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As digital natives, young adults have been found to consider themselves to have good information literacy skills, when in fact many do not. Past research indicates that not only do young adults rely heavily on information obtained from the web and social networks, but also that they may not be able to judge the authenticity, validity, and reliability of digital information, and may share misinformation among themselves. This can be particularly problematic in the context of health information. Two complementary research studies investigated young adults’ information needs and information seeking in support of their personal well-being, and in comparison to academic and other everyday-life information domains. Results show that young adults consider a range of factors as part of their well-being; these include physical and mental health, spirituality, social connections, and financial stability. They engage in information seeking (active and passive) in support of all of these factors. While they were able to identify information resources as more or less credible, they did not necessarily choose highly credible resources most frequently. Interestingly, they did not use social media sources frequently in the context of health information, choosing to deliberately maintain a degree of privacy with respect to health. While there is evidence of some information literacy skills, there remains a need for further and more extensive information literacy education. This should be addressed by librarians from academic, consumer health, public, and school libraries.

Researchers have spent considerable time studying how racial-ethnic minorities experience poorer health than whites [Townsend, P., & Davidson, N. (Eds). (1990). Inequalities in health: The black report. England: Penguin Press; Platt, L. (2006). Assessing the impact of illness, caring and ethnicity on social activity. STICERD Research Paper No. CASE108 London England), and how low socioeconomic status (SES) can negatively influence health status (Lynch, J., & Kaplan, G. (2000). Socioeconomic position. In: L. F. Berkman & I. Kawachi (Eds), Social epidemiology (pp. 13–55). New York: Oxford University Press]. This research investigates the relationship between class and race and perceived health status among patients with chronic conditions. More specifically, we apply the concept of social capital to assess whether the quantity of health information seeking behaviors (HISB) via social networks mediates the relationship between race and health status, and between SES and health status. Regression, t-test and ANOVA analyses of 305 surveys completed at a chronic illness management clinic in a Northwest research hospital reveal three important findings: first, that social class affects perceived health status more strongly than race; second, that frequency and amount of HISB do not play a significant role in perceived health status, regardless of race or SES; and third, that an interaction effect between frequency and amount of HISB suggests that the way that patients seek health information, and the quality of that information, may be more useful indicators of the role of social capital in HISB than our study can provide.

Purpose: The aim of the study is to consider the use of the Internet as a potential facilitator of positive health-related perceptions. Specifically, we propose that online health information seeking fosters positive perceptions of health. Using path modeling, we theorized several mechanisms through which information seeking could be conducive to positive health perceptions, which we conceptualized into the following four dimensions: (1) sense of empowerment in managing health, (2) self-reported ability to take better care of health, (3) sense of improved health-related quality of life, and (4) self-reported improvement of health.

Methodology: Our sample consisted of respondents who have used the Internet as a resource for health information (n = 710), drawn from the largest national probability-based online research panel. Our comparison subsample consisted of older respondents (age ≥ 60; n = 194). We used Internet-specific measures and employed structural equation models (SEM) to estimate the direct, indirect, and total effects of health-related use of the Internet on subjective health perceptions. Based on our review of the literature, competent health communication with healthcare providers and sense of empowerment in managing personal health were modeled as mediator variables. We assessed whether the proposed mediational relationships, if significant, differed across our indicators of positive health perceptions and whether any differential associations were observed among older adults. We run parallel models for each indicator of positive health perception.

Findings: Provider-patient communication informed by the Internet resources were perceived to impart a greater sense of empowerment to manage health among our respondents, which in turn, was associated with perceived contributions to better self-reported ability to provide self-care, increased health-related quality of life, and improvement in self-reported health. The SEM results revealed a good fit with our full sample and subsample.

Research Implications: Conceptualization of the multidimensional aspects of online health information seeking with separate multi-indicator analyses of the outcome variable is important to further our understanding of how technology may impact the pathways involved in influencing health perceptions and as a result health outcomes.

Purpose: For deaf people who use American Sign Language (ASL), including cancer survivors, there are documented reports of difficulties in accessing and understanding health information. More than five years ago, a local breast cancer knowledge study with deaf signers found that only 23% of this sample cited the Internet as a source of health information. More research is needed to understand the current trends of a nationwide adult sample of deaf people’s experience with seeking and understanding health information across technology-mediated platforms.

Methodology/Approach: The Health Information National Trends Survey in American Sign Language survey included sections on health status, Internet use, and social media. We used several approaches to recruit deaf people across the USA, including Hawaii, Alaska, and Puerto Rico. The survey was administered online, in person, or through videophone. Following data cleaning, we conducted multiple logistic regression analyses, controlling for demographic factors associated with eHealth-seeking behaviors. The outcome variables of interest were Internet use and sharing health information on social media.

Findings: A total of 713 deaf people in USA (M = 49 years old; SD = 19) provided informed consent and took the survey. Half of the participants had a college degree. Twenty percent of the sample included those who self-identified as lesbian, gay, or bisexual and 38% who were people of color. White, educated, or younger deaf adults were more likely to cite the Internet as the first source of health information. Although all sub-groups were comparable in using social media, younger or ASL/English bilingual deaf adults were more likely to actively share health information through social media. While perceived trust in health information on the Internet did not differ across subgroups within the deaf sample, frustration in finding and understanding information was strongly linked to increasing age as well as those who prefer using ASL only. Users of YouTube for health-related information were likely to be younger or female.

Conclusions: Deaf users of eHealth information are diverse in terms of language usage, which affects their perception of accessing and using health information across technology-mediated platforms. While using YouTube for health appears to be accessible to deaf people, further improvements are needed to make health information sharing through social media inclusive of people who prefer ASL only. The addition of multimodal delivery features (text, audio, and video) in social networking sites has the strong potential to improve health information access and inclusion for all groups, including deaf ASL users. To make online health information inclusive of all groups, materials need to be accessible and easy to understand by all groups.

This chapter introduces the focus of this volume – the many ways in which libraries and librarians are helping to increase people’s health literacy and reduce health disparities in their communities. The rampant and rapidly increasing health injustices that occur every day throughout the world are, in large part, caused and exacerbated by health information injustice – something which libraries and librarians are playing an instrumental role in addressing by ensuring the physical and intellectual accessibility of information for all. This chapter opens with an introduction to the central concepts of health justice and health information injustice, focusing on the many information-related factors that shape the degree to which individuals have the information they need to be able to have a sufficient and truly equitable chance to live a long and healthy life. Next, the authors present a timely case study to emphasize the importance of health information justice, looking at the dire importance of health literacy as we navigate the COVID-19 pandemic. The authors then provide a brief glimpse into their 13 contributed chapters, grouped into five categories: (1) Public Libraries/Healthy Communities; (2) Health Information Assessment; (3) Overcoming Barriers to Health Information Access; (4) Serving Disadvantaged Populations; and (5) Health Information as a Communal Asset. In conclusion, the authors discuss their aims for this volume, particularly that readers will become more aware of librarians’ efforts to address health disparities in their communities and excited about participating in and expanding these efforts, moving us closer to health justice.