her receipt of family-centered care. Further results suggested a relationship between receipt of family-centered care and the perception of challenge for these families; families receiving family-centered care perceive fewer challenges and feel less unmet need for child health services.

Family-centered professionals provide critical voices in the development of policies and programs geared toward improving the health outcomes of children with ASD and their families.

This chapter explores the relationship between disability identity, civil rights, and the law. Twenty-five years after the passage of the Americans with Disabilities Act, the question remains why disability rights legislation does not go far enough toward addressing access, stigma, and discrimination issues. People with disabilities have found empowerment from disability rights laws, but these laws are also restrictive because they define people in relation to medical aspects of their disabilities and narrowly define society’s obligation for inclusion. The successes and failures of disability rights laws are an important contribution to the study of conceptions of difference.

Purpose – The notion of output (Bouckaert, 2005; OECD, 2007) is more and more widespread in the performance measurement systems in the public sector. More generally, several reforms are promoting the implementation of key indicators such as management by objectives and quality management.

Our study introduces a first reflection about a performance measurement model of output based on the Theory of Constraints (TOC) in one public administration. The particularity of our model is the combination of theoretical design and practical implementation. Thus, an adjustment stage has been achieved in order to reach a realistic and sturdy model. It is also an opportunity to test the TOC indicators system, which is becoming prevalent in research activities (Davies & Mabin, 2009).

Methodology/approach – First of all, we present a literature review, which associates the concept of output, the TOC, and the notion of performance in a public administration. After that, we explain the design stage to define the key performance indicators.

During a two-month test phase, this measurement system was implemented in one public administration in Luxembourg; data were collected to draw up a dashboard. Subsequently, the model was adjusted in order to fit with the practice and observed cases.

Findings – We consider the limits of this measurement system, especially on certain aspects like the compliance with law. Furthermore, we show the major contribution of our model based on the TOC, which is to move from one local optimum to a global optimum.

Originality/value of paper – Thus, this publication highlights a model of performance measurement in a public administration, and the results of its implementation. It emphasizes the practical value of these indicators, the decision-making efficiency, and the appropriate level of use. The measurement model based on the TOC had a high interest for operational as well as for the managerial staff.

The purpose of this chapter is to present key characteristics of early reading text by describing a new series of researcher-developed early reading books that were specifically designed to address multiple criteria, including word structure or decodability, familiarity, repetition, high-frequency, syntax, and text cohesion. We describe the theoretical and empirical rationale that guided the design of the books, how we developed them, and their key features. This is followed by a technical analysis that describes the (1) characteristics of the target words used to guide the writing of the books and (2) characteristics of the text, such as the percentage of words on common high-frequency word lists, word counts, type-token ratio, sentence counts, unique sight words, unique decodable words, and content (i.e., picture-supported) words. The analysis demonstrates that the target words and the text in the books are consistent with our intended goal of simultaneously addressing multiple variables.

Most definitions of learning disabilities (LD) include a qualification that adequate general education instruction was received and the child with LD did not benefit. Rarely is this tenet assessed in either practice or research before a diagnosis is made. In this chapter we review three studies that investigated children’s responsiveness to general education reading instruction as an indicator of the need for more intensive interventions. Adequacy of instruction was quantified by children’s level and rate of progress as measured by curriculum-based measures of oral reading fluency. This model of identification was based on Fuchs and Fuchs (1998) treatment-validity model wherein children who do not respond to interventions provided in the general education classroom are potential candidates for special education services. The results of the studies reviewed indicate that the model is valid in that: (a) children who differ from their peers on level and slope of performance have more severe academic and behavioral problems than children who have IQ-achievement discrepancies or low achievement; (b) children who demonstrate persistent non-responsiveness over three years differ from other at-risk children on reading, reading-related, and behavioral measures; and (c) at-risk children who participated in specially-designed general education interventions had better outcomes than at-risk children who did not participate.

Using the same checklist as that in the previous chapter, this chapter evaluates the current status of policy initiative on incorporating climate disaster risk aspects in local development planning in Costa Rica. The chapter identifies opportunities and challenges of this local initiative for reducing climate disaster risk. In addition, the study discusses the influence of national policy on local development planning.